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I AM HealingStrong
137: I Became the CEO of My Own Body; Stage 2B Infiltrating Ductal Carcinoma (Breast Cancer), Lupus | Julia Chiappetta
00:37:17
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A
I was really serious about being on this protocol and getting enough rest, getting less stress, getting exercise, learning how to sleep, go to bed earlier and get really good sleep early in the evening versus being a night owl because we know that your cells heal on a higher level when you're sleeping and not digesting food. And so, you know, I was learning like a new life. It was, it was crazy. And I had been engaged to a guy and that relationship ended and, you know, so I was like starting like clean slate everything.
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B
You're listening to the I Am Healing Strong podcast, a part of the Healing Strong organization, the number one network of holistic cancer support groups in the world. Each week we bring you stories of hope, real stories that will encourage you as you navigate your way on your own journey to health. Now here's your host stage four cancer thriver, Jim Mann.
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C
Today I am talking to Julia Chiapetta. All the way down in Florida, right?
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A
Yes.
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C
I was impressed that you were in Connecticut because I love it up there. But the winters are a little chillier than they are in Florida, I believe.
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A
Yes. And the spring is very short and gray and rainy.
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C
Yes, totally get that. But I was, I know of you. I've heard the legend. But I looked you up to find out some more details. And of course you started the JCC Group, which is the Julia Tiapetta Consulting Group, right?
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A
Yes, I started that in the year 2000.
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C
Were just a kid and before that
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A
I was working for a big travel management company. So my background is in the travel industry and mostly producing events and doing specialized meetings for clients.
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C
Wow. All that out of my wheelhouse. So I'm glad you're here so I don't have to do stuff like that. And of course you've got a book, the Breast Cancer, the Notebook. You also advisory board, the Annie's Appleseed Project and the Pink Fund. You were invited to the White House, which I've never been, a couple times. And you're known on YouTube as Julia the Conqueror. And then I got to the part where you support orphans and foster children. I had to stop there because I felt like I've been in a coma all my life compared to what you've done. So stop right there. I realized God gives us each different giftings. And so I'm assuming I'm going to go out on a limb and assume that you are a driven person.
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A
Yes. Well, being an athlete pretty much your whole life, you have to be a little bit driven to compete and to get results in your training. And so, yes, I put that discipline to work in my true life experience with my career and just daily life. But it came in really handy when I was diagnosed with cancer. Cancer in the year 2000, which was when Julia Chiapetta Consulting was born. Because I had to give up my full time gig to get well.
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C
Wow. I didn't realize that. Where'd you actually grow up?
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A
I grew up in Greenwich, Connecticut, A little neighborhood called Koskob, which was predominantly Italian. Big, huge Italian family. Lots of first cousins, aunts, uncles. My grandparents came over through Ellis Island.
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C
Wow.
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A
Before I was born. So we. They implemented what they were doing over in Italy and that was they were farming and they were living off the land. And so we had huge garden and we had chickens and turkeys and animals that were consumed goat milk and then everything you can imagine growing and. And then canning in the winter.
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C
You have a lot of siblings?
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A
I have one of each, which is a small family compared to some of my other cousins.
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C
Your family sounds kind of like mine, except for we're not Italian, obviously. I'm more on the Irish part, I guess, but I only have one sister, but I got a gazillion cousins and we all lived in the same area and all went to the same church. We all were just. They just felt like brothers and sisters, even to this day. Yeah, I like that kind of setup. If my parents were going to have 12 kids. I'm also husband, cousins.
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A
Yeah, exactly. And where, where was that?
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C
That was in Baltimore.
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A
Okay.
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C
Little city of Baltimore, which I'm scared to go back to because I hear it's kind of rough right now. But mostly because I left, I guess as soon as I left to go to Florida to go to college, Oprah left. She was a news anchor there. She got fired because she had no future in. In that industry. They're brilliant. There the Colts left. It was just so sad. I didn't realize it had such an effect on Baltimore. But anyway, I'm living in it.
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A
I love you, Jim.
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C
I live in my own little world. Sorry. So you went into the travel industry, you said?
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A
I went into the travel industry early on and did a tour and travel management training degree and then sort of hit the ground running, traveling the world, getting to see and experience different cultures. And the industry was really thriving and really fun back then. And then just before 2000, I started mostly doing meetings and events for some of my clients who were in New York City and Connecticut and New Jersey and then boom, you know, diagnosed with breast cancer. So it was actually perfect because, you know, it gave me an opportunity to kind of step away from the craziness of my career, which was extremely stressful. Traveling around and having to be on call 247 and problem solving continually to meet the demands of your clients. And, you know, we're talking, like, hedge funds and luxury good companies and, you know, CEOs and presidents and vice presidents of companies. And it was just a great learning experience, and I loved it. I got to travel the globe pretty much. And back when travel was really fun and it was easy, and there was no id, except for passports, where you were going outside of the US but no ID for traveling in the US
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C
the good old days.
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A
Yeah.
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C
I have a cousin who has a travel agency. She started it just before 2020, and so she spent that whole first year refunding people's deposits, which is kind of deflating. When you start a company, you think it's going to go great, but now she's up and running, she's doing great. She's always traveling. I think she lives on a cruise boat now, so she's enjoying life. All right, well, you said it was kind of perfect, but I know you didn't feel like it was perfect when you got your diagnosis, like, oh, thank go God, I can change careers. But that's just something that, you know, God made something good out of something that meant to be bad, Right?
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A
He did. So I was about to run a ra. A road race. I was training at the gym with a guy who I just met who worked for ge. They had a huge corporate location in my area, and he was a scientist, and he was very analytical and strategic and super smart. So I was training with him at the gym, and then I found out I was diagnosed with stage 2B infiltrating ductal carcinoma and lupus within 30 days.
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C
Wow.
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A
So everything stopped. And so I was poised with the blessing of having my LLC and my business name and, you know, everything sort of stuff set up, and so everything was happening at the same time. So he ended up becoming my person. So we all need one person to say, I'm going to be here for you, and I'm going to help you get through this. And it's usually not a family member, right. Because there's too much emotion with a family member. And so I barely knew him. His name is Mark Sherwadi. Great guy. And we. We started doing research together. And he said, I'm going to help you navigate through this maze of, you know, integrative alternative medicine and options so that you are fully informed. And we we're going to look at the immune system, we're going to look at anatomy so that you understand what's going on in your body. And it was just the most perfect thing for me to get my brain around what it was. I was dealing with the time. And given that I was from a very large Italian family, there were three significant relatives in my life who had recently passed away from cancer, older uncles, and they really died from the treatments. They had painful, painful treatments. I remember going to visit them and praying with them and talking to them. And at that moment, I said to myself, many months before my diagnosis, I'm never going to do chemotherapy or radiation because it just ravaged their bodies. And so as Mark and I were doing the research, I said, you know, Mark, I really want to get to the root cause of why I have these two very different but similar situations going on in my body. And so, you know, it was months of research, and I started implementing a plan of care around that research and around speaking to some other experts at the time. And that was in the year 2000.
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C
Yeah, that's unusual to have a friend like that around. Normally, friends say, man, you need to do chemo. You need to do whatever the doctor
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says, because exactly, you know, he was. Julia, here. Here's the research. And knowing you and knowing your personality and your drive to be a perfectionist in your work and your discipline as an athlete, I think that you will be able to implement a lot of other protocols and, you know, get well, let's see what happens kind of thing.
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C
Right. You ended up at MD Anderson. At one time.
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A
I did many months of research. I watched videos. I, you know, prayer is my fuel. So the first thing I did when I found out I was diagnosed was get on my knees and pray. Had asked Jesus for peace and comfort and guidance, and, you know, spoke to God every day. And I had never in my life had a period of time where my phone was ringing with people calling me that I barely knew, that knew my family or my cousins and saying, like, here's some information. Here's a doctor. Here's, you know, here's what I think. And it was actually at that time that I also met and Fonfa, because a very good friend of mine from my hometown, who I knew from junior high days, David Wales, who owns American Biosciences, a really reputable nutritional supplement company, called me and said, I found out about your cancer. I hadn't talked to him in years. And I want you to meet this gal, Ann Fonfa. She. She Just started a website and she just started like doing some small events, and it's called the Annie Appleseed Project. And he said, and by the way, I volunteered you to produce all of her events every year for free.
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C
Perfect.
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A
So I said, okay, that sounds good. And so she and I met briefly and started talking and she started sharing information from me. But in 2000, there really wasn't much out there. And she was also very new in her diagnosis, so she was diagnosed about five years before that. So we were both kind of navigating the same space, and there wasn't a whole lot in that space at that time like there is now. And now, yes, there's great information and there's more access to white papers and science driven research, evidence based research. But there's also, just as a side note, there's also a plethora of just a lot of information that is not helpful. And you're getting little snippets and clips of things that entice someone into trying a product or something that may not even pertain to what their body needs or their diagnostics. And so it can become very confusing. So going back to your question about MD Anderson, so in all of this research, one of my cousins was an eye surgeon at Hermann Hospital and M.B. anderson Cancer center in Houston. He was an oncology. He dealt with a lot of eye cancers, but also eye trauma. And so he called me and said, I think you should come down at MB Anderson and meet with this guy who I know very well, and his name is Dr. Marek Ross. He's the surgical head of the surgical oncology team and the breast clinic. And I'm going to get you an appointment with him because it's, you know, it's a year out to get to see this guy. So I said, okay. So then, like several more months later, I had this appointment at MD Anderson. And by that time I had had a biopsy in Greenwich, Connecticut, at Yale, New Haven Health Hospital System and Greenwich Hospital. And I had my diagnosis and I had already met with an oncologist, you know, at the hospital who basically told me that if I didn't do chemo, if I didn't do a double mastectomy, chemo, radiation and tamoxifen that he couldn't treat me. And so it was pretty shocking to me at the time. And simultaneously, I was doing a protocol that I implemented with the help of a naturopath and my friend Mark and research and Dr. Lorraine Day, who at the time had an amazing video series. She was remarkable and way ahead of her time and from San Francisco was a surgeon, blah, blah, blah, in the hospital system there, and did a whole like 12 part VHS tape of here's what you need to do to get well into what we talk about today. To heal the terrain. Here's what you need to eat, drink, blah, blah, blah. So I was simultaneously following this. I cleaned out everything in my house, threw out all my food, all my cleaning detergents, carpeting, all my dental products, body products, makeup, hair products, microwave, wow, everything you can imagine. I was eating a Mediterranean diet. I became a raw food vegan. I was juicing. I was following the Gerson protocol at the time, which was what Dr. Day recommended. So I bought a juicer, I was juicing. I was eating and consuming all these vegetables that I had never even heard of, like bok choy. I mean, as an Italian, you're not really eating a lot of bok choy. So, you know, and, you know, some, some of the other greens. But I was already implementing all of that and had done a 30 day fast cleanse. Water, lemon, maple syrup, cayenne pepper, and completely detoxed what was going on in my body. Well, not completely, but as best I could over 30 days. And the stuff that was coming out was horrifically shocking, including parasites. Nice, because I was doing activated charcoal as a binder. So I detoxed, I started. The ground was more fertile. I was putting nutrients in lots of other things. So by the time I got to and I had had the biopsy, I told the doctor in Greenwich that I wasn't going to do any of that. And he said, frankly, you're going to die. But when we cannot, we cannot help you if this is your, you know, you're going to do this other protocol, right? So essentially fired me from the practice. And that's okay because we became friends afterwards. And I went to Houston, and I get to Houston after going through Greenwich Hospital, Yale, New Haven Health, Memorial of Sloan Kettering in New York, right next door, second opinion. Now I'm at MD Anderson. I walk in there and it is light and bright and airy. And everybody was like hugging me. And I'm a hugger. I'm Italian. I like to hug. Hugging me, holding my hand, welcoming me, making everything easy. They had read all my reports from 10 years prior to my cancer. They knew who Julia was, who Julia is now. And then the big question was, when they met with me, who does Julia want to be in the future? And so they did all the same tests. They didn't do biopsy Obviously, but they did all the same testing and additional testing that they don't even do. They, at the time, didn't really do up in. Up north. They started talking to me, and I was, like, in a board on. At a boardroom, like, at a board table with six people around. And these are doctors, PAs, nurses, et cetera, et cetera, interns. And they're all talking about me, my body, all. Everything that was going on, you know, because, remember, I also was diagnosed with lupus, which is a very nasty autoimmune disease.
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C
Right.
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A
And actually worse than the cancer. Harder to get rid of.
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C
Yeah.
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A
And so. But it had been 90 days that I was on this protocol, this fasting, juicing, eating organic, only raw food, vegan, no flesh products, no grains, no gluten, et cetera. So when I get there, they're taking my blood, and the next day, I did a bunch of other tests, and we met, and they sort of looked at me and said, okay, now what exactly are you doing? So I told them everything I was doing, and we talked for two hours, which is unheard of nowadays. And Dr. Ross was there, and he came in halfway through, and he said, julia, he said, your blood work is almost in normal range now from 90 days ago, so whatever you're doing, you should definitely continue. Now, most oncologists do not say that.
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C
No, no, they don't.
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A
Because their egos are so big that they are like, well, my protocols, you know, you need to do my protocol. And it's not from a patient perspective. It's from the doctor perspective. And so he and I became fast friends. We were born in the same year. We became really good friends from that moment on. And he said, here's what I'm going to recommend. And he's also a plastic surgeon. He said, I'm going to recommend that we go in, we do a lumpectomy, which is, you know, my. My tumor was really tiny. It was 0.09 centimeters. But we're going to go in, we're going to remove the rest of it. We're going to check the surrounding tissue and the lymph nodes and, you know, and see what's going on. But it. I feel like you're going to have a great outcome. So he said, what's your plan B? And I said, my plan B is to get back on the plane, continue to do what I'm doing, come here for my checkups, and become your patient. Because I had made a decision that day that they were my. That was my place. It felt like it felt like life versus death. Like, when you go into a lot of these cancer, these hospitals, it's gray and dark and it. And it's like, all about business and. And protocols and rigid, you know, very rigid. And so there it was, hopeful. And they were doing things like, okay, like, we're go. We're doing this study. Like, we're looking at father wound and mother wound, left breast, right breast. They're talking to me about the mind, body, and emotional aspects of cancer and things that nobody else really was talking about. So anyway, I became their patient number 519337. And I still remember that number. And I ended up doing research and continuing to do research. I went home, I had the lumpectomy. Margins were clean. Lymph nodes were clean. Dr. Ross is like, oh, my gosh, this is just such a great outcome. And I'm like, praise Jesus. And I left the hospital the next day. I flew home, and I just, you know, continued learning and researching and meeting other doctors that would become part of my tribe. Very hard to do in the year 2000, 2001. Very, very difficult. But somehow I had a piece beyond understanding that I could not explain other than God. And it was weird because I was, like, actively involved in my own healing platform, and I still had cancer on paper, so to speak.
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C
Right.
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A
But it was exciting to be a part of it. Like, I couldn't believe that I had cancer.
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C
Right.
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A
So that's sort of the cliff notes now.
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C
And of course, at this time, you had already started a new business, your consulting business. Right.
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A
I went from working 90 hours a week. 80 hours a week to, like, the phone wasn't ringing because I had turned over a lot of my business to the travel management company that I was working for before, Right. And had lease office space from. And so they were handling the bulk of my business because the stress part was huge for me. Huge. You know, I'm a type A. I'm Italian. I'm high energy, you know, and this, you know, creature of emotion and life and love and, yeah, ciao, mama. You know, but so I. My phone wasn't ringing anymore like it used to, and I was like, oh, my gosh. And I was earning about an eighth of what I used to earn, but somehow, God just worked it all out just along the way with some amazing stuff, things that happened, and, you know, help me provide for my bills and. But I was really serious about being on this protocol and getting enough rest, getting less stress, getting exercise, learning how to sleep, go to bed earlier and get really Good sleep early in the evening versus being a night owl because we know that your cells heal on a higher level when you're sleeping and not digesting food. And so, you know, I was learning like a new life. It was, it was crazy. And I had been engaged to a guy and that relationship ended and, you know, so I was like starting like clean slate everything. And it was really bizarre because I was at the peak of my so called years for my career. But I became the biggest project for my life because I had to become the CEO, coo, cmo, CTO over my own body and really work diligently to make sure that I wasn't going back to the bad habits and cheating in my diet. And don't forget, I have. I had active lupus, which was really rearing its ugly head too. And this, I had no symptoms from breast cancer. None whatsoever. But I have had a lot of symptoms with the lupus and the autoimmune diseases are very tricky. So anyway, I just continued on this path. And then about three years later, four years later, I flew to Florida and I helped Ann Fonfa plan her first small conference. And we became fast friends and I helped her to not only produce her events, but also as an advocate, speak to people that call the phone line, you know, because people are still calling all day long every day and sending us stuff on our Internet. And so she was living with metastatic disease and 35, 30 years later, 35 years later, she had an episode and she didn't recover from and she passed away three years or almost three years ago, maybe two and a half years ago. And she passed the baton to me. So fast forward 26 years later, here I am, still handling some of my old clients very part time, but mostly working 247 on Annie Appleseed Project. We're essentially all glorified volunteers and we're trying to build the organization and keep the legacy going because there really isn't anybody else doing what we do. The model that we do to really help the patient through that work.
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C
Is that how you met Chris Wark and Healing Strong or.
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A
Yeah. So every year we had a patient panel. So I moderated it and I told my story one year. And then we met people and recruited people that were very young in their cancer journey, but it had extraordinary outcomes. And Chris was on our patient panel one year. Jenny Bradley, who, you know, from Nashville, was on our patient panel. She's helping us a lot right now. And you know, Kelly Turner launched her thesis at our conference for Radical Remission and Naysha Winters and Sayer G And many of the others. Ryan Sternabel came to tell us about his son. And so we have all these amazing people, people who had extraordinary healing stories that we introduced to the world, basically, and it was very encouraging. And it was the most popular segment of our conference for many, many years. This is the first year we didn't have a patient panel because we had so much demand for some other cancer types that we did a little. We did a little bit differently, but we will have one again next year. So. Yeah. So Chris work. I met Chris, and we became friends. And I think I was one of his first interviews. And Ann and I in a little meeting room at the hotel doing this, like, you know, video.
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C
Yeah, that was at the Healing Strong conference. Right?
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A
And the Healing Strong Conference. And I met all the Healing Strong girls. And what I love about the Healing Healing Strong group was that it was like an army of believers, like, on site, like, praying for me all the time. And, you know, because it's crazy when you're producing an event and you get stressed out and you're, like, running around and, you know, you're problem solving because there's always five problems in one hour. And, you know, Janet and Susie and some of the. Some of the others would be like, all of a sudden, I feel a hand on my arm, and they'd be, like, pulling me into, like, a huddle and, you know, and praying for me and calming me down. And it was just. So that's how we all met. I mean, we all met through Annie Appleseed. And so it's a community. I mean, it. You know, it's a loving community. So every year we have new people coming that need help. 50 people come on scholarship through a generous donor to come for free airfare and I mean, hotel and registration. And we operate solely on donations. But our community is strong. And so we have repetitive people coming every year to be a part of it. And they all meet new people each year. And so doctors and practitioners and nurses and researchers and med students, everybody rolling up their sleeves, sitting together, having lunch, breakfast together. There's no VIP section. It's just patients and doctors and health professionals converging and sharing ideas and sharing hearts and learning from one another. So that's what we do. And that's what's so beautiful about Annie Appleseed.
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C
I had first heard about Healing Strong, I guess, probably through Chris Wark, but I was. You know, I live in South Carolina, and they're in Atlanta, and they're having a conference in 2018. So I thought I'd go check that out, see what they're about. I didn't know they're faith based or anything, so I went there and I'm like, oh, my gosh, why are these people happy? We all have cancer. What is wrong with them? I thought, is this Disney? Did I take the wrong turn and yeah, just like you said, they're constantly praying. I'm like, well, I like that. I just haven't seen that much prayer going on. And everyone's smiling and it's just. It's almost like, yeah, I got cancer. Now I can be involved in this community. I mean, that's not your first reaction, of course, but once you get in there, it's like, wow, this cancer is not a death sentence. I mean, they gave me a month or two to live and that was 10 years ago. So I'm a procrastinator, but plus, I'm cancer free. There's that too. I think. Jenny Bradley invited me down to the Annie Appleseed thing, but I. Yeah, I haven't been able to make it yet, but soon.
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A
All right. Your year is coming up.
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C
Yeah. All right, Let me go put gas in the truck.
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A
Exactly.
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C
Time has slipped by so fast, but how can people get a hold of you? What's the best way to do that?
- [32:11]
A
So theaniappleseedproject.org hit our contact button and you can email at info our info email, which is right there. When you pull up the screen, it's right there. And that gets to myself or Joanna. So Joanna Gatto and I are running the organization. I met Joanna, who was only 40 years old, 39 years old when I met her. Ann's neighbor. Helping Ann through her final days. She herself dealing with breast cancer. It was beautiful how we met. And then now we're both running Annie Appleseed together. So Joanna is an integral part of everything we do and extremely creative and brilliant and loving and kind person. So I'm so blessed to have her alongside of me. And we work together. I mean, we're equals on this project. You know, there's no hierarchy in our organization.
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C
Yeah.
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A
Something needs to get done, we do it. So Joanna Gatto is perfect. Jenny Bradley's helping us, as a matter of fact, some of our education and workshops.
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C
Yeah.
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A
And she's been great.
- [33:24]
C
I might see her next week. I'm going to Nashville. And we keep trying to, you know, connect, have coffee or something, but never works out. But maybe this time around.
- [33:34]
A
Yeah. Well, if you go to our website, you'll see all of Our amazing people. We have global partners, we have ambassadors, we have our health and wellness advisors, our doctors and our officers. John Malanka has been very involved. John and I was sat on the board for Best Answers for Cancer. So we've kind of blended the two organizations because Annie Brandt and Annie Fonfa, great friends running those two organizations, both passed away within a year of one another. And so it's a no brainer that we combine forces and just keep those legacies alive. And the education. So we provide education and advocacy to anyone and everyone who has cancer. Who needs us. You need us, call us, write to us, we'll find you some resources. We'll listen to you, we'll cry with you, we'll pray with you, we'll hug you when we see you. It's all about knowing that you have someone there that's going to say, I got you. I'm here for you. I'm going to be with you to the end. Whatever you need, I'm here.
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C
Excellent. Well, before we go, real briefly, if someone's listening to this podcast, which normally they are, they just got the diagnosis, so they're doing the early research and the doctors already scared them into doing something fast. What would you say just to encourage them and give them hope?
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A
I would say pray. Spend time meditating in prayer so that you have peace about your decisions. Breathe. You don't need to make a rash decision. It's taken about five to 10 years for the cancer to grow and to come to the surface. In most cases, there is time to do research. There are lots of great organizations that will help you to do that. And then get your small group together, your tribe of people that you can trust who can help you. And then go forth and don't look back, make a decision and just go in that direction with a vision that you're going to be healed.
- [35:42]
C
Nice. Yes. Well, Julia, thank you so much for taking the time. I know you're still a busy woman changing the world and I'm going to go back into my coma right now. Thank you so much.
- [35:54]
A
Thank you. I love you, Jim, man, thank you.
- [35:57]
C
You're like my new best friend.
- [35:59]
B
You've been listening to the I Am Healing Strong podcast, part of the Healing Strong organization. We hope this episode encouraged you and gave you confidence to take charge of your healing journey. Trusting God to guide your path. Healing Strong is a nonprofit dedicated to connecting, supporting and educating individuals facing cancer and other diseases through strategies that rebuild the body, renew the soul, and refresh the spirit. It's free to join a local or online group. Just visit healingstrong.org to find one near you or start your own. While you're there, create a free my HealingStrong account to access all of our free resources to help you live healthier and heal strong. Though our groups and resources are free, we invite you to support our mission through a monthly Hope Giver's donation of your choosing. Your generosity helps us reach more people with hope and encouragement. If you enjoyed this episode, please leave a five star rating and review to help us spread the word. We'll see you next week with another story on the I Am Healing Strong podcast.