#1843 Two Fancy Pill Boxes - Part 2

Summary

Juicebox Podcast: Type 1 Diabetes

Episode #1843 – Two Fancy Pill Boxes, Part 2 (May 6, 2026)
Host: Scott Benner
Guest: Suzanne (51 years living with Type 1 diabetes and recently diagnosed with Addison’s disease)

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Episode Overview

This episode, the second part of a two-part conversation, continues the engaging discussion between Scott and Suzanne about her life with Type 1 diabetes and her more recent journey with Addison’s disease. The episode examines Suzanne’s experiences living with multiple chronic illnesses, her evolving strategies for self-care, the role of friendship and community, and larger reflections on the diabetes social media landscape. The conversation is candid, insightful, and packed with both practical advice and personal anecdotes.

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Key Discussion Points & Insights

Navigating Addison’s Disease and Type 1 Diabetes

• New Challenges with Addison’s Disease
  • Suzanne describes facing new fears and logistical realities post-diagnosis. Unlike diabetes, Addison’s presents unpredictable medical emergencies, especially in the context of stressors like vomiting or trauma.

  “I've never been one to have my diabetes stop me from something. Addison's, I kind of feel like, is a whole nother game.” (Suzanne, 03:44)

• Sick Day and Emergency Protocols
  • The sick day protocol for Addison’s requires extra steroid dosing and, in emergencies like bone fractures or severe illness, an injectable steroid.

  “Normally your body would produce all of this cortisol to deal with the stress...I would not have that extra cortisol. So you have to take this emergency injection of liquid cortisone.” (Suzanne, 04:29)

• Feeling More Fearful of Addison’s than Diabetes
  • Suzanne is adjusting to a heightened sense of vulnerability, especially around events like car accidents where swift steroid administration could be lifesaving.

  “I would say I'm not fearful of the diabetes. I'm more fearful of the Addison's…it's all new…there are legitimate, quite frankly, legitimate reasons maybe not to be fearful of it.” (Suzanne, 06:51)

Access to Healthcare and Geography

• Both discuss the importance of access to quality healthcare and the trade-offs considered when contemplating moving to different regions for weather, taxes, and family.

  “The bottom line is, for us, because of me, is healthcare.” (Suzanne, 09:36)

Community and Social Support

• Connection with Jackie
  • Suzanne describes her deep friendship with Jackie, another local person with diabetes and her dogs’ sitter who once rushed her to the hospital.

  “Jackie's amazing. She also…stayed with me till, like, 1-something in the morning…Able now is sponsoring this episode.” (Suzanne, 13:15; Scott, 13:29)

• Isolation Despite Population
  • Despite living in a populous suburb, she notes the surprising lack of local Type 1 diabetes support groups:

  “There is such a lack of a diabetic community. It is shocking.” (Suzanne, 15:43)

Social Media, Advocacy, and Communication Fatigue

• Over-saturation of Online Diabetes Content
  • Scott and Suzanne critique the current state of diabetes social media, lamenting that organizations waste resources chasing internet trends rather than building meaningful, small-scale support.

  "I feel like the diabetes space online is starting to get oversaturated. That worries me because I think that ends up pushing people away when you have too much." (Scott, 18:01)

• Superficial vs. Deep Support

  “It would be much better to just start…a group in Connecticut for people to get together and talk once a month…those 30 people would really be helped by that.” (Scott, 19:48)

• Attention Fatigue in Health Communities
  • The parallel is drawn to trends in other online communities (like YouTube reptile channels) that rise and crash, warning diabetes advocates to “not burn this out.”

  “When everyone rushes in, you…saturate the market. And then…people get sick of it, they're gone, and you will never get them back.” (Scott, 27:37)

Practical Diabetes Management Challenges

• Pre-bolusing and Meal Management
  • Suzanne details her ongoing battle to consistently pre-bolus at dinner. The chaos of family meals and the complexity added by steroids from Addison’s challenge her control.

  “I really suck at pre bolusing at dinner time…it's hard for me only because I'm cooking and making dinner…” (Suzanne, 38:06)

• Fat and Protein Management
  • Figuring out post-meal glucose rises related to fat and protein remains a challenge even for this highly experienced individual.

  “It's the magic of fat and protein…I still find it confusing. Despite listening to the podcast, I still find it a little complicated.” (Suzanne, 40:17)

• Practical Solution Brainstorm
  • Scott suggests planning and calculating carbs, fat, and protein for common meals ahead of time.

  “What if you spent 15 minutes thinking about five meals that you know you're gonna have this week and do the carbs and the fat and the protein for them and then write them down on a piece of paper…” (Scott, 41:15)

Medical Devices & Tools

• The “Fancy Pill Boxes”
  • Suzanne indulges in new, custom pill organizers after her Addison’s diagnosis, combining utility with a sense of preparedness and even a touch of humor.

  “I have this really nice one…I spent way too much money on…but I was like, hey, I just got Addison's. Like, I'm getting all this stuff…” (Suzanne, 42:00)

Family Health History & Autoimmunity

• Autoimmune Disease in the Family
  • In addition to her own history, Suzanne’s family tree includes Type 1 diabetes, hypothyroidism, and rheumatoid arthritis.

  “My grandmother's sister was a type 1 diabetic…there was hypothyroidism and then rheumatoid arthritis on both sides of the family.” (Suzanne, 29:45)

• Interest in TrialNet
  • Suzanne’s daughter now wants to participate in the TrialNet screening after witnessing her mother’s struggles.

The Emotional Reality of Chronic Illness

• Acceptance and Adaptation
  • Suzanne speaks with both pride and humility about managing her diabetes and Addison’s, always seeking improvement but accepting imperfection.

  “It's not perfect, you know? Like, I am not a perfect diabetic right now at all. I can just keep working on it and trying…despite everything, I'm in a good…place.” (Suzanne, 37:34)

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Notable Quotes and Memorable Moments

• On Approaching New Therapies with Caution:

  “I’m a bit scared…of how my body will respond. I have not been in a crisis…since the first diagnosis.” (Suzanne, 02:19)

• On Explaining Addison’s in Daily Life:

  “I've got to have that emergency injection. And then I've got to explain to everybody…it's not like an EpiPen. You’ve got to mix it, take it. It's like old days of glucagon.” (Suzanne, 03:44)

• On Healthcare and Moving:

  “The bottom line is, for us, because of me, is healthcare.” (Suzanne, 09:36)

• On Small Community Impact:

  “Maybe 30 people would show up, but those 30 people would really be helped by that.” (Scott, 19:48)

• Reflection on Oversaturated Social Media:

  “The people looking, they don't care about the diabetes piece…They're clicking or scrolling because you're pretty or you're attractive…” (Scott, 24:36)

• On Family Mentality:

  “Brother’s normal. Girl’s an issue, but brother’s normal.” (Suzanne, 32:06)

• On Coping:

  “I'm just living it, and that's all I can do.” (Suzanne, 37:31)

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Timestamps for Key Segments

• [02:19] – Suzanne’s fear of medical crises with Addison’s and glucocorticoid dosing
• [03:44] – The realities of Addison’s for daily life and physical activities
• [06:51] – The comparative fear of Addison’s vs. Diabetes
• [09:36] – Navigating healthcare and family decisions about moving
• [15:43] – The importance of connection and lack of local diabetes community
• [18:01] – Scott’s critique of oversaturated diabetes social media
• [38:06] – Suzanne’s struggles with pre-bolusing and dinner glycemic control
• [40:17] – Discussion about fat, protein, and post-meal blood sugars
• [42:00] – The story behind the “Two Fancy Pill Boxes”
• [29:45] – Suzanne’s discovery of family history of autoimmune conditions
• [32:06] – On being a “medical orphan” and family health quirks
• [37:34] – Acceptance, pride, and the ongoing quest for better management

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Tone and Style

The episode is candid, witty, and layered with relatable banter—a balance of warmth, humor, and real-life vulnerability. Scott and Suzanne’s dynamic is conversational, open, and often lighthearted even when discussing serious challenges (e.g., car accidents, emergency injections, struggles with daily routines).

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Summary

Scott and Suzanne offer listeners not just practical tips for diabetes and Addison’s management, but a model for resilience, adaptation, and authenticity in chronic illness. The episode moves seamlessly from critical advice and first-hand experience to broader reflections on community-building and the pitfalls of performative social media advocacy. Whether discussing the nitty-gritty of pre-bolusing, the nuanced fears of multi-morbidity, or the joys and ironies of finding the “perfect” pill box, this episode feels both accessible and indispensable for anyone navigating chronic illness or supporting someone who does.

Transcript

[Scott]

Welcome back friends, to another episode of the Juice Box Podcast.

[Suzanne]

Hi, my name is Suzanne and I have been a type 1 diabetic for 51 years. I feel like I was diagnosed in the dark ages.

[Scott]

This is part two of a two part episode. Go look at the title. If you don't recognize it, you haven't heard part one yet. It's probably the episode right before this in your podcast player. The podcast contains so many different series and collections of information that it can be difficult to find them in your traditional podcast app. Sometimes. That's why they're also collected@juicebox podcast.com Go up to the top. There's a menu right there. Click on Series Defining Diabetes, Bold Beginnings, the Pro Tip Series Small Sips, Omnipod 5, Ask Scott and Jenny Mental Wellness, Fat and Protein Defining Thyroid After Dark Diabetes Variables, Grand Rounds, cold win, pregnancy, type 2 diabetes, GLP meds, the math Behind Diabetes, Diabetes Myths, and so much more. You have to go check it out. It's all there waiting for you and it's absolutely free. Juicebox podcast.com nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan. This episode is sponsored by ABLE now Tax Advantaged Savings Accounts for Eligible Individuals with Disabilities. If you or your child lives with diabetes, you may qualify for an ABLE account because of ongoing medical needs and many people in the diabetes community do. With ABLE now, you can save for future expenses without affecting eligibility for certain disability benefits such as Medicaid. Learn more and check your [e-mail] you spell that a b l e n o w.com today's episode is also sponsored by the Contour Next Gen Blood Glucose Meter. This is the meter that my daughter has on her person right now. It is incredibly accurate and waiting for you at contour next.com/juicebox. Why does that matter?

[Suzanne]

I don't know if it does. I don't know if it does it. I also am a bit scared. Full disclosure of how my body will respond. I have not been in a crisis, knock on wood here, since the first diagnosis. In that whole. Like I was in a crisis when I went into the hospital both times. Right? Both hospitals.

[Scott]

Yeah.

[Suzanne]

So I don't know how I respond. I worry about, although I know there are things you can do, but I worry about the gastro effects because, you know, with diarrhea and vomiting then it becomes a whole nother game with the Addison's and the steroids.

[Scott]

Mm. The. The most significant danger Glp medications commonly cause nausea, vomiting and diarrhea, especially when first starting or increasing the dose. For someone with Addison's, vomiting or severe diarrhea is dangerous because it can prevent the absorption of your daily oral steroids. If your body doesn't absorb these hormones, you could rapidly trigger a life threatening adrenal crisis. Oh, so you're worried. Oh, so you don't know how you're gonna, like, take to them? I would, yeah. Listen, I am not the right person to ask about this, but you love them. I have used them. Used them. Took it yesterday. I hugged the pen when I was done with it and before I threw it in the trash, I said thank you. I whispered in a tear. I mean, maybe you could get the endo to help you, like, like micro dose it at first to try.

[Suzanne]

I think it's a. Not now. I think I'm also still getting used to this. You know, I have. Look, I'm not one to try to have. I have never been one to have my diabetes stop me from something. Addison's, I kind of feel like, is a whole nother game. I've decided, like, I'm not going back to paddle because if I fall and break a bone, for example, I've got to have that emergency injection. And then I've got to explain to everybody, like, if I fall, I have to have this emergency injection. And let's not forget, it's not like an EpiPen. You've got to mix it, take it. It's like old days of glucagon.

[Scott]

You have to explain this better. There's like your sick, like sick day rules, right, For Addison's.

[Suzanne]

Yes.

[Scott]

Yeah.

[Suzanne]

Tell me sick day rules for Addison's. So if you break a bone, you fall, you do something like that, which is why I'm not going to play paddle. And I. I'm not going to go skiing. Like, my family just went skiing this couple of weekends ago. I'm not doing it. No, I went, but I didn't ski. I worked out in the gym and did other things. If something like that were to happen, you have to have this emergency injection because normally your body would produce all of this cortisol to deal with the stress of that injury to allow for you to heal and just deal with what's going on, I would not have that extra cortisol. So you have to take this emergency injection of liquid cortisone.

[Scott]

Okay.

[Suzanne]

To prevent a crisis also.

[Scott]

Then that changes your steroids, right?

[Suzanne]

So. Well, it changes the steroids.

[Scott]

Would you need more steroids if you had to take the emergency injection.

[Suzanne]

Yeah. So the cortisol is the. Is the steroid. Emergency injection. Same thing. Depending on, like. Like, if I'm in the hospital, say you would. I'd be on a higher dose of steroids, and then I'd have to taper down, like, after an injection, most likely. You know, there's so.

[Scott]

Sure. I'm like. So you take them orally, usually. But in a sick day crisis, it would be an injection.

[Suzanne]

No, no, in a sick day crisis, I would up my dose, but in an emergency situation, like a broken bone, you have to have that injection.

[Scott]

That is the injection. Okay.

[Suzanne]

Yeah. Or if it's a sick day and I cannot keep the pills down, I would have to do the emergency injection and then go to the er.

[Scott]

And has that happened yet?

[Suzanne]

Knock on wood.

[Scott]

Now you are coasting now as far as a person with all your issues could coast. And you're very scared to upset the apple cart.

[Suzanne]

Yeah.

[Scott]

Yeah. That makes a lot of sense to me, by the way.

[Suzanne]

I'm even like. So this is. I don't know. It's kind of silly, but, like, I think my biggest fear with the Addison's is, like, a car accident. Oh, right. Because if I'm in a car accident, I have to have that injection.

[Scott]

Are you still in the city?

[Suzanne]

No.

[Scott]

No. You're out. Okay.

[Suzanne]

Yeah. Connecticut suburbs. Yeah.

[Scott]

So people in Connecticut really can't drive, so that might be a problem.

[Suzanne]

Not drive.

[Scott]

Yeah.

[Suzanne]

They are horrible.

[Scott]

Well, it's because they lived in Manhattan their whole lives.

[Suzanne]

Yeah, yeah, yeah. Then they bought a car they make look good. Now it's so bad.

[Scott]

We had to go to Boston recently, and Arden goes, why are we not driving? And I was like, I do not want to drive through Connecticut and Massachusetts. Yeah, it's horrible.

[Suzanne]

Yeah, it's so. You know, in many ways, it's. I would say I'm not fearful of the diabetes. I'm more fearful of the Addison's. And I don't know if that's because it's all new or. I mean, I think there are legitimate, quite frankly, legitimate reasons maybe not to be fearful of it. Yeah.

[Scott]

Also, your doctor knows you and no one else, so, like, you will be doing a little bit of an experiment together. Also, let me just say to the people of Massachusetts, I don't think you're Massholes. I love you, and thank you for listening. Please don't unsettle.

[Suzanne]

I agree.

[Scott]

Yes.

[Suzanne]

We have great friends from Massachusetts. I agree. I agree.

[Scott]

Oh, it's just. It's just so cold. There, other than that, it's fine.

[Suzanne]

Anyway, snow here today.

[Scott]

You know What? It was 82 degrees yesterday. And then my. And Arden comes home and chooses. Did you hear it might snow today? And I went, why are we not moving? Why will no one listen to me when I tell you to move south? I'm. Can I tell you something? I am. I just said yes to doing a one day speaking event in Atlanta for Touch by Type one in April. And I would normally just jump on the plane. And because I live, I mean, I live in central Jersey, I could actually, despite the news that came out of Trenton the other day, I could jump on one of those quick Trenton flights to go right to Atlanta. Right. And drive 15 minutes from my house, get on a plane, land in Atlanta, come home, 20 bucks to park, be home 15 minutes after the plane lands. Like so. So I'm. Maybe I'll do that. But then I thought maybe I'll drive. And I still sound crazy at first because maybe I'll take a couple days on the way home and go through some of the parts of the south that I keep trying to tell my wife we should move to for weather and tax purposes. Maybe I'm going to do that to see if it's just something I'm saying out loud that I don't mean. Like, do you know what I mean? Like, I just, I want to. I want to.

[Suzanne]

What parts of the south would you want to drive through? Because I grew up in Southern Virginia.

[Scott]

I've been looking at houses east of like Nashville. Yeah. Because of the Tennessee.

[Suzanne]

That's not on your way to Atlanta, by the way.

[Scott]

Well, no, I get. Leave Atlanta. I could drive south about three and a half hours. Or north. North and end up in Nashville.

[Suzanne]

Yeah.

[Scott]

And then go. Maybe go home through like the. Maybe I'll do the mountain bike instead of going all the way back to 95. Maybe I'll go up through, you know, like through the other pathway up north. But my point is, is that I don't know if, you know, there's no income tax in Tennessee.

[Suzanne]

I did not know that.

[Scott]

Yeah. But now you know, and you're thinking, where? Scott, I'll meet you, we'll take a

[Suzanne]

look around, tell my husband. He'll be there.

[Scott]

She's never gonna let me move. She hasn't let me do one thing I wanted to do since I met her. So I don't know why I think this is gonna work out.

[Suzanne]

Yeah, yeah. But, but can you go? Yeah, yeah.

[Scott]

Maybe a condo.

[Suzanne]

Yeah.

[Scott]

Why do we both have to Go. We've been married 30 years.

[Suzanne]

Right. We talk about this stuff often, too. And, you know, the bottom line is, for us, because of me, is healthcare.

[Scott]

You want to stay close to healthcare. I know. It is one of the. It is one of the thoughts. All the Vanderbilts down there, they must know what they're doing. Right.

[Suzanne]

They have to know what they're doing. Yeah. So, yeah. You know, I feel very fortunate to have the doctors that I have, because it's not like this everywhere.

[Scott]

No, no. For sure. You could be. I. Listen, I talked to plenty of people who never get answers about anything. And. And for the struggle you're having, who knows how much less it is because of, you know, of the health care you have access to.

[Suzanne]

Absolutely. Absolutely.

[Scott]

No, I. I take your point. I. I really do. I. The. The problem here is, is that I'm not wealthy because I would just live there part, you know, enough days for tax reasons and then come back here for other stuff. But.

[Suzanne]

Right.

[Scott]

I really don't want. I do hate the cold. I want to say that I'm very upset by the cold, and I just. The. You know, the last two days, walking outside was such a joy. The last two days.

[Suzanne]

So nice.

[Scott]

Yeah.

[Suzanne]

So while the piles of snow are

[Scott]

melting, are there not other people who enjoy that more frequently, is what I'm saying. And couldn't I be one of them, please?

[Suzanne]

Right. Right.

[Scott]

Kelly's gonna say no. She's gonna say, the kids are here. We don't know what Arden's doing yet. We can't move away.

[Suzanne]

Yeah.

[Scott]

I'll be like, just make them. They don't have money. Like, we'll just force them to come with us.

[Suzanne]

Yeah, yeah. They can follow you.

[Scott]

They have no choices is what I'm saying. We could just.

[Suzanne]

Right. They're still relying on you.

[Scott]

We could just strong arm them. I mean, it wouldn't be that big of a deal. They'd get over it eventually.

[Suzanne]

Yeah.

[Scott]

I don't know.

[Suzanne]

And you have the beauty of you can work from wherever you are.

[Scott]

It doesn't matter where I'm at. As long as the Internet's good, I'm rock solid. Yeah.

[Suzanne]

Yeah, yeah. Yeah.

[Scott]

She seems to think her biz, her job would like her to be at work. And I'm like, can't we. I'm sure we could work it out.

[Suzanne]

Yeah. Yeah.

[Scott]

So I.

[Suzanne]

Flexible.

[Scott]

By the way, I'm not getting enough credit for this episode. What no one knows but me is that I. I think I've said this once. I'll say it one More time. Just so it kind of covers. My original chameleon died recently, like, a few months ago. Thank you. She was lovely, and she. She lived a reasonable time and did okay, but she left me with a bunch of space, and I did replace her. Not replace her, but I got something different. But I. I didn't get a chameleon this time. I got a tree monitor, and she is running around in there like a cracker.

[Suzanne]

Did you say a tree monitor?

[Scott]

Yeah, it's a yellow tree monitor.

[Suzanne]

I'm gonna Google this.

[Scott]

Oh, geez. You know what? Okay, go ahead.

[Suzanne]

I wish I had a camera to see them.

[Scott]

Yellow tree monitor. Google that. You're gonna get an image. It's either gonna horrify you or delight you. It depends on your. On how you feel.

[Suzanne]

Oh, kind of cute. Quince monitor.

[Scott]

She's like, no, not quiz.

[Suzanne]

How did it come up? Quint's monitor.

[Scott]

Those are big. I. That I couldn't do. This one's smaller.

[Suzanne]

Okay.

[Scott]

All right. But anyway, she has what they call the poop zoomies, so she's gone to the bathroom. So she's just thrilled. I. Most people know what. I'm probably gonna have this happen.

[Suzanne]

My dogs. Yeah. Yeah.

[Scott]

And she is just like, diving around and taking laps and running up and down and flopping on the ground and then running up the wall like she's just all over. She's like a crackhead right now.

[Suzanne]

That's so cute.

[Scott]

So anyway, she. She's. It's been in the corner of my. I'm trying not to look so that I can keep talking to you.

[Suzanne]

I had to drug. Drug my dogs for this today.

[Scott]

You had to drug your. You know what?

[Suzanne]

I. I was literally thinking about drugging them, but I gave them some CBD treats and I shot them in the basement.

[Scott]

You know what? I've been wondering the whole time you're talking.

[Suzanne]

Yeah.

[Scott]

Did Jackie get a bonus?

[Suzanne]

Jackie's my light. I call him a lifesaver.

[Scott]

I mean, honestly, like, the dog sitter took you to the hospital.

[Suzanne]

Yeah. Look, Jackie's amazing. She also. Scott stayed with me till, like, 1. Something in the morning, and I was like, jackie, you gotta go home. Well, and home was to my house

[Scott]

at that point in time. Jackie, listen, you gotta go take care of the dogs. As I told you earlier, Able now is sponsoring this episode. Able now, of course, tax advantaged Able accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify for an ABLE account because of ongoing medical needs. Many people in the diabetes community do with ablenow, you can save for future expenses without affecting eligibility for certain disability benefits such as Medicaid. And thanks to updates to federal law, Able accounts are now available to more people than ever before. That means more individuals and families can use ablenow to save and invest funds in an ablenow account can be used for a wide range of everyday needs, including education, transportation, healthcare, assistive technology, and more. There's no enrollment fee, and you can open an ablenow account with a small initial contribution and build from there. Learn more and check your [e-mail] that's ablenow.com a b l e n o w.com contournext.com juicebox that's the link you'll use to find out more about the Contour Next Gen Blood glucose meter. When you get there, there's a little bit at the top you can click right on. Blood glucose monitoring. I'll do it with you. Go to meters. Click on any of the meters. I'll click on the Next gen and you're going to get more information. It's easy to use and highly accurate. Smart Light provides a simple understanding of your blood glucose levels. And of course, with Second Chance sampling technology, you can save money with fewer wasted test strips. As if all that wasn't enough, the Contour Next Gen also has a compatible app for an easy way to share and see your blood glucose results. Contour next.com juicebox and if you scroll down at that link, you're going to see things like a Buy now button. You could register your meter after you purchase it or what is this? Download a coupon? Oh, receive a free Contour Next Gen Blood glucose meter. Do tell. Contour next.com juicebox Head over there. Now get the same accurate and reliable meter that we use.

[Suzanne]

Jackie's amazing. I love her. And you know, we have started this great friendship because of our diabetes. It's tied us together and obviously the love of our dogs. My dogs. But I live in this great area and yet there is such a lack of of a diabetic community. It is shocking. And so I feel like Jackie and I have this great bond with the diabetes and the fact that I call it my lifesaver now. Just the fact that we can talk to each other about things that are working, things that are not working, and introduce each other to new things. Like I told her about the glow glucose gummies.

[Scott]

Oh those are good.

[Suzanne]

Or like, I mean those are great. And I even gave her some of my G6 transmitters that I don't need anymore. You know I'm like, here, take these.

[Scott]

You know, I turned down a speaking engagement in your area recently because it just wasn't deep enough. Like, the.

[Suzanne]

I don't get it.

[Scott]

The topic they wanted was so surface. I was like, I'm not driving all the way up there.

[Suzanne]

Who was gonna do it? Who was gonna do.

[Scott]

I don't want to say, but, like, I don't want to. I don't want to badmouth anybody. But I got. I mean, they invited me, but then the topic they wanted was just so. It felt surfacy. So I. I pushed and pushed back. I. I offered back. I said, why don't you let me do something more like this? And I think the person calling me wanted to, but I don't think it worked out with their scheduling or how much time they had in their space and stuff like that. So maybe they'll try again next year, I'm sure.

[Suzanne]

So, like. Like, I don't get it. Like, this is. This is a suburb of New York City. Right. I'm in Connecticut. Right. Suburb of New York City. And there have to be a ton of other diabetics.

[Scott]

Yeah.

[Suzanne]

And there is no. That. I have found. Like, I've tried to Google this. There is no support group here. I just. To me, it makes no sense.

[Scott]

Yeah, Well, I mean, people don't. What I've learned doing what I do is that if there's not an appetite for something, then doing it is. It's expensive, and. And it ends up feeling like a waste of time.

[Suzanne]

Yeah.

[Scott]

I just closed down a social media thing I was doing that I think is fantastic.

[Suzanne]

Circle.

[Scott]

Yeah, I think it's absolutely fantastic. It just didn't catch on with people. So I'm like, okay, fair enough. Like, I'm not going to beat my head against this wall. Like, I'll close it up, I'll save the money, and I'll put the effort somewhere else, you know? But everything. Everything doesn't always work.

[Suzanne]

No, but Facebook works for.

[Scott]

It really does.

[Suzanne]

I think it's great.

[Scott]

Yeah, no, it's awesome. It's funny. I was looking today. I started getting myself worked up this morning, and I realized if I was a different kind of. I can't believe I'm going to say content creator, but if I was a different kind of content creator, I would definitely rant and rave about this. I feel like the diabetes space online is starting to get oversaturated. That worries me because I think that ends up pushing people away when you have too much. When there's too much. I think it Becomes noisy, and then people just kind of run. I'm watching big organizations put up their social media, like, stuff. Stuff I like. You know, not only do I agree with, but, like, I'm supportive of, like, this one thing I'm thinking of. I would never out them, but, like, if this really well conceived piece of social media they put up, it's got two likes in. After seven days, no one sees this. And there's another thing. They couldn't possibly have better production value in these videos they're making. And 1400 views on Instagram, which means, like, five people might have looked at it, you know what I mean? And it's just, there's an oversaturation. Like, everybody, I think you're all doing the wrong thing, but God bless you, you're gonna do it, I know you are. But, like, they're chasing social media trends but trying to adapt it to diabetes. I don't think anybody cares. It doesn't touch me. I live in a bubble as far as that stuff goes. Like the way the podcast operates. But I feel bad because there's so much desire to do something, and I just feel like they're. They're putting all that effort into the, like, it would be much better to just start a, Like a, Like a group in Connecticut for people to get together and talk once a month. It would be much less expensive. It wouldn't look exciting because, you know, maybe 30 people would show up, but those 30 people would really be helped by that.

[Suzanne]

Yeah.

[Scott]

And, you know, I don't know, like, I'm. I sound like an old man. It's like saying, get off your. I want you off my lawn now. You're making the same mistake that the blogging world made like, 15 years ago. They're over saturating it. They're going to kill it.

[Suzanne]

And they spent money to figure that out.

[Scott]

Oh, a lot. I mean, there's. Don't get me wrong, some of it works. You have to boost it. You have to, like, it's got to be paid. Stuff like, stuff like that. Like, just generically, like, nothing works anymore. Like, you know what I mean? Like, I don't even think of my social media. Social media, I think of it as a way to just connect with people who listen to me, who are looking to, like, interact on those. Like, I'm not trying to grow on Instagram or something like that. I couldn't maybe possibly care less. I don't know. Like, there's just so much effort and money being put into this stuff, and I think it's because they're all afraid not to be doing it. Like, they. It's like, it's like fomo. Like, they really feel like, well, what if we. I think they should all just stop. Yeah, I don't think. I don't think it's doing any.

[Suzanne]

Somewhere else.

[Scott]

Yeah, I don't think it's doing anything. It looks like something. It's great to go on LinkedIn and pat each other on the back all the time, say, look at all the stuff we're doing. I'm like, yeah, you guys are the only ones that say it, but God bless you, it's shiny. It looks great.

[Suzanne]

Now I'm wondering what your. I'm wondering.

[Scott]

I'd be happy to tell you once we're not recording, but I just.

[Suzanne]

I'm not gonna across my feeds.

[Scott]

I don't want. I don't want people to, like, I'm. Listen, they should know. That's what they want to do. They should do it. I just think if you were. If you consulted with me and said, what should I do? I would say I would definitely not spend all that money on making that fancy video that four people looked at.

[Suzanne]

Right.

[Scott]

You know, so. And by the way, I'm gonna guess you're two of them.

[Suzanne]

So if not four.

[Scott]

So Covid outed everybody. Right?

[Suzanne]

Right.

[Scott]

Because everyone tried to pivot digital during COVID And like, I have said this before, so I'll say it again. Like, I knew what was going to happen back when the JDRF tried to go live on Facebook. And like, 11 people were watching, and I. And I was one of them. And I was just going, oh, my God, there's only 11 people watching this. So, like, I wasn't watching it for the content. I was watching it because it's seemed like a. It seemed like a car wreck to me. And then. Then suddenly all these institutions that would, like, they. They looked big online because they have so many followers. Like, you don't realize they're historical followers. You know what I mean? Like, oh, we have. I have 100,000 people follow me. Like, no, you don't. You know what I mean? Like, you've collected 100,000 people over the last 15 years following you.

[Suzanne]

They're not following you.

[Scott]

You're posted 20 likes. There's. There's 20 people following you.

[Suzanne]

Yeah. Yeah.

[Scott]

Like, that's why I'm. I'm super proud of the, of our Facebook group because it does, like, clockwork between 90s. The low number up to 160 is the high number daily New Posts.

[Suzanne]

That's amazing.

[Scott]

Yeah. And then likes. A combined collection of likes, comments, hearts. Like that between 8 and 9,000 a day.

[Suzanne]

I'm so bad. I never, I, I, I skipped the likes and the hearts and all that.

[Scott]

Well, even put, put that into context.

[Suzanne]

Yeah.

[Scott]

Right. Like most people don't like heart and comment. And yet, and it's not that I

[Suzanne]

dislike it, I just don't remember to like it.

[Scott]

Well, you, you don't need like I'm saying, like, but they'll look at all that happens, like 8,000 a day is you're a normal person. Like, you don't know about this, but trust me, I get on a phone call with the right person, they, they're like, oh my God, how do you do this? I just let people talk and treat them like adults. I was like, and, and I don't, I don't push crappy social media, like, trends at them and tell them to be upset about the eyelet cell problem. And like, I just let them like, stop, stop, like, just stop using social media around diabetes. Like, social media.

[Suzanne]

Yeah.

[Scott]

The only thing that works is outrage. I almost said something I don't want to say here. Skin and outrage is the only thing that works. And you're chasing that. Some of you, it's just, I mean, it's just I am not a big fan of soliciting, you know, people in bikinis to show you their devices and, But I know that's the only thing that works. Go ahead and look at any company's social media. The ones where you see more skin get better likes.

[Suzanne]

So interesting.

[Scott]

Yeah. Like, and so sad statement. Yeah. And, and it just, it's what it is. Right. Or you, you know, the influencers around diabetes who are more popular are generally female, they're generally younger and they burn out, like, incredibly quickly. Like, so whoever.

[Suzanne]

Weird concept to me. Like, it influences with the diabetes.

[Scott]

Yeah. I mean, I don't have a problem with it. I'm just saying, like, what I'm telling you is that the people looking, they don't care about the diabetes piece.

[Suzanne]

Yeah.

[Scott]

They found you because you have diabetes. They're clicking or scrolling because you're pretty or you're attractive or you're handsome or whatever you are. Like, you know what I mean? That's it. It's a real, I don't know. Arden and I just did some social media for Omnipod. It's going to be out pretty soon and I'm wondering if anybody will even look at it because it's just me talking or Arden. Arden's doing pod fill examples, like how to fill a pod and. But I don't think anybody will care.

[Suzanne]

I think people will.

[Scott]

Well, maybe. Well, I know. Idea. But, like, my point is, is that, like, Arden's dressed in filling a pot, so I'm not. Not sure how that's gonna go. Yeah, no, I was. I was happy about it. I don't know where any of this goes. So it's still like, it's cure outrage, skin, and then strife, strife.

[Suzanne]

See, I just think I'm too old for all that other stuff. Like, I would really be interested to see how you fill the cartridge.

[Scott]

Yeah, no, right. But once.

[Suzanne]

I have no idea.

[Scott]

But that would. But here's the point about it being social media and, like, all this money that goes into it. You'd be interested in it once. You'd look and go, oh, wow, look at that. Watch it for 60 seconds. And you'd never think about it again. And you certainly wouldn't head back to see if they were doing it again next week.

[Suzanne]

I'd forget to like it also.

[Scott]

Yeah, you'd forget to like it. And that would make those people so sad who worked so hard on it.

[Suzanne]

Right.

[Scott]

I mean, if you stop and look at the things that attract people over and over again, they. Eventually it burns out. And I'm just saying, I'm shooting a flare up in the air, and I'm telling you all, don't burn this out, because you'll lose all these people. They'll be gone.

[Suzanne]

Yeah.

[Scott]

And I could use any number of, you know, other. I don't know. Here, I'll do this one. During COVID people started keeping. This is going to sound crazy because this is not when I started doing it. But, like, during COVID people started keeping reptiles much more than they used to. It was a thing you could do in your home. They could be shipped to you. You could bring, like, you know, the cage could be shipped to you, the animal could be shipped to you. And reptile YouTubers blew up. People YouTubing about their bearded dragon or something like that. These people were doing half a million views on a YouTube.

[Suzanne]

Wow.

[Scott]

They. They were like, oh, my God, this is a job people, they were quitting their jobs, like, you know, doing this whole thing. It's all gone now. Like, it's just all. You burned everyone out. Like, you showed them too many goddamn reptile videos. And they went. They were like, uncle, I'm done. I don't care anymore. Leave me alone. And now there's, you know, one or two Remain behind. If you're listening right now, you know, like, there's a. There's a channel called Snake Discovery. Like, people like that one. It. It held up. There was a guy doing these big videos that were super power, like, popular forever. He's hundreds of thousands of likes or views on everyone. Now he does more like 40, 50,000 views.

[Suzanne]

Oh, wow.

[Scott]

And do I blame people for seeing success and wanting to be a part of it? I don't. I think that's the natural way things work. But when everyone rushes in, you. You saturate the market. And then once you saturate it, then you make people sick of it. And then when they get sick of it, they're gone, and you will never get them back. And only a couple people will remain on top. And that's happening in diabetes right now. I think it's just too bad.

[Suzanne]

Yeah, it's too bad.

[Scott]

So anyway, I watched it happen with blogging. They oversaturated it and it collapsed. I pivoted out of blogging fast enough to do this. I don't seem to be getting any. I don't want to say this the wrong way. I think there are people doing cool stuff. I don't dislike them at all, but they're not competing with me on downloads is probably the nicest way to say it. I do think I'm in a bubble, but eventually this bubble will burst, too. It's just not going to burst because so many people got into it. It's going to burst because I screw it up or I run out of things to say or whatever happens.

[Suzanne]

I think you feel a huge need, you know, think about me here in this, you know, highly populated area. There is no community.

[Scott]

No, no. And you get to tell your story today about stuff that, like, I guarantee you that countless people listen today and went, oh, God, do I have Addison's? That all sounds very familiar. You know what I mean? But it's going to happen. Like, that's how people find out about stuff, you know?

[Suzanne]

But people should be aware, you know, Like I was. I mean, I think that's part of the reason why I wanted to come on here, you know, I had no clue about Addison's other than the fact that JFK had. Had it, you know?

[Scott]

Did you really?

[Suzanne]

Yeah.

[Scott]

I didn't know that.

[Suzanne]

Yeah. Yeah.

[Scott]

Okay.

[Suzanne]

And that was, like, one of my attitudes in the hospital. I was like, well, if he can handle the Cuban Missile crisis, I think I can handle this.

[Scott]

I can get coffee and take my dogs for a walk for sure.

[Suzanne]

Exactly. Exactly. Right. Well, yeah.

[Scott]

Yeah. Well, I really. I want to make sure we didn't, like. I know I chatted too much at the end there, but. Susan, did we. Did we missed anything, or did you get everything out you were hoping to say?

[Suzanne]

No, I was gonna say. It's funny, you always ask about autoimmune history.

[Scott]

Oh, I didn't do that. Hey, Suzanne, is there any other autoimmune in your family? Like, I don't know, like, brothers, sisters, sisters, uncles, all the way down the line?

[Suzanne]

Funny you should ask. Ask that, Scott. So my grandmother's sister was a type 1 diabetic.

[Scott]

Okay.

[Suzanne]

And that's all that I thought there was in our family. And then right after the Addison's diagnosis, I was trying to find, like, paperwork from. I knew I had a few pieces of paperwork from when I was younger, you know, that my parents somehow randomly given me a few of these pieces of paper about my care. And by the way, we had done genetic counseling when we were married to see about having kids. And I didn't have any of this information except for my grandmother's sister as a type 1 diabetic. But on my dad's side, there was hypothyroidism and then rheumatoid arthritis on both sides of the family.

[Scott]

Oh.

[Suzanne]

And I had no clue.

[Scott]

You don't have ra, though?

[Suzanne]

No, not yet.

[Scott]

You probably would know by now, I would imagine.

[Suzanne]

I would probably know by now. Yeah.

[Scott]

Well, yeah.

[Suzanne]

Funny how these things come to light later on.

[Scott]

How about your kids? Are they showing signs of anything?

[Suzanne]

Knock on wood. They're fine. My daughter would like to do the trial net study. I just need her to be home long enough to get the blood work done. My son has no interest. He's younger. He's still in high school. He has no interest in doing that. But I would like for her to do that.

[Scott]

She came to you or you went to her?

[Suzanne]

You know, when I was doing one of these studies at the hospital that I go to in the city, they were actually offering it, and she was definitely younger then, and she didn't want to do it. And then when the whole Addison's thing came up, I brought it up again, and she's like, oh, yeah, I totally want to do that. So. And of course, my son is like, no. Okay. But I think she will do it and find out. Yeah. I think it's important to know.

[Scott]

Listen, if it's the thing she wants to know, she should definitely do it. It's easy enough to accomplish.

[Suzanne]

You know, I consider. I have A brother also, and he's totally normal. I kind of consider us medical orphans now. I wish there are, you know, so many questions I wish I had asked, but.

[Scott]

Yeah. Oh, now there's nobody to ask. Yeah.

[Suzanne]

Now there's nobody asking. Yeah. Yeah.

[Scott]

Your. Your brother's totally normal. Is that what you said?

[Suzanne]

Yep. Totally normal. In fact, that was almost a direct quote from one of these, like, forms from, like. I think it was, like, Duke University or somewhere like that. You know, brother's normal.

[Scott]

Brother's normal.

[Suzanne]

Brother's normal.

[Scott]

Girl seems to be an issue.

[Suzanne]

Girl's an issue, but brother's normal.

[Scott]

Hey, through all this, I'm sorry to ask you this, but, like, through your life, like, menstruation, all that, never a problem.

[Suzanne]

Yeah. That's an interesting question. I did have heavy periods. I did have happy periods. My mom had endometriosis. So I. You know, I don't know if there's a connection there, but I did have some heavy periods. Yeah. Yeah. And then I would try, you know, certain kinds of birth control will help with that also.

[Scott]

Yeah, that's what they. I. A lot of girls fight against that now. They don't want to.

[Suzanne]

Yes.

[Scott]

Yeah.

[Suzanne]

Yes.

[Scott]

Arden's been offered, and she's like, I. I just didn't like how it felt, and I don't want to do it.

[Suzanne]

So my daughter fights with that. Yeah. What makes. What made you ask that? I'm curious.

[Scott]

I just think that a lot of women in and around autoimmune seem to have heavy periods and trouble menstruating. Like, I don't know enough to say it out loud, but just a lot of my job is weird, and I hear people, you know, who are in a bucket, basically, and they say a lot of things that are similar. That's the same way I feel about, like, anxiety. And people with autoimmune seems to be just, like, rampant. I went through that phase for a couple of years where everybody had, like, a bipolar uncle. I was like, this is like, you know, this is like, how many people are going to say this to me? You know what I mean?

[Suzanne]

There's a lot of correlations with diabetes that are not considered complications.

[Scott]

I just think it's autoimmune in general and inflammation and. Inflammation and stuff like that.

[Suzanne]

Right. Inflammation. Like, they consider the trigger fingers to. To not be a complication, but more of a correlation. I was once told my doctor, is

[Scott]

that called Dupinger's something? Yeah.

[Suzanne]

There's so many different things.

[Scott]

Yeah.

[Suzanne]

I thought Dupatrine's contracture was something else. But maybe that is a trigger finger. I know I've had trigger releases. I don't know which fingers anymore. It's hard to tell. The carpal tunnel on both hands. And then I've had also something called Decker veins.

[Scott]

What's that?

[Suzanne]

And I might be mispronouncing that. So that was when I had my daughter literally picking her up. That. That action of holding a baby and picking her up was so painful. And gone to see an ortho who was like, oh, you'll be fine, you know, once your daughter starts walking and she was a baby, because you won't

[Scott]

have to pick her up anymore.

[Suzanne]

Okay. Right. Like, I'm like, I'm picking up this child for a very long time. And I had seen someone. This was a local orthopedist. And I went back to my doctor in the city who had done my surgeries, and he was like, oh, you've got. I think it's called Dervanes. But to Corvian. Something like that. Cannot pronounce it as I said. And he's like, nope, this is what you have. And I was like, can you fix it? He's like, well, it's another surgery very similar to carpal tunnel. And I was like, okay, you need to do both hands, like, at once. Like, take care of both hands.

[Scott]

Okay. Did they do that? They usually won't do that.

[Suzanne]

They usually won't do that. And I convinced them to do it.

[Scott]

I just. I have to tell you, the world confuses the hell out of me sometimes. Hey, it hurts when I pick my kid up. Don't worry, she'll start walking. What kind of an answer?

[Suzanne]

What a jerk.

[Scott]

What kind of an answer is that?

[Suzanne]

What a jerk. And, oh, I tell everyone locally, like, don't go see him. Like, horrible, horrible bedside manner. What a jerk. And I ended up having, like, bilateral surgery to fix it, right? And I did it. I insisted upon it. Bilateral. Like, to do it all at once. Because I could get help from my parents to come up for, like, six weeks to help me, because I wasn't gonna be able to lift up my child and a husband commuting to the city. So we were helpless. I couldn't have someone come up for 12 weeks for two different surgeries.

[Scott]

I couldn't even talk my dentist into doing a cavity on two sides of my mouth the same time.

[Suzanne]

Oh.

[Scott]

He's like, you're going to bite your tongue off. I'm like, what if I promise not to?

[Suzanne]

Yeah, I don't know if I do That I have to be honest. That would wig me out.

[Scott]

I'd be like, look, I'll just. Can I just put something in my mouth for an hour or two and after I leave to make sure I don't bite my tongue off? Like, I'll. Like, I don't.

[Suzanne]

Yeah. What would you. I mean. Yeah, yeah.

[Scott]

Give me a tongue depressor. Yeah. Like, what? He's like, now you might bite your tongue off. Like, my God. Like, don't you think if I bit my tongue off, I deserve it? Do you know what I mean? Like, you don't think that's the thing I could focus on for 90 minutes? Hey, Scott, don't bite your tongue off.

[Suzanne]

Right.

[Scott]

What if I put it on a sticky and held it in my hand and so. But then I got to go back twice. I think he's just looking for money. Well, yeah, he's getting ready to retire.

[Suzanne]

Yeah.

[Scott]

You know, probably make a little pile here at the end. I know what's going on.

[Suzanne]

Yeah. Yeah.

[Scott]

I'm just kidding. I'm sure it's. It sounds pretty unsafe to numb both sides of a purse, but. But I've tried, like, to get them to do it, and they've been like, no. So that's why I was interested. They would do both your hands because, I mean, how did you wipe? Like, there. Wasn't there a lot going on there?

[Suzanne]

I remember my mom had to help me. I mean, I was like an infant again. Yeah. Yeah.

[Scott]

To lay on your back and pull your legs up.

[Suzanne]

I mean, I think, like, to a certain extent of, you know, I could. Like, it wasn't that long till I could do that, but I couldn't. Wiping is different from picking up a child, Scott. You know? But, yeah. Yeah.

[Scott]

That's interesting.

[Suzanne]

Kind of funny.

[Scott]

Your life is interesting. I appreciate you sharing it with me. Seriously. Yeah, no, this was. This was really fun. I mean, I'm just living it.

[Suzanne]

I'm just living it, and that's all I can do. Right.

[Scott]

I mean, there doesn't seem to be a lot of other options, as far as I can tell. Yeah.

[Suzanne]

No, we got it. You got to take what you're given, and. And I think you have to make the. Make the most of it, you know, and make the best of it. It's not perfect, you know? Like, I am not a perfect diabetic right now at all. I can just keep working on it and trying.

[Scott]

Yeah.

[Suzanne]

I'm still proud of where my A1C is. I think, despite everything, I'm in a good. I'm actually in a very good place. I just think I could do better, that's all.

[Scott]

Well, what would. I mean, give me. Give me two minutes. What. What would that look like? What would you have to do?

[Suzanne]

I really suck at pre bolusing at dinner time.

[Scott]

Okay.

[Suzanne]

That's hard for me only because I'm cooking and making dinner and, you know, we don't try to eat healthy and, you know, make dinner and things like that. So it's always. It's a little bit of a mess. Right? Like, trying to cook dinner. Dinner on the T. Like, last night, I was trying to be so good in pre bolus, and I'm on the tandem pump, and I don't know what I did. I didn't click or press the button to go ahead and make it start the bolus. And I sit down to dinner, and I'm like, are you kidding me? Yeah, stuff like that will sometimes happen. Or more often than not, I find dinner time, for some reason, is a mess. Not just because of that, but also just with my insulin absorption and maybe the steroids. I just struggle. I go higher later at dinner. So I'm trying to do a lot of prolonged bolusing or stretch that bolus out. I'm pretty good in the morning.

[Scott]

Maybe a magnet on your refrigerator that says pre bolus. Yeah, I gave all mine away, or I would give you one.

[Suzanne]

I need something.

[Scott]

Yeah, I don't know how. It's one of those things.

[Suzanne]

It's hard.

[Scott]

Yeah. You don't have somebody helping. Like last night. I was cooking last night, and I texted Arden Bolas. Now, she was like, eight feet from me, but she was. She was sitting at the table in

[Suzanne]

the kitchen to respond better to a text.

[Scott]

She was studying for a French homework. And so, like, in my mind, I was like, it's ridiculous. Now that I think back on it, Like, I didn't want to bother her, but also she needed a bolus. And so, like, I thought maybe it'll just pop up in front of her and she'll just, you know, keep moving and go. Instead, she turns on. She looks at me, she goes, I'm right here. I was like, that's usually my line that I was like. But, you know, but she's got somebody to, you know, help her remember sometimes. And I'll tell you, I know it seems simple, but I have spoken to so many people. Remembering to pre bolus a meal is. Is really difficult.

[Suzanne]

Huge. It's huge. But it makes huge impact.

[Scott]

Yeah.

[Suzanne]

Huge impact. Right. And I think sometimes it'll Give myself enough insulin at dinner, too. But that's a separate issue.

[Scott]

But you're miscounting carbs or you're trying to.

[Suzanne]

No, you know what I think it is, Scott? It's the magic of fat and protein.

[Scott]

Oh, you're getting a rise later.

[Suzanne]

Yeah, yeah, yeah. I haven't figured that out yet. That's. Yeah, I haven't quite mastered that.

[Scott]

There's not a lot.

[Suzanne]

I still find it confusing. Despite listening to the podcast, I still find it a little complicated, but bolus

[Scott]

for your carbs, wait 45 minutes and bolus for the fat.

[Suzanne]

Yeah, okay. And. And if. And. And still do that on top of my. I forget what tandem calls it. I still sometimes speak Medtronic from years ago. Dual waves, square wave Bolus.

[Scott]

Is that.

[Suzanne]

They used to call it Medtronic extended bolus. That's what it is on tandem.

[Scott]

Yeah. I mean, you could give yourself an extended bolus on tandem. Just do that instead.

[Suzanne]

I do, but you know what? I still think I need that bump. I think you're absolutely right. I think I need that bump later. Yeah, I think that's what I'm missing.

[Scott]

Actually, there's a little estimator on my website if you want to look at it. Oh, did you.

[Suzanne]

Awesome.

[Scott]

Have you tried it?

[Suzanne]

Yeah, I actually.

[Scott]

Good.

[Suzanne]

Yes. But again, the whole dinner time chaos. Yeah. Yeah.

[Scott]

Well, figure them out ahead of time. That's not crazy, right? Like, what if you spent 15 minutes thinking about five meals that you know you're gonna have this week and do the carbs and the fat and the protein for them and then write them down on a piece of paper. Then when you go to Eco, this is how I'm gonna bolus for it. And then maybe you'll just become calm. I don't know. I'm just spitballing.

[Suzanne]

That's a great idea. You make it. Yeah, no, that's. That's a really simple solution, actually.

[Scott]

I mean, just.

[Suzanne]

Yeah.

[Scott]

You know what they said when they made those sneakers for Michael Jordan? Just do it.

[Suzanne]

Just do it. Yeah, exactly. Just do it. Yeah, no, that's a good. That's good.

[Scott]

By the way, your episode is called Fancy Pillbox, and I wish I could

[Suzanne]

show it to you. I actually have two fancy pill boxes, too, by the way.

[Scott]

Do you?

[Suzanne]

I do, because I carry pills. I have, like, this really nice one that I. That I spent way too much money on, but I was like, hey, I just got Addison's. Like, I'm getting all this stuff, and so I've got, like, you know, These Etsy bags to keep my steroid injection stuff in it. And so I have this like super fancy pill box to go in that bag to carry pills in addition to the injectable. And then I've got my awesome Amazon one that has like separated four times a day.

[Scott]

Yeah, you girls are fantastic. I got Addison's. Oh, I can buy a bag.

[Suzanne]

Well, no, it wasn't quite like that, to be honest.

[Scott]

It was. You were in the doctor's office, like, does this come with something I have to carry because I need a bag?

[Suzanne]

No, I promise it wasn't quite like that. But. But I did have to get like two customizable bags to say, like, steroid dependent. You know, it's got my husband's number on it. And. And now I think I want to get a seatbelt cover.

[Scott]

Okay.

[Suzanne]

Because again, that's my biggest fear is being in a car accident.

[Scott]

Yeah, yeah, yeah. Well, the seatbelt cover makes sense. What I hear from emt though, is they don't know if the person driving the car is the person the seatbelt cover was put on for.

[Suzanne]

Are you kidding me? Well, then they would look at my wrist. They would look at something.

[Scott]

Hopefully. Yeah, yeah, yeah, hopefully.

[Suzanne]

Hopefully they're not idiots.

[Scott]

Well, I don't know though, but imagine you're not, you know, people drive other people's cars. Imagine if you, if your husband drives your car, he drives into a wall, he's unconscious and they are like, oh, this guy's, you know, got Addison's.

[Suzanne]

It wouldn't be on the seatbelt. Say, I'm gonna have to take it with me.

[Scott]

On your forehead.

[Suzanne]

Yeah, yeah, I'm have to carry. Say I'm going to carry one more thing now. Right.

[Scott]

Also, I've had EMTs tell me tattoos are not a valuable way to do medical alert.

[Suzanne]

Yeah, I don't want tattoos.

[Scott]

Necklace or bracelets.

[Suzanne]

Yeah, I don't want a tattoo because I'm afraid when I get older it's going to get all wrinkled and that's

[Scott]

definitely going to happen.

[Suzanne]

Yeah, Yeah, I don't want a tattoo.

[Scott]

Yeah. Okay. Well, listen, you were able to stay on long enough to get a two part episode.

[Suzanne]

Oh, really?

[Scott]

Yeah, I think so. Time wise. I can't. I can't do an hour and a half in one.

[Suzanne]

This is helpful to someone. Well, first of all, here's it appreciates it.

[Scott]

It's going to be helpful. You're entertaining. I was fantastic today. You were great. I've been good.

[Suzanne]

Late as always.

[Scott]

Can I just say I. I'll say Something that'll sound ridiculous. I've already pompously told people to stay off of social media. Just let me do it. Which is not what I meant, but I'm imagining someone's gonna hear it that way. But I listened to an episode of the podcast today, which I don't do all the time, called School Ties, when it came out, like yesterday or today or something, and I was listening to it and I have to tell you, I was excellent.

[Suzanne]

Oh, good.

[Scott]

No, no, I like listened to it. I was like, this is.

[Suzanne]

Do you ever listen and think you're not.

[Scott]

Yeah, yeah, sometimes.

[Suzanne]

Interesting.

[Scott]

Yeah, sometimes I'm tired or I just. The wrong. Like, I'll listen back sometimes and somebody will say something and as a. As the person listening, I'll go, oh, this is the follow up question. And then that's not the one I ask. And I think, ah, you blew it. Like, that was such a good opportunity to say this and you didn't do it.

[Suzanne]

That's hindsight. That's hindsight.

[Scott]

Yeah, a little bit. But I. I don't know, there's just. There's something about that person. That woman and I got along well. Her attitude and mine meshed well. I thought your attitude. Mine meshed well too. Yeah, there's. Sometimes I feel like I'm fighting.

[Suzanne]

There's a vibe. There's a vibe.

[Scott]

Yeah, yeah, there's. Sometimes I think they're great episodes, but there isn't a vibe. And then it feels more interviewy and this feels more conversational.

[Suzanne]

Yeah.

[Scott]

Like so.

[Suzanne]

Which you said it will. You said it would.

[Scott]

Well, yeah, I could tell. Anyway, thank you. You were fantastic. I really do appreciate this. I. I wish you nothing but luck. I don't know a ton about Addison's other than what I've heard through, you know, a friend and a couple of people I've seen online. And I. I know it's a. It's a bit of a slog, so I wish you nothing but the best and thank you. Yeah, you're very welcome. Hold on one second for me. I'll tell you about all those people who I wouldn't name on the podcast.

[Suzanne]

Thanks.

[Scott]

Yep, A huge thanks to today's sponsor, ABLE Now. ABLE now offers tax advantaged ABLE accounts for eligible individuals with disabilities. If you or your child lives with diabetes, you may qualify because of ongoing medical needs. With ABLE now, you can save for a wide range of disability related exposure expenses without affecting eligibility for certain disability benefits such as Medicaid. And thanks to recent federal law updates, more people are eligible than ever before. Learn more and check your [e-mail] you spell that a b l e n o w.com there's links in the show notes and [e-mail] I'd like to thank the blood glucose meter that my daughter carries, the Contour Next Gen Blood Glucose Meter. Learn more and get started [e-mail] juicebox. And don't forget, you may be paying more through your insurance right now for the meter you have than you would pay for the Contour Next gen in cash. There are links in the show notes of the audio app you're listening in right now and [e-mail] to contour and all of the sponsors. Thank you so much for listening. I'll be back very soon with another episode of the Juice Box Podcast. If you're not already subscribed or following the podcast in your favorite audio app like Spotify or Apple Podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple Podcasts and set it up so that it downloads all new episodes, I'll be your best friend. And if you leave a five star review, oh, I'll probably send you a Christmas card. Would you like a Christmas card? If this is your first time listening to the Juice Box Podcast and you'd like to hear more, download Apple Podcasts or Spotify. Really, any audio app at all. Look for the Juice Box Podcast and follow or subscribe. We put out new content every day that you'll enjoy. Want to learn more about your diabetes management? Go to juiceboxpodcast.com up in the menu and look for Bold Beginnings, the Diabetes Pro Tip Series and much more. This podcast is full of collections and series of information that will help you to live better with insulin. If you're looking for community around type 1 diabetes, check out the Juice Box Podcast. Private Facebook group juicebox podcast type 1 diabetes but everybody is welcome. Type 1 type 2 gestational loved ones it doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort or community, check out Juicebox podcast type 1 diabetes on Facebook. Have a podcast. Want it to sound fantastic? Wrongwayrecording. Com.