
Laura, 45, a social worker and mom of two, shares her oldest daughter’s type 1 diabetes and celiac diagnoses, premature births, and a birthday spent in the hospital. * smart meter and CONTOUR DIABETES app or call 888-721-1514 ...
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Scott
Friends, we're all back together for the next episode of the Juice Box Podcast. Welcome.
Laura
So my name is Laura. I'm from upstate New York and I have two beautiful daughters. My oldest daughter is type 1 diabetic and I am a social worker.
Scott
If this is your first time listening to the Juice Box Podcast and you'd like to hear more, download Apple Podcasts or Spotify, really any audio app at all, look for the Juice Box Podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management? Go to juiceboxpodcast.com up in the menu and look for Bold Beginnings, the Diabetes Pro Tip series and much more. This this podcast is full of collections and series of information that will help you to live better with insulin. Please don't forget that nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. This episode of the Juice Box Podcast is sponsored by the Omnipod 5 and at my link omnipod.com juicebox you can get yourself a a free. What I just say? A free Omnipod 5 starter kit. Free. Get out of here. Go click on that link omnipod.com juicebox check it out. Terms and conditions apply. Eligibility may vary. Full terms and conditions can be found@ omnipod.com juicebox links in the show notes links@juiceboxpodcast.com today's podcast is sponsored by usmed usmed.com juicebox you can get your diabetes supplies from the same place that we do and I'm talking about Dexcom Libre, Omnipod Tandem and so much more. Usmed.com juicebox or call 888-721-1514. The episode you're about to enjoy was brought to you by Dexcom. The Dexcom G7, the same CGM that my daughter wears. 20. You can learn more and get started today at my link dexcom.com juicebox so.
Laura
My name is Laura. I'm from upstate New York and I have two beautiful daughters. My oldest daughter is type 1 diabetic and I am a social worker.
Scott
Laura, nice to meet you.
Laura
Thank you.
Scott
Thank you for coming on and doing this.
Laura
Absolutely.
Scott
Two kids. How old are they?
Laura
Two kids? They are seven and nine.
Scott
Seven and nine. Wow. How old are you?
Laura
45.
Scott
Congratulations. That's a lovely little family.
Laura
Yeah. Thank you.
Scott
Yeah, very nice. How old was the one who got type one when she was diagnosed?
Laura
So it would be the Nine year old. And she was actually. It was her third birthday. She spent her third birthday in the hospital.
Scott
Oh, gosh. Six years ago.
Laura
Yeah. Almost seven.
Scott
Almost seven. Okay.
Laura
Yeah, Yep.
Scott
What precipitated the hospital visit?
Laura
The typical signs, like drinking a lot, using the bathroom a lot, soaking through her diapers. And the night before we actually took her in, I was like telling my husband because I'm like a big Googler. So I was like, don't Google it because it says diabetes. And we kind of like chuckled because I'm also like, I think of the worst case scenario. So in that case, it was actually right. But so we took her in the next day. I think I was going to take her to the walk in. Yeah, I was going to take her to the walk in and she was with Grandpa and Grandpa was like, she's complaining her legs hurt. She's not acting right. So we took her to the doctors that day and they did a urine test and the doctor came in and was like, what's up with her sugar? It's really high. And I was like, what? Oh, my goodness. The rest was kind of history. So next thing we know, we were actually. I think I must have been in denial because I went back to work and my husband took her to the emergency room and they did the blood test there and her blood sugar was 978.
Scott
Oh, my gosh.
Laura
Yeah. Crazy. So they ended up going to the nearest children's hospital, which was an hour and a half away. And he's trying to contact me and I'm a social worker, so I was in sessions and I didn't check my phone, knowing all of this was going on. I think I was like in a state of denial. I was like, no, it's not. She's fine. And then he's like, we're an hour and a half away. What are you doing? So I had to go up to go join them and that was kind of the start. And that was like right before her third birthday. So she was in the hospital for her third birthday.
Scott
Was your youngest even around at that point?
Laura
Yes, she was. Yeah. So I had to make arrangements for her. Yep.
Scott
But she's a baby, right?
Laura
Yeah.
Scott
Not that the three year old's not a baby still, but.
Laura
Yeah, yeah, yeah, yeah.
Scott
Wow.
Laura
Yep. She was very, very little. Yep.
Scott
There any sign of other autoimmune issues or type 1 diabetes in your extended family?
Laura
Well, my husband's side has Hashimoto's. My husband's celiac. My daughter's also celiac as well. And on my husband's side, there's also Graves disease.
Scott
They have Graves. Hashimoto's and Celia.
Laura
Yes. Yeah. I wish I would have known that before I married them.
Scott
No, Laura's. Like, there were other boys talking to me.
Laura
Yep. And I just didn't know that until I started listening to your podcast that all these things, I was like, oh, my goodness. It was, like, just waiting to happen. Yeah.
Scott
I'll tell you right now, if you've got type one and your boyfriend's family's running to the bathroom after they eat, just pick a different guy.
Laura
Right? Yeah. Yep. Absolutely. Yep. Very true.
Scott
What's your remembrance of the time in the hospital?
Laura
It was okay. I was trying to sit down last night and think about things, and I think it's kind of a blur because there's a lot of medical stuff that I can even talk about prior to the type one. So we had been at the hospital like, a year before when she was almost 2. She had to be airlifted, actually, from our local hospital because she had a respiratory virus that sent her, like, took her to the walk in. And while we were at the walk in, her lip turned blue. And all of a sudden we're in an ambulance. They're bringing us to the hospital. It was crazy. And she ended up being intubated when she was almost 2 years old.
Scott
Oh, goodness.
Laura
And airlifted so that it was the same hospital. So here we were, like, a year later, you know, with a new diagnosis, you know, diabetes. And I was like, oh, my goodness. So it was a little bit traumatizing just being there after, you know, a year prior, we had this, you know, helicopter experience that we were later had to fight a bill of, like, $65,000, which we got all of that resolved. But, you know, it had just been a long year of trying to fight that.
Scott
It cost $65,000 to fly on a helicopter.
Laura
Yeah, apparently. Yeah.
Scott
That seems crazy.
Laura
Yeah. Yep. My husband's a very low key kind of guy, but he panicked. He's like, how the heck are we gonna pay $65,000 for this, you know, air flight? And I was like, we're not. We're gonna fight it, you know, and we did. And it took a long time, but so it had been a whole year of just getting over that. That was very traumatizing, you know, just that whole experience. And then here we are at the same hospital, you know, doing something different. And I was glad that she went. She wasn't, thankfully, in dka, but I think she was in the start of it. Cause her A1C was like 12.4. They told us so.
Scott
Wow. No kidding.
Laura
Yes, I know. Yeah.
Scott
What were her symptoms that day? Like, the day you were like, hey, something's wrong.
Laura
Well, grandpa was saying her. She was complaining her legs were hurting okay. But it was just leading up to it, you know, just a lot of the excess thirst was, like. And then soaking through her. She wasn't potty trained yet, but just soaking through her diapers.
Scott
Wow. That's something. So, yeah. So they get her straight, right? How long is she in the hospital for?
Laura
It was only a few days. Yeah, we actually had. My other daughter was getting baptized that Sunday, and I think she was in the hospital that Thursday. So we were there Thursday night, Friday, Saturday, and they released us Saturday.
Scott
You still did the baptism?
Laura
Oh, yeah, we did. Yep. We sure did.
Scott
Are you Catholic?
Laura
My husband is.
Scott
I was gonna say it's the most Catholic thing I've ever heard in my life. Yes.
Laura
Yeah. Yeah. Well, you know, the endocrinologist said, go do it. Just do it. Live a normal life. So there we were, you know, and we went out of the hospital. We were MDI for probably about a year. So we were giving her shots, poking her finger, doing all the things, like, newly diagnosed. It was kind of a crazy.
Scott
Yeah, go live a normal life. Like, oh, yeah. I don't know if you realize my three year old just got type one. Yeah.
Laura
Yeah.
Scott
Not gonna be all that normal, but okay, thanks.
Laura
Yeah. And I remember being at the hospital being very overwhelmed, like, just throwing all this information. I'm terrible at math. And I remember we were trying to do the numbers, and I kept getting it wrong. And I wasn't too happy with the diabetes educator that we had. She. I thought, was a little harsh in the hospital. Yeah. Yeah. She wasn't my favorite, but what struck you as harsh? I think because, first of all, I was hungry, so I felt like my blood sugar was dropping myself because I hadn't eaten in a while. And I was like, can we take a break? And she's like, no, we have this allotted time. You got to do it, you know? And she just threw a lot of information at us. I felt like in. Not in a very kind way either. You know, it was more informational. But there. I didn't feel like there was any sensitivity to the fact that, like, we.
Scott
Just been through all this.
Laura
Yeah, right.
Scott
It felt cold.
Laura
Yes. Yes, it did. Definitely.
Scott
You're like, I need a hard pretzel. And she's like, too bad, lady. We got 45 minutes.
Laura
Right? Right. Yeah.
Scott
Sit down. I'm gonna tell you a bunch of stuff that you're not gonna remember that's not gonna end up being that helpful anyway.
Laura
I know, right? It's very true. Yeah.
Scott
You said you like to Google. So six years ago, how did you launch into all this? It's not from what she talked to you about, apparently, no.
Laura
And actually, it took me a while. My husband took on a lot of the care initially, I think, because I had a baby. When my daughter was initially airlifted. I was pregnant with my second daughter. And while we're at the hospital, I was like, geez, something doesn't feel very right. But I was like, I got to just be here for my older daughter. And so then I got back after she was finally getting better, and I went to my OB and I found out that I had low amniotic fluid. So they ended up sending me to the hospital a few days later, and I was on bed rest at the hospital for two weeks before my second daughter came. Who came?
Scott
That, like, making pasta with not enough water in the pot or, like, how does that work? Like, what happens?
Laura
Yeah, well, it's just. So I had what's called intrauterine growth restriction for both of my girls. Both of them were born early. The oldest one, who has diabetes, was. Was born four weeks early. She was very sick from the very beginning. She was in the NICU for 30 days.
Scott
How premature was she?
Laura
Four weeks. Four weeks, yes. So she. Yeah, I think she was, like, £4. So many ounces. Yeah, she's little, but not as little actually, as my second one. But she had a lot of respiratory issues from the very beginning, the first couple days of her life. We couldn't even, like, touch her. She was so fragile that they put signs, you know, in her little incubator thing that said, please do not touch because she was so fragile.
Scott
Wow. When you said she was sick from the beginning, what else happened?
Laura
Well, it was basically the respiratory stuff, right? So I pretty much went to my normal OB appointment, and I was getting an ultrasound, and the lady's like, when are you gonna go see your doctor? And I was like, well, I think I have an appointment in a couple of days. Next thing I know, my doctor comes in and is saying, nope, you got to go to the hospital right away. So it was. Everything happened so fast. It was an emergency C section. You know, they took her. Then she ended up being in the NICU for 30 days. So it was a lot of back and forth, you know, 30 days of not Being able to bring your baby home, which is heartbreaking, and not even being able to touch her the first few days was also very hard.
Scott
Yeah. Other women in your family have trouble giving birth. There's no familial thing there.
Laura
No. Yeah.
Scott
Were you older than you would have liked to have been when you got pregnant? I don't like. What's the math on that? Is that part of it?
Laura
I was 35. Yes. Yeah. My husband, we'll just throw him under the bus for everything. He'll love it when he listens to it later. No, my husband's a little bit younger than me, like four years younger than me, so I wanted to get married and start a family. And he was, you know, a little bit younger, so I think we dated probably four years before he proposed. And that probably was a little bit longer than I would have liked.
Scott
But he dug into your good years. Is that what he did?
Laura
Yep. So I had my first one at 35.
Scott
See how smart that is of him? He holds you a little. I almost said past your expiration date, but I don't mean that he holds you a little longer. So you're limited in your options now. You have to say yes to him when he asks you.
Laura
Yeah, right.
Scott
Look at him. Smart.
Laura
Yep. Yep. And then I should have asked him his family history because then all this comes out.
Scott
No, I said, why does your uncle's eyes pop out like that? I need to understand a little better. Oh, well, how about the, you know, the six years since, like since the diagnosis. Has she been on a better track or has she still been suffering with issues? The Dexcom G7 is sponsoring this episode of the Juice Box podcast and it features a lightning fast 30 minute warmup time. That's right from the time you put on the Dexcom G7 till the time you're getting readings. 30 minutes. That's pretty great. It also has a 12 hour grace period, so you can swap your sensor when it's convenient for you. All that on top of it being small, accurate, incredibly wearable and light. These things, in my opinion, make the Dexcom G7 a no brainer. The Dexcom G7 comes with way more than just this. Up to 10 people can follow you. You can use it with type 1, type 2, or gestational diabetes. It's covered by all sorts of insurances. And this might be the best part. It might be the best part. Alerts and alarms that are customizable so that you can be alerted at the levels that make sense to you. Dexcom.com juicebox links in the show notes links@juiceboxpodcast.com to Dexcom and all the sponsors. When you use my links, you're supporting the production of the podcast and helping to keep it free and plentiful. Today's episode is brought to you by Omnipod. Did you know that the majority of Omnipod 5 users pay less than $30 per month at the pharmacy? That's less than $1 a day for tube free automated insulin delivery. And a third of Omnipod 5 users pay $0 per month. You heard that right. Zero. That's less than your daily coffee for all of the benefits of tubeless, waterproof automated insulin delivery. My daughter has been wearing an Omnipod every day since she was 4 years old and she's about to be 21. My family relies on Omnipod and I think you'll love it. And you can try it for free right now by requesting your free starter kit today at my link omnipod.com Juicebox Omnipod has been an advertiser for a decade, but even if they weren't, I would tell you proudly, my daughter wears an Omnipod. Omnipod.com Juicebox terms and conditions apply. Eligibility may vary. Why don't you get yourself that free starter kit? Full terms and conditions can be found@.
Laura
Omnipod.Com juicebox oh yeah, so she had. Well, she's very small, so she has some growth issues, which part of that they say comes from the intrauterine growth restriction that I had. So basically that's your baby just can't grow in the womb. And that was a big part of why they had to take her out too. Cause I had low amniotic fluid with her, like severely low with her as well. So she's very tiny for her age. And we've, you know, talked about maybe doing like a growth hormone. But you know, for right now we're just kind of letting her be and she doesn't mind being so small.
Scott
So you contextualize that for me. How, like, how tall is she?
Laura
Well, so she, she'll be in fifth grade. She looks like she's about in second or third grade, I would say.
Scott
Okay. Is she thin on top of being short?
Laura
No, I mean, she's actually at a good weight. It's more her, her growth that they're just kind of watching. So she has had some growth testing done. And I mean, they said she was at the very lower end, but like her growth hormone does appear to be working. So that's a Positive thing. Also, the celiac can affect growth as.
Scott
Well, so hard to take in nutrients.
Laura
Yes, yeah, yep.
Scott
Any Hashimoto's or anything like that? Just the celiac.
Laura
Yeah, so far so good. Yeah.
Scott
Boy, that's interesting. And how about your other one? Is she small too?
Laura
Yes, she's. Yep, yep, same thing.
Scott
Are you?
Laura
I am, yes. I'm tiny as well. Yep. We're Italian. I'm Italian, so. Well, my father was born in Italy, so my dad's side, we're all very small.
Scott
Oh, no kidding. Oh yeah. You know, it's funny, I remember when, when my son was young, there was this 10 year old boy on his baseball team and he was a monster and like just so much bigger than the other kids and stronger, everything taller. I remember saying to his dad one time, wow, man, he might really pop up. And the guy, his absolute quickest, right off top of that answer, he goes, no, we're Italian. That's as big as he's gonna get. And I thought like, oh, I don't know what that means. Like, you know, because I didn't have a lot of context for it. But no kidding. I met that kid eight years later. He did not get much bigger.
Laura
Right, right. Yeah, yeah, really something else.
Scott
He's now the smallest adult I know.
Laura
Yeah.
Scott
But he was the biggest 10 year old I ever seen in my life.
Laura
Right.
Scott
How do you manage with diabetes? Like do they give you a set of instructions and some like, I don't know, they give you a pen, they give you CGMs, like what do you know about it? How do you learn more?
Laura
Right. So we initially were MDI for about a year, I would say, and a lot of that was our insurance. We were trying to think last night when she got the cgm. I would say probably about six months because I can remember doing like finger checks in the middle of the night for quite a while. And we were actually just looking at. My husband had recorded some of her when we had to log it on the little logs, like some of her numbers and we're like, whoa, she was high a lot. We were like, but you didn't know, like, you know, like in the middle of the night, you know, you were just like saying, oh, things got better. We didn't know in between what was happening, you know.
Scott
So you wanted a cgm, but your insurance was stepping in the way.
Laura
I don't even think we even knew really about it.
Scott
Yeah, well, what do you think was holding you back then? Like just the general knowledge. Like, so you were like, hey, I have a meter and I have these pens. And this is what diabetes is.
Laura
Well, right, because I'm a rule follower. So if they were telling me to do this, then you were gonna do. Yeah. And I think they were saying, your insurance will let you like in six months, get us and then get a pump after that. So we didn't even. We didn't know. We didn't know anybody with type 1. We didn't question anything.
Scott
Yeah.
Laura
You know, so we just went with it.
Scott
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Laura
Yeah, I can remember being at my daughter's Halloween parade and my husband's like, they just said, we can, you know, schedule our pump classes, so I'm going to do it, you know, and. And then, like, shortly after that, we had the pump class, which I didn't even go to. I think he went to that one. And then there we were.
Scott
Is that the setup for the family in general? Like, is he a little more hands on? Like, do you have a busy job? Like you? I mean, it's weird. Yeah, yeah. You know, I'm just wondering. Cause you've said twice now.
Laura
Yeah, no, I think because I was just in this state of. There was so much that had been going on, like, medically, you know, and I had my kids, you know, and then I had, you know, some. Probably some postpartum issues, I would say. So I think I was just kind of not with it for, like, several years, you know, it was like I got pregnant, had a baby, and then was nursing and all the hormones with that, and then, like, a year later get pregnant and then, like, starting again, you know? And then when I had. When I was pregnant with my second one, I ended up getting a blood clot in my leg. I know. Yeah. And it was all. This was all. After the older one had been airlifted.
Scott
Right.
Laura
So all this happened within, like, a month. It was just crazy. So I had to deal with that, you know, So I think it was just all of that, you know, we were just kind of surviving all of this other stuff. Yeah.
Scott
If I asked your husband, do you think he'd say, look, I couldn't have given her one more thing, like, yeah.
Laura
Oh, yeah. Yeah. So he was the one. A lot of times now it's kind of reversed. He was the one staying up in the middle of the night, you know, and just checking her finger a lot of times, you know, and just. He would go to all the appointments, you know, and for a while, there was Covid, so only one of us could go. And so I didn't really get involved as much. I knew the basics with her diabetes, I would say, until probably halfway through, you know, we're moving on to seven years now. And then I started really getting invested into it.
Scott
Do you think you just kind of lifted from a fog or.
Laura
I think so.
Scott
Really?
Laura
Yeah. Yeah. My other daughter ended up having hip dysplasia as well.
Scott
Jesus.
Laura
Because I know it was like all this stuff. She. Both of my girls were breech, and so we had them just evaluated, like, through early intervention because they were premature. And the physical therapist that was doing the evaluation actually noticed her hip and was like, did they ever have you do a, you know, a hip X ray? And I was like, no. And they're like, well, they should have. Because if she was breech, you know, breech babies are more likely to have this. And I was like, oh. So then we had her X rayed, and then, yep, she had hip dysplasia. So she had to have this big spica cast for quite a bit of time, and then we had to follow an orthopedic. Pediatric. Orthopedic doctor. And then it didn't stick. So Then we had to repeat the spike of cast like a year later. So there was just like a lot going on, like all the time that I think I just couldn't take on all of it at once, you know.
Scott
And you're a social worker on top of that, so you're also.
Laura
Yes.
Scott
You're professional. You're taking on everybody else's problems too.
Laura
Yeah, it's very true. Yes. Yep. Yeah.
Scott
The breech birth brings on the possibility of like dislocated hips. So I asked, like, what else does it do? It's interesting. Birth injuries, risk of broken bones, dislocated hip, nerve damage during vaginal delivery because of the head comes out last. Umbilical cord issues. It can become compressed or prolapsed. Head entrapments a possibility. Oxygen deprivation, hip dysplasia, respiratory problems. And delivery is. If delivery is prolonged, the baby may inhale fluids or struggle to breathe right away. Wow.
Laura
Crazy. Yeah.
Scott
Why did they come out? I wonder why I'm asking you.
Laura
I know, right? I know. I don't know. I'm like, geez, I guess my. That's why I'm like, I'm done with after two. Because I was like, geez, there's no more. Who knows what will be wrong with this If I had a third one ever.
Scott
We're getting a cat. That's it. We're done.
Laura
Yeah, yeah, yeah.
Scott
Factors related to the baby. I. Because I asked, like, why did breech birth happen? Prematurity is one rarely issue. Although abnormalities rarely. Issues with baby's brain, spine or muscles can affect movement and positioning. Excessive or limited movement. Some babies just move differently. Too much or too little activity in the uterus can affect the positioning on the mother's side. Uterine shape or abnormalities. Placenta previa. If the placenta is low lying or covering the cervix, it can block the baby from moving into the head down position. Oh. Amniotic fluid levels. Too much fluid gives extra room for the baby to move, sometimes leaving them in breach. Too little restricts the movement. Oh, so maybe when it's time to go head down, there's not enough room or something.
Laura
Yeah, yeah.
Scott
Isn't that something? Who would know? Well, I mean, I know who would know. The Internet knows, apparently.
Laura
Yeah. Wish I would have like done my Googling while I was here.
Scott
I'll be honest with you. That was AI. That wasn't Google.
Laura
Yeah.
Scott
Yeah. Okay. Well. Jesus. Well, you're alive. That's good news.
Laura
I know. Yes. And so the older one also has one more thing to Add to it.
Scott
No.
Laura
Come on. I don't even know how to pronounce it, but I'll give you it's E. O, E. So if you look that up, it's like basically inflammation in her esophagus. Oh, yes.
Scott
How long has that been?
Laura
That's been a few years. So she's had five. I can never say if it's endoscopies. She's had five of those. She now takes, like, an oral steroid that we, like, mix in with some applesauce that, like, sticks to her esophagus. And right now her, like, inflammation levels are pretty much non existent, so it seems to be working. But the oral steroid can also cause some growth issues, too.
Scott
Oh, that's unbelievable. Yeah, yeah. Eoe.
Laura
Yes.
Scott
Yeah, I'm looking at it right here. Chronic inflammatory condition of the esophagus. Common symptoms, trouble swallowing, especially solid foods. Food getting stuck in the throat or chest. Chest pain or heartburn not relieved by typical reflux. Treatment, Abdominal pain, nausea or vomiting. And children feeding difficulties. Failure to thrive. Picky eating linked to food allergies. Can also be influenced by environmental allergies. Not caused by one single factor. Jesus.
Laura
I know, right? Yeah.
Scott
Yeah. No wonder you're not all right.
Laura
I know.
Scott
Hey, being a. Being a social worker.
Laura
Yes.
Scott
What's it like professionally understanding the things you're going through personally?
Laura
It's crazy. I could say that. Yeah. Well, it makes me, first of all, appreciate it, what people go through, but also recognize how important it is to take care of yourself, you know, so I've had to do a lot of my own work, you know, in order to be like a better social worker for other people.
Scott
But can you see yourself in the moment? Like, can you.
Laura
Not always.
Scott
Yeah, right.
Laura
Yeah.
Scott
It's not like you're going through something. You're like, oh, what would I tell another person who's experiencing this right now? Right.
Laura
Yeah, yeah, yeah.
Scott
Well, that sucks.
Laura
Yeah. Yeah.
Scott
It's like being a mechanic that can't work on their own car. What a waste.
Laura
Right?
Scott
Oh, wow.
Laura
Yeah.
Scott
And that must be frustrating because I imagine at some point you have a come to Jesus, and you go, oh, this is what's been happening to me. I can't believe I didn't see this sooner.
Laura
Yeah. Oh, yeah, absolutely.
Scott
They make you feel like a fraud a little bit.
Laura
Oh, yeah, Sometimes. Yeah. But now. Now I feel like I'm taking the steps that I need to. To really, you know, get myself together. And I think one of the things I wanted to talk about for Me was. I think for me, the grief with the diabetes came later, I think, because I was in such a fog initially with everything, that it didn't hit me probably to like, three years later when I really had to come to terms with, like, this diagnosis.
Scott
Interesting. So 36 months, three years into your kid's type one diagnosis, you think the weight of it just started to impact you?
Laura
Yeah, definitely.
Scott
Yeah. Because you said earlier, like, you're like, she got that diagnosis. I think I was in, would you say, denial? Because I went back to work because.
Laura
I. I worked a whole day, didn't even, like, think about it, you know, and. And my husband's like, calling me, leaving me messages like, we're going to the children's hospital an hour and a half away.
Scott
You're like, I got work, buddy. It's Wednesday.
Laura
I know it was very bizarre, you know, but I. That must have been my coping mechanism at that point, I think.
Scott
So when it hits you three years in, what's that feel like? What's the experience?
Laura
It was very overwhelming. Yeah. I think, you know, as she got a little bit older too, just realizing, you know, if you go to a birthday party or just sometimes the differences in things, you know, or all that, just all the stuff you have to bring, you know, that I'm like, ah. When I take my other child places I don't have to, you know, do all of this, it's such a weird feeling. Like, if I take my younger daughter, you know, to go out to breakfast, I'm like, oh, my gosh. We don't have to pre bowl this. We don't have to, like, keep an eye on, like. It's just like a weird feeling, you.
Scott
Know, when that happens, I try so hard not to live in it.
Laura
Yeah.
Scott
You know what I mean? You know, like, I know what you're talking about. Like, you head out for something and you don't have a bag with you, or you're not. You're not thinking, like, is there a juice box in the door of my car?
Laura
It's a weird feeling. It's a very weird feeling. Right? Yeah.
Scott
And you don't. I, for me personally, like, I never wanted to feel like that was better.
Laura
Right, right. You know, it's just different. It's just a different. Yeah. Oh, gosh. Yeah.
Scott
So you're having kind of a delayed reaction to the type one.
Laura
Absolutely. Yeah. Yeah.
Scott
Have you done this with anything else in your life?
Laura
I don't think so, no. Interesting. Yeah.
Scott
Do you think of yourself as a. As a person who's easily knocked down by problems or do you think of yourself as more resilient?
Laura
I think that's a good question. See, now you're going to therapy. Me?
Scott
No, listen, I'm a, I'm a, you know, just a podcaster.
Laura
But yeah, no, I think I have some patterns that are more like catastrophic in that. So I'm always thinking like the worst case scenario of things and an urgency sometimes with things that aren't always needed at times. But I think in the moment of things, like when all of this was happening, like with my daughter, I don't think I didn't panic. Like, it wasn't like a panic all the. I think in the moment I can handle it. It's like afterwards, you know.
Scott
Would you call that compartmentalizing?
Laura
Yes. Oh, totally. Right. Yeah.
Scott
You know, if people, if people are listening closely like I am. Laura, you said in the very beginning, like, don't Google it because it's going to tell us she has diabetes.
Laura
Yeah.
Scott
Yeah. That's a very strange way to think of a problem solving.
Laura
Yeah, yeah.
Scott
Because what you might want to say is, hey, why don't you go do the research I just did because I think you might come to the same conclusion and then we need to get her to the hospital.
Laura
Yeah, right.
Scott
But you were like, no, don't look. If we don't look, we can live here longer.
Laura
Yeah, yeah, right, right.
Scott
Yes, it really is something. Okay, so what would you tell a person who came to you and said what you said to me?
Laura
First of all, trust your gut. Right. So I think another thing that's been an issue for me is when she had her respiratory issue and then she had to be airlifted, I had thought in the middle of the night, something's not right. Like we had been giving her the nebulizer and I was like, she should be getting better and she's not, you know. And so we had come to the decision, oh, it's your first baby, you don't always know what to do. But we came to the decision that we would wait till the morning. You know, I have a lot of guilt about that because I think what if we would have taken her like right in the middle of the night instead of waiting so many hours to take her to the walk in when her. And then her lip goes blue, you know.
Scott
Well, what do you think going earlier would have garnered? Accomplished?
Laura
I don't know. Right.
Scott
Just worried that it could have been.
Laura
Something it could have been. Right. My brother in law is a doctor and he said, you could have still been in the same position. Like, we don't know, you know, so try not to beat your. I think it's, you know, being a mom, I have a lot of guilt about that, which I think has transferred sometimes with diabetes. Like, now I'm like, I can't let this happen. So we got to keep our numbers really in control. You know, it's like more of a control thing. Suddenly, again, a delayed response, because I wasn't that way initially.
Scott
Yeah, no, you were trying to. I don't know. Exactly. And people online have pointed out that I'm not a therapist, and I'm not saying I am. It feels to me like maybe you were just trying to not make it real.
Laura
Yeah, right. And I also didn't know enough about it, you know, I mean, literally, at the hospital, they're like, she can eat whatever she wants. You know, you can live a normal life, you know, just give her insulin, you know, but nobody, again, was telling us, like, the impact of food and, like, you're going to need a crapload of insulin sometimes for certain things. Like, nobody taught us that, you know? So I think I thought we were doing. We'd go to the endocrinologist, and they were like, you're doing a good job. We just didn't know any better until I started. I think what hit me was, like, if something happens to my husband, he's the one doing the majority of this. We're doomed. Like, I need to know what I'm doing. So I started reading and really educating myself, and that's when things really started to kind of shift. I would say, even with her diabetes care, because then I would pass the information along to my husband.
Scott
Your husband's gonna love this. When he listens, it's like you just woke up when you're in Daniel. Like, oh, what if a safe falls on his head like in one of those Roadrunner cartoons? And then I'm gonna be stuck here with this kid I don't know anything about. I. I'll go figure it out then. Did you explain to him then he was doing it wrong?
Laura
No, I don't think so. I. I think I. I just. Sometimes I talk. I get excited about things, you know, so if I, like, listen to the podcast, I'll, like, tell him. And sometimes he's just like, stop talking about diabetes. He would definite about diabetes too much, you know?
Scott
What would you say?
Laura
I would say, sometimes I do, but sometimes I'm excited, like, if I learn something or I, like, I'm following the trends and I'm like, oh, I think I finally, like, it took us a long time to figure out breakfast. Like, she would go high constantly after breakfast. And I finally figured it out. And, like, I was so excited now that she's doing amazing after breakfast, so I get excited. So I, like, want to tell people, like, we did it. We figured it out. Like, you know, I think of that.
Scott
Excitement as the one step closer to it being less of a front and center in your mind. Less of a burden.
Laura
Yes. Yeah.
Scott
If we could figure out all these different things, then maybe it would actually feel normal the way people are. People saying that it could feel normal because, you know. Right. Oh, you can live a normal life. Well, it's a normal life, but you're going to be managing diabetes, so not. Not completely normal.
Laura
Right.
Scott
I get what they're saying. Like, there's no reason you can't have a job or, you know, like something like that, or do something that you wanted to do. And I completely agree with all that. But it's still not normal to have to take a bag with you everywhere, or not normal to have to tell your kid, like, hey, like, you know, you're gonna have to take insulin because you're gonna be gone for five hours and you're gonna be too far from home. Like, that's not normal. It becomes. Becomes normal.
Laura
Right. Yeah.
Scott
So I would think that that excitement, like, for me, would mean maybe we're one step closer to this not being as front and center in our head all the time.
Laura
Yes. Yes. That's very much it. Yeah. And just like, figuring things out, I think, because my brain works much differently than my husband's, you know, so I'm trying to figure this out. Like, so I'll take it on as a project. I'm like, okay, breakfast was like my baby. Cause I was like, we're gonna get it. We're gonna figure it out. You know, my husband would be like, yeah, it's not so bad. And I'm like, nope, we're going to get there. We're going to. You know, and. And even with that, you know, it's like this morning, I'm like, okay, brand new pump site. We have to do a little bit more than normal. But sometimes the pump site seemed to be working really well. And if I do the normal, it's almost a little bit too much. So it's almost like my brain wants it to be. Every day we do the same thing over and over again, but it's just.
Scott
It's certainly not that.
Laura
Right. I've learned so there's so many variables, you know, and it's like, ah, sometimes I'm just like, I don't. These variables and sometimes I don't even know what these variables are.
Scott
So how much of it is like. Also you're a little older too.
Laura
Yes. Y.
Scott
Right. So you start getting into that. I mean, I feel you on that. Like, I'd like this not to be so much work all the time.
Laura
Yes. Yeah.
Scott
I don't mean the diabetes. I mean being alive.
Laura
Yeah. Oh, yeah. Yes, yes, absolutely.
Scott
When's the part where this is like fun or. Or easy once in a while? And I know for me personally, like, I don't want that to be when I'm 70.
Laura
Right, sure.
Scott
Like I'd like to wake up one day and like just have like a free and easy day that's, you know, enjoyable by Scott, who's fully mobile and can dress the world.
Laura
Yeah. Yeah. And that's, I think, one of the things when you have kids a little bit older, like, you know, you're wiser but like, you're tired. Like I always tell my. I'm tired. Like my little 8 year, almost 8 year old wants to be running around. I'm like, I'm tired. Like, oh, that's.
Scott
Yeah.
Laura
That.
Scott
I find that stuff insane. I was talking to somebody recently who had a baby around my age and I was like, I don't, I don't even understand.
Laura
I'm just tired. Yeah.
Scott
I'd be like, hey, kid, here's $50. Like, good luck, Right?
Laura
Yeah.
Scott
Don't buy crack with this. And then I. Daddy's gonna take a nap. I did the last night thing. I didn't go to bed till late, but I got tired early even. That's weird. Like, you know, like.
Laura
Yeah. Oh, yeah.
Scott
At 10 o' clock I was like, I should go to bed.
Laura
Yeah.
Scott
And then I couldn't do that because I'm an adult and I've got responsibilities. I was still working. Like, you know what I mean? Like after I got done working, I was cleaning things up. Like, you know, I had other stuff I needed to be doing. I'm doing that.
Laura
Yeah.
Scott
My wife's still working. Like, you know, it's like 10:30, my wife's working and I'm cleaning something up I should have cleaned up six hours prior. Arden's out with friends saying goodbye because they're all heading back to college.
Laura
Yeah.
Scott
You know, my son's in the basement lifting. You know, everybody's like that. We have a dog. The dog has to go out and all I could think is, I should go to bed.
Laura
Yeah.
Scott
And then by the time I got through all the things I was supposed to be doing and everybody got back in the house and was kind of settled and everything, I wanted to watch an episode of Mr. Robot. I'm trying to watch Mr. Robot. It's 12:30. Like, am I gonna sit in my bed under a blanket like I'm 10 watching an episode of Mr. Robot on a right. I guess I am. Yeah, I know. I just feel like once you start getting older, like you said again, like your mind, like your thoughts are clear.
Laura
Yeah.
Scott
But you're like, you're like, why couldn't I have been this clear minded when I was like, had the energy of a 25 year old?
Laura
Yeah, it's very true.
Scott
It sucks. Everything's backwards. I see what you're saying.
Laura
Yeah.
Scott
Yeah.
Laura
Thankfully my husband has a lot of energy. Yeah. Except he cannot. He does not hear the alarms a lot of times at night. I even bought him the sugar pixel. And I have seen him just hit the button and. Or unplug it and then just go back to bed. And he doesn't even remember a lot of times that he's done that.
Scott
Isn't that interesting?
Laura
Yeah. Whereas me, I'm like a very light sleeper. So I am like up constantly. I hear a little noise and I'm like. I think it's just a mom thing. I don't know.
Scott
How's that ego boost getting a younger guy? How was that? It feel good or no?
Laura
No, because he, you know, I wanted to get married. I knew going into it, I'm ready to get married, I want to have kids, you know, and he was 25, I think, when I met him. So, you know, we were in different life stages.
Scott
But you take advantage of his exuberance.
Laura
Yeah. Now it's, you know, a good thing probably. You know, maybe he'll live longer than me. I don't know. We'll see.
Scott
Jesus, Lara, you are a bummer. What are you always worried about? The worst thing that's going to happen?
Laura
I'm working on it. How about that? I'm trying to work on that.
Scott
Is that since is since the life flight or your whole life?
Laura
I would say there's been some patterns in my family that have been that way, you know, so probably some modeling.
Scott
Yeah. Everything's always terrible.
Laura
Yes. But the other thing is. Yes. The life flight really like shook me up, I think in ways that I didn't even realize.
Scott
Maybe it took those feelings that you grew up with with your family and made them feel like, well, yeah, see, yeah. If they were right, bad stuff happened, right?
Laura
Yes. Yeah. It was like, I think that realization that, like, yes, bad things in my mind before, like, they could happen, but now they were, and it was, like, constant. Like, every time I turned around, I'm like, now I have a blood clot. Now we have this. Now I'm like, oh, my goodness. You know, it was crazy.
Scott
Would it not help you if you could think of those things not as bad things happening, but that every day in life isn't perfect and you just gotta bob and weave a little?
Laura
Yes. Yeah, I think I'm trying to again, that was another thing I wanted to talk about was, like, just some perfectionist tendencies, which I didn't even realize I had until, you know, I suddenly became involved in this diabetes world. And my husband was the one that pointed it out. He's like, you're trying to be perfect with her numbers. And this is driving us crazy, you know?
Scott
You didn't know that about yourself.
Laura
I didn't know because I wasn't like the kid in school. Like, I was fine if I got, you know, an 82 or something. I did terrible on tests. Like, to me, it was more important to be around people. I just wanted to be with my friends, be involved in things I didn't have to have, like, straight A's. So I think in my mind, that's what I always thought like a perfectionism was, you know, And I wasn't that way in my work either. It was just suddenly, that person's healthy enough.
Scott
That's good.
Laura
We're done, right? Yeah.
Scott
Did you call an 82 a terrible grade?
Laura
No, I didn't. Yeah. No, that's a great grade, I think. Yes. Yeah. Other people might think, right, but, you know, my sister was very, you know, book smart. She, you know, very intelligent. Her grades were very important. I was just different. Like, to me, it was, you know, I wanted to do well in school, but I also wanted to play sports and have fun. And so it wasn't like, top priority for me.
Scott
Did your perfectionism show up in other ways through your life, or do you think that you had a touch of it and then the mom guilt plus the medical stuff equals where you are now.
Laura
It just plowed through with the diabetes. Like, my husband was like, all of a sudden, like, she used to be 350 and this was never an issue for you, why all of a sudden, you know, she's 180 and you're freaking out, you know, like, he's trying to, like, wrap his mind around, like, the.
Scott
Change, you know, was 350 not a big deal for him, or is he trying to say that back before we knew this was a problem?
Laura
Right. Yes.
Scott
Well, then the simple answer to his question is, well, now we understand it better.
Laura
Right. And that's what I try to say all the time. Like, now we understand. So now you know. We just didn't know before, and now.
Scott
We know that's a problem. So right now we need to stop it.
Laura
Yes.
Scott
Boys are confusing. Yeah. I don't understand boys. Sometimes. I do this. By the way, I'm lumping myself. I do the same thing.
Laura
Like.
Scott
Like, the things that, like, don't occur to me. I'm like. Like, when I look backwards, I'm like, how did that not strike a chord quicker, you know?
Laura
Yeah.
Scott
Oh, by the way, I just noticed, Laura, my calendar on My whiteboard says 2024, and it's August of 2020.
Laura
Oh, my goodness. Yeah, right? That's funny.
Scott
There's so much writing on the board in other places, but I apparently never changed the date staring right at me. How did I never notice that before? Oh, my gosh.
Laura
Oh, my goodness. Oh, and I. I thought of one more thing that she has, too. So she also has a severe peanut tree nut allergy. Right. So we have an EpiPen, the oldest one. Yeah, both of them do, actually.
Scott
Both of them.
Laura
So, but that's interesting with celiac, because a lot of celiac items have, like, is made with almond flour. So we have to always, you know, inspect and make sure there's no almond flour in it.
Scott
Gosh.
Laura
I know.
Scott
Do you have a nut allergy?
Laura
I have a tree nut allergy, but I can eat peanuts.
Scott
Okay. Is anybody impressed that I haven't made a joke about my wife sometimes having a nut allergy?
Laura
Oh, yeah.
Scott
I'm personally impressed. I just want to say. Oh, my gosh. I don't know. What, do you guys, like, live in a bubble? What do you do?
Laura
I know.
Scott
Is that how it feels like? Like, because with the allergy and the inflammation in the esophagus thing and the diabetes, and now you layered over top of your newfound anxiety about the entire thing.
Laura
Right? Sure.
Scott
You sound like a person who's trying to put yourself in a controlling situation, like, position. Like, how do you accomplish that?
Laura
Well, now I feel, like, more confident with diabetes. Like, we've educated ourselves. You know, we've spent time. We've worked with Jenny, who's phenomenal, you know, so we're in Like a much better place, you know, and all the podcast episodes have been very. Actually, I found the podcast when we switched to Omnipod 5. I had never heard of it before. So the first episodes I listened to were like the pro tips on the Omnipod 5.
Scott
Oh, awesome. They've been very, very, very popular.
Laura
Yeah.
Scott
Yeah. As a matter of fact, if everybody downloaded all the episodes the way they downloaded those. Yeah, I'd probably be in an. I don't know. Yeah, I don't know. I think there'd be a lot more people listening.
Laura
Yes, it's very true. And I always want to tell people, like, that system I know gets a lot of slack because it's a little more conservative. But I've studied it and get your settings right and like, it makes a phenomenal difference. You know, we've gone to the endocrinologist and they're like, you guys are like killing it with the Omnipod 5. Nobody else seems to get it, but you guys are doing it, you know, so it's very manageable.
Scott
I think you're having good success with it.
Laura
Yeah. Yes. Yeah. Yeah. Overall, I mean, there's still days where I'm like, ah, you know, if it suspends the insulin going into a meal, you know, paying attention to that I think is a big a key.
Scott
Well, let me say this to you@clinicaltrials.gov if you look up something called Omnipod SmartAdjest 2.0 system compared to Omnipod 5 system in individuals with type 1 or type 2 diabetes strive you will see that this was last updated on June 11, 2025 and the study overview says the goal of this multicentered randomized crossover study is to evaluate the safety and effectiveness of the Omnipod 5 Smart Adjust 2.0 system in individuals with type 1 or type 2 diabetes. Study participants will complete about five in person visits and be expected to treat their diabetes per their usual routine using the system at the lowest available target settings. Each participant will begin to study using Omnipod 5 Smart Adjust 2.0 or the Omnipod 5 system for four weeks, period one, and then switch to opposite system for the next four weeks. Everyone will use the Omnipod 5 Smart Adjust 2.0 system for at least four to six weeks. During period three, participants will have a goal of administering no more than three meal or snack boluses per day. The official title of this here, blah, blah, blah. What I'm seeing here is they're testing a different version of this algorithm.
Laura
Yeah, that'd Be great.
Scott
So maybe. Maybe all that, you know, I wish it was a little more aggressive.
Laura
I. Yeah, I don't want to say that's my only complaint is that at times, and I look and it's usually when it has suspended the background, I'm like, oh, here we go.
Scott
I've been corresponding with somebody whose kid is in the trial, and I don't know how much about that I'm supposed to say, so I'll hold onto it. But I think the target. It's giving you a lower target. I think that's one of the things.
Laura
That would be great.
Scott
Yeah. I think there's more coming. Yeah. I don't think that person wants to talk on the podcast yet.
Laura
Yeah, yeah, that would be great, though. That's really my only. And I'm learning to adjust. Like now I'm like, okay, before she eats a meal, let's look and see how much, you know, has been paused before the meal because we gotta add a little extra, you know.
Scott
But what did you do? Did you kind of take your knowledge of how the Omnipod 5 works and then listen to the podcast about using insulin and you're combining the two ideas?
Laura
Yes. And then working with Jenny, too, has been helpful, too.
Scott
Yeah. And. And what. What would you say that overall you've learned that's been most valuable?
Laura
Well, I think how food impacts your blood sugar, definitely. I. I think again, especially with celiac, because a lot of the foods, like the celiac stuff, it hits harder. And. And processed foods, I think, like, we've changed a lot of how we have eaten, which has been wonderful even for myself because I used to have higher triglycerides. Yes. Cholesterol, all of that. And mine has significantly come down because just of some of the changes that we've made from eating. You know, just watching her numbers, like, I think just watching the Dexcom, when she eats certain things, I'm like, whoa, what's. You know, I know my pancreas is working, but I'm like, wow, that's gotta be doing, you know, wreaking havoc on my body too, you know, so, like, maybe I shouldn't be eating all this stuff sometimes too.
Scott
Yeah, yeah. I think if you're paying attention, you. There's probably benefits for everybody in the. In the lifestyle and the understanding of how to manage your diabetes.
Laura
Yeah, yeah, yeah. It's been definitely incredible. Yeah.
Scott
Good. I'm glad for you. What do you see as next steps? I guess, like, where, like, she's nine now, obviously, at this point, like, you have A fair amount of control, but like, that's going to change as she gets older.
Laura
Right, right.
Scott
What are your goals for the next few years?
Laura
Well, I think to continue to just manage it the best that we can. You know, I think she'll probably be later with puberty, so that probably gives us a few more years, but hopefully again there'll be more like some of the systems because I do worry about like puberty with the Omnipod 5. But again, it's just trying to manage, you know, when she's sick. You know, we do different things when she's sick. So just trying to manage some of these situations that come up, you know.
Scott
Yeah.
Laura
And I think for myself to just try to enjoy life a little bit more and that, you know, make it all the time about diabetes and keeping. I'd like to keep her under control, but sometimes I think it drives other people crazy.
Scott
So how does it impact her? Like, what's her response?
Laura
She's like a rule follower like me. So she, I mean, she's amazing. She really is like such an amazing kid. Like, she went at the end of the school year, they went to, you know, baseball game and this was the first time that I wasn't going to be. Or my husband or somebody in the family wasn't going with her. They had the nurse go. And of course it was, you know, the first day of the Dexcom, so all the numbers were a little wonky. And she's like, don't worry, Mom, I'll make sure before all the other kids eat that they pre bolus me, you know, And I was like, oh, that's so amazing. Like. Or she'll tell grandpa, I'm a little bit high. We should probably, you know, give me more insulin or wait a little bit longer of a pre bolus. Like she's picking up on some things, which I think is, you know, great.
Scott
Okay. Okay. Where do you see yourself then? How do you feel like you can pass on more to her, take some off. Not maybe not even take it off of you, but come to a balance where she knows what she's doing and you're at the same time not as involved.
Laura
Right. Well, I think also I need to work on my reaction sometimes, you know, like if she's going higher or I still get nervous sometimes with some of the lows, so I might get a little panicky. So I, I would like to see for myself because I know she's watching my reaction to be a little bit more neutral with my reaction to things, you know, and also to help her, just to keep understanding the knowledge and how food works and pass some of that on to her without, I think, making it again, too much of, like, a big thing.
Scott
What are some of the reactions that you have?
Laura
I do panic sometimes. If I. If she's, like, dropping really, really fast, I think I get too panicky. I would like to just be a little bit more neutral. Or if she's like, hi, I'll be like, like the heck, you know, Like, I just. I'll make noise. Or I'm just like, you're, you know, like, yeah, my husband's very neutral about things. He's just like, eh, you know, we know now how to bring her down. You know, it used to be she'd be high for hours. We didn't know what we were doing. Now we're like, okay, something went wrong, you know, or she just needed more insulin. So we'll just give her more insulin. She'll come down, you know.
Scott
Why do you think that happens? I've been talking to you for a while now. You seem like a reasonable person. How come you're like, sure. Why are you being dramatic when things are happening?
Laura
I guess I think it's just anxiety. It's like, because anxiety gives you that urgency, that feeling, which it's supposed to do in an emergency, right? You're supposed to have adrenaline and cortisol levels shooting up so that you can escape danger. But, like, I have to remind my body that, like, this isn't always dangerous. I mean, you know, low blood sugar could be, but I know the steps. We know how to handle this, you know, so being confident in the fact that, okay, we can. We can handle this without, like, the panic.
Scott
Yeah. Well, what's stopping that from happening for you?
Laura
I think it's just the way my brain kind of. It just goes into, like, emergency mode. So I try to tell myself, like, okay, this is an emergency. We can figure this out.
Scott
Yeah. Can you just. I mean, listen, people's reactions are the reactions, right? But. But, I mean, it would seem to me, because this happened to me too, like, where something would happen. And my wife said you'd always be like. Like, she's. Like, you said so much like, you know, and. And it's upsetting to hear, but it's a long time ago. She tells me this, right? Okay. So I stopped. Try to think about it, and. And what is it I'm faced with over and over again is that you put so much work into this and. And it didn't work out.
Laura
Yeah.
Scott
Or, geez, it feels like a failure. Like, it's like, how did I not understand this? I thought I understood this. Like, you know, like, that kind of thing. But, I mean, listen, once she pointed out to me, she's like, it's upsetting to other people. Like, it always seems like something's going wrong. It could even be making Arden feel like she's doing something wrong. And I was like, okay. And then, Lara, I stopped doing it.
Laura
Yeah.
Scott
Right. So what's stopping you from just never doing it again?
Laura
I think, again, it's a pattern. It's just something that shows up for me. Like, it's like an instinct, but I have to interrupt it. I think that's what I need to do. I need to just be more aware of it. Take a pause. You know, one of the best pieces of advice that, you know, somebody told me before, like, her numbers are just. It's data. Like, just look at it as data to try to figure out what you need to do next. Not like, oh, I screwed this up, or it's, this is all my fault.
Scott
You know, I. I'll tell you that I think one of the more difficult things to learn for me was just slowing down.
Laura
Yes.
Scott
A little bit like that. You. Yeah, I mean, you can tell, like, even just in the podcast. Right. Like, if you say something to me, anything, like, if you just pivoted right now and said something completely that had nothing to do with what we were talking about, I'd be able to answer you. And so it's a strength in parts of my life, right. That I hear something, I form an idea, it's usually pretty cohesive, and I can start sharing it right away. But in that situation, that's not a virtue.
Laura
Right? Right. Yeah.
Scott
In a situation where you just need to wait a second, pause. Like, yeah, like, that's not a virtue. I. And it's not a thing I was doing on purpose. Like, I think. I think my wife was like, well, I don't know why you're being so, like, defeatist right away. And I was like, I'm not. Like, I'm just. Like, I'm already working through the problem again. Like, oh, we did this. This happened. I didn't want that to happen. And now I'm past the already. Like, I've said it. Like, that's me almost pausing and going, okay, that didn't work. What do I do next? I'm already thinking about it. While I'm thinking about what to do next time, they're back there going, like, oh, this is such a bummer.
Laura
Right, Right.
Scott
So once you learn to just shut up.
Laura
Yes, I need to do that. Yes. Because that's how my brain works. I want to know, what can I do different next time? But I. I process things, like, out loud a lot. Right. Which drives people crazy. Especially my husband.
Scott
I gotta be honest with you. I do that. That's not fun for people who don't like that.
Laura
Right, exactly. You know?
Scott
Yeah. There's people who think out loud, and there are people who don't. And the people who don't don't enjoy it when someone who does. Yeah.
Laura
Right. And he'll be like, you're saying the same things over and over again. Like, that's the way I'm processing it. My brain is just like, what can we do differently next time? You know?
Scott
Have you ever heard me say that? My wife said that I say no to everything.
Laura
Yes. Yeah.
Scott
Yeah. It's because I work backwards from no.
Laura
Yeah.
Scott
Like, I start with why this won't work. And if I can get to why it will work, then it usually works. And if you can't get there, then it might not be possible.
Laura
Right.
Scott
It feels like doing it opposite is Pollyanna to me. Like, oh, everything's gonna be fine. And then you, like, get through it and go, it's not actually gonna be fine. It won't work out. I prefer to go, like, here's what's wrong. Here's all the things trying to stop me from making it right. How do I get around those things? Awesome. I got around them. We won.
Laura
Right?
Scott
Right. I don't see that as negative at all.
Laura
Right.
Scott
But if you're a person who's just like, you know, yes, we can, then, you know, like, you're gonna be like, why are you being so negative all the time? And to me, it's just. It's just a thought process. But doing it out loud, Lara. Doing it out loud. They hate that.
Laura
They do, those people. So I need to write it down. I am big about, like, writing stuff down. So, I mean, that's why I said my need to do. Next time, maybe write some of this down instead of, you know, say it out loud.
Scott
We can pause. You can say it in your head.
Laura
Right.
Scott
And then think, like, how would. How would these people prefer to hear this? And then say it that way.
Laura
Yeah.
Scott
Although, you know what? I will say this. You notice they don't care about us. Like, when they're all quiet and thinking in their heads and then coming up with what they want to say and then saying it, like, do they Know that during that time, I'm sitting there going, like. Like, are you hearing this? Are you part of the conversation? Like, I'm thinking. I'm, like, thinking, why don't we talk about it?
Laura
Yes. Yeah, that's very true.
Scott
Yeah, yeah, yeah, yeah, yeah, yeah. Now, I don't know how the opposite would go. Like, if you and I were married, Laura. Right. And something went wrong, would it just be, like, this big, like, I don't know, symbol, loudness of just people talking back and forth till we came up with an idea.
Laura
Right. That's true.
Scott
And would we hate that?
Laura
Right. Yeah.
Scott
Would you and I be like, one of us has got to shut the hell up so the other one can talk?
Laura
Probably not a good combination.
Scott
I don't know. That's what I'm asking.
Laura
I know.
Scott
Like, for as much as I look at my wife and our personalities and they're so different.
Laura
Yeah. Yeah.
Scott
We are pretty successful people.
Laura
Yeah.
Scott
And I can look at her and say, she has gaps. I fill them. I have. I have gaps. She fills them. But you know, what I've noticed is that nobody really sees it that way.
Laura
Yeah.
Scott
They just see it as like, you're wrong about the way you think about this thing.
Laura
Right. That's true. But you. But you're right. If you look at it that way, it is true.
Scott
You know, Laura, I. Say it. I'll say it again. Best part of my life, other people.
Laura
Yeah.
Scott
Worst part of my life, other people.
Laura
Yeah.
Scott
All right, so what is this? This hour done? Do you feel good about it?
Laura
I do.
Scott
Yeah.
Laura
I just. I hope, you know, people can learn a little bit of something in there. I. I always seem to find something in. In the episodes, you know, even if they're random, people are talking randomly. Like, I'm like, oh, that's a good idea about this, you know, And I hope that people realize that, like, for them, if. If their grief came later, because, again, I think people think, like, oh, it hits you all at once initially. But I think, you know, grief is so different for people that it can come out later on or even. Even, like, I still have moments where I just feel a little sad, you know?
Scott
Sure. If you told me to, you know, re. Encapsulate everything, I would have said. I hope people heard you say that, because I think that is something that most people would find crazy, like, three years later. You know what I mean?
Laura
But.
Scott
But I don't think it's probably as uncommon as you think.
Laura
No. Yeah. Right. Just people need to, I think, talk about it, you Know, you gotta have.
Scott
Somebody to talk to about it. Listen, my, My mom's been gone for a couple years now, and I texted my brothers the other night, like, we have a little group chat. And I just said, I miss telling mom about like, how I'm doing and like, what everybody's up to, you know?
Laura
Right. Yeah.
Scott
Then I said, I just. I just really needed to tell someone that, like, you don't need to respond. It's just like I'm sitting here, you know, at 9:30 on a Tuesday, and I'm like, God, let's call my mom, you know?
Laura
Yeah. Right.
Scott
And then you just, you're. You're like, what I can't believe is this is a feeling I'm having two years after her.
Laura
Yeah.
Scott
And by the way, she lived into her 80s. It's not like she was taken prematurely or anything, you know?
Laura
Yeah. Right.
Scott
So nevertheless, it's very valuable to say that you could be struck by things like that. Many, many years pass when you expect that.
Laura
Absolutely right. That's very true.
Scott
Well, I think you. I think you lended the podcast a lot of interesting conversation today, Laura. I really appreciate it.
Laura
Yes. And I did want to say one last thing to you, please. Because I. I was born near Philadelphia, so I appreciate how you say water instead.
Scott
Thank you.
Laura
Instead of.
Scott
People don't seem to make fun of me about it as much anymore. Although, I'll tell you, it's going to be forever. One of those words that just now, like, if you said to me, say, you know, if you showed me a glass of. And said, say this correctly.
Laura
Yeah.
Scott
I don't know which is the right way.
Laura
Yeah.
Scott
I think people say water.
Laura
Yes. Yep. That's how. Now that I'm in upstate New York, we say water, but my, My parents still say water, so I get it. Glimpses of that once in a while.
Scott
But I need to tell you, like, when I say water, it rattles through the front of my brain like something's really wrong.
Laura
Right.
Scott
Like it sounds wrong to me. And then, and then I say it, and then my kids are like, that's the right way. And I'm like, no, I think it's not. I doesn't sound. It's such a ridiculous thing, you know?
Laura
Yeah. And we're going to see the Phillies in a. In another month, so.
Scott
Well, I'll tell you right now, I said to my son the other day, is there a way we can get into a time machine and start the playoffs right now? Because we'd win this. Win the World Series.
Laura
Yes.
Scott
They're so good at the moment.
Laura
They are. They're doing a little type one event, so we're gonna meet up with some. We don't have much around our area for community, so I think that was another part of my grief, is that we just don't have much around here. So we're connecting with some people from Philly.
Scott
So wait, Phillies? Like, the Phillies are having a type one event or there's an event?
Laura
Well, there's like a section for people. Right.
Scott
Oh, I know. They do that every year, right? Yes.
Laura
Yeah. Yeah. So we're gonna go. I met some moms at a mom's night out last year at Cherry Hill, so some of us might meet up there.
Scott
Look at you. Oh, that's awesome.
Laura
Yeah.
Scott
Good for you.
Laura
Yeah.
Scott
And you'll see a great baseball game.
Laura
I know. Absolutely.
Scott
Unless it's the one night when they suck and you'll be like, I know.
Laura
That's very true.
Scott
You ever do that? Like, you finally have a moment and you've, like, we have games on in our house constantly, but, like, when I actually sit to watch it, I seem to be able to pick the one. They'll win, like, three out of four, and I'll find a way to sit and watch the one game where everybody sucked. I don't know how I do that.
Laura
But we did that last summer. We went last August, and my daughter was so excited, and they lost, and she literally cried. Yeah, she was crying, and I was actually happy because it was so hot that day. I just wanted to leave. And I was like, if they start doing extra innings, I'm gonna die. It's so hot.
Scott
Yeah.
Laura
My daughter's crying, and I'm like, yay, we're done.
Scott
I'm not gonna lie to you. It's hard. It's hard to go into that stadium. July and August sometimes.
Laura
Yeah. Oh, it was so hot. Yeah.
Scott
So weather's turning. It's getting cooler on the east Coast a little early this year.
Laura
Yeah, it is.
Scott
Well, you'll have a great time. I appreciate. Appreciate you. I really do.
Laura
Appreciate chatting with me. Absolutely. I appreciate it.
Scott
It's a pleasure.
Laura
Definitely.
Scott
Hold on one second for me. Okay, sure.
Laura
Okay.
Scott
The conversation you just enjoyed was brought to you by usmed usmed.com juicebox or call 888-721-1514. Get started today and get your supplies from us Med Dexcom sponsored this episode of the Juice Box podcast. Learn more about the Dexcom G7 at my link dexcom.com juicebox this episode of the Juicebox Podcast is sponsored by the Omnipod 5. And at my link omnipod.com juicebox you can get yourself a free. What'd I just say? A free Omnipod 5 starter kit. Free. Get out of here. Go click on that link omnipod.com juicebox check it out. Terms and conditions apply. Eligibility may vary. Full terms and conditions can be found@ omnipod.com juicebox links in the show notes links@juiceboxpodcast.com okay, well here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app. Go to YouTube and follow me. Or Instagram TikTok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. You don't want to miss, please. Do you not know about the private group? You have to join the private group. As of this recording, it has 51,000 members in it. They're active, talking about diabetes. Whatever you need to know. There's a conversation happening in there right now and I'm there all the time. Tag me. I'll say hi. If you're looking to meet other people living with type 1 diabetes, head over to juiceboxpodcast.com juicecruise because next June. That's right, 2026, June 21st. The second juice cruise is happening on the Celebrity beyond cruise ship. It's a seven night trip going to the Caribbean. We're going to be visiting Miami, CocoCay, St. Thomas and Saint Kitts. Yeah, the Virgin Islands. You're going to love the Virgin Islands. Sail with Scott in the Juice Box Community on a week long voyage built for people and families living with type 1 diabetes. Enjoy tropical luxury, practical education and judgment. Free atmosphere. Perfect day at Coco Bay, Saint Kitts, St Thomas. Five interactive workshops with me and surprise guests on Type 1 hacks and tech, mental health, mindfulness, nutrition, exercise, personal growth and professional development. Support groups and wellness discussions tailored for life with Type one and celebrities. World class amenities, dining and entertainment. This is open from every age. You know, newborn to 99. I don't care how old you are, come out. Check us out. You can view staterooms and prices@juiceboxpodcast.com JuiceCruise the Last Juice Cruise just happened a couple weeks ago. A hundred of you came. It was awesome. We're looking to make it even bigger this year. I hope you can check it out. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking, like, how does that happen? What you're hearing is Rob at Wrong Way Recording, doing his magic to these files. So if you want him to do his magic to you. Wrongwayrecording.com. you got a podcast, you want somebody to edit it, you want Rob?
This episode features an honest and personal conversation between host Scott Benner and Laura, a social worker and mother of two daughters, the oldest of whom was diagnosed with Type 1 diabetes just before her third birthday. The discussion traces Laura's journey from the initial trauma of diagnosis and associated medical crises through years of evolving diabetes management, emotional processing, and self-discovery as both a parent and professional. Laura candidly explores the delayed onset of grief, the challenges and learning curves of diabetes technology, family medical history, coping mechanisms, and the practicalities (as well as emotional impact) of raising children with multiple health conditions.
"I think I must have been in denial because I went back to work and my husband took her to the emergency room." — Laura (03:15)
“It had just been a long year of trying to fight that. …Then here we are at the same hospital, you know, doing something different.” — Laura (06:43)
“If something happens to my husband ... we're doomed. Like, I need to know what I'm doing.” — Laura (35:34)
“For me, the grief with the diabetes came later ... it didn't hit me probably till like, three years later when I really had to come to terms with this diagnosis.” — Laura (29:41)
On Realizing Diagnosis:
“Don’t Google it, because it says diabetes ... we kind of like chucked because I always think of the worst-case scenario. So in that case, it was actually right.”
— Laura (03:13)
On Processing Trauma:
“It was a little bit traumatizing just being there after, you know, a year prior we had this, you know, helicopter experience ...”
— Laura (06:43)
On Medical Education:
“I’m terrible at math. ... I wasn’t too happy with the diabetes educator that we had. She, I thought, was a little harsh in the hospital.”
— Laura (09:07)
On Delayed Emotional Impact:
“For me the grief with the diabetes came later ... it didn’t hit me probably till like, three years later when I really had to come to terms with this diagnosis.”
— Laura (29:41, echoed at 62:08)
On Learning & Taking Over Care:
“I think what hit me was, like, if something happens to my husband ... we're doomed. Like, I need to know what I'm doing.”
— Laura (35:34)
On Perfectionism:
“I didn’t realize I had [perfectionist tendencies] until, you know, I suddenly became involved in this diabetes world. And my husband was the one that pointed it out. He’s like, you’re trying to be perfect with her numbers. And this is driving us crazy, you know?”
— Laura (43:02)
On Parenting Dynamics:
“She’s like a rule-follower like me. ... She’s picking up on some things, which I think is great.”
— Laura (52:54)
On Food & Management:
“Watching her numbers, like, I think just watching the Dexcom, when she eats certain things, I’m like, whoa ... like, I know my pancreas is working, but I'm like, wow, that’s gotta be doing, you know, wreaking havoc on my body too.”
— Laura (51:36)
Scott on Support:
“Best part of my life, other people. Worst part of my life, other people.”
— Scott (61:42)
| Timestamp | Topic | |-----------|-------| | 03:04 | Diagnosis Story—first symptoms, ER, very high blood sugar | | 06:02 | Previous hospital trauma and airlift experience | | 09:07 | Overwhelmed in hospital, harsh diabetes education | | 11:14–12:53 | Prematurity, NICU stay, birth complications | | 16:19 | Ongoing growth and celiac disease issues | | 18:53–19:45 | Transition from MDI to pump/CGM; initial insurance/lack of knowledge obstacles | | 21:53 | Husband taking early lead in care; postpartum struggles | | 29:41 | Delayed grief: “The grief with the diabetes came later...” | | 34:27 | Mom guilt and control issues: “Now I'm like, I can't let this happen...” | | 43:02 | Perfectionism and diabetes micromanagement | | 46:03 | Allergies—EpiPen, nut & celiac conflicts | | 47:24–48:03 | Adapting to and optimizing Omnipod 5 | | 49:40 | Anticipating new tech: Omnipod Smart Adjust 2.0 study | | 51:36 | Impact of diabetes management on family diet and personal health awareness | | 53:40–54:30 | Fostering healthy independence in her daughter, managing own emotional responses | | 62:08 | Encouragement: “...for them, if their grief came later ... it can come out later on...”|
This episode is a deeply relatable and practical exploration of a parent’s journey with a chronically ill child, highlighting the messiness, resilience, humor, and humanity enmeshed in living—and eventually thriving—with Type 1 diabetes and its many, often overwhelming, companions.