A Place of Yes | A Grief Podcast: How Adaptive Equipment Changed My Son’s Life

Episode: How Adaptive Equipment Changed My Son’s Life
Release Date: May 22, 2025

Introduction

In the deeply moving episode titled "How Adaptive Equipment Changed My Son’s Life," host Heather of Bright Sighted delves into the transformative journey of Amelia Lawrence and her son, Leo. This episode, facilitated by Freedom Concepts and Jake’s Help From Heaven, highlights the profound impact that adaptive equipment can have on families navigating the challenges of pediatric disabilities. Through Amelia’s heartfelt narrative, listeners gain insight into the resilience, love, and unwavering hope that define her family's path.

Amelia’s Story: A Mother’s Journey Through Tragedy and Triumph

Amelia Lawrence opens up about her life as a mother to two children: Scarlet, a typical and energetic four-year-old, and Leo, her “rare warrior.” She shares the harrowing circumstances surrounding Leo's early life, marked by severe medical challenges that would forever alter her family's trajectory.

Amelia Lawrence [00:00]: “To say I don't grieve for what could have been would be an absolute lie. I would love it if I could hear my son sing Jingle Bells or hear the way my name sounds or the way his name sounds. Or I get glimpses on his good days. But they're very, very small, very quiet glimpses.”

Leo was born after a stressful pregnancy but initially appeared healthy. However, at just two weeks old, he began experiencing seizures and turned blue, leading to a diagnosis of meningioencephalitis—a deadly brain infection if not treated promptly.

Amelia Lawrence [05:31]: “Leo was born typical developing, stressful pregnancy, but, you know, good things are worth all that... he started seizing and turned blue.”

Facing skepticism from her ex-husband and medical professionals, Amelia's maternal instincts drove her to seek immediate medical attention, ultimately saving Leo’s life.

Coping and Adjustments: Navigating a 10-Week Hospital Stay

Amelia recounts the intense 10-week hospitalization period where Leo battled multiple health crises, including seizures, a stroke, and necrotizing enterocolitis. During this time, Amelia had to remain strong for her family, relying on her own experiences with illness to endure the emotional and physical toll.

Amelia Lawrence [07:11]: “My mom made me brave when all of this stuff was going on because I was really sick when I was little.”

The decision to enter a medically induced coma for Leo underscored the gravity of his condition. Throughout the ordeal, Amelia had to balance holding back her tears while making critical decisions to ensure Leo's survival.

Finding Adaptive Equipment: The Path to Empowerment

Upon Leo’s discharge, Amelia and her husband Ashley faced the daunting task of integrating adaptive equipment into their daily lives. Their search for suitable adaptive bikes and chairs led them to Freedom Concepts, a company renowned for their customized solutions for children with disabilities.

Amelia Lawrence [28:45]: “It took about three months, but through that whole process, that company checked in on me, texted me, emailed me, asked me if I had questions, asked if I felt good about the process... They still check in on us to make sure we're okay.”

Amelia describes her initial struggles with finding reliable and safe adaptive bikes, including failed attempts with rusted and unsuitable options. Her encounter with Freedom Concepts marked a turning point, as the company demonstrated genuine care and commitment to meeting her son's unique needs.

Impact of Adaptive Equipment: Transforming Lives and Families

The adaptive bike provided by Freedom Concepts allowed Leo to participate in triathlons and adaptive sports, fostering a sense of normalcy and inclusion within his family. The bike’s design included features like hand steering and robust braking systems, ensuring both safety and enjoyment.

Amelia Lawrence [31:55]: “He's currently sitting in it playing as a Nintendo Switch. We homeschool him now because of the epilepsy... The chill out chair has a five-point harness in it that kind of holds him more upright.”

In addition to the bike, the Chill Out Chair became a sanctuary for Leo, offering him stability and safety during meals and play. This chair not only accommodates his medical needs but also enhances his quality of life by allowing him to engage in everyday activities with dignity.

Amelia Lawrence [35:58]: “If you can get them supported, like... sitting at the table with my son, who asked me to cut this peanut butter and jelly sandwich in half and eat it with him, I'm like, yep, that's what we're doing.”

These adaptive tools have not only empowered Leo but have also strengthened the bonds within Amelia’s family, enabling shared experiences that might have otherwise been impossible.

The Role of Freedom Concepts: A Beacon of Support and Customization

Freedom Concepts stands out in the realm of Durable Medical Equipment (DME) providers due to their personalized approach and unwavering support. Unlike other companies that may prioritize protocols over individual needs, Freedom Concepts invests time and resources into understanding each child's unique situation.

Amelia Lawrence [39:03]: “Freedom Concepts... wanted to hear from me and my kid. They wanted to talk to us about what we needed first and about how they could help us get it.”

Their dedication is evident in the meticulous customization of equipment, ensuring that each product addresses the specific medical and personal requirements of the child. This personalized care extends beyond the initial provision of equipment, with continuous follow-ups and support to guarantee satisfaction and effectiveness.

Conclusion: Embracing a Place of Yes

Amelia Lawrence’s story is a testament to the resilience of the human spirit and the transformative power of compassionate support. Through the provision of adaptive equipment by Freedom Concepts, Amelia and her family have been able to reclaim moments of joy, participation, and togetherness that were once out of reach.

Amelia Lawrence [37:17]: “With his sister, got to chase an ice cream truck and get a SpongeBob Pop.”

Heather and Amelia emphasize the importance of accessible, individualized solutions for families dealing with similar challenges. The episode underscores the significance of companies like Freedom Concepts, which not only provide essential tools but also restore hope and enable families to thrive amidst adversity.

Final Thoughts

This episode of "A Place of Yes" beautifully encapsulates the intersection of grief, resilience, and the indomitable will to create something positive from unimaginable hardship. Amelia Lawrence’s journey, supported by Freedom Concepts, serves as an inspiring example of how adaptive equipment can fundamentally change the lives of children with disabilities and their families.

For those seeking guidance, support, or simply a story of hope, this episode offers invaluable insights into the profound impact of personalized care and unwavering support.

Notable Quotes:

• Amelia Lawrence [00:00]: “To say I don't grieve for what could have been would be an absolute lie...”
• Amelia Lawrence [05:31]: “Leo was born typical developing, stressful pregnancy...”
• Amelia Lawrence [28:45]: “It took about three months, but through that whole process, that company checked in on me...”
• Amelia Lawrence [31:55]: “He's currently sitting in it playing as a Nintendo Switch...”
• Amelia Lawrence [37:17]: “With his sister, got to chase an ice cream truck and get a SpongeBob Pop.”

Thank you for listening to "A Place of Yes." Please follow us wherever you listen to podcasts and share this episode with friends to help spread the word about the invaluable support available through organizations like Jake’s Help From Heaven and Freedom Concepts.