B (6:54)
So it was, it was interesting. I was, I, It. I started to have symptoms around Christmas and I really. And because, you know, I go away for Christmas, I was to another state. I didn't have the time really, to go to the doctor. I was leaving the next day. And so I had to unfortunately go to an urgent care down in that state. And they misdiagnosed me. They said it and said it was nothing. You know, I was negative with everything with blood work, you know, as. As, you know, it doesn't come up for, I believe, a few weeks to. Even months to. Doesn't come up in your blood work. So they, they kind of dismissed me. They said, like, oh, it's. It's nothing. It's just, you know, it's just discomfort. And. But I knew something was wrong. And so having that experience, I already felt invalidated. And then. And then I was also going through, unfortunately, my health care was changing my health insurance. So I didn't have great health insurance before because it was the end of, you know, December. So I wasn't. I didn't have insurance that covered the doctor that I normally went to, so. And who I trusted, they took the other insurance, the one I started with after the new year. However, because this happened mid December, my symptoms started then. I didn't want to wait that long, and I. So right away I knew something was wrong, had a feeling it was herpes, and. But eventually came back from out of town, went to a doctor, and they. Eventually, they told me some mis. Information about herpes, that it couldn't be spread when it wasn't, when it wasn't, when you weren't symptomatic, and that, you know, they didn't really tell me anything else about. So I didn't. Because I did so much research, you Know with looking at the CDC website and all these other things, I was very hesitant to believe them. And then going on, I noticed about two weeks later after the initial symptoms, I noticed that I was, I was actually laying in bed, you know, at night, about to go to sleep and I noticed lower back pain. And actually my, my butt was becoming numb. It was almost like I was, I'd been sitting down too long and like, you know where your foot falls asleep, you have that sensation of numbness. I had it there. And since I have a history of an injury to my lower back, I kind of, I dismissed it at first. But I was like, this isn't how it normally feels. And so of course this is at night, you know, maybe 9, 10pm and so I'm googling and you know how it, it is googling at night. So you're not necessarily, you're looking at worst case scenario. And I came across something called Ellsberg syndrome. It's a rare condition where the nerves in your lumbosacral region, so like the bottom of your spine, they're inflamed. And it's most commonly associated with HSV2. And so understandably I was scared. And I, I, you know, I finally went to sleep and woke up the next day and I noticed some more symptoms. The biggest one was being unable to feel the urge to urinate. And as that continued it, eventually it, I felt weakness in my legs. I felt. And then I couldn't necessarily feel the urge to defecate either. And it got within, and this was within two to three days. And it got to the point where between sessions I was using the bathroom between set every session just so I didn't accidentally, you know, urinate on myself during that time. And then so eventually after those three days I had, I went to the hospital. I was like, this is. Or no, I actually went to urgent care first and they said that it might be cowa equina syndrome, which is basically where it's a medical emergency. And it's basically where the nerves at the base of the spine are compressed and usually by the spine itself, the vertebra or through injury, something like that. I am by no means a doctor, so if I get anything wrong, people can correct me. And I. So then they said that, they said, you need to go to the hospital. So I went to the hospital and waited quite a while, which I was a little nervous about considering. They said it was an emergency, told the doctor my symptoms and immediately dismissed me, say, no, you can't have that. When I brought up the topic of Ellsberg syndrome. They dismissed me even more. So much so the resident dismissed me. So much so that I actually only spoke and looked at the attending because I was like, the resident is not hearing me. They did an MRI as they have to do with the caudal equina syndrome to rule out anything structural. And they did that, didn't find anything. So I waited about six hours, which, hey, you know, hospitals, it's crisis management. I get it. If it's not a medical emergency, you're going to wait. And I understand that, you know, it's not, it's not for, you know, long term care and it shouldn't be. And since it wasn't necessarily an emergency, I understand the weight. And the doctor didn't see me after the initial assessment, the nerd. I actually had to call over another doctor and ask them, hey, you know, what came of this? I, I don't necessarily, you know, know the outcome of the mri. And at this point I'm scared. I can't feel my legs as much. I, I was, you know, and it was scary. I didn't know where, you know, where it was going. And they eventually they told me that it may have something to do with the herpes, but we don't really know. So we're just going to send you home. You can go to your gynecologist. And while again, I understand that, you know, hospitals are not for medical emergencies or are for medical emergencies, it would have been nice to have a more definite answer. And especially, especially since I was right that it was Ellsberg syndrome. And so a few days later I went to the gynecologist, finally got an appointment and they, she heard me, she realized that I was dismissed at the hospital. And she even read some of the research articles from the medical journals that I had read and she, you know, put me on a high dose of Valtrex and eventually my symptoms, you know, abated. And she, she even, that was a Friday. And she checked in with me over the weekend, you know, giving me her personal cell phone number and even called me and she's like, you can call me at any time if you, you know, you may have to have a catheter at some point. And we, and if you need that, you know, I'm here. And it was extremely validating. And as of now, you know, I'm better after that high dose. I'm now on a suppressive dose and just to, you know, make sure that doesn't appear again. And then. Yeah, so up and then, since then, I've been good.