Transcript
Dr. Annie Brewster (0:00)
Foreign.
Ray Spadoni (0:10)
Welcome to Leading Organizations that Matter, a podcast about leadership, organizational culture and how we find meaning and purpose in our work. I'm your host, Ray Spadoni, and today's topic is the Healing Power of Stories, an interview with Dr. Annie Brewster. We pass information and history down through generations via stories. We gain understanding and insight about ourselves through stories. We teach and inspire others using stories. And I go so far in my own book, Saving Organizations that Matter, as saying that storytelling, the mission as I describe it, is vital and essential to creating lasting organizational change. Today we are going to discuss the importance and impact of storytelling to personal healing with Dr. Annie Brewster. She is, as you will learn, uniquely qualified to discuss this topic. Dr. Brewster is an assistant professor of medicine at Harvard Medical School, a practicing physician at Massachusetts General Hospital, a writer, and a storyteller. She is also a patient. In response to the great disconnection she experienced in health care, both as a patient and as a provider, and motivated by her belief in the power of stories, she started recording patient narratives some 15 years ago. Integrating her personal experiences with the research supporting the health benefits of narrative, she founded the nonprofit Health story collaborative in 2013. The health story Collaborative is committed to empowering patients and their loved ones, building community, strengthening patient provider connections, and and ultimately transforming healthcare through storytelling. Annie is widely published in the press and is the author of the Healing Power of Storytelling Using Personal Narrative to Navigate Illness, Trauma and Loss, which was published in 2022. I will provide links both to the Health Story Collaborative and to her book in the show notes. Welcome, Dr. Brewster. Annie, thank you for being a guest on Leading Organizations that Matter.
Dr. Annie Brewster (2:46)
Thanks so much, Ray. I'm really happy to be here. Call me Annie, not Dr. Brewster. Okay.
Ray Spadoni (2:51)
All right, I will. I will do exactly that, Dr. Brewster. Kidding. Annie, I gave listeners a high level resume version, if you will, overview of your background before recording. And I did mention that you have also experienced the healthcare system as a patient, but I did not go into any details. So I'm wondering if you can talk about your path, first to becoming a physician, and then second, realizing that personal stories could be an important part of the healing process.
Dr. Annie Brewster (3:25)
Sure, I'll talk about both because I think they're incredibly relevant to why I founded Health Story Collaborative, because really it was a response to what I feel is broken in the healthcare system. And I learned that from being both a doctor and a patient. So from the doctor side, I went to medical school relatively late. I was 27. I sort of resisted becoming a doctor for a while. For a lot of Reasons one being that my father was a physician and we have a complicated relationship. So I was sort of trying to avoid it, but I really kept being pulled back to medicine and to wanting to pursue this career. And it was really because I recognized that it was a privilege to be with people in really intimate moments and to hear stories. And so I ultimately went to medical school. I actually started in psychiatry again because I was really drawn to the stories. But then I really missed taking care of the whole person, body and mind. So I switched to primary care. And I think I had sort of a vision, idealistically, that I would be like a doctor of 100 years ago, where I could know all my patients and know their families and in the context of their lives and follow them longitudinally and have meaningful relationships. And primary care. I went into a practice in Boston. I inherited like, you know, 1500 patients all at once, even though I was only working part time then because I had young children. And it was really hard and really sort of soul killing in a way, because I realized I never got a chance to really sit with people and hear the stories of their lives. It was a system that was really driven by efficiency and honestly, money making above relationship building, because, you know, medicine is a corporation and it's become even more of a corporate enterprise since I left primary care. But in any case, I found it really hard and it made me really sad because I think what I felt saddest about was that there was almost like an antagonism between patient and provider, that what was supposed to be a therapeutic alliance between us was really challenged because patients weren't getting what they wanted and the doctors were feeling really stressed out. We were paid on productivity, we had no control over our schedules. And so there was this tension in what was supposed to be a caretaking relationship. And it felt really hard. Ultimately, I left primary care and I went into urgent care, which I did for a lot of years. And interestingly, I found that I could delve more into the stories in urgent care because I was more on my own time schedule. I could take more time if I needed to, but I think it was really just the sort of corporate efficiency side that really sort of broke my heart. And it was then in my early practice of primary care that I started thinking, like, how can I make this better? How can I really care for my patients in the way that I, that I want to? And I would wouldn't think that my patients really felt that I was rushing them, but I did feel rushed. And I think everyone in primary Care does. You know, you're. You're on a time clock. And so the wheel started turning, and I recognized, you know, I'm not a business person. I'm not going to be able to change the way this system is run. But is there a way that I can make space for patients outside of the exam room? But it was really my experience of becoming a patient that led me to do this work with storytelling and health. So it was sort of happening on a parallel track, but I didn't really bring the two paths together until much later. So while I was a resident, so I wasn't even out yet in primary care. I was 32. I was diagnosed with multiple sclerosis. And it was a long journey of sort of ignoring the symptoms for a while, ultimately having to come to terms with them, seeing a neurologist, having not a very positive experience with getting that. That diagnosis delivered, but that's another story. I think what was really a realization for me was, you know, how hard it was to integrate and accept a diagnosis of chronic illness. And I'd never really thought of that as a patient. I. I really had sort of an identity meltdown of sorts. I'd been someone who could always overcome obstacles just by sort of brute for force, persistence. I was young and naive at the time. I hadn't had something in front of me that I couldn't, like, fix. And all of a sudden I had this diagnosis with no cure. And it was really hard for me to accept that and integrate into my life. So I actually saw that neurologist, got the diagnosis and then left there and didn't see another neurologist for five years and really lived in denial for quite a while. And I felt a lot of shame about it, which is interesting, because I would never expect one of my patients to feel shame. And I really didn't tell anybody except my closest friends and family. And so over time, I started to realize that that was, like, not a sustainable way to live and that I couldn't live my best life if I kept living in secret. I had to find a way to integrate this diagnosis into my life. And it was really storytelling that helped me to do that. So first starting to tell my own stories and share it very gradually and recognizing that that story could help other people who were navigating similar challenges, really learning to accept challenging life circumstances, whether that's illness, trauma, or loss. And then I started thinking, how can I, as a provider, offer such an opportunity for my patients to tell their stories, not necessarily my patients, in terms of the Ones that I saw in clinic, but patients in General. So in 2010 I bought some recording equipment and I started learning how to audio edit and I started recording patient narratives. And I was really lucky back then that I had a connection at WBUR and I found a platform there and we formed something called Listening to Patients. And so that's how this all started, sort of as creating this library for people who are navigating a challenging circumstance to listen to how people move forward after challenge and make the best life they can despite the hardships. And then in doing the work, I realized that it was beneficial also to the person who was sharing their story, perhaps even more than to the listener, to have this space to have somebody receive their story, witness their story and then reflect it back to them and work with them on it. So that was sort of the seeds of health story collaborative. I can say a lot more, but I just said that a lot, so I'll stop there.
