Transcript
Woody Hungarter (0:00)
Foreign.
Ray Spadoni (0:10)
Welcome to Leading Organizations that Matter, a podcast about leadership, organizational culture and how we find meaning and purpose in our work. I'm your host, Ray Spadoni, former healthcare CEO, current consultant, author, teacher and speaker. Today's topic is Preserving the Legacy, an interview with Woody Hungarter Elwood, or as most people know him. Woody Hungarter has taken the helm at two important nonprofit organizations, both with long and very impactful histories. The first was the VA of Philadelphia, one of the very first agencies of its type in the country, with its founding dating back 138 years ago, and the Karen Ann Quinlan Hospice, an organization that was formed by a dedicated and very mission driven family. Woody is going to describe that in some detail in this episode. He has been a registered nurse for the past 40 years and holds a Master's degree in organizational Management from Misericordia University. He's also an end of life Doula, earning his certification from the University of Vermont. Woody has worked in hospice and home health for the past 32 years with both nonprofit and for profit organizations and is well known as a leading expert on the leadership of such organizations. I hope that you enjoy the interview.
Interviewer (1:46)
Hello Woody, thank you for joining me on the podcast. I appreciate your time and I know that our listeners are going to enjoy hearing your thoughts on preserving the legacy of long standing mission driven organizations. You are quite uniquely qualified to discuss this topic, having led both the VNA of Philadelphia, one of the very first visiting nurse associations in the US formed some 140 years or so ago, and now the Karen Ann Quinlan Hospice, which of course is part and parcel of the legacy of the landmark Karen Ann Quinlan case of the 1970s and into the 1980s. So again, welcome and thank you, Woody.
Woody Hungarter (2:31)
Thanks Ray. It's really nice being with you. This is such an important topic, especially with the state of health care today. So thank, thanks for this opportunity.
Interviewer (2:43)
Yeah, absolutely. First of all, I guess can you give our listeners a sense of the Karen Ann Quinlan story going back to the very beginning, you know, what happened and then what has happened over time to make it so historically and I'd say culturally significant?
Woody Hungarter (3:05)
Yeah, well, it is very interesting because, you know, all of this happened right around when I was graduating high school. So I did have somewhat of an understanding of the Karen An Quinlan story. It was quite a tragic story where, you know, she was in a situation where she had a medical emergency, was in a persistent vegetative state and, and her parents, knowing that she would not want to live that way, you know, had tossed around the idea of actually taking her off of the respirator that she was on, and the hospital at the time would not allow that to happen. So they had an attorney friend, Paul Armstrong, at the time represent them to actually go to the Supreme Court of New Jersey and give them the right to make that decision of removing the respirator. She was in that. That vegetative state, and she was not able to communicate. She had had anoxia, so she had brain involvement. And it was quite a tragic situation. So at first it was. The court case was denied. It went up to the Supreme Court, and there was a Judge Hughes who actually made the decision to allow the family to remove. Take her off of the respirator. And it turns out that when they took her off the respirator, she ended up living for another 10 years, which was very unexpected at the time. But what happened with this is it brought to light the family's ability and the patient's ability to have medical decisions made in situations where, you know, the patient can't make the decision. It brought to light the need for advanced directives. Another thing that came out of this was the development of ethics committees and hospitals where physicians and families together could help to make these decisions on the right to die. And so the whole thing on bioethics, and it was just such. It was a case that just the timing of it brought a lot of things to light. And it. It's really interesting. Now, I don't know if you want me to go to this part of the story, but, you know, I'm not sure whether Karen Ann herself would have actually ever been eligible for hospice. But what the family did was they actually had a. There was a movie made, there was books written, and the family had a. An active interest in end of life, primarily from their parents. So Julia Quinlan, who was Karen Ann Quinlan's mother, her parents were in there, like around 100 years old, and they were living. They were actually staying in a hospital for medical reasons. But back then, there was a. A lack of options of people being treated in the home and that type of thing. And so they used the proceeds, all of the proceeds from the book and the movie and all that about Karen Ann. They went over to Europe, they met with Cecily Sanders and. And really investigated how the beginning stages of hospice throughout the. Throughout the world. And in fact, they. They went to London and all over Europe just checking out different hospices, coming back and wanting to start hospice in the United States. And so they ended up starting their hospice program, naming it after their Daughter Karen Ann quinlan. Back in 1980, Newton Medical center donated two rooms for, for them to have an office space. And before there was actually a hospice benefit. They started their hospice and used the proceeds from their book and their movies and things to actually get the program started. So it's quite a remarkable story and a chain of events that really have had an impact not only on medicine, but also just on end of life care.
