
Scott talks with Marley, mom to one-year-old Bane, diagnosed after DKA and a life flight. From ICU to CGM and Mobi, she shares hard-won reality, faith, and growing TikTok advocacy. Free (non Facebook) ** Use code JUICEBOX to save 40% at smart...
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A
Hello friends and welcome back to another episode of the Juice Box Podcast.
B
Hey, my name is Marley. I have a type 1 diabetic 1 year old son named Bain and you may have seen us on TikTok or Instagram and now even Facebook, but we just post our life as a family handling type 1 diabetes and our toddler son and just go with the flow and do whatever.
A
This is part two of a two part episode. Go look at the title. If you don't recognize it, you haven't heard part one yet. It's probably the episode right before this in your podcast player. If this is your first time listening to the Juice Box Podcast and you'd like to hear more, download Apple Podcasts or Spotify, really any audio app at all. Look for the Juice Box Podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management? Go to juiceboxpodcast.com up in the menu and look for Bold Beginnings, the Diabetes Pro Tip series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. While you're listening, please remember that nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Today's podcast is sponsored by skingrip. Your devices, they can fall off, but with skin grip they stay secure for the full life of the device. Juicebox podcast listeners will save 20% on their first order at my link skingrip.com juicebox if you want a durable skin safe adhesive that lasts, you want skingrip. This episode is sponsored by the Tandem MOBI system which is powered by Tandem's newest algorithm, Control IQ technology. Tandemoby has a predictive algorithm that helps prevent highs and lows and is now available for ages 2 and up. Learn more and get started today at tandomdiabetes.com Juicebox the episode you're about to enjoy was brought to you by Dexcom, the Dexcom G7, the same CGM that my daughter wears. You can learn more and get started today at my link dexcom.com juicebox I mean obviously he's very little right now and the world's a different place and kids are more accustomed to this. This is like a thing. But have you given thought to like, how long would this go for? And at what point does he get an opportunity to say like I don't want people seeing this or like, I mean it's gotta go on through your head. Right.
B
For sure. And I get those comments. I used to get them a lot more, but I never did this for followers or for anything that TikTok has brought. Like, I literally posted a video of me put on his Dexcom, really, to just show my friends, like, this is the life that I have to live. This is why I don't work anymore. This is why I can't go hang out with you right now. Because I'm Busy watching my 15 month old with diabetes.
A
Yeah.
B
So when I post videos now, I'll never force him to sit on the couch and be like, film this video. Like, that's just not how I am. Sure. If we're outside and he's doing something crazy, I'm always having my phone out anyway, taking videos of him way before TikTok just because that's the kind of stuff I want to remember when he's acting like that.
A
Yeah.
B
So when he gets older, if he ever tells me, like, I hate this, I hate that you did this, I will, you know, apologize to him. I will take anything down that he wants. But also, I feel like his story is reaching so many more people that aren't diabetic and don't have any family with diabetes and don't understand type 1 diabetes. And I feel like he has a purpose and a testimony that should be publicized. I don't tell every single thing about him. I don't tell, you know, I don't tell his numbers or any. I don't do that type of stuff because there is stuff that should be private. Like, yeah, there's stuff that should be private. He's my baby.
A
Right.
B
But I do want people to understand. I feel like people need to understand diabetes and toddlers so that he's safe in the real world. He can't even go to daycare. You know what I mean?
A
I spent a while of my life sitting in a car outside of a daycare so Arden could go to daycare.
B
Yeah. Like, I can't Even send my 1 year old to a daycare so I can go work. No, it's tough because he's not safe. And the reason he's not safe is because look at all these trolls on the Barbie launch, Facebook group or Facebook page. Comment all those horrible things about diabetes. Like, that's the reason he's not safe, because people think, just don't give him the brownie, he'll be fine.
A
Yeah, Right. Or that you've willfully done something wrong and therefore you don't. I don't know what deserve, like, good health or something like that.
B
You know, you don't know who you'll be dealing with. Like, he's just not safe at this point. And he can't commute. Yeah. He's starting to communicate, and he's starting to learn what feelings are in his body and when he goes low, how he feels or if he's high, he's starting to kind of feel that stuff. But he needs somebody to advocate and talk for him and teach him. And, you know, people that don't understand.
A
This ain't we get along. Because I feel like what you're telling me is you can't tell one head from somebody who's not a head, so.
B
Exactly. You don't know if that daycare teacher was on that Barbie launch talking crap.
A
Yeah, no, no, no. I hear what you're saying. I felt like that's what you were saying. And then as you were talking, I was like, that is definitely what she's saying. She's like, I can't tell the good ones from the bad ones. Just looking at them.
B
And those comments were horrible. Did you see them? Horrible. I had to stop.
A
I've been at this a long time. When the Barbie doll came out, I already knew exactly what was going to happen. Like, I had to stop.
B
I was like, it was horrible. I was fuming.
A
Yeah. You know, we do this thing in. In my Facebook group. Like, when something like that happens, I wait about 12 hours, and then I'll put up a post and I'll be like, hey, has anybody heard about this Barbie doll thing? Because, like, there's already been a thousand posts about it. And I'm like, anyway, I'm joking. Can we stop posting about the Barbie doll, please? Like, I. The whole page is, like, consumed with it. We all get it. And then what I don't say out loud, but I'm thinking is like, 5, 4, 3, 2, 1. The crappy comments are gonna start.
B
Oh, yeah. And they. And they always are there no matter where you go. Like, there's gonna be crappy comments. Well, you know, you just block them and keep on rolling.
A
But then some people are gonna get insulted by it. Then some people are gonna get, like, zealous about it. Like, we have to fix this. And I'm like, you ain't gonna fix this.
B
Some lady told. She said, I had glasses and buck teeth when I was little and they didn't make a Barbie for me. I said, well, I wish my child had glasses and buck teeth. Over diabetes.
A
That's a Pretty interesting statement to make. Yeah. What a comparison. Oh, your child.
B
That's what I said. What a comparison. Like, buck teeth and glasses and there is Barbies with diaper. I mean, with glasses. Like, what do you mean?
A
You know, don't you feel like sometimes people think they're being deep and they don't realize they're just dumb?
B
I'm like, autoimmune disorder that can kill you if you don't have insulin. Over glasses and buck teeth. Okay.
A
Those comments eventually become every level of people's political ideation. Like, right. Like, why don't we just keep making Barbie dolls? And, you know, they don't need to be for anybody special. Like, did somebody say, like, what's going to happen next? Is Barbie going to be in a wheelchair or something like that?
B
There was like, what's going to be next, Crackhead Barbie? I'm like, what do you mean?
A
Can I say two things? That's not a child friendly doll. So I don't think that's going to be.
B
Yeah, exactly. Barbies are for kids.
A
Right.
B
But what people would say or why are we Norman. Normalizing needles? I'm like, we can't help that you have to inject insulin. Like, my toddler can't take that breathable insulin.
A
Also, just don't buy the Barbie doll if you don't want it.
B
Like, exactly.
A
Also, you weren't buying one to begin with.
B
Exactly. You're just here to. That's why you're here.
A
You're a 45 year old guy and who seems to have a little bit of free time to talk about a Barbie doll in the middle of the day. So I'm worried about you as well.
B
I posted some of the comments on my Instagram story and somebody DM me back and she was like, I hate old grumpy women.
A
Listen, I've been at this a really long time. Like, I've seen every, every iteration of person, you know, from, I don't know, just plain old crazy to just plain old mean, plain old drunk. I've seen plain old high. I've seen thinks they're smarter than the rest of the world. Everywhere. Just anything you can paint a picture of. There's somebody out there, you know, who's like, oh, I have a thought. I definitely have to share.
B
Yeah. Especially on Facebook.
A
It's. Listen, my Facebook group's awesome, but we also.
B
Oh yeah, yeah. People don't troll in your Facebook group.
A
Well, I mean, listen, some people do and then they get pruned out because that's not it's. There to support people. It's not there for you to complain.
B
We're there to learn and teach.
A
I think it would be interesting, interesting sometimes to have conversations with the people who have been, you know, asked to leave or, you know, who are just were taken out of it. And you know for sure that because we have these, like, it's not done lightly. Like, nobody's just like kicked out of the group.
B
Yeah.
A
Group of people who look in and say, like, here's what I'm seeing, here's what I'm seeing, here's what I'm saying. What do you think? Like, you know, like this. And in the end it just becomes about like it's proselytizing at the end. Like somebody just thinks that there's a thing they believe that is so important that it supersedes everything else it needs to be spoken about all the time. And if you don't agree with them somehow, you're a monster.
B
Yeah.
A
And that's the thing with the Barbie doll. Like, it's like, look, it's not like, what's next? A crackhead Barbie? It's. I don't like the way the world's going. People are soft. Like, that's what they really mean. Like, just get a regular Barbie doll.
B
Somebody said it's this new generation, everybody's got to be included. And I get that thought also. But it is a big deal when my one year old at the park and a kid runs up to him, why's he got that on his leg? Why is he wearing that on his leg? And you're having to explain to a five year old that your kid has a disease that could kill him.
A
Yeah.
B
And he has to wear this.
A
I also, by the way, I mean, I could sit here and make the argument the other way if you wanted me to. Like, maybe there's something to their argument of like, just a Barbie doll is a Barbie doll and it doesn't need to have other. I'm sure that if you want to go sit with a bunch of your friends at dinner or something and have a, an academic conversation about whether or not Barbie should have an insulin pump or not, like, go ahead and do it. But that's not the same as just getting online and just attacking somebody for it. Or like, yeah, exactly.
B
Like, it's just not the time and place.
A
Yeah, yeah. It's weird. Like, you know, like, and you're grown.
B
And these are kids.
A
That's. Well, in the end, that's what I end up thinking. Like, no matter what level of like, whatever you want to call it. I see, I sit there and I'm almost jealous. I'm like, how do they have the time for this?
B
Yeah, exactly. Like, you are grown.
A
I would love to have the kind of free time that it must take for you to jump online to complain about my diabetes podcast that you don't.
B
Have to listen to, but instead I'm trying to catch up on sleep because I was up with my son with his low blood sugar all night.
A
Yeah. How about I'm working. Yeah. Yeah. Like, I. How about I got a job?
B
Yeah, exactly.
A
There are things in this life I detest. I have never spent a second making sure that the person knew about it. Like, you know, did you ever go, yeah, like, if I go to a movie and I don't like it, we walk out in the lobby and I go, I didn't love it.
B
That movie sucked. Yeah.
A
I don't then try to figure out how to contact Warner Brothers.
B
Yeah, exactly. Exactly.
A
That part. Like, I don't think I'm ever going to completely understand that part of it.
B
I think it just. It literally just shows that type 1 diabetes isn't. Is so unknown to basically all humans on Earth unless you deal with it or have somebody that you're close with that deals with it.
A
Yeah. No, I mean, seriously, you do have to be involved.
B
You have to. You have to be involved with Type one somehow, because to grasp it completely. Yeah. Truly, you don't understand what goes into it until you see it firsthand.
A
And Marlee, and I'll tell you this too, and then you're still not gonna grasp it completely. Like, I have it from my perspective. I'm gonna just tell you right now, like, I don't wanna burst your bubble.
B
We don't live with it.
A
Yeah, yeah, I don't wanna burst your bubble, but my daughter just had type one since she was two, and in a few days she's gonna be 21.
B
Wow.
A
She goes through more stuff than I'm ever going to understand for sure. Yeah. And some of it I'm not even aware of. Like, some of it I know about and can't contextualize, and some of it I'm never going to be aware of. And in fairness to everyone else out there who has a kid with type 1 diabetes, I've spent the last 11 years talking to people, trying to figure out how they feel so that hopefully I might understand how my daughter feels a little better. And guess what? It doesn't really help that much. You can manage diabetes confidently with the powerfully simple. Dexcom G7 dexcom.com juicebox the Dexcom G7 is the CGM that my daughter is wearing. The G7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smartwatch. The G7 is made for all types of diabetes, type 1 and type 2, but also people experiencing gestational diabetes. The Dexcom G7 can help you spend more time in range, which is proven to lower a 1C. The more time you spend in range, the better and healthier you feel. And with the Dexcom Clarity app, you can track your glucose trends. And the app will also provide you with a projected A1C in as little as two weeks. If you're looking for clarity around your diabetes, you're Looking for Dexcom Dexcom.com Juicebox when you use my link, you're supporting the podcast Dexcom.com Juicebox Head over there now. This episode is sponsored by Tandem Diabetes Care and today I'm going to tell you about Tandem's newest pump and algorithm. The Tandem Mobi system with Control IQ technology features Auto Bolus which can cover missed meal boluses and help prevent hyperglycemia. It has a dedicated sleep activity setting and is controlled from your personal iPhone. Tandem will help you to check your benefits today through my tandemdiabetes.com juicebox this is going to help you to get started with Tandem's smallest pump yet that's powered by its best algorithm ever. Control IQ technology helps to keep blood sugars in range by predicting glucose levels 30 minutes ahead and it adjusts insulin accordingly. You can wear the tandemoby in a number of ways. Wear it on body with a patch like adhesive sleeve that is sold separately. Clip it discreetly to your clothing or slip it into your pocket. Head now to my link tandemdiabetes.com juicebox to check out your benefits and get started today. It's still her thing very personally and even like you know, like look I don't think you're tick like I don't if somebody wants to make a tick tock I, I'm certainly not against that at all. But like trust me, we could have a 15 minute conversation where I could tell you five things that would make you shut it off right now. You'd be like oh, I didn't realize how that could go. Doesn't mean it's going to go that way. And it's, it's for you to figure out and it's for him to figure out. And it's the same way with the podcast. Like, I'm sure I said something last year. I wouldn't say this year.
B
Yeah, exactly. You're always learning.
A
Yeah, yeah. I'm sure I said something 10 years ago that if I listen to it now, I'd be like, oh, my God, like, that was ridiculous. I'm sure I said something three weeks ago that I'll wish I didn't have said. But. But that's not how we figure things out. Like. Like you being willing to, like, point that camera at something, or me being willing to open up this microphone, not plan ahead, say whatever comes into my mind, knowing I might be right, I might be wrong, I might be like, my tone. I might be tone deaf on something, like, all the possibilities. But you can't look at it in the moment. You don't judge that five seconds or this day. You have to step back when it's over and say, this was a journey that this guy Scott went on making a podcast. And is it a net positive? It is. Then great. Like, that's it. Was everything right? No. Was everything perfect? No. Do 20, 30, 40 people a day send notes that say, my life's better today than it was before I found the podcast. Yes.
B
Yeah. Same for us.
A
If I have to say something and be wrong or thumper through something trying to figure something out or misspeak or whatever the hell happened, I don't know what happens. Like, you know, like, you're just talking, and in the end, it's getting people to a better place and in mass. And so I say good for you, and I guarantee you're doing the same thing.
B
Yeah. I mean, I feel like we get comments daily. If not that, say, like, my daughter just got diagnosed. Like, give me tips. What works for you? What over patches do you like to wear? Like, what kind of food do you like to give him? And, you know, if I can help them any bit, I do not know everything. I do not know a lot, I feel like, but I'll help them. Or lead them into that diapers and diabetes Facebook group in a heartbeat.
A
Yeah, no, it's. It's a wonderful thing. Like, you have to look back before the Internet and say all those people who had diabetes had all these same thoughts.
B
Yeah.
A
And it began and ended with them. And unless they were lucky enough to meet a great doctor who oftentimes has to have type one if you're going to get the kind of down deep that you need, or they were maybe lucky enough to go to diabetes camp and have a good experience. Because, by the way, I Can point you to 10 episodes of People who went to diabetes camp had a bad experience. So, like, everything had to go really super right. For them just to meet another person or 10 more people that have type 1 diabetes to not feel quite so alone.
B
Yeah.
A
And you're telling me now that they can pick up their phone and no matter how their brain takes something in, like whether it's an hour long conversation between you and I or. Or it's a 20 second long video that somebody puts up on TikTok, like there's something out there for you to help you feel better about this and give you some information or even a direction to look into. Right. There's. You can't tell me that's a bad thing.
B
I think that's how TikTok has saved me, because I don't know anybody that deals with being a mom of a type 1 diabetic toddler. Like, no one remotely close to me that I've ever seen this happen to. So when I got on social media and I met these moms that have dealt with their child, like, I have a friend, her son's name is Miles, and she posts his life and they have a diabetic alert dog. He got diagnosed at 10 months old. And anytime I need a question answered, she is there to help me. And he's now five years old and she's dealt with it for this long now. And it just helps you feel seen and helps you learn things from parents that have dealt with this that doctors and diabetic educators just don't understand.
A
Yeah. There's a lot of good that's going to come out of it. And, you know, like I said, like, even if you said something that was completely batch crazy, like people are smart enough to go, well, I'll ignore that part. The world's become like a place where information is available, and it's available the way you. The way your brain works, even. Which is even better. Like, sometimes people say to me, like, hey, listen, I'd like to listen, but I don't. I'm not good with audio.
B
Yeah.
A
And I'll say, well, we, you know, we have transcripts if, if you think that would help. And a lot of like, way more people. Marley. Like, when, listen, when somebody told me I need a transcript from the podcast.
B
I was like, you want to read it?
A
Yeah. I was like, what the hell? Like, you know, because that's not a way I would want to do it.
B
Yeah.
A
But I heard them and I was like, here you go. Like, here's what I can offer you. They're AI generated transcripts. They're not perfect, but they're way better than nothing. And a lot of people read the podcast. So, like, I'll tell you something that even I learned this week. I have about. I think I have 11 group experts who are just people in the Facebook group who help, you know, people answer questions. They'll say, like, hey, here's an episode you might want to try, or here's a link that might help you. Like, you know, just trying to help people with, with their questions. And this one person who is dear to me told me the other day, I don't listen to the podcast. And I'm like, what? I said, no. And she goes, no. I read it. And I was like, what? I've known you for years. You don't listen to the podcast? She says, I don't think I've heard three episodes of it.
B
That's so funny.
A
Yeah. And to me, that's a thing that I would have never done.
B
You learn things differently.
A
Yeah. Yeah. So it's awesome. And by the way, I'm not good at short form content. The way I do it. This is how I do it.
B
Yeah.
A
I can make a TikTok. Nobody's going to care about it.
B
I'm sure they would, honestly. Because you have some stands.
A
I have. Well, yeah, but. But I'm. I don't think I'm good at it, is what I'm saying.
B
Yeah, I know what you mean.
A
Like, even if you listen to me talk about anything, like, even Barbie, I mean, let's be fair. I need 300 words to say what I'm going to say.
B
Yeah, I feel you. I feel you. Totally. Like, a little bit more time.
A
Yeah. People are not, like, up for that on that platform.
B
No. They want it quick and fast.
A
No kidding. Right? And even on YouTube, like, I don't want to, like, I mean, you should see me right now. I'm sitting here sideways, my foot's on my desk. This would not be interesting for you to watch, like, while we were talking, Right? I'm good at. I'm good at the audio thing. I don't know, I just, I think there's so many different ways to reach people and I'm grateful for anybody who's out there trying to do it now. For some people, it ends up becoming like, a business. I know for me, like, I have ads on my podcast. Like, it's certainly a thing that I do every day and spend, I mean, the better part of 15, 16 hours a day on sometimes I'm wondering about you and you don't have to tell me, but I'm interested. Like, I think Everybody thinks on TikTok that you're all getting rich. But, like, can you explain? Can you explain to people how it works? Because I actually think I know the truth, but I'd love it if you told somebody.
B
So on TikTok, I think you have to have 10,000 followers to get in the creator rewards program, but you only get paid off new views.
A
Okay.
B
And your videos have to be over a certain amount of time.
A
Okay. So if you somehow got to like 3 million of your 4 million views.
B
Like those videos that go viral. Yeah. You might see a few hundred dollars you don't get.
A
Right.
B
So you're not getting paid thousand.
A
Like, it's just not, like, not what people think.
B
No.
A
Yeah.
B
And I'm not posting him to do that.
A
Like, no, no, I don't.
B
The money that we've made off TikTok, we're actually taking a huge family vacation next year for Bane. Like, we're doing this stuff for Bane.
A
Oh, that's nice.
B
So you're telling me that money back for Bane?
A
Yeah. So you're telling me that the money you've made from TikTok is going to take your family on a nice vacation?
B
Yeah, we're going on, like, this really nice vacation. A once in a lifetime opportunity for him. And it's something that he'll cherish and remember. I mean, he might not remember it because he's not even two, but I'll remember it and he'll have pictures and, you know, it's just that type of money's for him. If he gets brand deals, it's for him.
A
Right. And does that happen? Do people reach out and want to, like, do like a brand deal with you?
B
Yeah, he's an ambassador for lots of different companies. Like, I don't know if you want me to say I'm on here. Honestly.
A
Okay.
B
He's an ambassador for, like, Spy Bell. He does, like, some bars that, like, we. He loves Dino bars. He loves that zip bars. Like, they'll send him. They'll send him little snacks and spoil him. But no, we're not like, rolling. Like, I still work.
A
Yeah.
B
No, I have a job.
A
Yeah.
B
Yeah.
A
I just think that people think that you're just like, oh, my God, diabetes is expensive.
B
Like, you got to have jobs.
A
I know. And even if a company were to come along and offer you something for a video, like, I don't want an actual number, but we're talking About a few hundred dollars.
B
Like, right, like it's not going to be crazy.
A
Right? Right. They're not like, hello, here is a.
B
Pile of money, here's $100,000. Scam your, your followers and tell them that this is awesome. Like, and I'm not that type of person anyway.
A
Yeah, no, it doesn't work that way is what I guess.
B
Unless I love something and that's something we use every day. No, like, I'm not gonna post that.
A
I even, like, one time some I said to somebody that I worked with, I was like, what are you paying those Tick Tockers? And when they told me, I was like, oh. I'm like, oh, okay, never mind. Yeah, I didn't understand exactly what was happening there either. I thought, like, bigger ideas and not the case.
B
So my goal for Bane is not necessarily to be Tick tock famous or whatever you want call it. It's more like, I just want, like, how People magazine put us in their magazine and they put out an article about us. Like, I just want people to realize that this is something that can happen to your toddler. And this is how we have dealt with it as a family. And this is how my son has dealt with it up until this point. And this is how, you know, my.
A
View of it is it's exactly why I started that blog. I was like, I wonder if I could just raise more awareness around this.
B
Yeah, it has nothing to do with money. They could take the money away. And I still, still would post tomorrow.
A
I have to tell you that this morning I got a text and someone said, could you do a one hour zoom at a diabetes camp? Could you zoom in for an hour and talk to people? And I said, absolutely. I said, yes, right away. Then it turns out the date overlapped with something else that I'm doing. I'll be at touched by type 1 that exact same day. And I said, oh, I'm so sorry. I'm speaking that day already. I'm like, I don't see how I could carve out an hour from that day to do this. But I actually sat and thought about it. I thought, like, in the middle of one of the most busy days of my life, could I find an hour and do another thing for somebody? And I couldn't. So I said, is there another date I could do it.
B
Yeah.
A
She said, well, maybe you could do it the next day. And then I thought, like, maybe I could jump on a plane and fly to that thing that night and then be there the next day for it. And by the way that would have killed me. I'm old, Marlo. I've already gone over this.
B
You would have been like, I need some sleep.
A
And I'm trying to think about how I could do it. And I said, well, I could definitely zoom in the next day. And then she's like, well, we have another one in a few months. And I said, well, I'll definitely do that one for you. Doesn't it interrupt anything? She goes, that's awesome. Thank you. And then she said, how much will we have to pay you? And I was like, for what? And she goes like, well, is there's a speaking fee? And I was like, I mean, like, you just want me to jump on a zoom for an hour? She goes, yeah. I'm like, I mean, I'm an adult. Like, I'd just be happy to do that for you.
B
Yeah.
A
And it was like, really? I was like, don't get me wrong. I said, if you want to, like, dump a pile of money on me, I'm be happy to take it.
B
I'm like, I'm not going to tell you no.
A
Yeah, but I'm not going to shake $400 out of you for this. I was like, that's ridicul. I was like, just tell me when it is, and I'll make time and I'll do it. I don't think people would think that. You know what I mean?
B
They wouldn't think that. They wouldn't. Especially the type of people that don't have your best interests or don't believe in you as a person or what you're doing. That's the first thing. Like, you're using your child's disability for money. No, I'm not. Like, I never did this for money.
A
I can't imagine that anybody could start this and think that they were going to, like, that it was going to work out.
B
Who's going to get rich off diabetes? Because it ain't me. It's like Eli Lilly. You know what I mean?
A
Listen, also, I don't. I'm not crying poor. Like, I have a pretty big podcast, and I have a lot of sponsors, and I do make a living from it. Like, there's no doubt about that. There'd be an argument to be made that if I, you know, assigned a reasonable dollar value to all the people that have been helped by it, that I'm probably not making very much.
B
As much as you should. Yeah, exactly.
A
I don't assign a value to it. It is what it is. And by the way, it's not going to last forever.
B
And it's your. It's a greater purpose. Like, that's your testimony. That's how you're helping people.
A
The word legacy's been used to me a couple of times in the last couple of weeks. I never really thought about it that way, but I feel like, for sure.
B
You have a legacy.
A
I feel good about that. You know, also, it's social media. It's gonna just stop one day. Like, it's not a job that, like, I make a nice living. Right. Like, it's. It's comfortable for me, and it's a thing. By comfortable, I mean it's an amount of money that pays my bills, that allows me to save a little bit that, like, you know, makes me feel like that my time is being compensated in a way that I'm comfortable with. Like, I could go get a job and make more money.
B
Yeah, for sure. I kind of feel the same way.
A
Right. So. But I'm doing this like this. But also, like, try to be, like, a little, like, understanding this could just stop.
B
Yeah.
A
Like, one.
B
Then what am I gonna do? You know what I mean?
A
What, am I gonna send out a resume that says, hey, I made a really popular podcast?
B
Yeah.
A
People are gonna go, we don't care about that. Yeah. Like, I need somebody that knows how to build this wall or knock this thing over, do this thing. Like, I can't just go get another job. And by the way, just starting another podcast, that's over. To, like, even that was, like, it's a moment in time. Like, right now, you don't start a new podcast and get to where I am. Unless you're, like, famous already.
B
Like, yeah, like, you've built this from the ground up.
A
And I happen to have been in a window when that was possible.
B
Yeah.
A
That possibility doesn't. I don't want to break people's hearts, but that possibility doesn't exist anymore.
B
Yeah, it's hard, even. I feel like, not that we're TikTok famous or, you know, we're not like the OGs, but I'll see new kids popping up on TikTok. I feel like every day I'm like. I don't know if they're just doing this, you know, to spread awareness or are they doing it because they see other kids on here. I don't know. Like, I feel like every day there's new ones, and I'm always commenting like, hey, welcome to TikTok. I'm glad you're here.
A
Yeah, no, you got to just invite everybody in and it shakes out in the end. Like, there are some people who just think there's money there. Like, they see.
B
Yeah, that's the kind of thing I'm trying. I'm trying to figure out. Not that I even care, but I'm like, are you doing this because you think your child will bring in money? Because I promise you, like, I'm not rolling $10,000 a month. Like, it's just not like that.
A
I mean, if you want a couple of free bars, remember. Listen, I want to be fair. Let me be honest. Here I am looking at an absolutely free Freaks of Nature stick for my face sunscreen. I got it absolutely free. AG1 sent it to me. There's almost an ounce of it in here, and I did not have to pay for it. There you go. I'm roll. Oh, you know what? Hold on a second. I do think I have. Here. I'll open this right now. I've had this for two weeks. I haven't opened it. Omnipod sent me this. Let me see what's in here. I'm seriously opening it right now. It is. I have five copies of the Diasonic Sound of Strength Marvel comic book from Omnipod.
B
They doing, like, a collab with Marvel.
A
They did. Yeah, yeah, yeah. All right. I'll give these away. You know, I was gonna sell them and buy a house, but I'll. I'll give them away. I'll give them away instead. Also, running your own business is not a lot of fun.
B
So I feel like that's. That's more of a perk on being social media than not, like, companies like to, like, send you little things.
A
Stuff. Yeah, yeah, yeah, yeah.
B
Like, they'll send Bane, like, cookies or, like, I don't know, clothes. Like, they. I love to dress him. It's probably not. I live in Mississippi. I don't know if you can hear.
A
My accent, but you're a delightful Marley. It's the only thing I hear, but go ahead.
B
We put smart. Like, not all parents, but I dress Bane, like, in smocked outfits and cute, very expensive outfits. Like, that's just what we do in the South. And all these cute boutiques are like, I'll send Bane some clothes. I'm like, yeah, send them some clothes. I don't want to pay $50 an outfit. Like, send it.
A
I'd be happy. Take that from you. Yeah, yeah.
B
I'm like, I'll post that on Tik Tok. I don't care.
A
I was at Friends for Life last week. I got a tandem t Shirt, a Dexcom T shirt. I took one of those Lenny the Lions from the medtronic table. That was. By the way, they're kind of awesome. I think I took a teddy bear from Abbott.
B
You got to get everything.
A
Yeah. I also gave away two Apple watches while I was there, so I think I'm in the Netherlands.
B
We're gonna try to go next year.
A
Oh, it was really great. It was my first time. It was really awesome. Yeah. So. But, yeah, I mean, look, again, I'm not. I have no trouble saying, like, there's ads on this episode. I got paid for them.
B
Yeah, like, exactly.
A
But hopefully you got something out of it that makes it feel like, you know for sure.
B
And I'm telling you, like, whenever Bane got diagnosed, anytime you ask a question like, how am I going to do this? Or I think the first thing I said on diapers and diabetes was like, I still breastfeed my child. He just got diagnosed with diabetes. How do I do this? Like, the doctors don't know how I'm supposed to dose for this. What am I supposed to do? And everybody on that group was telling me what to do. And then they'd be like, you need to buy a sugar pixel. You need to. You need to join the Juice Box podcast. You need to listen to these episodes. Like, people like, you are the go to. I feel like for most people, like, you need to. You need to listen to this. You need to get in this pot. This group.
A
Yep. Yeah, I'm glad to know that. So, you know, I'll finish with this. I think this was interesting. You mentioned earlier there was, like, something on you guys in People magazine, and People posted it inside the Facebook group. And I was like, oh, that's awesome. And then you. You answered, and I was like, oh, my God, that lady's in here. Like, that's how it makes me feel, because I am the lady. Yeah. Yeah, yeah, yeah. Right, right. I'm like, oh, look. Because I don't know who you are. Like, you're just. You're somebody's mom at that point. Like, I'm not sure. And then people are like, actually, there's like, a fake Facebook group for her. So this. So people started reporting you as, like, not being you. That's hilarious.
B
Oh, my gosh.
A
Then I just send you a note. I sent you a note, right? I was like, yeah, you did.
B
You're like, is this real?
A
Yeah.
B
I think you said, is this real?
A
Please don't mess with me. I don't have time. Like, are you the real person so.
B
Whenever, before Tick Tock went to that fake band thing in January or whatever, like, it was gonna get banned and it didn't or whatever. That's when people on TikTok started transitioning to, like, Instagram, I feel like. So I made an Instagram for Bane. I never used it, and it never got banned or whatever. So we just kept on posting on TikTok. And then one day on Facebook, I was on my personal Facebook that I've literally had since elementary school. Video came up of me and Bane, and it was like a video of our TikToks with the caption, and the user was like, Marley Brandon or something. I'm like, I didn't make a Facebook. I don't think, like, did I make a Facebook? When I made Instagram, did it, like, make a Facebook? So I go, look, the page has, like, 30,000 followers, millions of views, and has basically all our videos from the past three months on there with all millions of views.
A
Yeah. And it's not you.
B
So they're rolling in the money, I'm sure, from Facebook views, honestly. So I reported it. Yeah, so I reported it for copyright, because apparently it's very hard to get in touch with Facebook because I could not get in touch with anybody from Facebook, but I found out from Reddit how to basically get them for copyright and had to support all this stuff with my TikTok page or videos or whatever. And it finally got taken down, and then that's when I just made a Facebook for us. And I just pay for the blue check mark. Because if you pay for the blue check mark, they'll take down anybody that's, like, frauding you or, like, scamming your name.
A
Oh, no kidding. I didn't realize that.
B
So it's worth the $15.
A
I pay so little attention to all this stuff.
B
That was my real Facebook. Like, my Facebook I've had since elementary in your group, and I joined your group, like, probably the week he got diagnosed. I'm not really active, like, commenting, but I do read every single day, like, different things that pop on my Facebook. And somebody posted that article. And I was like, hey, that's me and bae.
A
That's so cool. No, I, I. And I was happy that it was actually you. And then this is how this got set up. So, anyway, I think it's great. Anybody who's willing to, you know, share how they feel or what they're experiencing, I think it just helps people immensely. You do have to have a thick skin, so I hope you're okay. I Noticed this morning because I get an email when like new stuff pops up for the podcast and I clicked on the latest one. It's like the Juice Box Podcast is a fantastic resource for anyone living with Type one diet. And it goes on. It's very lovely, right? And then I look at the next one and the next one's like. I've seen several people in online groups recommend this podcast and I've tried to listen a few times and I didn't get any useful information. The problem is, oh good. This person's listened at least three times, so they know it's too long, there's too many episodes. And frankly, the host seems to talk about himself a lot and got annoying. I don't have time to sift through all that casual chatter to find the useful information. Now there's a person who, they don't realize the bigger picture. Which, by the way, it's cool if you don't like me or if you think I'm annoying or whatever. I would assume not everybody likes me, everybody likes everybody. Or that everybody's. Everybody's cup of tea. But what that person didn't realize was, is that the information that they're being told about is like the Pro Tip series or the Bold Beginning series or like those series of, you know, of stuff. We just put out a bunch of mental health stuff, again with Erica and like that kind of stuff, like that's what people are talking about. But why does it still exist so somebody can click on it? Because I also make a podcast like where you and I are talking like this. Like this, these conversations. Beyond offering people who wanted community, which is obviously not what this person was looking for, and they were very brave not to use their real name in the review. But that's not what this person was looking for. But it was there. They just didn't figure it out that it was there or look in. It has a lot of episodes. That's how it stays popular. Because it's popular is why people have the time to build out a 25 episode series for the Pro Tip series. Or how I'm able to put the time into making sure that Erica can come on and talk about a bunch of different mental health issues and stuff like that. Or that. How we can spend months culling together people's thoughts on what do I wish my doctor would have told me when I was diagnosed that we can put the grand round series. It has to be a viable thing so that it supports the effort that needs to go in to get the information that this person obviously wanted but couldn't find. And what they're mad at is isn't me. They don't realize what they're mad at is the way podcast apps are set up. Like, yeah, I can't put it all together. Also, if they would have hung out a little longer, they would have realized that I just started a second podcast where only the series are going to run in order.
B
Oh, that's awesome.
A
Yeah. And two weeks later, this person would have heard an ad for that and then known where to go to find it.
B
Yeah.
A
But instead they had to come to Facebook. Well, try to imagine that you've tried. Like, people say, hey, this is a nice podcast. Like, you see all these people saying something. Something nice about it, and then it's not your experience in a brief section of time. And your first thought isn't like, I wonder what I'm missing that all these other people are seeing. The first thought is, oh, well, this podcast sucks. And I'm like, okay, I don't know how people's minds work that way. If somebody tells me over and over again something's really valuable to them, and I go look at it, and I go, it's not valuable to me. I don't think, oh, the thing's not valuable. I think I don't intersect well with it. Yeah.
B
Or like, maybe that episode wasn't for me. Maybe I should go to a different series.
A
Maybe I just hit the wrong thing. There's like, yeah, I find that super interesting.
B
Like, if I went and to your podcast and looked up Omnipod stuff that doesn't pertain to us in our life. Like, no, I'm not going to take anything from that.
A
Yeah.
B
Also, I. I'm not gonna come to Facebook and complain about that episode.
A
I mean, that's what we talked about earlier. Yeah, that's just like the. I now have time to go complain about it. Like, just. It's not for you. Like, just go ahead.
B
That's okay.
A
Yeah, it's awesome. Like, just don't like it and move on. I love that TV show. What's it called? The Bear. I sometimes I tell people and they go, I don't like that at all. And I go, okay, cool. Yeah, it's awesome. You go, watch what you like. I just thought that was funny because it literally. The guy opened up my email here as we were getting ready to get done, and you just see, like, these just lovely, like, lovely things. And then the next one's just like, this sucks. I'm like, okay.
B
Like, I promise you It. It. There's more people that love it than hate it.
A
Also, it's cool if you think it sucks and if you do, then it sucks. Like, that's fine. Like, I still don't know who you're talking.
B
It's not a big deal.
A
Yeah.
B
The world still keeps rolling.
A
Yeah. Anyway, it's very cool. I'm glad you did this. I, I literally a ton of success with everything you're doing and, and with Bane, obviously. It's going to be a long, ever changing process raising a kid with type one. There's going to be things that come up that you never expected. My best advice to you would be to try to stay flexible and do your best to try to see Bain's side of it while you're going, because there's a balance. I've been thinking a lot about this lately. There's a balance between healthy and harmonious. It's not always easy to make those decisions. So.
B
Yeah, for sure. And they get older. I appreciate you for having me.
A
Yeah, no, it was really lovely. I love that you said, I. I don't know if you can.
B
I'm sorry for my soup. Sorry for my dog.
A
What? You're sorry for what?
B
My super country accent. I'm sure I probably sound like a hick, but I promise you I'm not.
A
No, not at all. It's. It was, it's, it's delightful. I thought it was lovely. I was going to say to you, I appreciate you saying, I don't know if you can hear my accent. That was maybe the funniest thing.
B
You don't realize how country you sound until you hear yourself and you're like, oh, my goodness, I sound like that.
A
I don't know how northeast I sound until somebody points.
B
You just sound like a very, like, well spoken American.
A
Do I really? That's crazy.
B
Yeah, to me you do.
A
Well, you are country then. If you think I'm well spoken, but.
B
I'm country, I know I am.
A
There's nothing wrong with that. Qualms with where you live. It would be the humidity, not your accent.
B
Yeah, the humidity is like, I don't know what I'm gonna do with this heat. And Bane's blood sugars, they've been horrible.
A
Yeah, no, I, I couldn't live like that.
B
The humidity right now is 80%.
A
No, no, no. Would. I would. I would.
B
And it's 87 degrees outside.
A
I would have a podcast where I just complained about the humidity, so it's horrible.
B
And Bane went from like a normal blood sugar to 40 double arrows down.
A
Wow. Wow. Yeah, because it would tip. What happens? It gets real hot and then overheats.
B
Yeah, it just. People. People online keep telling me when they go outside in the heat, they go up, but he tanks.
A
It's funny how. It's funny how, like, you. You make me think about. Some people say that about a shower. Like, I get in the shower and my blood sugar goes right up. And then other people say, I get in the shower, my blood sugar tanks.
B
Yeah, you just never. I guess it just depends on the person. But he always tanks.
A
Yeah. You know, you could break down every little bit of this and have, like, long conversations about it. Like, I've heard people say, like, you know, you. You heat up and, like, you're. I don't even. I'm. This is not gonna be technical, but, like, you know, your vessels kind of, like, expand, and then maybe that helps, like, move the insulin.
B
I've heard that too. Like, it makes your insulin hit harder or something.
A
I've also heard people say, like, I just get in the shower and I relax. My. My anxiety goes away. My stress goes away. And I think that I have a bunch of insulin that's, like, fighting with the anxiety. It goes away. I've heard people say, I get in the shower and my body heats up and my blood sugar goes up, it goes down. Like, who the. I mean, you know, good. Good luck. It ain't easy.
B
That's part of, like, what sense does diabetes ever makes? It doesn't make any sense ever.
A
No. No kidding. Okay. All right. Well, Marley, this was awesome. I appreciate you doing this. Thank you for taking the time.
B
Of course.
A
People want to check you out on TikTok. It's M A R L E E B R A N D O N. Is that right?
B
Yep. Yep.
A
Okay. Hold on one second for me, please.
B
Okay.
A
Dexcom sponsored this episode of the Juice Box podcast. Learn more about the Dexcom G7 at my link dexcom.com juicebox did you know that Skingrip has donated over $100,000 in scholarships to help people with diabetes? The people at Skingrip, they know what it's like to live with type 1 diabetes. They know what it's like when your devices fall off at the absolute worst time. And they're here to help Skin Grip Juicebox Save 20% off your first order. When you use my link, that's what you get for being a Juicebox podcast listener. The podcast you just enjoyed was sponsored by Tandem Diabetes Care. Learn more about Tandem's newest automated insulin delivery system. Tandem Moby with Control IQ technology@tandomdiabetes.com Juicebox There are links in the show notes and links@juiceboxpodcast.com okay, well here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app. Go to YouTube and follow me. Or Instagram TikTok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. You don't want to miss please do you not know about the private group? You have to join the private group. As of this recording, it has 51,000 members in it. They're active, talking about diabetes. Whatever you need to know. There's a conversation happening in there right now and I'm there all the time. Tag me. I'll say hi. My Grand Rounds series was designed by listeners to tell doctors what they need and it also helps you to understand what to ask for. There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced. And when we talk about GLP medications, well, we'll break down what they are, how they may help you, and if they fit into your diabetes management plan. What do these three things have in common? They're all available at juiceboxpodcast.com, up in the menu. I know it can be hard to find these things in a podcast app, so we've collected them all for you@juiceboxpodcast.com if you're looking to meet other people living with type 1 diabetes, head over to juiceboxpodcast.com juicecruise because next June. That's right, 2026 June 21st. The second Juice Cruise is happening on the Celebrity Beyond Cruise ship. It's a seven night trip going to the Caribbean. We're going to be visiting Miami, CocoCay, St. Thomas and Saint Kitts. Yeah, the Virgin Islands. You're gonna love the Virgin Islands. Sail with Scott in the Juice Box Community on a week long voyage built for people and families living with type 1 diabetes. Enjoy tropical luxury, practical education and judgment. Free atmosphere. Perfect day at Coco Bay St. Kitts, St. Thomas. Five interactive workshops with me and surprise guests on Type 1 hacks and tech, mental health, mindfulness, nutrition, exercise, personal growth and professional development. Support groups and wellness discussions tailored for life with type one and celebrities world class amenities, dining and entertainment. This is open from every age. You know newborn to 99. I don't care how old you are, come out. Check us out. You can view staterooms and prices@juiceboxpodcast.com JuiceCruise the Last Juice cruise just happened a couple weeks ago. A hundred of you came. It was awesome. We're looking to make it even bigger this year. I hope you can check it out. The episode you just heard was professionally edited by wrong way recording wrongwayrecording.com.
Air Date: October 20, 2025
Host: Scott Benner
Guest: Marlee (mom of Bain, a toddler with Type 1 Diabetes, known from TikTok/Instagram)
This episode continues Scott Benner’s candid conversation with Marlee, whose viral TikTok content chronicles daily life with her young son Bain, diagnosed with Type 1 Diabetes at 15 months old. Together, they discuss the realities, misconceptions, and advocacy work involved in sharing their stories online. Marlee details her motivations, addresses critics, and provides insight into the social and financial realities of being a parent-influencer in the diabetes community. This episode dives into community, representation, social media myths, parenting, and the realities of diabetes management for families.
Marlee’s motivation: Not about followers or fame, but initially sharing her son’s experience to explain to friends why her life had changed so drastically. She remains committed to Bain’s privacy, refusing to share sensitive health information, and will respect his wishes if he wants the content taken down in the future.
Role of storytelling for understanding and inclusion
Negative reactions to diabetes representation: Both discuss the online uproar about medical devices on dolls (e.g., the Barbie with an insulin pump) and the shockingly ignorant or insensitive comments that follow.
Handling online hate: Marlee and Scott bond over blocking trolls, focusing on support, and the reality that the urge to be vocal online is sometimes driven by those wanting to “fix” things or push their worldview.
Managing exhaustion and priorities: Marlee expresses the real-life exhaustion from managing lows and highs at night, while fending off criticism from those who have the time to complain online.
The uniqueness of T1D parenting: Both agree that only those intimately involved in T1D (patients, parents, close caregivers) can truly understand its daily nuances—and even then, not completely.
Ongoing learning and personal growth as a parent and advocate
Social media as a lifeline: Marlee credits TikTok and online groups for introducing her to other T1D parents and for essential peer support not found in medical settings.
Different learning styles and resources: The hosts discuss the importance of offering content in various formats—audio, written transcripts, short videos—to reach people where they are.
Demystifying TikTok income: Marlee debunks the common belief that TikTok parents are making large sums—earnings are minimal, occasional brand deals or gifts are modest, and her regular job is still necessary.
Intent to raise awareness, not profit: Both affirm that real value comes from helping others and making people feel less alone, not from monetary gains.
The fleeting nature of social media presence: Scott underscores that platforms and their rules change, and what works today (like building a successful podcast or account) might not work for someone starting out now.
Imposter accounts and protecting authenticity: Marlee shares an experience with a fake Facebook page reposting her TikTok videos for ad revenue, and how she eventually reclaimed her content.
On public sharing:
“Was everything right? No. Was everything perfect? No...But...my life’s better today than it was before I found the podcast. Yes.”
— Scott, (16:08)
On online criticism and perspective:
“Autoimmune disorder that can kill you if you don’t have insulin. Over glasses and buck teeth. Okay.”
— Marlee, (07:25)
On family and purpose:
“We’re going on...a once in a lifetime opportunity for him. And it’s something that he’ll cherish and remember. I mean, he might not remember it because he’s not even two, but I’ll remember it and he’ll have pictures...”
— Marlee, (23:26)
On value beyond money:
“Who’s going to get rich off diabetes? Because it ain’t me. It’s like Eli Lilly. You know what I mean?”
— Marlee, (27:44)
On thick skin in advocacy:
“You do have to have a thick skin, so I hope you’re okay.”
— Scott, (36:37)
On raising awareness:
“I just want people to realize that this is something that can happen to your toddler, and this is how we have dealt with it as a family.”
— Marlee, (25:09)
Candid, humorous, supportive, and deeply empathetic. Both Scott and Marlee combine personal insight with wit and realism, encouraging understanding, flexibility and community while openly acknowledging the unpredictability and difficulty of Type 1 Diabetes parenting.
TikTok/Instagram: @marleebrandon
More resources & community:
Scott’s Closing Advice:
“Try to stay flexible and do your best to try to see Bain’s side of it while you’re going, because there’s a balance...between healthy and harmonious.” (41:44)
End Note: The episode provides both practical wisdom and emotional solidarity for families navigating the complexities of Type 1 Diabetes in a digital age, balancing advocacy and authenticity in the face of misunderstanding.