#1670 Deez Nuts - Part 1

Summary

Juicebox Podcast: Type 1 Diabetes

Episode #1670: Deez Nuts – Part 1
Host: Scott Benner
Guest: Kirby, a mom of an 8-year-old with type 1 diabetes
Date: Nov 4, 2025

Episode Overview

This episode features Scott Benner in conversation with Kirby, the mother of an 8-year-old boy diagnosed with type 1 diabetes nearly one year ago. Together, they offer a frank, humorous, and deeply insightful look at parenting through a new diabetes diagnosis, the challenges of diabetes education, the shortcomings of formal support systems, and the evolution of the Juicebox Podcast. The conversation covers everything from the stress and confusion of early days, to the culture of teaching in diabetes, to using humor and community as coping mechanisms. The episode also touches on the origins of its playful title ("Deez Nuts"), making space for both levity and real talk about living with diabetes in the family.

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Key Discussion Points & Insights

1. Getting Comfortable Before the Serious Stuff

• Scott and Kirby use humor, banter, and storytelling to break the ice before discussing diabetes.
• Scott explains he uses “easy” questions at the beginning of interviews to help guests acclimate to being recorded.
  • "The episodes all take on sort of a similar vibe in the beginning because I ask people questions that they know the answers to… then they get comfortable, and then we keep talking." – Scott (08:22)
• The playful mood quickly sets in with stories about children putting bouncy balls in their mouths and a tangent about how Scott once helped solve a murder story via a mortician friend (03:09–05:28).

2. Humor as Medicine (and the Episode Title)

• Scott jokes about his refusal to wear glasses as the “mature version” of a child’s bouncy ball antics, leading to the episode title, “Deez Nuts.”
  • "So you think that me not wearing glasses is the equivalent of me putting balls in my mouth? Oh, we should call this episode Deez Nuts." – Scott (07:00)
• The duo riff on family, parenting, and silly trends, showing the necessity and power of laughter when dealing with chronic illness.

3. Kirby’s Family Story and the Early Signs of Diabetes

• Kirby recounts the initial signs of her son’s diabetes: nighttime bedwetting, daytime accidents, and increased thirst post-vacation.
  • "I kind of knew, you know, because I'm a dietitian. So I... know that is a symptom." – Kirby (12:39)
• She details her and her doctor’s process, her son’s first hospital stay, and realizing no one clearly explained to her son that diabetes was a lifelong condition.
• "Nobody actually sat us down and explained what this would look like long term... I was actually the one that had to tell my son that this was forever." – Kirby (24:17)

Notable Segment

• Diabetes Diagnosis Journey: 11:27–14:41
  Kirby describes the step-by-step realization that her son had type 1, touching on parental intuition, medical follow-up, and being a health professional herself.

4. Frustrations with the Health System

• Both discuss the “patchwork” of resources new families must navigate after diagnosis.
• Kirby, a registered dietitian, laments the lack of formal, rigorous education for parents and caregivers.
  • "There's so much calculation, there's tech involved, there's medication that you're essentially dosing on your own... but there is very little, I will just call it formal support." – Kirby (38:13)
• The conversation acknowledges disparities in education and support, especially for families who are less connected to online diabetes communities.

5. The Evolution of the Juicebox Podcast

• Scott shares how he stumbled into his conversational format from humble beginnings and why he chose a more aspirational approach over “lowest common denominator teaching.”
  • "I have an aversion to kind of lowest common denominator teaching. I don't like when we dumb things down." – Scott (35:27)
• The discussion explores different learning styles and the need for families to piece together diabetes management strategies from a buffet of sources.

Notable Quote

• "We were basically making a really long winded manual for diabetes." – Scott (28:10)

6. The Mental Burden, Sadness, and Community

• The hosts acknowledge the sadness and overwhelm many parents experience after a diagnosis.
  • "When is the sadness gonna stop?" – Scott (22:01)
• Kirby points out that even professionals (like herself or a brain surgeon) are often as lost as any parent at the start.
  • "It's okay that it's hard... I wanted people to hear that, especially for the... person who's experiencing sadness..." – Kirby (24:36)
• Both agree that hearing diverse experiences can give hope and that it's acceptable to approach diabetes at one’s own pace and style.

7. Aspirational but Flexible Guidance

• The hosts agree the podcast should inspire listeners to reach for tighter control and better outcomes, but not shame those who aren’t there yet.
  • "I think that aspirational is the way to go." – Scott (30:02)
  • "It's okay if this isn't the exact right way for you... you should pick and choose from it like a buffet." – Kirby (31:48, 32:41)
• Scott emphasizes interacting with listeners to understand and support a variety of needs and experience levels.

8. The Limitation of Online Spaces and Peer Support

• The episode acknowledges the silos within diabetes communities and the tension around cross-promoting resources.
• Scott reveals he avoids recommending his content in certain online spaces to not appear as "poaching," despite knowing his podcast could help.
  • "I don't reach a small fraction of people with type 1 diabetes. That's a problem." – Scott (41:44)

9. What Can Be Done? (And Why It Probably Won't Happen)

• Kirby proposes more formal, possibly hospital-supported masterclasses for caregivers, but both acknowledge real-world structural obstacles.
• Scott references the dichotomy between how things “should” be versus how they are.
  • "There's the way people want the world to be and there's the way it is." – Scott quoting a podcast (48:52)
• Both hope for better resources, but remain realistic about the influences of liability, bureaucracy, and the complexities of institutional change.

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Memorable Quotes & Moments

• On Humor as Coping (Deez Nuts):
  "So you think that me not wearing glasses is the equivalent of me putting balls in my mouth? Oh, we should call this episode Deez Nuts."
  — Scott (07:00)

• On Sudden Realizations:
  "I was actually the one that had to tell my son that this was forever because he thought... the injections... were all just to get him back steady."
  — Kirby (24:17)

• On Support Gaps:
  "There's no other condition that I can think of where there is so much management put on individuals... yet very little formal support."
  — Kirby (38:13)

• On Learning & Podcast Evolution:
  "We were basically making a really long winded manual for diabetes."
  — Scott (28:10)
  "I think that aspirational is the way to go."
  — Scott (30:02)

• On Not Reaching Enough:
  "I very likely reach more people with type 1 diabetes than anybody else — and I'm not touching a small fraction of people..."
  — Scott (41:44)

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Timestamps for Key Segments

• 02:16–03:41: Ice-breaker banter; the “file naming and murderer” story
• 05:50–07:17: Bouncy balls, parenting chaos, and the origin of "Deez Nuts"
• 11:27–14:41: Kirby’s detailed recounting of her son’s diagnosis journey
• 18:51–19:17: The hospital experience — Kirby’s family and Golisano Children’s Hospital
• 22:01–25:48: Mental and emotional challenges early in diagnosis; even professionals struggle
• 28:10: Making the podcast a “manual” for diabetes
• 30:02: Aspirational, not shaming – setting a high (but human) bar
• 35:27–36:56: Teaching styles and “lowest common denominator” approaches
• 38:13–39:53: Failures of the system and thoughts on formal education for caregivers
• 41:44–42:19: The hard reality that most people with type 1 still aren’t being reached
• 43:12–49:34: Why systemic change is slow, cultural resistance, and the more pragmatic approaches that emerge from necessity

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Language & Tone

• The language is conversational, irreverent, honest, and humorous.
• Both Scott and Kirby employ self-deprecation, sarcasm, and playfulness, balancing heavy topics with lightness.
• The dialogue flows naturally, interspersed with digressions and personal anecdotes, fostering intimacy and connection for the audience.

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Summary Takeaways

• Humor and candor are essential in making sense of the challenges and absurdities of parenting a child with type 1 diabetes.
• The system is insufficient: Most families must patch together their diabetes education, and formal supports lag behind real need.
• Even professionals are humbled: Experience and credentials don’t make managing diabetes or its emotions easy.
• No one-size-fits-all solution: The Juicebox Podcast offers aspirational stories and practical tips, but listeners should adapt what works for them.
• Community matters, but reaching the “unreached” and creating truly universal access to effective diabetes education remain big, unsolved challenges.

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For more from Scott, Kirby, and the Juicebox community, check out the next episode (Part 2) and explore series, pro tips, and community connections at juiceboxpodcast.com.

Transcript

[Scott]

Welcome back friends. You are listening to the Juice Box Podcast.

[Kirby]

My name is Kirby and I'm a mom of a 8 year old who was diagnosed just about a year ago with type 1 diabetes.

[Scott]

If this is your first time listening to the Juice Box Podcast and you'd like to hear more, please download Apple Podcasts or Spotify, really any audio app at all. Look for the Juice Box Podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management? Go to juiceboxpodcast.com up in the menu and look for Bold Beginnings, the Diabetes Pro Tip Series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. While you're listening, please remember that nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. I'd like to thank the Eversense365 for sponsoring this episode of the Juice Box Podcast and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want the Eversense CGM. Eversensecgm.com Juicebox 1 year 1 CGM today's podcast is sponsored by usmed usmed.com Juicebox you can get your diabetes supplies from the same place that we do and I'm talking about Dexcom Libre, Omnipod, Tandem and so much more. Usmed.com juicebox or call 888-721-1514. This episode is sponsored by the Tandem MOBI system, which is powered by Tandem's newest algorithm, Control IQ Technology. Tandemobi has a predictive algorithm that helps prevent highs and lows and is now available for ages 2 and up. Learn more and get started today at tandomdiabetes.com channel.

[Kirby]

Juice Box My name is Kirby and I'm a mom of a 8 year old who was diagnosed just about a year ago with type 1 diabetes.

[Scott]

Okay, and I'm sure we'll get to that, but Kirby and I were having way too good of a time speaking before we started recording, so I just hit record very quickly. Now we have two things to talk about. The way I say it.

[Kirby]

Okay, is that all?

[Scott]

The first one. Well, I mean, from the get go.

[Kirby]

Okay.

[Scott]

The first one is my assertion that people are just wandering through the world unaware of each other. Right. And that I feel like that might be getting worse. It's not just me getting older and being a Bigger complainer.

[Kirby]

But that two things can be true, right? Both can be true.

[Scott]

Thank you, Kirby. I appreciate that very much that you can't just let me have it for a second, but I think maybe the other thing we have to talk about is why do I have so much anger about my vision getting worse?

[Kirby]

Right.

[Scott]

But there was something else in there. What was the other thing?

[Kirby]

Oh, your friend caught a murderer.

[Scott]

Okay, so Kirby and I are talking.

[Kirby]

Oh, very related.

[Scott]

I use a completely ridiculous example of something about why I have my file naming system the way I have it. And I said, you know, because, like, five years from now, when I get a note that says, hey, you had this person named Kirby on your show one time, and they murdered three people, and we need you to find the recording. I need to be able to find it. And she laughed because that's silly. Then I said, hey, don't like. She said something about like, you know, you might catch a murderer one day. And I, Kirby, felt like you were being sarcastic.

[Kirby]

No.

[Scott]

And I said, my friend of mine caught a murderer once, and then we had to share. Yes. And now I will tell you about it. Okay. So my friend is a mortician, and.

[Kirby]

Not where I thought that would go.

[Scott]

Yeah, see, now you. Now you feel like there's a story here.

[Kirby]

There is a story.

[Scott]

He was preparing a body of an older person, and he was doing all the things he does, and he checked the airway down the. You know, down the throat and everything as this part of his process. And he felt like he saw something, and he looked and felt like he did see something. Got a force up, I believe, and tried to find out what it was and what it was. Do you want to guess?

[Kirby]

A bouncy ball?

[Scott]

It was a rag.

[Kirby]

Oh.

[Scott]

Oh.

[Kirby]

Oh, my.

[Scott]

Someone. This poor person's neighbor, for reasons I don't. I don't remember. Maybe he didn't even know when he was telling the story. An elderly person's neighbor accosted them and jammed a rag down their throat and suffocated them for the love. Yeah. Oh, my gosh. And then he called the police and did all the things, and they caught the person that did it.

[Kirby]

So wouldn't they, like when they collected the body? First of all, I didn't think I would say that sentence this morning, by the way, but wouldn't they, like, check for that?

[Scott]

So I think the person was old enough that they were. They were just deceased. Natural causes. Yeah. And they just probably thought that's what was going on there. Your question should be the Indicator from what he told me of how far the person somehow jammed the rag down.

[Kirby]

That is wild.

[Scott]

Yeah. That it was not. It was not obvious, huh? Yep.

[Kirby]

That's quite a story.

[Scott]

So there you go.

[Kirby]

There you go. I said bouncy ball because my kids have been taking to putting bouncy balls in their mouth, and I keep having to tell them to stop. So I immediately pictured that happening.

[Scott]

So are they big enough that they could not swallow them or.

[Kirby]

I feel like everything could get in there. You know, I just.

[Scott]

How old are your. How old are the kids?

[Kirby]

So I've got an eight year old that's my type one and then two four and a half year old twins, all boys. So, like, everything's just always very chaotic and feels like it needs attention.

[Scott]

It's the twins putting the balls in the. I'm sorry, I almost said balls in their mouth.

[Kirby]

Well, now you did. So there you go.

[Scott]

It's the older one doing it.

[Kirby]

They all do it. Yeah. Like, he'll look at me and be like, look. And I'm like, stop it.

[Scott]

Are there any other indications your kids are a little dumb, or is this the only one so far?

[Kirby]

I feel like this is fair exploration of, you know, the world around them. Right. At some point, they'll stop.

[Scott]

I think, oh, yeah, sure. I'm still staring at. I'm staring at my kids going, like, is that ever gonna end? You know, now looking at myself and think. I mean, honestly, I'm looking at myself thinking the same thing. Because to your point, you know, I'm sitting here trying to type your name in and I can't see. And instead of just putting my glasses on, I just sit here pissed. And you're like, oh, my God. I heard you talking about this in the podcast recently. I'm like, yeah, I'm not making it up. I'm angry that I can't see.

[Kirby]

This is the equivalent of putting the bouncy ball in your mouth. It's just like a mature version of it. You're doing something repeatedly that is not serving you well.

[Scott]

So you think that me not wearing glasses is the equivalent of me putting balls in my mouth? Oh, we should call this episode Deez Nuts. You wanna do that?

[Kirby]

Oh, my God. You know, of all of the things that floated through my head of what you would decide to call this, that was not one of the options that I could.

[Scott]

We'll see what happens.

[Kirby]

Oh, my God. My husband would be just thrilled. So, yeah, I mean, he would go. Just celebrate.

[Scott]

Arden went on a Deez Nuts tear for like, three weeks this summer.

[Kirby]

What does that. Just said it all the time.

[Scott]

Oh, just all the time about anything that got said for, like, she was delighted by it. Like, she was five years old for about three weeks.

[Kirby]

I. I can't wait for the trend to end. I don't know how long this one will be around, but I'm. I might be a little over it.

[Scott]

I'm over.

[Kirby]

Dude's nuts.

[Scott]

Yeah. Well, you've been married for a while.

[Kirby]

Oh, my God. This is taking a turn.

[Scott]

I don't know what we're going to talk about when this thing starts getting rough.

[Kirby]

This is getting rough.

[Scott]

I'm trying to be upbeat today. The world. The world got weird again yesterday.

[Kirby]

I'm trying to be upbeat. I. I am here for it.

[Scott]

Thank you. All right, so. So we've covered all the unimportant things. Actually, you know what? This may be a thing I do because. May I share something with you before we go on and talk about your kids? Diabetes.

[Kirby]

Of course.

[Scott]

I don't. Do you listen to the podcast?

[Kirby]

I do.

[Scott]

Okay, so I think it's fairly obvious that I record daily with people who are not accustomed to being recorded.

[Kirby]

Right.

[Scott]

And so the episodes all take on sort of a same. A similar vibe in the beginning because I ask people questions that they know the answers to. It's usually around their kids. Like, how old your kids are? How old are you? Have you been married? Like, sometimes I'll say, somebody, are you married? And people are probably like, the hell's that got to do with anything? What it has to do with it is they know the answer to it, and it's something they're going to be comfortable. Then they get themselves comfortable, and then I get them comfortable, and then we keep talking.

[Kirby]

Makes sense.

[Scott]

But look how we did. I got you comfortable by talking about a dead body and deez nuts.

[Kirby]

What does that say about me?

[Scott]

I don't know. But what I can tell you is that you gave off the vibe that I could do this. So.

[Kirby]

Yeah, I don't know what that is. And I'm sitting here thinking, gosh, I was gonna share this episode with, like, family members. So now I'm gonna have to.

[Scott]

You still can. We haven't said anything wrong.

[Kirby]

We'll come with a disclaimer. Some of them might not even is happening right now. So, you know, and I can always blame you. I got to follow the host lead.

[Scott]

Yeah. You just say, oh, my God, the guy's crazy. I. He's not. I didn't want to. God knows how these Things become.

[Kirby]

I didn't write an email pleading my case or anything.

[Scott]

No, I didn't. I didn't send a long note about wanting to be on the podcast. Anyway, tell me about your family and. And how diabetes came into your life.

[Kirby]

Sure. Okay. So I already said about our kids. I'm married. We've been married. I'm not even going to try to guess.

[Scott]

Wait a minute.

[Kirby]

12 years?

[Scott]

Kirby, you don't know how long you've been married.

[Kirby]

I do so. This is what I do. Ok? All of the dates of all of the things in all of my life float around like a jumble in my head. And I sometimes forget when people were born. And there is a cutting board in my kitchen that my sister had made for me with my wedding anniversary on it. Just the date. So it was 2013 and I just pictured the cutting board. So now I can do the math. It was 12 years.

[Scott]

Wow.

[Kirby]

So that's. I was trying to save you from that.

[Scott]

What a circuitous. Circuitous route you took to that. That was awesome. You and I might get along really well.

[Kirby]

This is gonna be good. I don't know how my brain works. This is gonna be a good time.

[Scott]

So you only know how long you've been married because bought you a cutting board with your wedding date on it.

[Kirby]

That is a reductionist description of what I just said.

[Scott]

It's sort of what I do. I don't know if you realize what this is. I generalize things. Then we talk.

[Kirby]

Oh my gosh. It's how I do the math. Quick. Because we were together much longer than this. We've been together like almost 20 years, you know, so it's just like the dates are a jumble, like I said. So we've been married 12 years. So we've got three beautiful boys. And my oldest, my eight year old was diagnosed. We're actually five days away from his first diversary. So we're coming up on it.

[Scott]

This is only 361 days old.

[Kirby]

Yeah. It's fresh. It feels. It feels. Feels still fresh. Even though we've come a long way.

[Scott]

I just want everyone to know it's 360. I just got the math wrong on that right, didn't I?

[Kirby]

I don't know. Is it a leap year?

[Scott]

How many. Good point.

[Kirby]

No, it's not. I was trying to help you, but it's not.

[Scott]

I tried to do the simplest of math and I was. I did that wrong. I found myself going like, wait, 364. 365.

[Kirby]

You need a Cutting board. If I had dates on it, if.

[Scott]

I had a cutting board, it said how many days there weren't a year. This all would have been much easier. That's 100% right. So you have these three, three lovely children. The oldest one develops type one just a year ago. He's diagnosed.

[Kirby]

Yeah. Yeah.

[Scott]

Tell me what led you to believe that he had it? What got you to the doctor or hospital?

[Kirby]

Yes, we had just come back from vacation, so we were in the Adirondacks. And typically we left like a week between vacation and when school started last, it actually was just we got home the weekend before school started. And that's important because he started having some nighttime accidents. So he was wetting the bed overnight. And because we thought that that was potentially related to the quick transition to school because he had some history, you know, he took a little bit longer to, you know, go all night when he was younger and he had some history of night terrors and stuff like that, really. So we just thought it might have been a regression and maybe that transition was a trigger for some of those things. So first couple of nights we didn't think anything of it. Then it was continuing. So I emailed the doctor and I said, hey, this is going on. We didn't see anything else happening. Everything else seemed fine. She asked a couple questions. She said, don't think it's gonna be a long term issue. I laugh now at that because, like, little did we know. So we just monitored it, but it just continued for a whole week. We couldn't wake him out of sleep. He was like in a dead sleep when we tried to wake him up to try to have him go to the bathroom again. And then that's when I was just like, I kind of knew, you know, because I'm. I'm a dietitian. So I. This is something that's rattling around in my brain that I know that is a symptom of. And I thought this is either type 1 or the rarest time of a kid getting like a uti, which you.

[Scott]

Got diabetes from wet in the bed.

[Kirby]

Oh, yeah, yeah. Because. Because of how it was happening, it was just like every single night and the tiredness that he had. And then over the weekend before we were able to get an appointment for him, like the Monday after all of this, after a week of this had been happening, he had a daytime accident. And that was actually when I really was like, this is diabetes. Because he. He's seven years old. He's not. That's not typical.

[Scott]

Sure.

[Kirby]

And then he was with some family members who said he was drinking a lot and had to use the bathroom a lot. So that all happened in the span of, like, you know, the wedding. The bed was like a weekish week and a half. And then that daytime accident and the increased thirst was just only a few days. So then he went to the doctor that Monday and that was that. We found out right away. I told the doctor, what's that?

[Scott]

What do night terrors look like?

[Kirby]

So he would wake up, like, screaming and crying and yelling. Like he was just terrified, like he was in the middle of a nightmare. And it was odd because he'd had this kind of glassy look to his eyes. So we could tell that he wasn't, like, conscious of what was happening. And we would have to wait him out. I mean, it's. We just keep him safe because sometimes he would thrash a little bit and we just kind of waited him out, sat with him. We were there to comfort him, but just kind of let him run its course. So it would happen not often throughout his young life, but there was a periods of time where it was happening often enough that we cousins slept over. We had to tell them, you know, this might happen.

[Scott]

So. Yeah. Has it gone away completely?

[Kirby]

Yeah, it has, yeah. And once in a while, I think he'll wake up and like, just kind of sleep, not sleepwalk, but he'd be like, not really awake. Do you know what I mean?

[Scott]

I slept walk as a kid. I don't do it anymore. I haven't done it in forever. But, like, does he do that as well?

[Kirby]

No, no, no.

[Scott]

Okay.

[Kirby]

So it all kind of, you know, went away.

[Scott]

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[Kirby]

Yeah, this is great.

[Scott]

Yeah, really great.

[Kirby]

It's fantastic. This is exactly what I thought life would be like.

[Scott]

Remember, we used to just drink and go out on the weekends?

[Kirby]

We would say that we'd be like, remember what it used to be like? But obviously, you know, it's like you can't do that your whole life. But it's just there's all these things that you're not ready for because each family, each kid, each person has their own story. I always say nobody gets out unscathed. So I believe that this was, you know, it was something we had to quickly learn how to manage and help him through. And then it went away, and now we're where we are.

[Scott]

I'm sorry for the detour. I was just interested.

[Kirby]

Okay, okay, I'm with you.

[Scott]

Okay. So you sniffed the thing out pretty quickly. You just call a doctor or do you think it's emergent?

[Kirby]

My husband actually happened to have his own annual checkup scheduled. So we actually just asked them if they could use the time for my son instead. And they said, sure. And I'm at work and I knew what time this. The appointment was. And with Mychart, you know, I. I'm just keeping my eyes on my phone and I saw the Mychart message pop up that said, you have a new test result available. And I saw it and I was like, wow.

[Scott]

Why does your husband see a pediatrician?

[Kirby]

Oh, she's a family doctor, so she sees us all. He's awesome. Oh, because he's a child. He's my fourth child, that's why.

[Scott]

Well, okay, so it pops up on my chart and you're like, that's. Isn't that crazy that that's how you found out?

[Kirby]

Yeah, and I know a lot of not know immediately, but like, it was. I can't remember the exact number, but it was over 400. So I was just like, well, that, that's what this is. So I just, I actually called the office and talked to the doctor while she was like in route. She's like, I knew you were going to call.

[Scott]

I was like, so you people who understand lab results.

[Kirby]

Yes, I know, but. And she's so. She's amazing. And so we went to her folks around here, they'll know Golisano Children's Hospital, which is an incredible resource. We're incredibly lucky through urmc. And he stayed. I think we stayed two nights and then we, we came home.

[Scott]

Okay.

[Kirby]

He wasn't in any DKA or anything like that. He just.

[Scott]

I'm sorry, folks. Near where.

[Kirby]

Oh, near where we live, the Rochester area. So it's just a. It's a very. It's a gem. We're really lucky to have the resource. So. Giving him a shout out.

[Scott]

So in your note, you say that there was confusion and challenges in the early days and months of diagnosis. Do you remember? So it sounds so formal, doesn't it?

[Kirby]

I know, I know. I was rereading what I wrote. I'm like, gosh, I was having some feelings when I wrote that.

[Scott]

Yeah. Then you went on you're like, assumption. You did use a lot of big words. You were like, no assumptions and perceptions of support systems.

[Kirby]

My gosh. Should I have used smaller words for you?

[Scott]

No, I understood all of them and a couple of them I looked up. And then once I looked them up, I took it to somebody else and I said, hey, right.

[Kirby]

And you just had to make the font bigger. Like zoom to 200%.

[Scott]

You know, I saw over somebody's Shoulder in the store the other day, this guy's font on his phone was as big as it. I mean, there were five words on each screen, you know, like, as it went by. And I thought, this is what's going to happen, isn't it? This is it.

[Kirby]

Well, at least we have the ability to manage.

[Scott]

But.

[Kirby]

But yeah. So I think I'm, I'm trying to remember what I meant by that, but it was just like, it depends on where you are, like the information you get. But everybody gets the same kind of basic information. And I know you've, you've referenced it as like the do not die information, which makes sense, right? Like, they don't know who these families are, what their capabilities are, what their ability to understand. So I get it. I think when we got home and we started to realize how many factors outside of just the basic carb counting were involved, I think I got very frustrated because I was like, well, geez, now that the dust has settled, I want more information on this because we are intelligent people who want to dive into this and if you give us the tools, we'll use them. So I think that's probably what I was referencing because I do think there's a lot that could be done in the early stages or like in the, you know, the three to six month stage after diagnosis to kind of identify what families are ready for. And there's not really a lot available that's formal. Right. There's like, I think I refer to it as like a patchwork of user generated stuff that we're relying on, which is amazing. But sometimes I wish there was something a little bit more formalized. So it's kind of like I can work through almost like classwork because that's how I learn. So I think that's probably what I was talking about.

[Scott]

Yeah. What you want. You know, I find interesting that I don't know how you probably wrote that six months ago. Right. And six months later you're like, oh, I wonder what I meant by that. Like, I. It just, it's very, I guess, just indicative of how quickly things change.

[Kirby]

Yes.

[Scott]

Usually when I bump into people who are more newly diagnosed and they're out of their minds and, you know, they think I actually have to. I have to answer a lady online today, you know, who just said to me, like, when is the sadness gonna stop?

[Kirby]

I saw that one.

[Scott]

Yeah. Yeah. So I have to get back to that one. And I think the answer is, honestly, you're not gonna feel like this soon. Right. And it's going to once you get there, it'll, it'll actually be much quicker than you expected it to be.

[Kirby]

Right?

[Scott]

It just, I don't know, like it's, you just gotta make it your amount of time and, and I think it's more about learning and becoming comfortable then I assume that her sadness just comes from uncertainty. Today's episode is sponsored by a long term CGM that's going to help you to stay on top of your glucose readings. The Eversense 365. I'm talking of course, about the world's first and only CGM that lasts for one year. One year, one CGM. Are you tired of those other CGMs, the ones that give you all those problems that you didn't expect? Knocking them off, false alerts, not lasting as long as they're supposed to. If you're tired of those constant frustrations, use my link eversensecgm.com juicebox to learn more about the Eversense 365. Some of you may be able to experience the Eversense 365 for as low as $199 for a full year. At my link you'll find those details and can learn about eligibility. Eversensecgm.com juicebox check it out.

[Kirby]

I think so, yeah. And I think that that's another thing that could have been. And I don't know, looking back, it's easy to say this, but to take away some of the uncertainty at the get go, I think, yeah, it should be a very routine part of this because I remember even looking back, nobody actually sat us down and explained what this would look like long term. It's like get them the tools that they need to keep him alive and then follow up in six weeks and then every three months after that. But at the get go, nobody actually sat my son down and us at the same time to say this is what this means. And I was actually the one that had to tell my son that this was forever because he thought when we were in the hospital, the injections and everything after we left, they would be done. He thought they were all just to get him back steady, fix whatever was wrong and then go home. So I had to do that, which, you know, I want to be present for when he's being told that. But it was kind of like, wow, we just went, we're about to go home. And nobody actually said this.

[Scott]

So listen, you knew, but like, oh yeah, of course.

[Kirby]

Yeah, exactly.

[Scott]

Did you know that he didn't know or did you did it like I.

[Kirby]

Didn'T know until he said something. I can't remember what it was.

[Scott]

Thank God this is over.

[Kirby]

Yeah, yeah. And his face. I was like, oh, my God. I'm gonna have to say it, like in this moment, because I couldn't walk. I don't even know that he was in the room. I mean. Cause, you know, we're in and out. There's all these people in and out. That was something too, that I wanted to make sure. I think in my early note to you that I am a dietitian. So, like, I theoretically should know a lot about this, but it's still hard for me. Like, there's stuff that makes no sense to me still. And I wanted people to hear that, especially for the, you know, the. The person who's experiencing sadness, not to make them feel worse. Like, oh, even a dietitian can't figure this out. How. What hope do I have? But it's like, it's okay. Like, there is a light at the end of the tunnel. It will eventually be fine. I feel like, you know, I think people have different perspectives on it.

[Scott]

Yeah. I retold somebody yesterday, just very briefly, that I once took a private call from a, like a literal brain surgeon whose kid got diabetes and was on the phone, like, I don't know what to do. Please help me.

[Kirby]

Yeah.

[Scott]

And it's funny because the way you just said it, like you see it backwards for me. Like, you were like, oh, I don't want them to feel bad that, like, you know, a dietitian doesn't get it all the time. At what chance do I have? I saw it the other way. I was like, oh, he didn't get it either. We're all in the same boat.

[Kirby]

Exactly. Well, that's exactly. What I mean is that, like, that might be a knee jerk response for people, but that's kind of the point, is that it's okay that it's hard. Because I think there is a feeling that especially with the technology now, we can get such tight control. So a lot of the information that I see kind of being bounced around is people trying to get tighter, tighter, tighter, tighter. Right? Like, get that A1C under 6, get it under 5.5. Like, get it as low as you can. Here's all of the things that we do. For me, I think that's great. It gives me a lot of hope. But I wonder if it sometimes gives the impression to others that that's what they need to be striving for, because for some people that might not be possible. Right now, it might take longer to get there. And if you don't get it quick, maybe you feel like you're never going to get it. Especially early on when you're trying to get as much information as possible.

[Scott]

You're bringing up something interesting. That is a little backend that I'll share here. So when I start making the podcast, I don't really know what it is. That's just fair. I've told people a million times I thought I was going to read my most popular blog posts into a microphone because I had these blog posts that people found really valuable and I thought, oh, I'll just read them and then they can listen to them too. I mean, very ridiculous. But it was my thought. That is how I intended to start the podcast. I got away from it pretty quickly. And I've said on here before, like, I think I was 20 minutes in doing it the first time, and I was like, oh my God, no one's gonna listen to this. I was having trouble doing it. I was like, if I, if I can't deal with it, like, they're not gonna want to listen to it, you know, and, you know, so I don't know what happens. The podcast starts. It starts following my personality more and becomes more conversational and me just chatting with people and. And then I had this idea that, like, well, I'll be like an avatar for you listening and I'll just. I don't know a lot of this. So it's perfect. I'll ask questions and I'll assume the questions I'm asking are the questions you would have and, you know, hopefully you'll, you know, you'll like it that way. And I think it built that, built on that. And then like I've said before, couple hundred episodes into it really was like I was always learning on the job. And it started to become apparent from people's responses and letters and everything. The people were just saying like, hey, I don't even know what to say, why? But I've been listening to this podcast for a year and my A1C's and the sixes, and I was like, oh, awesome.

[Kirby]

Yeah.

[Scott]

And then, you know, like, and then you just kind of realize that the. I had a framework about how I did things. Then people would come on and add their 2 cents or things that worked for them and that we were basically making a really long winded manual for diabetes, right? And then I go to Jenny and I say, hey, what if I. I said I think I have these things. I've Written them down. And I think these are the things I do. And then when I do Those things, Arden's A1C stays in the sixes. I want to tell people because I think it's unreasonable to ask them to listen to 200 episodes of a podcast to get that information, but I think it'll be crazy if I sit there and talk about it by myself. I was like, I think it'll be hard to listen to and I'll probably start rambling. I was like, and I love the way you think about diabetes. Would you come have these conversations with me? You know? And she was like, yeah, right on. That sounds good. And you know, and we made that pro tip series.

[Kirby]

Yes.

[Scott]

Right. Like, so the way that works is. I didn't expect it to work that way. Like, I didn't. I didn't expect any of this, to be perfectly honest with you. And now we are in a really strange situation, Kirby, because I forget why I started telling you this. Tell me, you know, I know you know, so just tell me.

[Kirby]

I think, because I was saying the impression it might give folks about how.

[Scott]

Yes, thank you. We're back, Kirby.

[Kirby]

Okay, hold on, I got your.

[Scott]

So at some point when you start realizing how it's all building and working, there's this decision for me to make, right. Do I lay it out there and say, if you do these things, you have a really great chance of this working out and run the risk of making some people feel like I can't do that, or, oh, gosh, it's not working for me. I think in there, in that problem lies my theory on all this, which is I think that aspirational is the way to go.

[Kirby]

Yes, I totally agree.

[Scott]

Yeah, I think you set up, look, other people can accomplish this. I'm an idiot. Like, I mean, if you listen to it for any. I mean, if you listen to the first five minutes of this, you can say, I'm not. That I'm. I'm not.

[Kirby]

You're either self deprecating or calling yourself a genius. It's a really interesting, like, kind of line you up.

[Scott]

Well, I appreciate that. I think the answer, again, that is in the middle too.

[Kirby]

Yeah, yeah, yeah.

[Scott]

I think there are moments when I'm like, oh, no, I. There might be something wrong with me. And there are moments when I'm like, I am exceptionally smart, actually. What did we. Somebody told me the other day I was sharing my IQ with a personal friend and I was like, I'm a genius. And they went, that's not how the chart Says. And I was like, chart up. Said, you're not a genius, actually.

[Kirby]

Well, smart. You can't even read the chart.

[Scott]

I also don't believe I'm a genius. I was just joking.

[Kirby]

I know. We all know it. We all know.

[Scott]

Thank you. I do think I'm smarter than some.

[Kirby]

People think you are, too. Yes. And I think it's okay to say that.

[Scott]

Yeah.

[Kirby]

And your point is so well taken. And I think the reason it occurred to me to say it is because of my work as a dietitian. I often see the way that people consume information and the way that it might land differently with people. And that was part of the reason that I think I asked to come on was to say, well, it's one of the. I think I listed like 14 things. But it's okay if this isn't the exact right way for you. Like the way that I. I think the word you use, aspirational, is exactly the way I personally use your information because it doesn't quite match my full learning style. Because, like I said, I kind of want to sit down. I want calculations because I start from them and then I get more freedom, but I use them as a starting point. But a lot of people learn like that, Right. So I think it's good to know how to use this for your own self.

[Scott]

Yes. There was a moment, I'll be perfectly honest with you. Like, there was a moment where I thought, oh, I've laid it out for you, and then you'll just hear it and then that will work for you.

[Kirby]

Right.

[Scott]

And then it took me a while of, like, interacting with people. I think it's really important to interact with the people you're talking to so that you. It's not just my assumptions of what's going on. I'm actually seeing returns, you know, And I was like, oh, not everybody uses all of the information.

[Kirby]

Right.

[Scott]

Not everybody agrees with me about that piece. Or forget agrees, like, it doesn't work that way for them or whatever. Like, you know what I mean? And then that was a real building moment for me. I was like, okay, so I've laid out here what works for me. You should pick and choose from it like a, you know, like a buffet. Take from it what you. What's going to help you or what lands with you and then go off and learn some other stuff and build on that somehow have your own experiences. Like, what do I care? Exactly. You know what I mean?

[Kirby]

Like, yeah, exactly. And I think what has helped me is that this actually helped me identify questions That I want to either ask my husband about what we think we should do or to bring to the endo when we go to say, hey, you know, I'm kind of uncovering some stuff here and applying it to our specific situation. Because honestly, like, when I found your podcast, it was from another mom who we just randomly got connected with that we found out that her son had type one as well. And she's like, you got to listen to Juice Box. So this was like in the early, early days. So of course you're looking for anything after. After you kind of come up for air. Yeah, and I'm just starting. I started with the first episode. Then I start. Because you have so many. You have so many and they're so awesome. So I just started picking and choosing based on the not very helpful titles, but that's fine. But it's like you look at it and you say, okay, I think this is where I'm at today. And so you start to get this feeling of community. You start to hear other people's stories. And that was like a warm blanket in the beginning. It was like, oh, okay. Like, there is so much hope here. There's other people. But then I start going through our actual day to day management and it starts to get a little trickier for me to find information. And it's a little trickier even with a. Because if I'm on Spotify, right, I'm looking for pro tips. And I'm like, okay, I think I understand this. Because of my background. I'm like, I don't really need to know about carbs. I've got that. So then I'm starting to piece things together. And I think when I reached out to you, I was in the middle of trying to sort through how to integrate it into our story. I think I've finally found a way that's kind of working for my issue. Let's really just like, I'm sorry, go ahead.

[Scott]

I want to hear. But I also want to say to you, how great will it be that to know that six months, a year from now, sometimes five years from now, someone will ask a question online that this episode will answer and that Nico will have to tell them, hey, put these nuts in your ears and you'll get the answer.

[Kirby]

You can't do it. You just can't.

[Scott]

It's going to be awesome.

[Kirby]

You're either going to get a ton of people to click on it or like, nobody, most people are going to.

[Scott]

Know what it means. Don't you think?

[Kirby]

Could it be like to catch a Murderer. I mean, like, we got to workshop this a little bit.

[Scott]

I know what you were saying a minute ago. It's like, listen, some of these titles are meaningless and. But I know, I know there's no thank you.

[Kirby]

I do.

[Scott]

I think of them more as, like, monikers. So I do see people say, like, oh, go listen to, you know, whatever. Like, and it. And I look at it and I think that's a strange title. Like, who came up with that? It's interesting. So you don't need all the information because you have some of it from your professional life you're picking through. Obviously, every answer is not in the podcast. That's not the. The goal of it.

[Kirby]

Right.

[Scott]

So to kind of finish off my earlier thought and then we'll move on to what you put together for yourself. I think that the reason the podcast ended up going in this direction is because I have an aversion to kind of lowest common denominator teaching. I don't like when we do that.

[Kirby]

I feel.

[Scott]

Yeah, yeah, yeah. I don't. I don't like when we dumb things down because, you know, we don't want to leave anybody behind. I think, first of all, that's reductive to that person. I think that's the second time someone's used the word reductive in the list.

[Kirby]

Let's see if we can go for three.

[Scott]

And I think there's a way to reach that person. I don't think you have to give them less information because you've made some sort of a. I don't know, a decision that they can't handle the information. And what about. Let's say. Let's say you're right. Let's say you did find somebody who's just never going to handle the information. Now everybody gets that level of information. That's insane. Right? So let's lay it out there as easy as, As. I mean, listen, I. I feel like I do a pretty good job of every Manning this conversation. And I. I will say, like, for anybody listening who's like, yeah, that's because this is your level. Like, you're right.

[Kirby]

Yeah, right.

[Scott]

I'm not having any grand thoughts that I'm distilling for you. Do you know what I mean? Like, the words that come into my head are the words that come into my head. I think I listened to an episode the other day where I said hospital people made me laugh. I was like, oh, my God. It's a whole episode of me not being able to come up with the words I wanted. And I said hospital people at some point.

[Kirby]

Oh, my gosh, that's hilar.

[Scott]

But I think that that's partly why it works for everybody, because doesn't matter, really, what level you're at. The way I talk about it should be pretty easy to understand, and yet it's not leaving anything out.

[Kirby]

Right, Right.

[Scott]

So if you hear something that you don't get, that somebody else understands, then that's great. And if it makes you feel badly, I feel bad about that. But I don't think hiding things is the way to go.

[Kirby]

I don't think so either, and I certainly didn't mean to.

[Scott]

Oh, no, you didn't.

[Kirby]

Okay. So. And I think that it struck me in a moment where I was like, gosh, I hope people know. You know, I hope people know that it's okay if you're not here and you're so. And I think they do, and I think you do an excellent job of that, too, is that it might take some time.

[Scott]

Well, Kirby, I told you all that to let you know that, like, I hope that, too. Yeah, it was worrisome for me because there was a moment when I made a conscious decision that I'm not gonna just. You know, I. I said this before, and I probably have sounded angry about it at times or confused about it at other times, but I think that the diabetes community, at least the one that I grew up in, like writing blogs for and stuff like that, very often hid information from people.

[Kirby]

Yes. I think they'll still do.

[Scott]

Yeah.

[Kirby]

That's part of my frustration, is that we. And I don't take this the wrong way, like, I think we need to have all of it. But I don't think that there is no other condition like this that I can think of where there is so much management put on individuals. There's so much calculation, there's tech involved, there's medication that you're essentially dosing on your own. I mean, truly, there's no other condition like that, but there is very little. I will just call it formal support. There is your endo, and if you're lucky, you've got a good one. I've seen people who. Theirs doesn't even answer them when they message them in, you know, maybe in immediate need. And so that shouldn't be. That should not be the case, that we are left to do this in this way. So I guess my point in bringing that up is because I know so many people listen to this, and I hope that somewhere someone is hearing this and says, gosh, wouldn't it be great if we had something that was slightly more formalized so that people could tap into it? Especially people who maybe don't have. Maybe they don't listen to podcasts, maybe they don't learn this way, or maybe they don't read stuff online. Maybe they don't trust anyone besides their doctor. It frust. It frustrates me that. I mean, can you think of another condition that is like this, where it's lifelong? Calculating doses. Yeah.

[Scott]

On your own, 24 hours a day.

[Kirby]

What if you had to do that, like, with your heart? What if you were responsible for, like, what's the thing called that. The thing that makes your heart beat that you have.

[Scott]

Pacemaker.

[Kirby]

Yeah, pacemaker. What if you were in charge of.

[Scott]

There was a dial on it. You were like, I wonder where I should put this dial. I'll try 4.

[Kirby]

It would be bananas.

[Scott]

It does feel like that. So I saw somebody online the other day outside of my ecosystem, which I think I. I feel like I actually felt like a douchebag saying that. But I do think there's, like, a juice. But I do think there's, like, a juice box ecosystem now, right?

[Kirby]

Yes, there is.

[Scott]

And I saw somebody outside of it, and this person is. Is struggling, like, significantly. Talking about, like, I don't know, that life is worth living. I can't figure this diabetes out. And it wasn't my place to say something, but I could have been like, hey, here's a list of episodes. I think they'll help you. And I think they would have, but everybody's so, I don't know, territorial that, like, I can't. I. I'm not going to look like I'm. Because to me, it would be helping somebody to the person who's running that space. Listen, I think this is disgusting because I don't see it this way, and I don't reverse engineer this idea, but I've seen it had a number of times. I've been yelled at about a number of times. They see it as you poaching their people. And so I'm like, look, I can't get involved in this because I don't want to be like the, oh, Scott's running around grabbing people out of other places. And this wasn't even Facebook, by the way. And so I don't get involved in that. But I felt. I felt terrible for. For a while after I walked away from that screen, I was like, I really think that this stuff would help this person. And now I'm just left hoping that somebody else Gets the information to them.

[Kirby]

Yeah. And I think those are the people I'm really thinking of, because I think those of us who have found our way to this, there's a reason we've gravitated towards it and stayed there.

[Scott]

Yeah.

[Kirby]

But then there's everybody else, and so.

[Scott]

That'S, you know, and there's a lot of everybody else's. That's my other point. That. And I'll make this point over and over again. I hope for people listening who are in a position to do something to help people, this will mean something to them. I very likely reach more people with type 1 diabetes than anybody else.

[Kirby]

Agreed.

[Scott]

Okay. And I don't reach a small fraction of people with type 1 diabetes. That's a problem.

[Kirby]

Exactly.

[Scott]

Yeah. Whether you like me or not, that's not really the point. I figured out a way to reach more people than anybody has ever, and I'm not touching a small fraction of people who have Type one. And so there's a lot of people walking around out there, you know, you don't realize it if you're listening to the show, though, being you're like, oh, I got to get my. My seven down to a six or whatever. You think a lot of people wandering around with 12 A1Cs more than you think, you know?

[Kirby]

Well, I mean, I know it's a lot. That's my point, I suppose, is that whoever the big we is, we need to do better, because this is.

[Scott]

Do you have any idea how to do that?

[Kirby]

I mean, I've thought about, like, I wish. And I told. So we had this amazing nurse practitioner who just retired, and on her way out, I said, hey, are you gonna, like, do anything in your retirement? Because maybe you could. Because, you know, most people don't fully retire who love this work as, like, you should do a masterclass for caregivers. And she said that it was something that they have tossed around. But, like, for some reason, I think there was, you know, nursing shortage and there's all these staffing things. So for me, like, I don't think that that's the only thing I think it would be a starting point is to establish this as, like, a standard of care, is that classes could be available when, you know, caregivers are ready, parents and the caregivers who are going to be responsible, because obviously my son's not only with us that they can.

[Scott]

You know that's not gonna happen, though, right?

[Kirby]

I know, but you ask. You ask, and I think it should be through, like, a hospital system or a doctor's Only because for the most part, I know people are. There's some camps that are kind of anti doctor and establishment right now, but for the most part, that trust been established and it could stem from there, but it doesn't even exist.

[Scott]

You know, I was listening to a podcast the other day. I was coming home from. Where was I coming home from? Oh, I got to go see the super bowl trophies.

[Kirby]

Oh, yeah. And of course you did.

[Scott]

That makes sense. Well, not of course I did, actually. That was a great. Can I tell you something? I'm gonna. I'm gonna get to the. It's gonna be good to the podcast.

[Kirby]

Don't forget where we came from podcast. Drop some chrome.

[Scott]

I can get to it. Don't worry. Hold on a second. So my brother and I don't live in the same state anymore. My brother moved away. He's a turncoat. Okay. And for work, I guess something like, he had to keep his job. I forget. He had to come back to go to a professional event, and it was being held in the Eagles Stadium, and he's like, yo, why don't you come with me? You know, we don't get to see each other enough. Like, he's like, we can hang out for the day. He goes, it's gonna be really boring for you. And I was like, right? I was like, I don't care. I was like, we'll get to, you know, we'll hang out. We'll see each other. And I was like, that'll be great, you know, So I moved my recordings around and I did the whole thing. I had to go tell my wife I was taking a day off, which is not a thing. You guys don't know. Me and my wife, we don't really take time off. So she was like, all right. Oh, this must be nice. And I'm like, I know. I'll just sit here and kill myself. And I was like, okay, you go enjoy your work. Myself right into the ground while you're out gallivanting. I'm like, I'm at a conference for something I don't understand and have no need for. Right. But I get to see my brother. And Brandon Graham was going to be there. Linebacker, formerly the Philadelphia Eagles, who I believe is the reason why we won the super bowl against the Patriots. And like a small child, I brought his rookie card with me to get signed. Yeah. Yeah. Anyway, my brother and I spent two hours walking the floor. He's going from. He's actually working. He's going from place to place, gathering information about Vendors they might use and stuff like that. I'm out of my mind board. I'm like, oh, my God, what are they even talking about? But they're doing a raffle, and I want to win the raffle. So at every table, I have to get somebody to initial my goddamn card so I can put my thing in for the raffle to try to win the raffle, which I did not win. And that's not the point of this conversation. But I got in this position where I had to start talking to people, because why not? And do you have any idea how many people were like, what's Juice Box? Because I had to have a thing on, right? And I'm like, oh, I make a podcast about type 1 diabetes. And they're like, you know how many people are like, oh, my son has type one. I get so conversations, right? Maybe two hours into this thing, my brother's talking at a table. I've gotten my card signed already, by the way. I'm an adult. I could have just forged the card and handed it in as my entry. But no, I, I, I got people to sign the card. I have this feeling that someone's looking at me. And I look over, and there is a guy standing in front of me, and he is, like, eyeballing my name tag. And I was like, he probably just is like, what is juice Buy? It's ridiculous. You know what I mean? I might have smiled, and I kind of looked away. And then a brief moment later, he kind of reappears in my peripheral vision, and I'm like, okay, something's happening, right? So I turn, I go, hey, man, can I help you? And he goes, are you Scott from the Juice Box podcast?

[Kirby]

Oh, my God.

[Scott]

And I was like, I am. He goes, oh, like, AC is a vendor there, and. Or he worked for the event, maybe. I forget. And he goes, I saw your name on the list. And I was like, that's crazy. He's like, my wife's such a big fan of your podcast.

[Kirby]

No way.

[Scott]

And so he's, like, talking to me and everything, and it's really nice. And we're chatting for a couple minutes, and then it occurred to me, and I was like, you want a picture to send to your wife? And he's like, yes, please. And I was like, oh, okay. This is crazy. So we take a picture and say thank you and everything and walk away. And my brother goes, what, are you famous or something?

[Kirby]

You're like, yeah, in a community.

[Scott]

I said, well, I usually say to people, like, yeah, diabetes events I am.

[Kirby]

Yeah.

[Scott]

Right. But, yeah, it wasn't a diabetes event. And I was like, that's wild.

[Kirby]

Is that the first time that's happened outside of something connected to Type 1?

[Scott]

I have been recognized for my voice once in public, I could see that. I had a person beine across an airport to say hi to me once, and I couldn't believe they even recognized me. That was crazy.

[Kirby]

Yeah.

[Scott]

But this was different because I just got back from, like, I went to Friends for life. I did a bunch of stuff. Like, there's no doubt, like, in those settings, I'm famous, but you take me out of those settings and, like, no one knows who I am and honestly prefer it that way.

[Kirby]

Right, right.

[Scott]

But anyway, so we're driving home from. Driving home from that, and I'm listening to a podcast. Watch how I put this all together. This is why I have a podcast. And you don't.

[Kirby]

For everybody listening yet. I don't yet.

[Scott]

I was talking to everybody, not just you.

[Kirby]

Okay.

[Scott]

And also, don't start a podcast. It will not work. You'll just own a microphone that you have to embarrassingly explain to friends later.

[Kirby]

Okay, all, thanks for the advice.

[Scott]

I'm driving home and I'm listening to a podcast, and it's a CIA agent who wrote a book. And I don't know, I'm just listening to him tell his story about being a CIA agent. And he said this thing, and he just said, you know, there's the way people want the world to be and there's the way it is. And that popped into my head when you were like, well, what I wish people would do is, like, give, like, masterclasses on. But there's a way the world is, and there's the way things are for real, you know, and. And the way you want it to be and the way I want it to be. I wish that person would do that class. Right.

[Kirby]

Yeah.

[Scott]

But along the way, the hospital is going to say, like, well, we don't want, you know, you don't work here anymore. You're not covered by our liability insurance, or, you know, not everybody's going to understand, or not everybody will be able to agree on what gets said in the thing. And people will, like, you know, go back and forth for years and never, you know, never come to any conclusions. It's why I like the DIY algorithm stuff so much, like Trio and Loop and Android aps. Why I think that's so amazing, because it doesn't get caught up in committee. And when it does, somebody just takes their stuff and runs into a different branch and goes, hey, you know what? I was arguing too much with that person over there. Here's my version of this.

[Kirby]

Right, Right.

[Scott]

I wish the world would do that more often with these things.

[Kirby]

Yeah.

[Scott]

Yeah. But I don't think it's gonna happen.

[Kirby]

No, it probably won't. And the thing is, though, none of it happens if somebody doesn't try to make it happen.

[Scott]

Right.

[Kirby]

It won't. And it is. I mean, I guess it's just an expression of frustration because it seems completely ridiculous in my mind. So I think it all the time. It's like red tape, bureaucracy just. And egos and all of the stuff. You know, it's like, just do the right thing. It's not actually that hard, you know.

[Scott]

I know no one's going to do it.

[Kirby]

Cause you live in the real world.

[Scott]

Well, because. Well, I am a realistic person, but I've been listening to a lot of stuff about stoicism lately. I'm wondering if I don't lean that way. It's not for this right now, I think I believe it's not going to happen because it's easier for it not to happen.

[Kirby]

Oh, for sure.

[Scott]

It's proven to me over and over again because of all the. And I'm glad they do it, and they should. But the amount of actual, like professional people who direct people to the podcast is an insane number of people. So that's them saying. That's them having the same thought that I'm having. Like, look, I can tell you about this, but I'm going to get fired then if I tell you to pre bolus. Like I just heard from somebody recently who got chastised, a professional person who got yelled at in a doctor's office for telling somebody that they might have to bolus for a fat or a protein rise. This episode was too good to cut anything out of, but too long to make just one episode. So this is part one. Make sure you go find part two right now. It's going to be the next episode in your feed. The podcast you just enjoyed was sponsored by Tandem Diabetes Care. Learn more about Tandem's newest automated insulin delivery system, Tandem mobi, with control IQ [e-mail] Juicebox There are links in the show notes and links@juicebox podcast.com Arden has been getting her diabetes supplies from US Med for three years. You can as well usmed.com juicebox or call 888-721-1514. My thanks to US Med for sponsoring this episode and for being longtime sponsors of the Juice Box Podcast Podcast. There are links in the show notes and links@juicebox podcast.com to us Med and all of the sponsors. The podcast episode that you just enjoyed was sponsored by Eversense CGM. They make the Eversense 365. That thing lasts a whole year. One insertion every year. Come on. You probably feel like I'm messing with you, but I'm not. Eversensecgm.com Juicebox hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of the Juice Box Podcast. The podcast contains so many different series and collections of information that it can be difficult to find them in your traditional podcast app sometimes. That's why they're also [e-mail] Go up to the top. There's a menu right there. Click on Series Defining Diabetes, Bold Beginnings, the Pro Tip series, Small Sips, Omnipod 5, Ask Scott and Jenny, Mental Wellness, Fat and Protein, Defining Thyroid, After Dark, Diabetes Variables, Grand Rounds, cold win, pregnancy, type 2 diabetes, GLP meds, the math Behind Diabetes, Diabetes Myths, and so much more, you have to go check it out. It's all there waiting for you, and it's absolutely free. Juiceboxpodcast.com if you're looking for community around type 1 diabetes, check out the Juice Box Podcast. Private Facebook group juicebox podcast, type 1 diabetes but everybody is welcome. Type 1, type 2 gestational loved ones. It doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort, or community, check out Juice box podcast, type 1 diabetes on Facebook. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob ongwayrecording doing his magic to these files. So if you want him to do his magic to you. Wrongwayrecording.com you got a podcast, you want somebody to edit it. You want Rob.