Yael Elish, Founder of StuffThatWorks, was part of the Waze founding team that brought crowdsourcing to maps and traffic. She is now bringing her insights into the power of the crowd to build a patient-generated real-world database to support patients and medical research, accelerating drug development, and improving the efficiency of clinical trials. Their OpenStuff platform is an AI-powered search tool that makes patient experience data accessible to patients, doctors, and researchers, and validates the patient experience.

Yael explains, "As background, I was part of the Waze founding team, and this is where I got acquainted firsthand with the power of crowdsourcing. Waze does crowdsourcing of traffic and the building of maps. And this is where people are joining based on a common vision that if everyone shares information in an organized form. If there's a platform that can collect all the data in a structured format, it can deliver everything in a way that's much more useful and solves a very big problem that otherwise couldn't be solved."

"So the idea here is people have a ton of experience, especially when we're talking about a chronic condition someone has been living with for years and years and years. They've tried many things. Some went out and researched the information that everyone else has. How they experienced the condition, what they tried, what worked, what didn't work, what are the aggravating factors, what are the comorbidities? All this information that people have, if collected in an organized form as data at scale, can be transformed into very powerful data that doesn't exist today. That's the premise behind StuffThatWorks. And the way it works is that anyone can join their condition community. So if you have a chronic condition, you will search for your condition, you will join your condition, and you will share information that becomes data, consistent data across everyone who joins the platform. And today, with AI, it's really transformative. It's amazing, unique data that doesn't exist anywhere else."

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OpenStuff Platform for Crowdsourcing Healthcare Provides Real-World Patient Data with Yael Elish StuffThatWorks TRANSCRIPT