In this episode, we are featuring Alanna Yee.

The onset of autoimmune encephalitis and the frustrations leading to her diagnosis would change her life in ways she never could have imagined. These experiences inspired Alanna to begin sharing her own story to help others navigate similar challenges.

Alanna generously shares her insights on how to effectively tell personal health stories. She guides us on where to begin, how to strike a balance, and how to respect our own privacy when sharing such personal narratives. Her perspective on the therapeutic value of sharing patient experiences and its potential to drive progress for rare diseases is truly enlightening.

ABOUT US:

The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.

SOCIAL & WEBSITE:

Alanna Yee

Facebook - https://www.facebook.com/wherearemypillows

Instagram - www.instagram.com/wherearemypillows

Twitter - twitter.com/wampillows

Demystifying NMO podcast

Instagram - www.instagram.com/demystifying_nmomog

Twitter - twitter.com/DemystifyingNMO

The Sumaira Foundation

Website - www.sumairafoundation.org

Facebook - www.facebook.com/TheSumairaFoundation

Voices of NMO & MOG - www.sumairafoundation.org/awareness/voices-of-nmo/

TIMESTAMPS/TOPICS:

00:01:27 Alanna Yee

00:08:08 How To Start Sharing Our Experiences

00:11:45 More Than Words, Other Ways To Tell Our Stories

00:16:11 Facts & Emotions

00:23:53 Authenticity And Privacy

00:29:41 Advice For People Considering Sharing Their Health Stories

ADDITIONAL LINKS

The profoundly personal side of rare disease: Humanizing the therapeutic journey of patients from Science Magazine, a peer-reviewed academic journal by the American Association for the Advancement of Science. t.ly/Llg1U

SUPPORT THE PODCAST

Donate to Illuminate

https://www.sumairafoundation.org/advocacy/donate/

CREDITS:

Producer & Host - Brian Dawson

Music - Denys Kyshchuk from Pixabay