In this episode of the Brain & Life podcast, co-host Dr. Katy Peters speaks with advocate and author Lori Jones about growing up in a family affected by Huntington's disease (HD), reflecting on stigma, isolation, caregiving, and the inspiration behind her memoir, Spared: A Memoir of Risk and Resolve. Dr. Peters is then joined by Dr. Katie Moore, assistant professor of neurology at Duke University Medical Center, who explains what Huntington's disease is and how genetic testing can impact individuals and families living with HD.

Additional Resources

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Author Tanita Allen on Existing with Huntington's Disease

Rare Thoughts on a Rarer Neurologic Condition

We Are Brave Together with Jessica Patay

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Social Media

Guests: Lori Jones @lorijoneswrites; Dr. Katie Moore @DukeNeuroRes

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD