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Vanellope Hope Wilkins, born with a rare heart condition, defied medical odds and became the only known survivor in the UK with ectopia cordis. After multiple surgeries, her team achieved another world first by rebuilding a protective cage around her heart using her own ribs. Now eight, Vanellope faces additional challenges including epilepsy, partial sight loss, ADHD, autism, and being non-verbal. Her mother, Naomi, advocates for increased care to ensure her daughters safety at home, as the current setup is struggling to keep up with Vanellopes growing needs. The local health board and council are working to tailor her care package to her evolving requirements, aiming to keep her in her own home.

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