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Friends, we're all back together for the next episode of the Juice Box Podcast. Welcome.
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Hi, I'm Sarah. I'm a single mom of three kids running a full time real estate business, a construction business, and my oldest Child is a type 1 diabetic.
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If you'd like to hear about diabetes management in easy to take in bits, check out the Small Sips. That's the series on the Juice Box Podcast that listeners are talking about like it's a cheat code. These are perfect little bursts of clarity. One person said. I finally understood things I've heard a hundred times. Short, simple and somehow exactly what I needed. People say Small Sips feels like someone pulling up a chair, sliding a cup across the table and giving you one clean idea at a time. Nothing overwhelming, Nothing. No fire hose of information. Just steady, helpful nudges that actually stick. People listen in their car, on walks or while they're actually bolusing anytime that they need a quick shot of perspective. And the reviews, they all say the same thing. Small Sips makes diabetes make sense. Search for the Juice Box Podcast Small Sips wherever you get audio. Nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. The episode you're about to listen to was sponsored by touched by type 1. Go check them out right now on Facebook, Instagram and of course@touchedbytype1.org check out that programs tab when you get to the website to see all the great things that they're doing for people living with type 1 diabetes. Touched by type1.org Today's episode is also sponsored by TandemMobi. The impressively small insulin pump. Tandem Mobi features Tandem's newest algorithm, Control IQ plus technology. It's designed for greater discretion, more freedom and improved time and range. Learn more and get started today@tandomdiabetes.com Juicebox the podcast is also sponsored today by Eversense365, the only one year ware CGM. That's one insertion and one CGM a year. One CGM one year, not every 10 or 14 days ever since cgm.com Juicebox hi, I'm Sarah.
B
I'm a single mom of three kids running a full time real estate business, a construction business and my oldest child is a type 1 diabetic. So my life basically runs on contracts, carpools, blood sugar checks and caffeine. Most days start for me before the sun with some sort of caffeinated beverage and a to do list. That's way too long and generally end with late night emails after the kids are asleep. So it's not always pretty and it's definitely not always perfect, but it's real.
A
Yeah.
B
I'm building a business while raising three humans and honestly, they're the reason I keep showing up every day. So thanks for having me, Scott.
A
No, it's a pleasure. I appreciate. That's a great introduction. Thank you. Yeah. Other people should take note. Thanks.
B
Thank you so much.
A
There's times when I'll say to people like, the next sound we hear will be you introducing yourself. And then there's this long pause and I'm like, I'm like, did they. Are they waiting for me to tell them to go, or are they like. And then sometimes they're just collecting themselves.
B
Right.
A
Sometimes I say, you can start whenever you want. They go, oh, I'm sorry, I was like. Was I too obtuse when I said the next sound we hear will be you introducing. Anyway, how old are those kids?
B
So my oldest, who's the diabetic, is just turned 14. Actually, my middle will be 11 over the summer. And then I have a 5 year old daughter.
A
Oh my gosh. Wow, wow, wow, wow, wow. I have to ask, they all the same dad? No, no, the five year old me off on that.
B
Yeah, yeah, yeah, yeah.
A
So now so give me a little background on autoimmune in your family and your child with diabetes, of course.
B
So I actually, I have Hashimoto's, lupus and a few other connective tissue disease autoimmune diseases. My father and most of his side has Crohn's or ulcerative colitis. We have zero type 1 diabetes on either side.
A
Okay.
B
He was a post Covid diagnosis and truly and wholeheartedly will probably forever be ingrained in my brain that that is the reason why.
A
So the virus that they kind of got the whole thing going. Hey, what are you guys, Irish? English. What's your background?
B
So I'm actually Irish and German and his father is Mexican, actually.
A
So I'm sorry, I meant your dad's. Your dad.
B
Oh, my dad. My dad is German and Irish. Yes.
A
German. Yeah, I just. It. It smelled like that with all the
B
connective tissue stuff, which is kind of funny. I also recently learned that I have Ehlers Danlos syndrome as well, which just goes hand in hand with all the other connective tissue things.
A
I was gonna say, how do you find that? But that's not what I mean. Like, what are the impacts of that for you?
B
Right. I Mean everybody hears hypermobile EDS and thinks that we can do back bends. I'm just gonna tell you my knees say that that is a big fat lie. I can't do anything hyper mobile whatsoever. It's more so just the connective tissue. So I have a lot of gut issues, I have a lot of joint pain, muscular skeletal pain. You can hear. I kind of have a vocal fry right now which that just kind of comes and goes when the weather changes. Just a lot of very weird things. I hemorrhage after birth. Almost died with my daughter actually. So that was good times. So safe to say I'm done with three. But on the day to day I really don't have time to notice a lot of my symptoms. To be totally honest with you. It's generally whenever I stop moving that I can really feel that things aren't normal.
A
How do you get the diagnosis for the ELLS Danlors?
B
It's essentially just a checklist of symptoms. And with the other connective tissue disorders that I have, I have mixed connective tissue disease which is like a buffet of different autoimmune diseases where how it was explained to me is you don't have enough of one to be completely solely diagnosed as that. It's kind of touch a touch of every single one of them. So it's kind of a blanket diagnosis. The Ehlers Danlos was just thrown in there recently by my rheumatologist.
A
What do they tell you to do? Like support the. Support your joints by building up muscle around it kind of thing?
B
Yeah, I guess, yeah, I guess, I guess they really have. Until it's one of those things that they're like, oh, here you go, good luck, see you later. Let me know if you have problems. But I do a lot of. I try as you know, as often as I can with three kids and all the work things that I have going on to go and get regular massage therapy and I do a lot of red light therapy and I'm really good at just listening to when my body says okay, it's time to sit your ass down for a day. That's really how I manage it.
A
Do you have a list of things that actually help or do you just think they're things that are offsetting a little bit?
B
I think mainly just taking the time to be horizontal I like to call it and just actually get good rest and good sleep because as you know we, we don't sleep a lot as type one diabetic parents.
A
Yeah.
B
Or I don't anyway, if somebody has Any tips for that? As a single parent, please reach out to me. But I haven't figured out how to master that just quite yet.
A
Xanax.
B
Shoot. I. Can I talk about.
A
You can talk about whatever you want. Oh, I like when people get whispery. What are you gonna tell me?
B
Okay, sorry. Well, I'm California sober, so I gotcha. I can't drink alcohol. I don't like drink. I don't like drinking alcohol. I used to love it. Of course, growing up, but not growing up, that makes me sound like I was like 15 and I mean maybe.
A
God, I started drinking when I was nine.
B
Sorry mom. Sorry dad. No, we had feel. I'm from the Midwest, so we had field parties here. So when I was at friends houses, we were absolutely near death in a field somewhere. All that being said, I'm at Kathy's house, kind of like we're doing homework and now, now that I'm a parent, I'm. Oh my God, Mom. Were you paying attention completely, like unaware, blissfully unaware. Or did you just not do that whenever you were 15?
A
How old are you?
B
I'm. I'll be 37 this year.
A
So this is in the 80s?
B
No, no, like no.
A
90s.
B
90s. Yeah, 90s, early 2000s, so.
A
Oh my gosh.
B
Yeah, yeah, yeah, yeah.
A
Okay. All right. And your mom didn't know?
B
No, I don't know if she knew or if she was just too busy with her own stuff. So I have a theory on that as well. Not to dive off into another subject, but I think my age group, we were really the first people who had mothers that worked outside of the home, primarily full time.
A
Oh, okay.
B
So I think that has a lot to do with a lot of things anymore, my age group of people. But I don't, again, I don't know if she was just too busy, you know, and we were, we were grandparent kids so we got off My, both my parents worked full time. My dad's an entrepreneur, my mom is a nurse and we, we, you know, we got off the bus at my grandparents house every day and we were there until they were ready to come get us for dinner.
A
So how young were you the first time you were blackout drunk in a field?
B
Oh God, maybe 16.
A
Okay.
B
But I was very responsible. I will say that. I never drove. That was. I, I am kind of a. So with all of the back to the autoimmune things, I have mast cell activation syndrome as well. So I have histamine issues which I get really car sick and I have to drive everywhere so there's no passenger princess for me in any time of my life. I am the driver. So anytime my friends wanted to go somewhere, I basically had to drive. So unless we were staying, staying in that field or staying at a property on that field, we. I didn't drink, I drove.
A
Sarah, please tell me how many times you've woken up the next day in a field.
B
Less than 5.
A
That's not bad. Not a bad number.
B
Not for the Midwest. I don't feel like it is for the Midwest. That's like our backbone.
A
You're like, scott, I avoided fentanyl. I am a success story. Okay.
B
For sure. Absolutely. So. But yeah, so, I mean, I micro dosed marijuana. Medically, it's legal where I'm at. Recreational and medical. That's basically how I combat a lot of things. That's what I medically for myself.
A
What did you find that helps you and what do you do?
B
Yeah, basically just that.
A
So hit a pen a couple times a day or how do you.
B
Do I have a vape pen. I don't really know that I love the vaping idea, but with three kids, they don't know what it is, but they know when I feel better, if that makes any sense. I'm not like, hey, mom's gonna go to the garage. Like, I do it when they're not around, of course. And you know, just for anyone listening, concerned with my driving skills, I never do it before I have to go anywhere or drive. So always safe. Never.
A
Sorry, have you tried the. I'm gonna use the wrong word, but they're the. They're the devices that just. They superheat it very quickly. It doesn't burn.
B
Is it the rso?
A
I don't know what it's called.
B
I can find like a dab pin.
A
No.
B
I feel so ghetto saying all these cool words.
A
You're like. You're like. I just want everyone to know I'm not as cool as I may sound in this moment. Sorry, hold on one second. So there's a way. So you're. So. There's vaping, right? But there's also.
B
I think it's a dab pen. I think that's what you're thinking of. Or like resin or something.
A
No, it's not. It's. I'm sorry.
B
No, you're good.
A
Smokers out there are like, you're this. You're terrible.
B
Like screaming at.
A
You're terrible at this. Scott, hold on a second.
B
Yeah, too clearly. I'm like a, you know, almost daily user for sleep. At least and they're like, come on. Do you not know what you're talking about? I don't. I really don't. Just like, hey, here's a cool flavored gummy that's gonna help me. I really feel like death tomorrow.
A
My Google search is so bad that I just got back a torch that's meant to burn weeds in a field.
B
Oh, my gosh, that's hilarious. It's like, yeah, this guy's never used
A
in his life not know what he's talking.
B
That's his hysterical.
A
Google's laughing.
B
Yeah.
A
So I'm gonna figure out what it is, but I'll get back to you on that. So. So that's what you do. And that helps you.
B
Yeah, it does. Otherwise I would have to be on. You know, they've. They've tried to put me on basically, like, a chemo pill for my lupus, and I am. Which is kind of hilarious. And I'm very anti Big Pharma, which, of course, I would get a child, you know, that has a lifetime dependence on big Pharma to stay alive. So that was kind of a funny joke. So I don't. I don't like to do. I don't like. I don't like prescriptions. I don't like medication. So I try and do everything as holistic as possible that I can for myself.
A
How do you end up scoring that circle? Exactly like you have a feeling about. About the industry, but now you are very tied to it.
B
Yes. So, actually, again, I told you, my mom's a nurse, so she. It's kind of funny. You know, I was very pro everything when I was growing up, and then Covid hit, and I just had a little bit more time to start looking into things. And there's a lot that they don't tell you before they stick. Stick your kids with things or feed you pills all day long.
A
You tell me that you got high during COVID and went down some sort of a rabbit hole.
B
I went down a few rabbit holes, but I was. I was actually pregnant during COVID So, no, there was no. No utilization of any of that during that time. But I actually just started that pretty much in, like, 2023, just for pain.
A
I have my answer, by the way.
B
Okay, great. What is it?
A
It's a heat. It's a vaporizer, but it's only heat. Let's talk about the Tandem Moby insulin pump from today's sponsor, Tandem Diabetes Care. Their newest algorithm, Control IQ Technology, and the new Tandem Mobi pump offer you unique opportunities to have better control. It's the only system with autobolus that helps with missed meals and preventing hyperglycemia, the only system with a dedicated sleep setting, and the only system with off or on body wear options. TandemMobi gives you more discretion, freedom and options for how to manage your diabetes. This is their best algorithm ever and they'd like you to check it out@tandomdiabetes.com juicebox when you get to my link, you're going to see integrations with Dexcom sensors and a ton of other information that's going to help you learn about Tandem's tiny pump that's big on control. Tandomdiabetes.com juicebox the tandem mobi system is available for people ages 2 and up who want an automated delivery system to help them sleep better, wake up in range and address high blood sugars with auto bolus. When you think of a CGM and all the good that it brings in your life is the first thing you think about. I love that I have to change it all the time. I love the warmup period every time I have to change it. I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kind of gets mushy sometimes when I sweat and falls off. No, these are not the things that you love about a cgm. Today's episode of the Juicebox podcast is sponsored by the Eversense 365, the only CGM that you only have to put on once a year and the only CGM that won't give you any of those problems. The Eversense 365 is the only one year CGM designed to minimize device frustration. It has exceptional accuracy for one year with almost no false alarms from compression lows while you're sleeping. You can manage your diabetes instead of your CGM with the Eversense 365. Learn more and get started today at eversensecgm.com juicebox One year, one CGM.
B
Interesting.
A
And so where did I learn about this? I was watching a video one day about some kids who have seizures.
B
Yeah.
A
And then they gave them weed.
B
Yeah. It's a miracle.
A
And it made their seizures go away.
B
Yeah, that doesn't surprise me.
A
But the kids have to smoke a lot to get rid of the seizures. Right? Like it's a pretty cons now it's again, you'd have to look into it to get the whole thing. But these are, these are kids who are just like, like they're having 3, 400 like mini seizures a day. Right. Like something crazy like that. So I'm watching. It was interesting. And then you know, somebody brought up like, you know, we. At first we were doing it, but you know, we didn't want the kids smoking.
B
Right.
A
And then they brought up these heat vaporizers. So in the course of that conversation they mentioned one and it took me a while to google to because I couldn't think of the name of it. But there's one, I think it's called the Mighty or the Mighty plus or something like that.
B
Okay.
A
And they just like the flower goes in and it quickly superheats it and a vapor comes out. That is not vapor and it's not smoke. It's hard to like I would have a hard time.
B
It's kind of like steam almost.
A
I don't even know what to say.
B
Dry.
A
It's dry. From what I mean from. I'd have to find the video interesting, but. But nevertheless like it might be. They push the button. I think it was heated in a couple of minutes. They hit it a few times and then it cools down again. And you can do that a few times before it gets burnt, I guess. And you have to add more but there's this very small like tip of your pinky size amount of flour that goes into it.
B
Interesting. Yeah, I'll have to look into that. Why not? Yeah, because of course like I don't want to be, you know, I'm by. I probably sound like one, but I am by no means like a stoner. You know, I just, I don't do this to get.
A
It really provides you relief off my ass.
B
It's the only thing that literally can keep me going because I'm not sleeping. My son, my son is very, very sensitive still. Even after being diagnosed for five years. Like he, when, when he hits 70, we've got like two minutes or he's at 40.
A
Okay.
B
It's wild.
A
What kind of devices is he using?
B
He is on the T slim pump and he's on Dexcom.
A
Is he getting low often like that?
B
He gets low quite a bit more than high. And of course, you know, it's activity makes him low. It's just random. It's very weird. It's almost like, like when a non diabetic is hypoglycemic and just. I mean you're fine until you're not fine. That's kind of how he is. It's when we. After we are under a hundred, we are at 70 within less than five minutes. And then we're down to 40. So he's very. It's very much so I call it. It's like a fire alarm 24 7. So I live my life in fight or flight, which probably doesn do well for my own health, but somehow, thank you, Jesus. By the grace of God, I'm still managing. Everything okay?
A
Yeah. Oh well, we'll figure it all out as we go.
B
Yeah, it's fine. That's kind of like I said earlier. It is. It is real life. Not perfect.
A
Yeah, well, so far nothing I've tried has gone perfectly. But I figured one day something's gotta work out.
B
Yeah, right. We're gonna get there someday.
A
I honestly don't think that's true.
B
Listen, Scott, you gotta have faith, ok? Yeah.
A
I'm just gonna have faith that even if it's not perfect, I'll be okay.
B
Yes, yes.
A
I'm gonna get off this page now because I've been staring at this vaporizer for a while, but apparently they're. They can be expensive.
B
Oh, I'm sure they can. It's all very expensive. But again, like, I look at it as, you know, I don't want to be on. I definitely don't want to want to be on the. The chemo pill. I don't.
A
The what?
B
It's like it's. They call it a chemo pill. It's. I can't even think of the name right now because that's high lupus brain. My brain is not normal. I can't think of it. Somebody is yelling into the radio right now what it is. I can't think about it. Hold on, let me look this up. Chemo pill for lupus. Okay. It's called cellcept Cytoxin. Yeah, it's essentially they just suppress your immunoimmune system and it kind of acts like chemo. So.
A
And what's it supposed to do for the lupus?
B
I don't know because I stopped listening as soon as they say that word. I'm done. I'm out.
A
So I wonder if the Tego would work for it.
B
I don't know, but they. My. All of my specialists are like, hey, you're good. We. You're. Whatever you're doing is okay as long as you're not feeling any worse. Like, we will stick to your plan. I've been very fortunate to have specialists who actually listen to me. And most of the time I'm very. I'm very self aware and very aware of my body, which is a good thing and a bad thing, I think. Sometimes wish I had a little bit more of like a Pollyanna syndrome where I didn't know what was going on. But I think that's also the blessing and the curse of having a mother who's a nurse. I was, you know, diagnosing my friends with strep throat in the third grade in the hallway. So all that being said, I. I know what. I know where I need to go and what I need to do, and they are really open to listening to that and then kind of formulating a treatment plan around what I feel comfortable with.
A
So this thing here says the. It's. It's called cytoxin. It's the short name, but it's actually cyclophosphor, maybe. It says here it's often used for three to six months to treat severe lupus complications. While it can be given via Viv, it can also. It's also available as an oral medication. Yeah, I don't. I guess it knocks down your immune system and stops the attack. And then maybe it doesn't come back. Maybe the hope is it doesn't come back at the same strength.
B
And I will say there are seasons of the year where I am in remission per blood work. Now, if I actually believe that maybe I got lucky on the day that they drew the blood. But I don't ever feel like I'm in complete remission, to be totally honest with you. But there are days and seasons and months, especially with the weather change. I can feel it in my bones and my body when a storm's going to come or the barometric pressure is going crazy with the weather. So I can kind of have a little bit of a heads up and know to kind of take it easy the next few days.
A
Do your kids have any other issues besides the type one?
B
They don't listen. No, they don't listen. Is that it? I think, like, that's a general issue with children. No, my other two children are perfect and my diabetic is perfect as well. Just that?
A
Yeah. There's no other, like, autoimmune stuff going on?
B
Nope. Zero Wild.
A
I hope that keeps on like that.
B
Yeah, I. Me too. Me too.
A
So, and tell me about his diagnosis. What. What were the first signs?
B
Yeah. So he goes to his dad, lives in a different. So he travels there for the summer. I have him the rest of the year. So March, that would have been 21. We had a lot of stuff going on, family wise. I lost both my grandparents on my dad's side. The next day I lost my brother in Law's little brother in a very tragic accident. And it was just a lot of things happening. So I also sometimes wonder if maybe that contributed a little bit from just the stress response of seeing everybody else so stressed out. Because that's kind of when we started noticing behavioral issues with him. He is your typical firstborn. Well, I say that I'm a firstborn and I don't act like this. My sister is more like me, more like the firstborn child in our scenario. But he does not like rocking the boat, does not talk back. He's very respectful. I am both of those things, by the way. Just my sister is probably going to be listening to this and she will
A
argue that I was going to say, why are you dragging your sister into this?
B
My sister, she's great. They. He was having a lot of behavioral issues at school, just not listening, very combative. And that's just not him. So we kind of took all this into. Oh, and by the way, we were building a house at this time as well. So it was a nightmare, just generally speaking. So life was kind of crazy. So I thought maybe that was just him kind of acting out or whatever he was doing because of the life situation at the time. Well, turns out he goes to his dad's for the summer and late summer, so it was July. His dad sends me a text and says, you know, hey, we're headed to, we're headed to the er. We think he has a uti. I'm like, oh, okay, that's interesting. I was actually setting up for one of my best friend's baby showers. I was hosting the next day, mind you. So I was to have like 40 people in my home that we had just moved into a month and a half before. And there was a golf tournament that weekend that my significant other at the time was playing in as well. So it was just like a perfect storm. The worst weekend ever possible to have something like this come down on you. So I get a text about 30 minutes later and says his blood sugar is 790.
A
Oh yeah.
B
And I'm like, huh, what? So my mom is actually at the house with me at this exact moment getting ready for the baby shower the next day. And she's like, oh my God, what are the symptoms? He was wetting the bed. And again, he was nine. So that's not, you know, typical of a nine year old at that point. Had never done that before, was, you know, having excessive thirst. Just the classic textbook stuff. But it's summer, they're having fun, it's hot you know, he's not used to being at his dad's beyond the summer, of course, like holidays and stuff like that. And his dad and his stepmom were just kind of taking little mental notes here and there. And then they were like, well, maybe we should limit the water at night because maybe that's why. Maybe he's getting too much fluid intake before bed while it kept happening. So then they thought it was a uti. So all of this stuff was happening behind the scenes. And I didn't know, and I'm glad I didn't know actually in hindsight, because I probably would have lost my stress wise just waiting for this to come down because again, having a mother who's a nurse, I know too much about these things, even if it has nothing to do with me. So I immediately. Alarm bells went off in my head. He's. This is diabetes. And sure enough, there it was. And he was actually one of a handful of cases that actually got to be sent home the night of diagnosis in. At Vanderbilt Children's in Nashville. He was not in dka, which is wild to me. He was totally fine other than his blood sugar being crazy high and the urination. So the doctor at Vandy Children's was like, this is probably one of five that I've ever sent home. So I was able to do the baby shower the next day, fly to Nashville right after that, and we spent the next few days in training at Vandy.
A
Listen, that's fascinating. But more fascinating. I've been trying to talk my wife into moving to Tennessee for about a year.
B
I miss Nashville so much, but it's so different than what it used to be.
A
I will say that I was looking at a place that's like 30 minutes east of Nashville and the cost of the property and house is so much cheaper than here. Where.
B
Where are you at again?
A
In New Jersey.
B
That's why I was like, I thought you were up north.
A
Yeah, well, I'm.
B
I'm near Kansas City, so we have kind of a boom happening in Kansas City as well, so. And I'm also in real estate, so I get to kind of see all that fun stuff. But I will tell you, Nashville is not the same Nashville as it was when I lived there.
A
I don't know what that means. I don't really care. I want to be.
B
You're like, I just want to move to Tennessee, Sarah. Basically, it's. It's turning into like a tiny la. There are. Everything is stacked on top of each other. I think they had the most People move their per capita than any other state or any other city in the entire United States.
A
Looking where? Like, the house would be on like 20 acres.
B
Oh, yeah. Like Gallatin area.
A
I don't know. East.
B
Yeah.
A
And. But still within like a 45 minute drive of the city, if you needed it.
B
Well, even that. I mean, there's. There's literally. They just keep building up in the city. Oh. So everyone goes out those ways. So you might not even, you know, you might have to go even further than that.
A
All I'm telling you is also, I don't know if people are aware of this or not. I don't want to start a gold rush. But Tennessee doesn't. Doesn't have what they call income tax.
B
Yeah, I know. So I miss that heavily.
A
Yeah. I'm thinking that might be a nicer way to live.
B
I agree. Apparently, Missouri is on the road to that as well, so. We will see.
A
Tell me about the humidity in Tennessee very quickly, though. Am I going to be all soupy all summer long?
B
No, it's not bad. I have very, very, very naturally curly hair. And say I step out of a car in Florida, I look like Mufasa or Howard Stern in about four seconds.
A
Gotcha.
B
Did not have that same issue in Tennessee.
A
I'm gonna.
B
I'm gonna.
A
I have a situation coming up here in about four or five weeks where I'm gonna go down to Atlanta and give a talk for. For touch by type one. I don't know if I'm supposed to say that. Whatever.
B
And now everybody knows.
A
Well, now maybe I'm gonna drive to Atlanta and then come back up through Tennessee and take a look around.
B
You should. It's. It's beautiful there. I will tell you that. It is beautiful.
A
Maybe I could drag the old lady with me.
B
You could just make it a little vacation.
A
Yeah, if she heard me say that. By the way, it's not a thing I've ever called her in my life. I was trying to be. I was trying. I was trying to be funny. But if she. If she know I said my old lady like old lady.
B
Oh, I thought you just said lady.
A
No, I figured we were driving south. I thought maybe I would start speaking more like that.
B
Oh, but you have to start saying y' all for everything.
A
I'll do it. I don't care.
B
And a Coke is not just Coke. Coke is a blanket term for every single pop or soda, if that's what you call it. But we call it pop.
A
Only soda I drink is Diet Mountain Dew. Once in a while I don't think.
B
Yeah, so you would. You would order a Coke, and they would say, what kind of. And then you would say that I'd say Mountain Dew.
A
Well, that seems like a waste of time, but. Okay.
B
It's very wild. Yeah, but everything is a Coke.
A
All right, listen, you may have just talked me into a. Into a weekend outing.
B
You're welcome.
A
Thank you.
B
I can send you recommendations. I don't know if any of them are still open because, again, it was decades when I used to live there.
A
Literally. Just. You saying the humidity wasn't that bad.
B
Yes. Yeah, it's. It's beautiful. It really is. Everyone is so nice. But people are nice in Kansas City, too.
A
So is that Missouri or Kansas City?
B
Yes. Missouri. Yeah, we don't. We don't talk about Kansas unless you live in Kansas City.
A
I think I gave a talk in Kansas City once.
B
Did you?
A
Yeah. They took me to a. A barbecue place.
B
Oh, of course. A barbecue place.
A
It was like, when I pulled up, I thought for sure they were going to dismember my body in this building.
B
Oh, yeah. Arthur Bryant's, probably.
A
Oh, no kidding? You feel like you know where I'm talking?
B
Oh, 100%.
A
Along a train track.
B
Yeah, either that. I'm pretty sure it's Arthur Bryant's, but it's definitely sketchy. But it's the best.
A
It was so good.
B
Yeah.
A
But as I was walking into that room, I thought, I may not leave here alive just because of what it looked like on the outside.
B
Yeah. It's close to Prospect. So here. Yeah, that's about it. That's right.
A
It's very good.
B
But it's so good. You can't beat it.
A
Okay. All right.
B
Can't beat it now I'm hungry. Thanks, Scott.
A
It's not my fault. I'm just talking.
B
I know.
A
Okay, so this kid is diagnosed, and you have to, like, figure out how to take care of him.
B
Yeah. And I'm a psychopath, so whenever I go. Whenever I go and do things, it's the ADHD in me. I hyper fixate.
A
Okay.
B
And the endocrinologist, after he came back and we were established in Missouri, because, again, he was diagnosed in Tennessee. So we have two endocrinology teams. So he has one when he's there, and he has one when he's here. She literally had to look at me and say, hey, you're doing a fantastic job. But, like, you probably don't need to keep a notebook of every carb that goes in his mouth anymore.
A
She tell you to Chill out.
B
She was like, you need to calm down. I'm like, excuse me, I'm. What do you mean to calm down? My kid could die at any given moment, and inevitably I would feel the guilt of that. Right? And she's like, yes, but it's okay.
A
You really think the kid's going to die, though?
B
I don't now. I did. Then I will tell you what. Yes. I was so stressed out a few. It was probably three months after he came back home, so it would have been the fall of 21. I was so stressed out when I. Again, my significant other, we had an infant and he was like, why don't we try and turn your notifications off for the night? Just put it on do not disturb, but let's let the Dexcom ring through. I was like, okay. So I tried it. It didn't work. Scott, what do you mean? My daughter woke up bawling and screaming out of nowhere, which was so unlike her because she was a great sleeper. She woke up crying and screaming, and I just glanced over at my phone. He was at 38.
A
How did your daughter know to be upset by this?
B
I don't know.
A
Is she a diabetic? Alert dog. The girl, maybe.
B
Literally? Yeah. Well, yeah, exact. But, you know, she holds that over his head all the time. Well, I kept you alive that one time, so you have to do XYZ for me. Yeah. If it wasn't for her, I truly. I know. I. I know a lot of people have different beliefs and stuff, but that was definitely a God thing for me.
A
So you're saying like a low blood sugar overnight kind of scared you into being.
B
Oh, I was terrified.
A
Yeah.
B
Yeah. 38.
A
But how long ago was that?
B
Like months after he was diagnosed.
A
How long ago? Since now?
B
Five years.
A
And has it happened since then?
B
No, because I never shut my phone off.
A
Is that why it doesn't happen?
B
Yeah.
A
Are you sure?
B
I don't sleep 100.
A
How many 38s do you save before they happen?
B
About probably one or two a month.
A
I think you're doing. Oh, I almost said words that people would be upset for me. I think you're doing something wrong.
B
Yeah, so I. I always thought that too, but his. Again, his endocrinology teams both say, like, this is just his body. He's just very. It's very weird when he sleeps. He. I also should note, at 14, he is 6 foot 2 and 190 pounds. The kid, he's growing up an adult.
A
Yeah. Wait, so wait, hold on a second. You have a 6,290 pound, half Mexican kid.
B
He looks white.
A
No. I was like, how did that happen? Yeah, I know. And I have a number of Mexican friends. They are very short people, generally speaking.
B
But my. My side is where he gets the height from. Okay. My dad's six six. He shrunk a little, so maybe six five. Now my sister is six one. And then we have my mother, who is like five foot in heels. So I am down here at five seven.
A
So height from your size, you're tall too. Okay. And you are five seven for a girl.
B
I think that is a myth. I don't feel tall. I feel short.
A
Well, just because you don't feel tall doesn't mean you're not tall. 57 for a woman is, I think, a fairly tall height for. I mean.
B
Well, thank you very much.
A
I didn't. I wasn't trying to give you a compliment.
B
I just think I'm gonna take it as that because I feel short, so.
A
No. Do you know women that are taller than you?
B
Oh, yeah.
A
Are they in your family? There's like, a lot of tall people in your family?
B
Yes.
A
Yeah.
B
My dad's one of nine or eight. I can't remember. There's too many of them Catholics. Yeah. My. My dad's side is so tall. We used to joke. My. My grandpa. My dad's dad was like, maybe 5 7, and my dad's mom was over 6 foot.
A
So what are the doctors telling you? Like, is he just growing a lot, do you think? It's like.
B
I just think that he just goes through these weird spurts. And nighttime, after he was diagnosed, after that first scare that night, nighttime was pretty steady because of the growth hormone. I think that was kicking in.
A
What's your target set out on the. Would you say you have T. Slim?
B
Yeah, he's T slim.
A
What's the Target set at?
B
110.
A
Have you tried making it, like, higher overnight?
B
Yes, we have. And he still goes low.
A
Okay. There's got to be a pattern to this. Is it? I know a certain meal that gets a big bolus earlier in the evening.
B
That's exactly why, Scott. That's exactly why I kept my little handy dandy notebook that the endocrinologist told me I was a psychopath for having, basically.
A
Do you still carry it? No.
B
Hell no.
A
Yeah. You're done with the notebook now?
B
No, I'm done. You know what I've done? I have. Everyone should be very proud of me listening, because I am no longer a psycho with his management. He is, like I said, 14. The kid is incredible at managing his own care during the day. I can't say enough about him. He's so responsible. I have never had. I'm sure we'll still get there. Nobody scream at me through the phone, but we have never had. The woe is me. We have never had. Why me? We have never had rebellion. It's insane. He is a dream. Now if this would have been my middle child, I would have no hair right now.
A
Well, but wait, wait for the lows. How about like a bunch of activity earlier in the day before it happens? Like look, earlier in the day.
B
Nothing.
A
Nothing.
B
He. No, he is, he is not a. He's not an active. He's not an. He's not an inactive child. But he's not an active child, Scott.
A
He's not active. He sits very still, Scott.
B
He likes to sit on the computer. He's a gaming child, loves 3D printing. He's very nerdy. He's. I mean he's not out running or playing sports.
A
You're a giant six two nerd, Is that what you're telling me?
B
Yes. I'm like, oh my God, there goes all of my dreams being an NBA parent.
A
I didn't know they came tall. And six two is not going to get you in the NBA anymore, by the way.
B
He's supposed to, mind you. He's just turned 14. He's supposed to be like 6 7.
A
Oh, well, maybe 6, maybe, maybe he could still be. Maybe he could be taught still.
B
He has no coordination. It's very sad loss. His heart. Yeah, he has so.
A
But no, we have no coordination.
B
He doesn't. He can, I mean he can operate a VR headset like a champ. Throw a ball at that kid and it's, it's not happening.
A
Gonna hit him.
B
But yeah, he's. Yes, he is amazing. Has no interest in any sports or physical. Anything.
A
Yeah, whatever.
B
So it's okay.
A
My kid's incredibly athletic and I don't know if it matters one way or the other, so.
B
Yeah, I really don't either. I'm like, cool, just learn how to like do computer stuff and then you'll be great. He's very into video games. Just loves that. So I try, I tried to get him into sports when he was younger, but pre diabetes and it just wasn't happening. So I just shelved it and said,
A
okay, what's he eat? Like, what's his diet like?
B
Like a typical 14 year old boy.
A
I don't know what that means.
B
You have to tell me every like hour he's eating almost a full meal. He, like, you can't get the kid enough food throughout the day. Okay, but he's in range about 80% outside of the crazy lows.
A
Yeah, no, it sounds. It sounds like he does a good job.
B
Like, he's amazing.
A
What? What? I mean, like, is it a lot of processed food? Is it a lot of whole food? Like, does he.
B
No, we eat. No, we eat a lot of whole foods. He does a few food aversions, but he eats a ton of protein. And of course, you know, we account for that thanks to you teaching me that in the beginning.
A
Wait, I didn't know we were gonna say something nice about me. That's awesome.
B
Yes. You're welcome. See, now that was actually a compliment. So now you can rewind and tell everybody that you called me tall to be nice.
A
Well, I. I didn't. I don't think that's necessary.
B
You're supposed to pretend.
A
No, I'm. I'm not gonna. Not five, seven.
B
Okay, whatever.
A
You know, five seven is a nice height is what I'm saying.
B
Okay. Okay, we'll take it. But also give you the compliment. How about that?
A
I'm just gonna take the compliment no matter what.
B
Okay.
A
Yeah, we'll go with that. Thank you.
B
Yeah. So it's. It's really weird. There's no pattern. And again, we. I mean, we have talked this through so many times, and it just is what it is now. It's not an every night thing, like I said. So like last night, for instance, and the weather's changing here, so that always affects him too, which is weird to me.
A
But the warmer weather, just the changes.
B
Yes.
A
How?
B
I. I don't know. It's.
A
It doesn't mean like higher, lower, more variable.
B
It's an absolute. It's an absolute. Yes, it's a variable. So we could do the same thing four days in a row, the same foods, the same times. And if the weather is changing on that day or the day before or the day after, it's wild.
A
I hear you.
B
Just very unpredictable. So. But we're good. I have really shelved the idea of him having a perfect day. 1C. His is not terrible right now. I think it's a 7, which is low for him. He's usually about a 7 5. And again, his team's very okay with that. Obviously the perfectionist in me. And it's not even. It's not even a me thing. It's a. I want to instill good habits in my child so that he can live a long Life. Right. And that is the goal for me and for him. And that stresses me out sometimes because I can't control it as much as I would like. But I think, again, it's the puberty. It's. It's the excessive growth because he's grown. He's probably grown a foot in the last year.
A
Okay.
B
And it just keeps going.
A
I'm happy that everything feels good and you found balance and everything like that.
B
Yeah, yeah.
A
When you were putting all of your effort into it, where was his A1C?
B
Like a 6.5.
A
Okay. And so he's maybe a half a point to a point higher on his own. But are you completely out of it at this point?
B
No, I'm not completely. Are you kidding? I mean, I'm still neurotic, but. But no. I mean, he's only 14. He shouldn't be completely on his own.
A
Yeah, I know.
B
In my opinion, what's the difference between
A
a 75 and a 6 5?
B
A number.
A
No, I mean, as far as, like, where you're putting effort or where you're
B
not getting paid back, I was literally. I was literally charting everything. We were weighing food. It was insane.
A
Charting everything, Weighing food. But, I mean, he must eat the same stuff over and over again, right?
B
Not every day.
A
What is this? What's wrong with this cake? Can you just eat the same thing over and over again? So you know how to bolus work?
B
He does that for lunch at school.
A
Okay. Do lunches go well?
B
Lunches are good. Yep. Breakfast? Sometimes it's not great, but we have kind of dialed that in a little bit more the last year.
A
And you think you're just not counting the carbs well enough?
B
No, I mean, I'm. Again, that's. That's a habit that I have not lost from.
A
How about him when he's.
B
Yes, he's very, very accurate with them as well.
A
He's not doing the. Like. That's 30. That's 30. That's. He's not doing it. Okay.
B
He. We utilize Alexa constantly. So if we're not looking it up on our phone, we're asking Alexa to look it up. And he will give her the exact portion amount that he. I mean, he will measure out cereal, if he's eating cereal.
A
And then there's a high blood sugar after the meal.
B
Not always. Sometimes, but it's generally a delay.
A
Okay. 90 minutes later, we have a high
B
blood sugar about two to three hours later.
A
Is that from fat, do you think?
B
Maybe. I mean, he is not like a vitamin D milk kid. He's like a one or two percenter, so.
A
Okay.
B
I don't know that that's the issue. I, I don't know. He is. And it confuses his. Like I said, his endocrinology team as well as I was like, yeah, they just don't, like they can't figure it out. His patterns don't make any sense. But I am okay with that at this point.
A
Yeah.
B
No, I know in his life I
A
feel like I'm on this too long, but.
B
No, you're good. No, I love, I love the, I love the pushback. I love a challenge. But I wish I had the answer because I don't.
A
No, I mean if you had the answer, it wouldn't be like that.
B
Exactly.
A
Yeah, true. But I'm just wondering like what it is we're like what we're missing. Yeah, me too.
B
I wonder that all the time.
A
And is it about his growth? Has it been his whole life with diabetes or just more recently?
B
Well, no, he started, he was pretty normal growth pattern until he was about 12. So he's grown significantly in the last two and a half years. What size shoe do you wear, Scott?
A
12.
B
He is a 12 and a half at 14.
A
Oh, does he trip a lot?
B
No, but man, they sound like boards slapping the floor when he walks. The kid's huge is my point. So I don't know if his body just can't calibrate itself or what the deal is. But we're growing rapidly.
A
Yeah. I'll tell you the worst thing about having a Bigfoot is that when you find a shoe you like, they usually only have like two pairs of them and if some. And then they're usually gone by the time you go to pick them.
B
Right? Yeah.
A
And you're left with whatever's left. Now the Internet has fixed that a little bit. You can kind of order stuff. But back when you had to go to a shoe store, kids, Scotty never got the shoes he wanted. How could intense growth impact the blood sugar of a 14 year old boy? And I said like a foot of height and it says growing a foot is an absolutely massive growth spurt. The kind of rapid change puts a 14 year old boy's body through an intense physiological marathon. Packs how the body handles blood sugar primarily due to hormones driving all the growth to grow. That rapidly. Pituitary gland is pumping out massive amounts of growth hormone alongside a surge in pubertal hormones like testosterone. Growth hormone naturally acts as an antagonist to insulin. Insulin's job is to act like decrease sensitivity during peak puberty Intense growth spurts. As a teenager. I didn't tell it on purpose that he has type one at first. So now I'm going to tell him. Yeah, in a teenager, without any underlying metabolic or autoimmune issues, the blood sugar itself won't actually rise. Obviously, the body recognizes this, but. Okay, the changes in the picture, since the pancreas cannot produce the extra insulin it needs. This is about skyrocketing insulin needs. Dawn phenomenon overdrive. Growth hormone is primary release in heavy pulses while we're in deep sleep. Extreme unpredictability. Growth does not happen in smooth, steady lines. Hunger factor. Okay, hold on. This kid gets really low a few times a month during sleep. I mean, I don't know the answer, but if Vanderbilt doesn't know, let's find out if the Internet does.
B
Yeah, me either.
A
Tried to get Arden to go there for her to consider Vanderbilt for her.
B
Oh, yeah.
A
First of all, for a postgrad degree, but it is very expensive, so I do.
B
It is.
A
I do like the one she chose.
B
Very expensive.
A
Okay, so it might seem contradictory since a growth spurt is famous for causing stubborn highs. But at the same time, intense growth is very often the direct culprit behind the severe, unpredictable overnight lows. The massive growth spurt in making his overnight number suddenly drops out from under him. So growing. Oh, I see. So the hormones and the growth horror, all that stuff drives up need.
B
Yes. It's kind of fighting each other.
A
The algorithm is fighting back with more insulin, which is keeping him, you know, where he's at.
B
Yep.
A
And then plummets. Yes. Then a 14 year old boy growing that rapidly has massive metabolism. If he's, let's say, hours later in the middle of the night, his body will try to rebuild those depleted muscle stores from the day, pulling sugar directly out of his bloodstream. Delayed effect combined with his nighttime insulin is a class. Is it about a 2am collapse?
B
It's about three. Yeah.
A
Three. Okay. Building bone and muscle takes an astronomical amount of calories. Okay, so how would we combat this? Again, I want to just say I'm asking.
B
No.
A
Yeah, I'm asking Gemini. So I'm not saying this is advice for anybody listening. I'm just trying to, like, I mean, we've been listening to Sarah say, I don't know, I don't know, I don't know for a while. And then nobody else is helping her. So maybe. And I don't know the answer.
B
So, yeah, I'm again, like, well, and it's so hard as everybody knows too, you know, your Endocrinologist doesn't live with your child. They just know what they know. So it's kind of one of those things that. Yeah, he's. They say he's doing great, and I think he is as well. But there's always room for improvement. Right.
A
Can you feed him late at night, like, something that'll sit in his stomach overnight? A little bit.
B
We used to actually do, like, the little tiny, you know, the individual sized. Jeff Peanut butters.
A
Okay.
B
Yeah, we did that with a. With a protein milk, a fairlife protein milk. Did that work every night before bed? It worked for a little bit and then it stopped working.
A
Jesus. Like a. Like a really, like, slow dissolving granola bar or something like that.
B
Yeah, I don't know about that because the carbs are different. So the peanut butter with the fat and the protein really did help a little bit.
A
Yeah.
B
But again, that was just a temporary thing that worked for about a year.
A
Wow. Maybe it's.
B
So maybe this is a load of peanut butter.
A
Can we call this episode load of peanut butter?
B
Yes, absolutely.
A
I just
B
a psychopath with a shitload of peanut butter.
A
I bought ketchup at Costco the other day, and I thought, I may never buy it again in my life. Look at all this ketchup.
B
Right?
A
Yeah. And then I felt like I was saving money, but now I look at the ketchup on the counter or in the cabinet, I'm like, what was I doing?
B
This is like a gigantic, like, concession stand pump.
A
Three of them. No, like, three of them came with it. Like. And I was like, what? Do we get it? But the price was so good.
B
I know. Well, they make you think it is.
A
Anyway, it was on that thing. Trust me, I cannot be fooled, okay? You can fool me about a lot of things. Not about being cheap. That I'm good at. I'm good. I'm good at being cheap. Don't worry about that.
B
Got it.
A
Well, yeah. I mean, my. My only thought here is that maybe as the growth levels out, this problem just sort of dissipates.
B
I hope so. I can only hope and pray that that happens.
A
That's scary. Especially if you've already, you know, had a.
B
Scary.
A
Scary.
B
Yeah, it's scary. And of course, you know, I'm on high alert for that, but also, I have. I have two other kids. Yeah. So, I mean, I can't. Yeah, I'm busy. And I have demanding careers. Plural. And thankfully, you know, I. I could never work for anybody else. I don't think with a child because
A
of the way your time's chopped up.
B
Yes. So I. I feel for every single parent out there who goes somewhere to work every day and clocks in and has a boss, because I don't know that I could do it.
A
Yeah.
B
I really don't.
A
Are you with your youngest is father?
B
I'm not.
A
You're not. Okay. So then there's three. Yeah. And is that a situation where two of the kids go one direction, one of the kids goes another direction sometimes too?
B
Exactly.
A
It's a lot. It's a lot of stuff.
B
So I have. Like I said, I have my oldest full time, except for the summer, and the other two are split throughout the week. So we do get a little bit of reprieve Wednesdays and Thursdays because it's just my oldest and I. So we call that our. We call those our rest day. Our rest days and rest nights. Because we can actually. We generally sit in silence. I'm not gonna lie to you. Because it's usually so quiet and busy with the other two kids around all the time.
A
Yeah.
B
So.
A
Well, I was gonna say, too. And you need that rest, you said earlier, too.
B
Yeah, absolutely. Well, I take a lot of naps, but again, I could never be employed by someone else other than myself ever again.
A
How often do you nap?
B
Oh, I'm napping every day for sure.
A
Do you have thyroid? I forget.
B
I do. Yeah. I have Hashimoto's.
A
What's your tsh?
B
I don't know. It's been. I actually just got the blood work done in January and I've still not received those blood work results, so.
A
I don't know. Three months ago? How is that possible?
B
I can't tell you. I don't know.
A
Let's call them first of all.
B
I know. I'll put it on the list, Scott.
A
Yeah, but slide it to the top, though, because I know, like, what if. And my point.
B
I mean, I. I'm napping because I'm
A
not sleeping at night.
B
Yes. Because I am on high alert 24 7.
A
You know this isn't, like, doable for long, right?
B
It's not. No. I'm gonna probably fall over someday and this will be why. And you're gonna say, oh, I told her.
A
I told that lady to go to sleep.
B
Totally to sleep.
A
I mean, can you not. Why don't we get a second, like a. Like a. A third party to track his blood sugar? Like so you have an extra set of eyes overnight so you can sleep a little bit.
B
His dad does do that. Okay, he does do that. But that doesn't stop my brain from waking up every hour to check either. Yeah, I see. It's a me problem for sure.
A
Yeah. I don't know. You poor ladies are. You're in a quandary. I am. My wife had a meeting today she was nervous about. I think she was asleep at like 5 in the morning.
B
Yeah.
A
I was like, what are you doing? Like, every time I got up to like a pee or turnover, I was like, she's just sitting there. I'm like, what? I don't ask her anymore. She gets mad at me. I'm like, why are you awake? And she'll be like, gee, Scott, thanks for straightening this out for me. I should have just go to sleep. And I'm like, well, you should.
B
First of all, thanks for the advice.
A
Yeah. Yeah, exactly. But, yeah, I don't know. I don't know what happens.
B
Yeah. I don't know. But like last night, for instance, we sometimes get the. The rarity of. Actually, I woke up for the first time this morning at 4 o', clock, which technically is 3 o', clock, which is the general time. I wake up anyway in the middle of the night, at least every night. But daylight savings time, I got to be. Got to be 4 o' clock today.
A
I don't think that counts though. I think it just moved. The clock just.
B
I'm just trying to trick myself into believing that. Yes. So just let me. Let me live.
A
Okay. Believing. You've got another hour.
B
Just let me get this one. Okay. I'm just trying to fool myself into thinking, but.
A
Well, I'm sorry for you. It's a lot. Well, it's a lot though.
B
It is a lot. But I'm, you know, it's just. I have people all the time. How do you do all the things? What. What other option do I have?
A
Yeah, what else you're supposed to do.
B
Yeah, not right.
A
Well, is he going to be okay? Like, you think he's a college kid.
B
I don't know. I don't. I don't. I don't even want to go there in my brain yet. I am. My next mental hurdle is driving Sarah's.
A
Like, I'm too busy worrying about now. I can't worry about later.
B
Yeah, no, I. Yeah, it's funny, I just. The world is literally on fire, Scott. Like, let's just get through the day.
A
I just talked to a guy whose kid's only been diagnosed for a short time and he's already worrying about 20 years from now.
B
Oh, my God. No, I can't even. I Can't even think past 20 hours from now most days.
A
Isn't it funny? You both are panicking a bit about something different.
B
Just completely different. Yeah, right.
A
That's really something.
B
Yeah. But I will say I have calmed down a lot.
A
So can you do a little of the weed before the bed? Does that help to sleep?
B
I. I do that mainly just so I don't wake up feeling like a tin man in the morning. But it does not do anything for my sleep anymore sleep.
A
Also, I would tell you that a lot of the stuff I've seen recently says that weed doesn't help you sleep. It has like an opposite effect.
B
Oh, cool.
A
But then there's so many people that say it does help them sleep. So where's that coming from?
B
Who knows? I think they just make things up
A
anymore that I'm pretty sure about.
B
Yeah. So someone somewhere is just making these things up.
A
They're like, we need content.
B
Say something, say something.
A
So that's, you know, what my favorite thing is now around sports. People will make posts. You know, they're just trying to drive their accounts to make money. Yeah, right. But it's like, it's not even important. It's. What, do you live in Kansas City? It's like, you know, proposed trade, Patrick Mahomes for this guy in New York. What do you think? And then you start reading it, you're like, oh my God, are they thinking of trading Patrick? You read and go, this is just somebody said out loud. Like, what would you think? Yeah, everything is just rage bait in
B
one way or the other thing is rage bait. Yeah, because it gets. Gets clicks and it gets people pissed off in the comments and then they start arguing with each other and all that does is just monetize, monetize, monetize.
A
And it works on levels too, because. Because somebody gets tricked by it. And then somebody comes in, then that person starts like complaining. Then another person gets annoyed that they don't realize it's not real. Then they yell at them for that, and then someone yells at that person for not being nice. And you have three different.
B
It's a snowball.
A
Yeah. There's three different levels of rage off of one fake statement made out loud. And it just drives that thing to work and work and work. And they sell the ads on it.
B
Yeah, sure does.
A
Fascinating, isn't it?
B
The system never stops. That's for sure.
A
It never stops. And you can't teach the world because there's always somebody in a different version of understanding of how all this works. So you can always Hook in enough people to make it happen.
B
I agree.
A
Yeah. That one's my favorite, though. Like when they make up stuff and they go, yeah. They go, what do you think of this? And I'm like, wait, it would be like if somebody said, like, what? You know, if I made a post and I said, I'm thinking that a cuckoo bird should be allowed to marry a volcano. What do you think of that? People like volcanoes and birds don't belong in marital bliss together.
B
They don't even get married.
A
It's ridiculous. Birds don't even get married. And then. And then somebody else would come in and be like, how would they even have sex? And then a third person would come in and say something like, you don't realize that this is just a rage bait. You. You're such an idiot. And then somebody's like, why would you call them an idiot?
B
When somebody's like, well, I hate. I hate volcanoes. Okay.
A
Yeah. I don't like the holes in the top of them. What do you think of that? And it's just. It's fascinating to watch that get.
B
It is. People get jerked around that way is just. I mean, we fought. We fall into it, too. Hook, line and sinker every time.
A
I just heard somebody say recently, we used to think sex sold, but it's rage.
B
100.
A
Yeah.
B
Rage is what arguments sell is what it is. Conflict.
A
Yeah. Really something.
B
Differing opinions. All of it.
A
Yeah. Can't get. I mean, you can't get anybody to argue about anything that's actually important either, which is interesting, of course.
B
Yeah, I know.
A
You bring something important up, people like, I don't have the energy for that.
B
I don't talk about that. Okay, cool.
A
But I'll tell you what, those birds and those volcanoes. I have a lot of thoughts about this. I have a lot of thoughts about it, truly. My goodness. Oh, well, what are you going to do? Are you planning on giving up? Are you, like, what's. What's your. Well, I mean, this has only been a handful of years for the diabetes. Right?
B
No, I'm. I mean, I'm definitely not going to give up.
A
Okay.
B
Probably just going to continue to be, you know, get more funny as the years go by, because that's how I cope with things. Yeah, it's a disability at this point. But I don't know. I. You know, hopefully, eventually we'll find someone worthy of marrying again. And hopefully, you know, they are a light sleeper.
A
Hey, Anybody? Listen, Sarah is willing to trade fun time for if you'll just let her sleep. Okay.
B
Just Let the girl sleep. Okay. And like, maybe go have these on the bills or something. I cook really well. I'm really funny. Well, I mean, that's. I guess maybe a personal opinion, but some people think I'm funny, so. No, I really. I really don't know. I think.
A
I didn't expect you to come from that angle. I'm sorry. You're like, I'm selling this, Scott. I gotta get some sleep.
B
I gotta sleep, man. No, like, truly, I literally. A few years ago, I asked for a night nurse for Christmas just for like a weekend.
A
Yeah, I hear you.
B
You know, he. My parents. I will say my parents help out a lot when they can. They also have their own lives and my sister has children as well, so there's grandkids everywhere. But when possible, you know, my. My mom, who is a nurse, but you know, as anybody who is a nurse or in the medical field, it's totally different when it's your own relative, your. All of your medical training. And again, like type 1 diabetes, especially juvenile, is something that's not necessarily. I just totally blanked on what I was gonna say. Hi, welcome Lupus, to the chat. The brain fog is lovely. I guess what I'm saying is it's not something that every single person in the medical field knows a ton about. You know, they don't study that us. It's their specialty.
A
Could you go to your sister, for example, and explain your situation? And maybe she already knows it.
B
She. Yes, she knows.
A
And say to her, is there a world for the next month where on, I don't know, Thursday night, you know, for the next month, could you be in charge of making sure he doesn't get too low? And I'm going to shut my alarm off and only wake up if you call me. And then get your mom to take the next day.
B
She has little, little children.
A
Yeah. I'm not asking to do it forever. I'm saying a couple of night over a week just so you could kind
B
of like, you ask her. She'll probably be listening to this.
A
I mean, I'm asking her right now, like, say your sister, your mom. And then, I don't know, like your father's like. Like, you know, I mean, like, pick three people in your life. Get one of the. Get the dads right? Like.
B
Yeah.
A
And get everybody to cover a day, a week for four weeks and just see if it can't just put you in a better place where you can find a way to sleep a little better.
B
Yeah.
A
You know what I mean? Like, just to Kind of break the cycle kind of thing.
B
I mean, I as. I would love that. I just, it's. I don't know. That's a realistic ask.
A
What about this? Here you go. What if you sent that kid off to diabetes camp?
B
I would love that. That generally is when he's with his dad, though, for the summer, and he doesn't give up time. So we have had this conversation before, so I will say when he is. Summer is my time to rest and recoup.
A
I was going to say, because when he's with. Do you shut your alarms off then?
B
I don't shut them off, but I don't wake up as often.
A
Okay.
B
I'm still waking up.
A
And that helps, though.
B
Yeah, it does, it does. It's a 12 week kind of mental break.
A
Okay.
B
For me, but I mean, there's still, you know, the other weeks of the year.
A
I tried to do the math, but it's later in the day.
B
Me too. I was like, is it 42?
A
I think it's 40. I think it's like 44.
B
Listen, I can sell houses. I can't wait.
A
How many days, how many months are in the week? 50. Is there 56 weeks in a year?
B
I think it's. Is it 56 or 52?
A
I think it's 52. So then you take.
B
Who knows?
A
It says 40.
B
It's too many. We'll say that.
A
Right?
B
But yeah, no, again, I really do. For as much as I have on my plate, I somehow. And again, I completely attribute that to Jesus for sure. Because otherwise there's no way that I could be doing all this and not drop dead.
A
How many dogs do you have?
B
Two.
A
Why? Can we get rid of them?
B
So, no, funny story. One of them was purchased to be a diabetic alert dog and he had to go through like a pre test and he failed. So now he's just a dog.
A
Shouldn't you do that before you buy it?
B
Well, listen, he's a sheepadoodle. And they're supposed to be like one of the better ones for that, but apparently I got the one who.
A
Your sheepadoodle is dumb. You have a dumb sheepadoodle.
B
I did, yeah. I'm like, someone lied here in this bloodline. This is not true sheepadoodle behavior.
A
Sheep a dummy is what you're saying.
B
Sheep a dummy. Yeah, absolutely. But they're great dogs. They really are. The kids love them. I would never get rid of them. And that really, truly wouldn't take anything off of my plate.
A
Really?
B
No. I'd have to get Rid of a kid. Which. Not doing that either.
A
But if you were going to. Which one. You already know which one. She knows for sure which one. And so. I didn't say you would. I didn't say you would. I said, you know. Which one comes to mind when I say that out loud?
B
None of them. I genuinely swear.
A
All right.
B
Could never get. I love my children. They are without. That's why I. I have friends who don't have kids and like, what do you do with your life? I don't know.
A
They probably go on vacation with all the extra money. They have sleep and sleep. They're probably having sex, going on vacation and buying cars. Don't you think?
B
Yeah, right.
A
Yeah.
B
I don't know. But.
A
Bastards.
B
I. I just, you know, I just. I just can't imagine. I truly, you know, don't get me wrong. It's. It's difficult. Any. Any child. Being a parent, especially in this world, is difficult. But we know whether they have any medical issue or not. But I can genuinely, 100% wholeheartedly say I would not want to live life without my kids.
A
Oh, that's sweet.
B
So that is. That is what I mean.
A
I think I feel the same. I'm sure I feel the same way. I would definitely get rid of the dogs, though. I spent way too much time with those dogs today already.
B
See, my dogs, they're so. They just. These are Sheba dummies, like I said. They just kind of chill and run around and bark at the air and stuff like that. So this is diabetic alert. Dog is not in either of their future, unfortunately. Oh, I have a funny story.
A
I'll take it.
B
Okay. So we disconnected our pump one day to. Good. I don't know why that is still a mystery. He never takes it off unless he's in the shower or in a swimming pool. And neither of those things were occurring. So I don't know what the hell he was doing. But he took it off. Comes to the realization that he doesn't have it, can't find it. Like. What do you mean? I don't know. It's gone. Like. Okay, so we try and retrace our steps. Well, my mother had picked him up at school that day because I had a showing appointment. She picked him up. She was home. She works remote half of the week and she works in an office the other half. So luckily it was one of those days where. And that's kind of how I have to schedule my life is around. Who can help when and where and, you know, do all the things. All that being said, they went and ran an errand directly after school, was the UPS store and didn't know where it was at. Well, he was. I can't remember now. This was like a few months ago, a month or two ago. I can't remember if he was higher or lower, but. But something had triggered in my brain to say, okay, this is where his blood sugar was at. So he would have had to have either have done a correction or had to have a snack or something at this time. So he had to have had it on him at this specific time, is what I'm saying, because if he wasn't getting his, you know, his background insulin, then he wouldn't have. It was low, Then he wouldn't have gone low. So we tried to narrow it down of where that could have been at that point. So it was about the time that they would have been at the UPS store. So my middle child had a basketball game this evening, and I immediately fly over to the school. We look around. We look around the school parking lot. I drive to the UPS store. I've got people looking. I have called the principal, I've called the janitors. I mean, his school is not massive, but it's fairly big. And it's three floors. And I've got everybody and their mother looking for this freaking insulin pump. Okay? It had snowed a few, like, a foot and a half, maybe a few days prior to this. So nobody's, like, looking outside because it's snow. You would have seen it. A black insulin pump in the snow. So I literally go to the basketball game an hour away from my middle child, come back, go pick up a friend, and he helped me look. We looked for two hours everywhere. Couldn't find a damn thing. So luckily, we have a friend here in town. I will say this, the community of people that the diabetic community has is amazing. That is the best thing. We're all in this club that none of us wanted to be in, but we're in it. And I'm so thankful that there is. You know, it's one of those weird spots. It sucks that there are so many people who deal with the same stuff that I do every single day. But it also is nice to not be alone, right? So there is a classmate of his who is on the Omnipod now, but she used to be on the T. Slim. So I. The school sends out a mass email with a picture of the insulin pump, and she's like, oh, my God, hi. You know, what can I do? So Hi, Kara. She listens to this. Thank you so much. You're an angel, and I will never be able to repay you. So she's like, listen, we have her daughter's old T. Slim. Let me bring it over. I somehow was able to finagle the people at Tandem to wipe off her daughter as the owner. So we use that because we were two days away from warranty expiration when this happened.
A
Where was the pump? Was it the UPS store?
B
No, no, no. It was in the. Okay, so sheep of dummies over here, one of them grabbed it, buried it in the damn snow in the backyard. We found it a week later.
A
But your dog took the insulin pump and buried it in the snow. That's the opposite of being a good diabetes alert dog.
B
Like, what the hell? And I. I don't even know how it survived because there was a full cartridge and it was gone.
A
It's an anti alert dog is what you have there.
B
Literally, it's like the reverse.
A
Well, sheep adult. This might be the episode title.
B
So there you go. There's my funny story. So I lit. I mean, his school, bless their hearts. Everyone and their mother was looking for days. Everybody came into the nurse's office. They had a reward for it because they thought somebody might have picked it up, thinking it was some sort of.
A
Yeah.
B
You know, game. Or instead it was just.
A
It was just a chew toy for your dog.
B
It was just the dog. So nobody. If. If you're gonna buy a sheep doodle, make sure it's not from. You know.
A
I'm not doing that. I've already made my mistake.
B
The craziest thing you've ever heard.
A
It. It is pretty funny.
B
Yeah, it was funny after the fact, not during.
A
And it still worked after all that.
B
No, no, it's done. Yeah. So he is still using said friends. Old pumpkin. Because we're trying to decide now if he wants to get on Omnipod Twist or the Moby or stay with T. Slim.
A
And T. Slim's the pumpy head. At first, yes. Tandem, what's wrong with you? Your pump can't withstand being buried in the snow for days.
B
I mean, come on. Yeah. Like, what if somebody lived in the Arctic or something? I don't know.
A
Do better.
B
Really? Come on, Tandem.
A
Oh, that's so ridiculous. My God. All right. Well, Sarah, you were delightful to speak to. I appreciate you taking the time to do this.
B
Of course. Thanks for having me.
A
I enjoyed your adhd.
B
Well, thank you. It is very evident, I'm sure, listening back to this probably.
A
So please. I Had a good time.
B
Okay. Well, me too. Good.
A
I do want to say that I. There was the one thing I looked at that I never brought up in the conversation because you brought up the chemo meds. And they're apparently in the last couple of years, they're having a lot of success with something called CAR t for lupus and stuff like that. It might be worth. Worth, like googling or doing a deep dive somewhere. I will for sure on more modern medications that do what that medication that you mentioned does. There was a pretty long list, so I don't know if it's. It would be worth your time or not.
B
Hey, I mean, anything is worth trying once at least. So.
A
Yeah. I mean, if you're struggling that much.
B
Yeah. I mean, again, and I say, you know, it probably sounds like I'm struggling, but, I mean, we're surviving. We're not thriving every. We're good.
A
Not thriving. Surviving. But no, I mean, I mean, like joint pain, muscle pain, like that kind of stuff sucks. You know what I mean?
B
It does suck. And it definitely makes, you know, all the. All the running I have to do difficult.
A
And I mean, you're in the Midwest. Have you tried heroin?
B
No. You know, Missouri has a few of the meth capitals of the world, but
A
maybe some men haven't.
B
Haven't reached that low point quite yet. And I hope that I never do.
A
No, I. I'm joking, of course. No, please. Hey, listen, let me just say something. It should be obvious. Please don't use meth.
B
Please. Nobody use meth or heroin.
A
Yeah, seriously, let's avoid both of them. How's that?
B
Yeah. So.
A
All right. So. Yeah, hold on one second for me. Okay. This was awesome. I appreciate your time.
B
Yeah. Thank you.
A
Yep. Hold on. Are you tired of getting a rat from your CGM adhesive? Give the Eversense 365 a try. Eversensecgm.com Juicebox beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So, I mean, that's better. Head now to tandomdiabetes.com juicebox and check out today's sponsor, Tandem Diabetes. I think you're going to find exactly what you're looking for at that link, including a way to sign up and get started with the Tandem Mobi system. This episode was sponsored by Touched by Type One. I want you to go find them on Facebook, Instagram and give them a follow. And then head to touchedbytype1.org where you're going to learn all about their programs and resources for people with type 1 diabetes. Okay, well here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribed in your podcast app. Go to YouTube and follow me. Or Instagram TikTok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group group as well as the public Facebook page. You don't want to miss please do you not know about the private group? You have to join the private group. As of this recording it has 74,000 members. They're active talking about diabetes. Whatever you need to know. There's a conversation happening in there right now and I'm there all the time. Tag me. I'll say hi. Check out my Algorithm Pumping series to help you make sense of automated insulin delivery systems like Omnipod, Five Loop, Medtronic 780G Twist, Tandem Control IQ and much more. Each episode will dive into the setup, features and real world usage tips that can transform your daily type 1 diabetes management. We cut through the jargon, share personal experiences and show you how these algorithms can simplify and streamline your care. If you're curious about automated insulin pumping, go find the Algorithm Pumping series in the juice box. Podcast easiest way juiceboxpodcast.com and go up into the menu. Click on series and it'll be right there. Have a podcast. Want it to sound fantastic? Wrongwayrecording.com.
Episode #1838: "Psychopath with Peanut Butter"
Host: Scott Benner
Guest: Sarah – Single mom, real estate/construction entrepreneur, T1D parent
Date: April 30, 2026
In this candid and wide-ranging episode, Scott welcomes Sarah—a dynamic single mom juggling three kids and two businesses, with her oldest child living with type 1 diabetes. The conversation moves from strategies for managing T1D and autoimmune challenges, to family history, parenting under stress, humorous parenting fails, and unique sleep-deprivation survival tactics. True to the Juicebox theme, Scott and Sarah reject fear and perfectionism, talking openly about how “bold with insulin” means embracing the messiness and unpredictability of life with T1D.
This episode is a relatable, warm, and sometimes hilarious reminder that living well with diabetes is about resourcefulness, resilience, and community—and that letting go, laughing, and leaning on others can be just as bold as any insulin dose.