#1899 Lightning Doesn't Strike Twice

Summary

Juicebox Podcast: Type 1 Diabetes

Episode #1899 – "Lightning Doesn't Strike Twice"

Host: Scott Benner
Guest: Daphne
Date: July 10, 2026

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Episode Overview

This episode features Daphne, a mother of four, three of whom have Type 1 diabetes. With characteristic candor and humor, Daphne shares her family's remarkable journey through multiple diagnoses, the emotional toll of chronic illness, and how her family found resilience, joy, and even adventure amidst hardship. The conversation delves deeply into strategies for managing diabetes, the emotional landscape of medical parenting, marriage under pressure, societal expectations, and embracing spontaneity and boldness in the face of adversity.

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Key Discussion Points & Insights

1. Daphne’s Family Story: Multiple Diagnoses

• Three of Four Children Diagnosed: Daphne recounts the timeline—her 10-, 8-, and 3.5-year-old children all have Type 1 diabetes (T1D); her oldest, 11, does not. (02:25)
• First Diagnosis:
  • Her middle child, William, was diagnosed at 22 months, in 2018. Daphne noticed symptoms (excessive thirst and urination), did a quick search, and realized it was likely diabetes. Both parents were blindsided, as there was no family history. (03:00–04:42)
  • Memorable quote:
    Daphne: “It was just—the internet just told me my kid had Type 1, and I… crawled into bed and said, ‘I think William has Type 1 diabetes.’ And he [my husband] was like, ‘I know. I think so too.’” (03:58)
• Diagnosis Impact: The gravity of the moment—realizing life has fundamentally changed—brings an emotional response from both guest and host. (05:31)
  • Daphne: “That was the moment that the world just. Everything shifted.” (05:34)
• Initial Reaction: The early days were overwhelming, compounded by both parents working as lawyers and managing very young children.

2. Adventure & Adjusting to Life With Type 1

• Life on a Boat During COVID: With only one child diagnosed so far, the family set off for an 8-month boat trip during the pandemic. This adventure was both magical and chaotic, providing a different lens through which to manage T1D. (09:52)
• Unplanned Pregnancy: While things felt manageable, Daphne learned she was unexpectedly pregnant with their fourth child—a decision clouded by concerns of another T1D diagnosis. (10:48, 14:13)
• Fear of Lightning Striking Twice: Despite doctors’ reassurances that it was unlikely another child would develop diabetes, the fear lingered. (15:18)
  • Notable quote:
    Daphne: “The doctors had said… ‘Lightning doesn’t strike twice.’ … And lightning does strike twice, it turns out.” (16:36)

3. Coping With a Second & Third Diagnosis

• Second Child Diagnosed: While 36 weeks pregnant, Daphne’s third child, Teddy, was diagnosed—contrary to reassurances from the pediatrician. The emotional toll was immense, described as a "gut punch." (16:29–17:51)
• Postpartum Depression: After the birth of her fourth child, Daphne faced severe postpartum depression, requiring a month-long partial hospitalization and an innovative one-time infusion treatment (Zulresso), which is now off the market. (19:28–21:12)
• Third Child Diagnosed: At 15 months, her youngest child was diagnosed with T1D in January 2024. This third diagnosis was met with resigned acceptance—"well, of course you have type 1." (23:47–24:12)
  • The experience became almost routine: “We threw a Dexcom on him, brought him home, and they're all looping…” (24:53)
• Hereditary Reflections: The family’s background (Irish Catholic) includes hypothyroidism, celiac, depression—an autoimmune cocktail, as Scott observes with humor. (26:10–27:04)

4. Parenting, Sibling Dynamics & Processing Grief

• Sibling Without T1D: They’ve debated T1D antibody screening (TrialNet) for their oldest, but plan to do so only if he is out of close parental supervision. (27:58)
• Genetic Testing: The family is undergoing genetic workups, prompted by potential non-diabetic genetic conditions (NF1) and the sheer rarity of three siblings with T1D. (29:05)
• Statistics: Scott uses AI to estimate their odds:
  • “A 1 in 6.8 million chance for a family of four children to have three kids with Type 1 diabetes.” (71:49)
• Community & Isolation: Despite having a network of T1D families, Daphne says her unique situation (three diagnosed kids) can feel isolating, even among “the niche of a niche of a niche.” (68:15–68:37)

5. Finding Joy, Resilience & Adventure

• Adventure Returns: The family plans to go sailing again, signaling their determination to remain bold and spontaneous, “to show our kids… you can do these things.” (42:29)
  • Daphne: “You are going to get through this. And you’ll find joy again.” (43:17)
• Mental Shift: Early despair (“we’re never going to be spontaneously joyful again”) has given way to embracing a life “overflowing with spontaneous joy.” (45:02–45:36)
• Practical Tips:
  • Keeping pre-packed bags for diabetes care to allow for spontaneity (Jenny’s tip, 45:36)
  • Perspective: The difference that insulin, technology, and looping make in modern diabetic care is celebrated, given what a diagnosis meant just a century ago. (49:00–49:23)

6. Marriage and Family Under Chronic Stress

• Marriage Statistics: The couple’s endocrinologist warned that marriages with chronically ill children face higher divorce rates; Scott and Daphne discuss the strains and unexpected deepening of their own marriages. (57:56–59:44)
• Rules for Coping: “Number one rule: you do not blame the other person about anything to do with diabetes... that doesn’t extend to the rest of life!” (56:46)

7. Modern Medicine, Technology, and Advocacy

• Looping Experience: Early adoption of DIY closed-loop systems improved quality of life immensely, sometimes in the face of pushback from local endocrinologists. (65:58)
• Technological Progress & AI: Scott and Daphne reflect on the evolution of diabetes care, the promise of AI in medicine, and the limitations of both modern and traditional healthcare. (76:58–80:54)
• Enduring Gratitude: A consistent thread of gratitude for current advancements—“How is this not a celebration?”—permeates the discussion, balanced with an honest acknowledgment of struggle. (49:00, 49:23)

8. Parenting Philosophy & Future Plans

• Letting Go of Expectations: Both reflect on how expectations can ruin experiences, and how living with T1D has taught them to be present and embrace unpredictability. (44:02–44:17)
• Empowering Kids: Daphne underscores her hope to give her children boldness, love, and foundational experiences, even amid circumstances she cannot control. (53:54)
• Possible Emigration: Given concerns about future healthcare access, the family contemplates Canada, Ireland, or even “waterworlding it” on their boat for long-term sustainability. (82:38)

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Notable Quotes & Memorable Moments

• On Learning Their Child’s Diagnosis:
  Daphne (03:58): "The internet just told me my kid had Type 1, and I… crawled into bed and said, ‘I think William has Type 1 diabetes.’ And he [my husband] was like, ‘I know. I think so too.’”

• On the Emotional Weight:
  Daphne (05:34): "That was the moment that the world just. Everything shifted."

• On Having a Second Child Diagnosed:
  Daphne (17:51): "It felt like a gut punch every minute of the day for the first 48 hours."

• On the Absurdity of Statistics:
  Scott (71:49): “Your… chance for three out of four children with Type 1 diabetes: 1 in 6.8 million.”

• On Finding Joy Again:
  Daphne (45:36): “I remember so vividly saying… we’re never going to be spontaneously joyful again. …[But now] it is overflowing with spontaneous joy.”

• On Practical Management:
  Scott (45:47): “Every type one should just have a bag… so you can just leave.”

• On Changing Perspective:
  Scott (49:00): “She [Arden] would have been dead when she was 2. How is this not a celebration?”

• On Resilience & Control:
  Daphne (53:04): “I can’t control whether or not their pancreases work… but what I can control is that they’re going to live really cool lives. Right now.”

• On Marriage:
  Scott (59:44): “I feel like this is the infancy of that part when you see old people together and they’re just… happy. I feel like this is the infancy of that part.”

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Timestamps for Key Segments

• [02:10] – Daphne’s family introduction
• [03:00] – First diagnosis story
• [09:52] – Sailing during COVID with one T1D child
• [14:45] – Fears about future children and T1D
• [15:48] – Second diagnosis at 36 weeks pregnant
• [19:28] – Postpartum depression and accessing care
• [23:47] – Third T1D diagnosis, now three of four
• [29:05] – Genetic testing and family background
• [42:29] – Philosophy of “doing hard things”—sailing again
• [45:47] – Tips for practical diabetes management on the go
• [49:00] – Reflection on modern medicine and joy
• [53:54] – Parenting with love, not control
• [57:56] – Marital resilience with a chronic illness
• [65:58] – The role of technology: looping, advocacy
• [70:28] – Calculating the statistical chances of three diagnoses
• [76:58] – AI, medical progress, and future of health
• [82:38] – Considering emigration for healthcare access

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Tone & Language

• The conversation is candid, irreverent, and honest, marked by gallows humor and deeply personal reflection. The hosts and guest don’t shy away from dark moments, but the tone is ultimately hopeful, warm, and deeply human. There’s a strong emphasis on community, resilience, and finding joy in unexpected places—even in the darkest times.

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Closing

Daphne’s story offers a rare look at a family weathering frequent storms—with wit, practicality, and an unwavering commitment to living boldly. Listeners are left with practical tips, emotional validation, and a sense of possibility—not just for enduring chronic illness, but for thriving.

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For more strategies, community, and resources, visit juiceboxpodcast.com, and check out the guides and support networks mentioned throughout the episode.

Transcript

[A]

Hello, friends, and welcome back to another episode of the Juice Box Podcast. My Grand Rounds series was designed by listeners to tell doctors what they need, and it also helps you to understand what to ask for. There's a mental wellness series that addresses the emotional side of diabetes and practical ways to stay balanced. And when we talk about GLP medications, well, we'll break down what they are, how they may help you, and if they fit into your diabetes management plan. What do these three things have in common? They're all [e-mail] up in the menu. I know it can be hard to find these things in a podcast app, so we've collected them all for [e-mail]. Nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan. If you're looking for community around type 1 diabetes, check out the Juice Box Podcast. Private Facebook group juicebox podcast type 1 diabetes but everybody is welcome. Type 1, type 2 gestational loved ones. It doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort or community, check out Juice box podcast type 1 diabetes on Facebook. Today's podcast is sponsored by usmed.usmed.com juicebox you can get your diabetes supplies from the same place that we do. And I'm talking about Dexcom Libre, Omnipod Tandem, and so much more. Usmed.com juicebox or call 888-721-1514. The show you're about to listen to is sponsored by the Eversense365. The Eversense 365 has exceptional accuracy over one year and is the most accurate CGM in the low range that you can get. Eversensecgm.com juicebox okay.

[B]

Hi, I'm Daphne. I'm a mother of four and three of my kids have type 1 diabetes.

[A]

God damn, Daphne, way to start strong.

[B]

Yeah. That's a hook, huh?

[A]

Oh, no kidding. Three of four.

[B]

Three of four.

[A]

What's the age breakdown?

[B]

Yeah, we've got an 11 year old who does not have type 1 diabetes, so we can move on.

[A]

And then the other three.

[B]

Yep. And then we've got an almost ten year old with type one, an eight year old with type one, and a three and a half year old also with type one.

[A]

11, 10, 8, 3.

[B]

Yeah.

[A]

Mormon.

[B]

No, just there's some Irish Catholic DNA.

[A]

Oh, I gotcha. Yeah.

[B]

Not practicing. Certainly laps.

[A]

It's in the blood. It's in the blood, you're saying?

[B]

Yeah, I'm saying, you know, things get a little wild and we had three kids in three years.

[A]

Is the 10 year old what they call an Irish twin?

[B]

They are 18 months apart. The first three were all born in three years. And so what's like, pretty wild about our diabetes story is that we had a 3 year old, a 22 month old and a 10 week old. When the first kid was diagnosed, he was 22 months old.

[A]

Oh my God.

[B]

And like I literally had gone back to work bringing my baby with me that day. And I got home and our nanny, who we adored, who'd been with us for a while, was like, look, he's been really thirsty. And she didn't say it. You know, she wasn't like, you need to. You need to take him to the doctor. But she did kind of flag, he's been really thirsty. He's been peeing a lot. I was like, oh my God, yes. He's been peeing through his diapers so much. This is so weird. And that night I put this, the symptoms in. This was 2018, but I remember it like it was a minute ago. I put the symptoms into Google and I was like, it wasn't like, oh, your kid has a cold or diabetes. It was like, oh, your kid has type 1 diabetes.

[A]

There was no ambivalence. It wasn't like, you know, it could possibly be this or this. It was like, yeah.

[B]

Oh God. It was so clear, you know, it was just. The Internet just told me my kid had type one and I. My husband and I were sleeping in separate rooms because I had a 10 week old. And I, like went and crawled into bed and I was like, I think William has type 1 diabetes. And he was like, I know. I think so too.

[A]

Oh, he. You hadn't talked about it previous to that?

[B]

We had never even. It had never even crossed our radar. No one in our families has type one. Um, you know, we've got some hypothyroidism here and there, some asthma, whatever, but nothing like type one. We. I had had one friend in college whose sister had it. That was the only thing. And another, like, kind of peripheral friend who had had Type 1 since she was 17. But other than that, I had no idea what it was.

[A]

Stephanie, I'm gonna be a bummer for a second. Cause we're already having a good time. That made me cry.

[B]

Oh, I.

[A]

It put me right back. It put me in a car at a traffic light like two miles from a hospital. Oh, yes. Sorry.

[B]

Jeez. It knocked me. Knock me.

[A]

Right.

[B]

Those instructions, Right. Like, we go to the doctor. We. I emailed our pediatrician. She got us in at noon the next day. This little boy, William, the first kid diagnosed, is the sweetest human on the planet and already was the sweetest human. And. And he. He had, like, you know, he'd been peeing so much. And then of course, we get to the doctors, he's not peeing at all. We put a pee bag on him because he's not potty trained. He finally pees. We're all laughing like, oh, this is such. This is so ridiculous. Like, you know, we have three kids. Why are we so anxious? She walked out of the room with the pee. She came back in and she looked at us and she said, you know, William is just too sweet.

[A]

Aw.

[B]

And we all just burst into tears.

[A]

Yeah.

[B]

And that was the moment that the world just. Everything shifted.

[A]

No kidding.

[B]

And you know how that feels, right?

[A]

It's when you think, I know how those ladies drive those kids into lakes now.

[B]

Yeah.

[A]

Yeah. Kids were going for a ride. Put your seatbelt on real tight. Okay.

[B]

100.

[A]

I tried. It didn't work out. I'm gonna give up. You don't mind, right?

[B]

Yeah. Sorry, guys.

[A]

How old were you at that point?

[B]

Oh, my gosh. I was like 31. And my husband and I were both lawyers and he was working a million hours a week.

[A]

Yeah.

[B]

And I was, like, staying afloat part time. Anyway, so. So we went. Yeah, so. So. And then. So what I mean about the car ride is then she was like, you put that baby in the car and you drive straight to the ER and you don't stop and, you know, like, you just get to the er.

[A]

I don't care if you see. I don't care. I don't care if you see an in and out burger on the way or something. Yeah, right.

[B]

Yeah. Yeah. The police try and pull you over. I don't give a. Get to the ER drive.

[A]

You'll let them know what happened when you. And they all pull up behind you with the lights on and they're tasing. They're tasing your husband.

[B]

Yeah, exactly.

[A]

Please. Your two lawyers, you'd love to get tased.

[B]

Oh, my God. Yeah, we would. Yeah, yeah, yeah. We've had some lucrative moments where people have gotten tasted, actually, that's been good for our careers, so. Yeah.

[A]

Yeah. Maybe try talking another second.

[B]

Right.

[A]

You make someone go face down on the pavement. Although, I mean, let's be honest, just between you, I and everyone listening taser videos Are fantastic.

[B]

Fantastic. Could watch them for hours. That and the boats where people are trying to get out of really rough inlets. I don't know if you're a boater. That is wild. And it feels like my life. And I'm just like, there's that great.

[A]

I don't know how if you're old enough for this part of the Internet or not, but there's this great video where these people in their 30s or 40s are on a boat, and they're just going along, and it's 1.

[B]

1.

[A]

It's bouncing along, and then the boat catches a bounce that, like, it just knocks everyone in the frame into a different direction. It's maybe my favorite thing I've ever seen on the Internet. Next to the lady stomping grapes and falling on the news report.

[B]

Yeah, that's a real. I have seen that one. That's a really good one.

[A]

That one's my favorite because it's the noise she makes when she hits the ground. She goes like.

[B]

Like you.

[A]

Like. Like. Like, it just hit her in the ribs and, like, straight through to her asshole. You know what I mean? Like, she's like, oh, anyway, let's talk about three of your kids having diabetes now. So this is all happening, and you think to yourself, you know what we should do? We used to have another baby.

[B]

Well, so. No. Okay, I did not think that. No, that's such a good question. So we have these three little kids, and we kind of, like, adjust to the Type one, You know, we only have one Type one diabetic, and things start to feel a little manageable. So then. Then I get this pretty, pretty big job. I got my dream job. I was a federal public defender. I got the job. I started in November of 2019. And, you know, at that point, like, we have 66 hours of childcare. We're both working full time. Life is, like, pretty clear about what it's going to be.

[A]

Yeah.

[B]

And then Covid came. The world shuts down. Our nanny can't come. We're both trying to work from home. Our nanny, who had been with us for, like, three and a half years and was our lifeline at that point, knew who had been with us from the minute that William was diagnosed, says, look, my husband wants to move to Florida for a job. I mean, first of all, moving to the Panda. Sorry, Carrie. But moving to Florida during the pandemic was a wild choice. But anyway, they moved to Florida. We're devastated. We loved her. And as she's telling us about these plans, my Husband. We had just bought this old boat. We bought it for like 15 grand on Craigslist. And my husband was fixing her up, and he was like, you know what we should do? We should sail to the Caribbean. We should go to the Bahamas for the winter. And I was like, you're crazy. I just got my dream job. Like, what are you even talking about? But the courts were really low. Like, there weren't a lot of arrests happening. Everything was by zoom. My husband had just wrapped up a big case, so he was able to take a sabbatical. So we. So we made this plan and we went on this boat trip for eight months with our three kids. Only one had type one at that point.

[A]

No kidding.

[B]

And we lived on the boat for eight months. And it was like the most unbelievable, magical thing you can imagine. And also, it was totally bonkers because we had a five year old, a four year old, and a two and a half year old.

[A]

Oh, no, no. There's an argument to make the stage take your kids from you. But I hear what you're saying.

[B]

Yeah, yeah. There are more moments like that as this unfolds. So we go, we have this great time. We get back, and it's now June of 2021, and we kind of slip back into life. I'm working, Ben's working. Everything is kind of status quo. And then we were on a trip with some friends in January of 2022, and I was like, oh, I feel very. I feel very pregnant. There is something very wrong here. And I was pregnant, and it was a total surprise. Which is not. Which is like, not a fair. I mean, I'm gonna be honest. I had three and three years. Like, it wasn't a total surprise, but it was.

[A]

Hey, Daphne, you just disappeared. Did you hit your mute button by mistake? Daphne, you are gone. Gone. But, oh, she's. She's gone. She disconnected herself. Speaking of total surprises, let's put the ads here. I have always disliked ordering diabetes supplies. I'm guessing you have as well. It hasn't been a problem for us for the last few years, though, because we began using US Med. You can too. Usmed.com juicebox or call 888-721-1514 to get your free benefits. Check. US Med has served over 1 million people living with diabetes since 1996. They carry everything you need, from CGMs to insulin pumps and diabetes testing supplies and more. I'm talking about all the good ones, all your favorites. Libre 3, Dexcom, G7, and pumps like Omnipod 5. Omnipod Dash Tandem, and most recently, the eyelet pump from Beta Bionics. The stuff you're looking for, they have it at usmed888-721-1514 or go to usmed.com juicebox to get started. Now. Use my link to support the podcast that's usmed.com juicebox or call 888-721-1514. Why would you settle for changing your CGM every few weeks when you can have 365 days of reliable glucose data? Today's episode is sponsored by the Eversense365. It is the only CGM with a tiny sensor that lasts a full year, sitting comfortably under your skin. With no more frequent sensor changes and essentially no compression lows for one year, you'll get your CGM data in real time on your phone. Smartwatch, Android or iOS, even an Apple watch. Predictive high and low alerts let you know where your glucose is headed before it gets there. So there's no surprises, just confidence. And you can instantly share that data with your healthcare provider or your family. You're going to get one year of reliable data without all those sensor changes. That's the Eversense 365. Gentle on your skin, strong for your life. One sensor a year. That gives you one less thing to worry about. Head now to eversensecgm.com juicebox to get started. All right, that's what I'll do. The ads are going to go right here. And then as soon as they're over, Daphne will be back. Okay. All right. Hey. I was getting ready to call the cops and send them to your location. You okay, man?

[B]

I don't know what happened.

[A]

It's okay. Don't worry about it. It was hilarious. Actually, can I tell you, it was perfect because it was right at the spot where we like to put the ads.

[B]

Thank God.

[A]

And you said, and you said, well, it wasn't really a surprise. I'm gonna cut it right there and then put the ads in. Fantastic. Feels like you're producing, to be perfectly

[B]

honest with you, that's so excellent.

[A]

So you were not surprised because you're the. You are a baby making machine. So.

[B]

Yeah, right, right. So we weren't surprised. But. But Ben had long said, like, I, I don't think we should have a fourth kid because what if someone else develops diabetes? And everyone, every doctor was like, that is. Are you still there?

[A]

I'm listening.

[B]

That is still there.

[A]

No, I. By the way, I love your attitude. You and I would get along great.

[B]

Yeah.

[A]

Yeah. You're like. You were just like. That phone shut off again. What a tone in your voice. And you didn't even say a full word. I was like, oh, she and I would really get along. I love the complaint. I can't even tell you.

[B]

Yeah, I know, I know. I kind of want to talk about that at some point about, like, the complaints, like, just get, you know, like, you just. You gotta at some point turn the complaints off about diabetes because. Holy. You could just. I could complain all day about it, but.

[A]

So did you guys. Did you guys have a conversation about terminating the pregnancy?

[B]

No.

[A]

No.

[B]

No.

[A]

Okay.

[B]

Nope. It was never. And not for, like, any reasons other than. Other than I had wanted a fourth baby, you know, And. And Ben was kind of just like, okay, this is what we're going to do. We're going to have another one. We love having a lot of kids. It's fabulous. The kids are amazing. And we're just going to do this. And it did take me like six days to work up the courage to tell him because I knew he was gonna be a little distressed.

[A]

Yeah.

[B]

And like, my best friend's husband knew before Ben did. And they would all, like, see him at pickup and like, be avoiding making eye contact, you know? Cause they knew that I hadn't, like, gotten it together to tell him so. But his biggest hesitation was always when we would have the conversation about a fourth kid. But what if someone else gets diabetes? How do we give everyone what they need? How do we pay for all of it? You know? And more importantly, how do we give them the emotional time, energy, and love that is required?

[A]

Right. Are you about to tell me that your second gets diagnosed while you're pregnant?

[B]

I'm about to tell you that.

[A]

Oh, yeah, I'm ready.

[B]

36 weeks pregnant. And we're on a boat trip. We're sailing just like a two week long trip. And the kid, our third child, Teddy, starts peeing the bed. And you know, red flag, but okay. He's only four. Like, whatever. We'll give it a little time. And he had been having some behavioral issues and we were sort of like, oh. And then we got home from that trip, it's August. I'm either 35 or 36 weeks pregnant. And like, I have my baby shower on a Monday and on a Wednesday we put him to bed and he pees seven times in an hour. And I, you know, and so I pricked his finger.

[A]

Yeah.

[B]

And he was at 356, where you're

[A]

on this boat at this point.

[B]

No, at this point we're home.

[A]

Okay.

[B]

We just got on like a two week trip and we get home and my mother in law was here and we were sort of just having a visit with her. And I pricked his finger at like 8 o' clock at night after he'd gone to sleep. And I let out like the most, you know, just like a keening wail of pain. Like an animal, right? Like a 36 week pregnant huge whale. Just like losing her shit. And I ran downstairs and my husband knew before the words even came out of my mouth. And so that was. That was number two. And we had what was kind of wild about that diagnosis. And something I think is important for people who have multiple kids and one of them is type one, is that the doctors had said to us like five times over the past six months as we had gone in for some behavioral challenges to talk to the pediatrician, look, lightning doesn't strike twice. You know, there's no type one in your family. This is random. This is not what this is. And lightning does strike twice, it turns out. Yeah. Okay. And so, so that time was like even more emotionally.

[A]

Does it feel more targeted?

[B]

It felt like a gut punch every minute of the day for the first 48 hours.

[A]

Like somebody was doing it to, you know.

[B]

Yes. Like they're like. And I do say this, that someone, a disgruntled client from my past in jail, must have a voodoo dog, you know, and just is like, oh, I think this year we'll just throw something else in there. Let's throw a pin in her eye. In her eyeball this time. So anyway, Teddy was diagnosed. I was 36 weeks pregnant and. And Harry was born a month later. Jeez.

[A]

Do you have postpartum by any chance? With any of the kids?

[B]

So with Harry, I developed it like three months in. And so he's the last baby. I'd never had it before, and I got so sick that I took a leave of absence from my job and we ended up. We couldn't find any help for postpartum depression. We live in Maine. There was no. There was nothing here beyond, you know, here's a prescription for an SSRI and we'll call and check on you in a couple of days. And I was so sick that my friends had organized like they were sitting with me for an hour every day. There was like a babysitting schedule for me, for you, with my friends and my family. I was living at my parents with the baby. Ben was holding it down with the other Three and his mom. And everyone was just trying to keep me between the navigational buoys until I could get some real help. And we found that help in Rhode island at Women and Infants, which is a hospital down there where they have a partial hospitalization program for women with postpartum depression.

[A]

Oh, that's nice.

[B]

So I moved down there for a month, staying in various Marriott hotels with the baby. And my dad would come down, or my parents, or my best friend. And then I did this magical, truly magical drug where you get an infusion for 60 hours at a hospital. It's called Zolresso. And it lifted. It lifted the curtain and all of a sudden the world had color again. And I was. I was myself. But it was a wild experience.

[A]

A one time treatment drug.

[B]

It's a one time treatment drug. And then I was on, you know, I mean, I was on SSRIs and whatever for about a year after that. But I. Yeah, it was a. It was a wild thing to have postpartum depression just with your fourth baby. But I think a lot of it was, was that now we had two kids with type one.

[A]

Yeah.

[B]

And it was so overwhelming. I was so lost in it, trying to figure out how I was going to get everyone what they needed. And I was still trying to work and. And, you know, then I had to really call that. We had to. We had to call that.

[A]

Hey, Zul Resto.

[B]

Like Zul Resto.

[A]

Yeah.

[B]

Z U L R E S S O Discontinued.

[A]

They don't make it anymore.

[B]

No way.

[A]

IV medication for postpartum given is continuous. 60 hour infusion is monitored metabolite. Important update. It's no longer commercially available in the US as of January 1, 2025, the FDA withdrew its approval, effective April 14, at the company's request, because the product was no longer marketed. Oh. A newer related option is Zurzevia, a generic of IT, an oral 14 day treatment for postpartum depression.

[B]

Wow.

[A]

It's not.

[B]

Well, that's probably more accessible to a lot of people. I mean, I think the only reason I could do it was that I had federal health insurance at that point.

[A]

Okay.

[B]

Because I think it. I think it was like a $70,000 treatment.

[A]

Oh, my gosh. Juice.

[B]

But I had really good health insurance and I had saved up enough PTO that I was able to kind of still be on. On the insurance. And I was hoping to go back to work. I loved what I did. It was. It was truly my dream job, but it just wasn't in the cards at that point. So. So that's. So we're at January of 2023. Then it's April of 2023. I'm not working. I'm home. I'm feeling much better. And our. Our sweet dog, who had. We had gotten during the pandemic and I would gone on the trip with us and was just the cutest thing ever, was hit by a truck while our kids were outside waiting for the school bus.

[A]

Daphne, what in the hell?

[B]

So. So that's the point where I really developed this theory about a voodoo doll.

[A]

Some guy's making toilet wine and putting a hex on me.

[B]

He's serving 45 years. Yep. And he's like, well, my lawyer was a real shit shitty lawyer. And anyway, God.

[A]

Oh, hey, the dog. I mean, when the dog goes. Are you just like, oh, my God. Okay. And by the way, dog didn't just die. Set by a car. And it was hit by a car in front of the kids. In front of the kids on their way to school?

[B]

Yes.

[A]

Did you still put them on the bus?

[B]

No. And no. One of them had already biked to school. And I was like, well, we'll tell Johnny when. When Johnny gets home. And Ben was like, no, you idiot. We'll pick the kid up.

[A]

I gotta tell you, when there's six of you and adult, I. I don't even know how you make one decent decision about anything, to be perfectly honest.

[B]

Yeah, well, some would say we don't.

[A]

Are some of those people you and your husband?

[B]

Yeah, yeah, no, we. You know, we're fairly confident. Our parents are super skeptical of much of what we do. So anyway, so the dog dies, and then it's. But, like, life. Life marches on. We've got the two diabetics. They're both in public school, and so we've got really good school nurses who are taking care of them. And. And life kind of continued to, like, improve. Like, it felt manageable again. You. You move through the stages of grief and you're back at like, okay, yeah, this is what life is. And then In January of 2024, it was January 6th, and our baby had been sick for a while. He was 15 months old. And I pricked his finger and it was at 183.

[A]

And, yeah, you know, I mean, after the second time, you don't have to mess around with waiting for him to wet through something. You're just like, I see. I've seen this movie before.

[B]

Didn't like the ending then. Don't like it now. Yes.

[A]

Do you even have this? I'm so interested. Is the reaction. Very different the third time? Like, do you just throw your hands up?

[B]

Very different the third time.

[A]

Yeah.

[B]

Yep. Yeah. The third time it was like, well, of course you do. Of course you have type one. And it was also like, you know, we. We decided to go to the ER because our endocrinologist is sort of like, why don't you just come in? Even if it's just to, like, so that you can get a break from all the other kids for a second while you get your feet under. You just come in for the night to the children's hospital. And we got there, and of course, they couldn't find a vein. And there was a. In the bed next to us. There was a total teenage breakdown happening with cops and all sorts of stuff. And I'm, like, about to go over there to start representing her, you know, Like, Ben is like, no, no.

[A]

Like, this kid needs a lawyer. Hold on a second.

[B]

Yeah, exactly. I was like, this is the civil rights violation. Ben is like, no, you sit. You sit your ass down. And so we ended up not even spending the night. We threw a Dexcom on him, and we brought him home, and they're all looping. So we set up an iPhone, and we got him right on it. None of them honeymooned this.

[A]

Right into it.

[B]

Right into it.

[A]

Yeah. There's something somebody said to me recently I'd never considered or heard. Like, the younger it happens, like, the fewer. I guess I don't even know how to put this because I don't want to get it wrong, but I guess it's something to do with the amount of time you have to make beta cells to begin with or. I don't even know how to put it exactly, but maybe I'm wrong. So maybe somebody should Google it.

[B]

Well, but that kind of makes sense, right? That like. Like, if you don't have a lot of beta cells stored up, then they peter out more quickly or something.

[A]

I'd have to dig into that a little bit because it just made so much sense to me when someone said it. But, yeah, I don't. I don't know if I ever made sure that it was accurate or not, but, I mean, neither here nor there. I mean, that's right.

[B]

They have type one and they didn't honeymoon. And so. And so.

[A]

Yeah, I heard you. I heard you say there's no type one in your family, but I'm gonna guess Irish. Like, probably celiac and hypothyroidism.

[B]

That's exactly right.

[A]

Yeah. I mean, that's very the translucent people, they don't do well with this stuff.

[B]

No.

[A]

Yeah.

[B]

No, they don't. No, they don't. And I blame my husband for that.

[A]

Well, why not? Depression, anxiety.

[B]

Yep.

[A]

Yeah.

[B]

Yep.

[A]

Okay. All around a couple alcoholics.

[B]

We. We sure do.

[A]

Yeah. Yeah, I know what's going on. Hey, any bipolar people in the extended family?

[B]

Really Good question. A couple have been diagnosed.

[A]

Yeah. I'm good at this, by the way. I've been doing this a while.

[B]

Yeah, I know. I've listened to your clairvoyance before.

[A]

Thank you. Yeah. I mean, if an Irish person meets another Irish person. May I make a suggestion? Go meet a person with more melanin and try making a baby with them. That might help a little. Okay. I mean, and if one of you has got an autoimmune issue and the other one, like, even has allergies, that's a good reason to break up if you're gonna have kids.

[B]

Yeah. Yeah.

[A]

You know what?

[B]

We met when I was 23 and Ben was 25, so it was like we didn't even know.

[A]

Now, of course not.

[B]

What was up and what was down. Right.

[A]

I'm still not sure I understand what's happening, but I just know for sure that if you start putting those cocktails together, you end up with a. With a zoomy little drink.

[B]

If you. If you start putting those cocktails together, you end up with four kids under. Under seven. You know, that's what you end up with.

[A]

I'll tell you what, that oldest kid must walk around like a cat in a room full of rocking chairs. Huh?

[B]

Oh, my God. Yep. Yep.

[A]

There's a saying I've never used before in my entire life. But. But I am considering moving south, so I. I'm trying to get ready. But. But. But no kidding like that. I mean, I. I want to ask. Is your oldest. That come to you has said, like, hey, is this gonna happen to me or.

[B]

Yeah, we've talked about it. We've. We've pricked Johnny's finger a couple of times. We've all decided so far not to do trial net. Or not. Yeah. That's what it's called. Right?

[A]

Yeah.

[B]

Test. Yeah. We've all decided so far not to do it. If. If Johnny goes to, like, sleep boy camp or college, you know, and is out of my eyesight, then I will for sure do it.

[A]

Like, if that kid tries to leave here.

[B]

Yeah.

[A]

We're gonna test his antibodies. Yeah. Wait, you know, it's. I mean, though. How old is he now?

[B]

11.

[A]

I mean, I don't know, like, I'm not saying it's more or less likely, but, I mean, for the way your family does it, it feels.

[B]

Yeah. Like the. Like he's out of the danger zone.

[A]

I don't know. I mean, Jesus. Hey, you're not gonna have more kids, right?

[B]

I'm not. No. No, I'm not. Nope. Nope. And as Ben says, if we did, it would be a diabetic boy. You know, there's a 75% chance that's what we do. Oh, my gosh. We just went down. I just took the kids down to Boston Children's to start doing some genetic sequencing.

[A]

Okay. For.

[B]

Well, that was sort of prompted by the two middle kids have these really large birth. Several really large birthmarks that are indicative of this other genetic disease called NF1. And I don't know a lot about it. It has something to do with, like, something in your brain. There's. There's a misfire where your brain doesn't tell your body not to produce benign tumors. And so if you have a certain number of these, this type of birthmark, you just get screened for it. So that's kind of what got us in the door. But then really, the genetic doctor was like, I don't think they have that. But what I think they do have is type 1 diabetes, and I'd really like to know why.

[A]

Oh, okay.

[B]

She's doing just a bunch of different. Of different tests to kind of see if there's. If she can find a gene that's responsible. It's so wild to me how much doctors don't know about type 1 diabetes.

[A]

Not me anymore. And I don't. And I don't blame the doctors either. I just think, you know, what I. What I really think is that we're only, I mean, slightly over 100 years removed from, you know, cowboys and. And, you know.

[B]

Yeah.

[A]

Doc Holliday being a real person. You know what I mean? Like, I just think. I think things jump forward and we act like we know what we're doing. You know, we're like, oh, we made. We made the steam engine. Like, we're amazing, and. And. And, you know, and we have a computer. We must know everything and blah, blah, blah. I don't. Boy, I think this is the infancy of humanity. And, you know, what we know fits in a thimble still. So.

[B]

Yeah.

[A]

You know, and not that, you know, I'm very happy about the way modern medicine is. I'm glad that I can get sick and go to a doctor or break my arm, go to somebody, and they fix it. Like, trust me, I've. I'd be a. I'd be a shell of myself without. Without modern medicine. I'm not even kidding. Like, if I sat here and started listing all the things I've had done over the years, like, I'd be lucky to be alive or even walking.

[B]

Yeah.

[A]

You know, so it's great. You get to keep refacing the house. Like, every time the wind blows, you're like, oh, I can put up a new shutter. I can put the roof back on, like, that kind of stuff, you know?

[B]

And our kids are alive, right? I mean, like, yeah, that's. That's part of the mind of type 1 diabetes, as a parent, is that, you know, you shake yourself sometimes and you're like, holy shit. There's so much to be grateful for because they have access to this stuff that's keeping them alive.

[A]

Oh, a hundred, one hundred and some years ago, your story is you had four kids and three of them are dead.

[B]

Yeah, yeah, yeah.

[A]

In short order, like.

[B]

Like, that's right.

[A]

Oh, no. And no. Ivy, get me off the. Get me out of the spiral drug.

[B]

Right?

[A]

Yeah. No, hey, there's that. There's a movie coming out on Netflix called the Last House maybe. And Arden said, hey, did you see this trailer for the Last House on Netflix? And I was like, no. She showed me the trailer. It's. I don't know. It's something about, like, I think there's some sort of an alien invasion, but everyone's locked in their house. They can't get out of their house. And everyone talks about, like, how you make food and blah, blah, blah. And, you know, we're all kind of standing around. Arden's boyfriend's there, and they're talking about everything. And Arden's like, well, that's not my problem. Like, the food's not my problem. Like, how much insulin do I have is my problem?

[B]

Yeah.

[A]

And I was like, right. And then you. And then she said. She's like, but we do have. Like, she. This actually happened in my house last night. She goes, we do have all that glp. And I. And I said, I could. I could cocktail you up with GLP and stretch that insulin out for a long time if I needed to. And I said it was getting serious. And I said, I just want you to know that I. That's how much I love you. I would get. I would get fat again. Yes. But in the back of my head, I thought, we won't have any food. I probably won't get that Fat.

[B]

It's not actually that big a sacrifice. Yeah.

[A]

That's how I knew I loved her. That's how I knew I loved her. I was like, oh, I guess I would give you my gop. Okay.

[B]

Yeah. I hope she gave that the appreciation it deserves.

[A]

Oh, I don't know that she can, because she has. She's never. She didn't live through.

[B]

She hasn't done it.

[A]

Yeah.

[B]

Yeah.

[A]

She doesn't live through my life, but it was a. It was a heavy lift for me.

[B]

Yeah. I went to go visit my. My grandmother this week who's dying, and one of my aunts was there, and my grandmother's blind, and she said, oh, Daphne's my most beautiful. My most beautiful grandchild, you know, because I'm the first grandchild. And my aunt was like, I'm not quite sure why she said this, Judy, I love you, but she said, well, Daphne told me that she recently lost £50. I didn't know she had £50 to lose, but she did. And I was like, well, you know, I had four babies. Like, I had some weight to lose. And my grandmother says, what? You got fat? You know, she's literally. She's lying there, she cannot hear, she cannot see, and she's like, what? You got fat?

[A]

You know, have you ever heard the story of my. The end of my. By the way, you are just a bundle of joy. You talk about death and blindness like it's joyful. My. My wife's grandmother is in the hospital. She's in her last couple of days. We go to visit her. She can barely see. I get through the doorway in the hospital, and she looks right up at me, and she goes, oh, you got fat. First words. First words.

[B]

I was like, hi, did you get that GLP prescription the next day?

[A]

Oh, they didn't make it back then, but if they made it when I was 10, I would have bought it now that I know what's going on.

[B]

Yeah.

[A]

Also, do you see this retruda tide that Lily's gonna pump out next?

[B]

Oh.

[A]

They're saying that not only do you not do you lose, so you're still hungry, apparently, but lose weight and don't lose muscle and something else. And I'm like, what? Magic is coming. You know what I mean?

[B]

That is a mirror. That is a miracle.

[A]

Yeah.

[B]

An actual mirror.

[A]

First of all, I think I'm gonna live forever now that GLPs have been invented. But. But at the same time, like, I can't wait to see what comes next. You'll see me. I'll pivot. I won't. Like I'm 100%. I'm gonna, I'm. I'm not gonna stop. The one of these makes me taller. That's what I'm doing.

[B]

Well, I hope that there will be a juice box episode about that when you find that, that, that hype.

[A]

Well, I'm not, I'm not giving up. Also, you gave me a lot of. You said something so small to me before we started recording that you didn't know. But for me, it was just incredibly hopeful. Then we said we were going to start talking about it, but then you went right into the hellscape that is your life. Uh, so it was, it was hard to. It was hard to pivot away. But let's take a break for half a second. You thanked me for the podcast not being on video.

[B]

Yeah, yeah, because all the podcasts are on video now, you know, And I just, like, not only is that so wildly unfair to the people who are talking, but also I'm not interested in watching you speak while I'm cleaning. I just want to hear it, you know, I just want to hear your voice, your Dulcet tones podcast, you know, Pod Save America or whatever I've got going that day.

[A]

100%. I don't understand it all. And, and, and so if you're around it enough, you know, I tried to say something to. I was, I was interviewing this girl the other day, and she's like, you know what? I'm. And she notices something about the world, right? And I realize that she's 27. This is the first time she's noticed it. Humanity has noticed this thing a thousand times already. Like, generationally, right? But it's her first time. And God bless her, that's. But the same thing goes with podcasting. I've been doing this a long ass time, okay? And about once every 18 months, someone jumps up and goes, the new world of podcasting is video. You gotta put your podcast on video. If you don't, you're gonna be left behind, blah, blah, blah, blah. And every lunatic runs out there and makes a podcast and no one watches them. And like, and you're getting confused by the seven that people actually pay attention to. You're not gonna get hundreds of thousands of downloads on your podcast, your YouTube, even, like, around diabetes. Like, listen, if you're gonna make a YouTube video about diabetes and you're not leaning hard into technology and promising the future or yelling about a cure, no one's watching your damn video while you talk to somebody about Their diabetes. Okay.

[B]

Right.

[A]

Like, it just doesn't work that way.

[B]

Right.

[A]

Audio works great, right? Yeah, it's fantastic. And I appreciate it because I have, I have persevered through that pressure probably six times. And it was hard a couple of times to ignore because I really felt like, oh, if I don't do this, I'm making a, like a, you know, a deadly mistake for the show. But not.

[B]

Yeah. I mean, I think that as an audience member, it just, it, it also is like, you know, I. For the ADHD brain, being able to just listen and not get distracted by what the person's wearing or what makeup shade they have on is really very helpful.

[A]

Yeah.

[B]

So I think it's a more effective form of communication.

[A]

It gets more personal. It builds. I mean, there's an intimacy to it.

[B]

Yeah.

[A]

You know, you don't, you don't know what I look like. It doesn't matter. I'll tell you this, I don't really talk about this much, but I'm so glad not to know what the people look like who I'm interviewing because I'm not certain that I wouldn't jump to conclusions about them.

[B]

Yeah.

[A]

You know what I mean? And then just getting to talk to them, it allows them to be like who they are without all the facade stuff.

[B]

Yes.

[A]

I think that's important. Really?

[B]

I think so too. I find that even so, I made this. So I'm on Instagram, as many of us are, and I made this video about how our 11 year old stuck some toothpicks in a carpeted stairs this winter, right after holiday season. Watching Home Alone one million times made kind of like a Home Alone style trap. And it wasn't, it wasn't supposed to be for the nine year old, but the nine year old ran down the steps, got a toothpick stuck in his foot, pulled it out and, and says, okay, I got it out. It's out. But he's in so much pain, he's not walking. Anyway, it's a whole Saga that takes four months for an MRI to finally happen. And there's a 2 centimeter piece of toothpick stuck into the kid's cuboid bone in his foot.

[A]

Really? Oh, was it mint flavored? I hope not. Mint flavored?

[B]

Yeah. No, we would have found it sooner. It would have smelled better. No, nope, it was just a regular old toothpick. But he couldn't walk. And we had been going to see a podiatrist and she had done one surgery, thought she got the toothpick at whatever, like she thought maybe some fragments remained. She had pulled those out. She was like, he's fine. And then he still wasn't walking. And it's April.

[A]

Oh, my God.

[B]

There's. It's a whole saga. But I made this video about it on Instagram, and it has gotten like. And I thought, Okay, I have 600 or 700 people who follow me. It's all friends and family. They're gonna see that. I'm gonna explain why William's been on crutches for six months, you know, whatever. And then one. It has, like, 1.8 million views, so that's insane.

[A]

Yeah.

[B]

And the comments are wild. You know, your child's a psychopath, you're a terrible parent, all this stuff. And so I've been thinking a lot about, like, anonymity and intimacy in the age of podcasts, social media. And I've also been kind of like, I have some new followers. And so I've been kind of like, okay, I'll. I'll do some more Instagramming. And I find. And this relates back, I find that I'll just, like, be speaking to myself on the phone, saying these, like, deeply intimate things, like, about how isolating medical parenting is that I would never say if I were speaking to a room of 700 people.

[A]

Isn't that crazy?

[B]

Yeah, it's such a. It's. It changes the whole game to. To be. Just. To not be looking at the people that you're speaking to.

[A]

Yeah, No, I mean, it's. It's helpful for you to. And by the way, there's some level of craziness that allows people to do that. I've. I. I don't know if this is still true, but I. I heard in the past, when I was. I was just writing a blog. It was a long time ago, they said that I was. I was trying to talk about why blogs don't get a lot of interaction, and I was told that it's, like, I guess, proven back then that only a very small percentage of society has whatever it takes in them to actually comment on something.

[B]

Yeah.

[A]

And it's a very small percentage of people who can bring themselves to do it, even.

[B]

Yes. You know, interact in any way.

[A]

Yeah. So the people who are willing to. To, like, initiate that, I think that number is even smaller. It probably doesn't seem like that, but when held up against the totality of, you know, of humanity. Not. Not many people. Like, I have that feeling a lot when I'm making this. Like, I'm talking, and there's part of me. That's like, why am I saying this? Like, like, why don't I just go get a regular job? Like, you know, and, and, but then, I don't know, like, first of all, A, I see how it helps people and that's really invigorating. And then B, it makes me feel better just to get it off my chest sometimes. You know what I mean? Or to be honest about it.

[B]

Yes, I do know you mean it. It has felt really liberating to say those things.

[A]

Yeah, I do.

[B]

I, I said this in my email to you, but like, I do like the, the second words out of my mouth when I get put in touch with a family who's newly diagnosed. Or like, and then you'll. And then you'll look up the juice box podcast.

[A]

Oh, thank you.

[B]

And, and it does. It just helps so many people. And I sort of hope that we're gonna go. So we, so we're leaving at the end of August. We hope to go sailing again. And, and part of, part of it is to just sort of show our kids and hopefully to show whatever small corner of the world, you know, knows our family or watches us on Instagram that, that you can do these things.

[A]

Yeah.

[B]

When you're living with a life threatening chronic illness and that you can pack enough insulin to live on your boat and. Yeah. And that's sort of what the, your podcast has done in so many ways for so many people is that you. You can do this. You are going to get through this.

[A]

I hope so.

[B]

And that you're gonna find joy again.

[A]

Yeah.

[B]

Right.

[A]

I mean, that just is. That's what's gonna happen.

[B]

It's. It.

[A]

You. I don't know. I, I always get. I. That's. There's a stupid, like country song from the 70s about not promising somebody a rose garden. And like, and I think the, the lyrics like. I beg your pardon. I never promised you a rose.

[B]

Oh, yes. Yes. Yeah.

[A]

Yeah. And. And I just. I think about life like that all the time. I don't. Maybe I just think about it like that because I heard that song. I have no idea because it certainly wasn't through good parenting. But, but I, but my. Both my parents are gone now. It's okay if I say that. Right. But I mean your, your expectations are what ruin your experience.

[B]

Yeah.

[A]

That's all. Like, go on the boat. If it goes great, awesome. If it goes less than great, just decide that that's great and keep going. You know what I mean? Like, none of my stories involve how great everything went Right, right.

[B]

Well, and at this point, I've got to be honest, three of my four kids have type 1 diabetes. So, like, my expectations are pretty much in the toilet. Yeah.

[A]

Like, if a wave knocked you into the water and then a giant shark from those Comedy Central movies showed up, you'd go, oh, this is what I thought was gonna happen.

[B]

Yeah. Oh, your name is Roger. I've been waiting for you. I've been expecting you.

[A]

Yeah. I can't believe it took this long.

[B]

Yeah, exactly, exactly. Yeah.

[A]

Yeah.

[B]

I, you know, as we, as we gear up for this, people are sort of like, what are you thinking? And I'm like, what the. I'm gonna stay here, you know, and, and watch my sugar pixel all day and text with the nurse 750 times. I could just be in the Caribbean.

[A]

Yeah.

[B]

Without a sugar pixel.

[A]

Let's go do something.

[B]

Go doing something. Yeah, I'm with you. Yeah. I think it's important and I think that. So when our, when our first child was diagnosed with type one, you know, it's. It's 2018. Life is crazy. I remember so vividly saying to my mother in law, you know, we're never going to be spontaneously joyful again. We're never just going to pick up and be able to go. We're never going to have the life that we imagined. And it certainly is not the life that we imagined, but it is absolutely chalk. It is brimming, it is over. It is overflowing with spontaneous joy.

[A]

Jenny said to me the other day, I don't know if we were being recorded or not, if we were just talking. She's like, I think every type one should just have a bag. It should just sit by the door and it's so that you can just leave.

[B]

Yes.

[A]

You know, just grab, like, okay, you're gonna have to grab insulin probably, but grab the bag and go, come back, drop the bag there. And then it allows you to be like, mobile like that. I listen, I watched Arden go out the other night. She went to a friend's house. They went from the friend's house to a club. They went from a club back to our house. Like, you know, they were, they were all over the place. Did she have a little, like, lunchbox with her full of stuff in the back of her friend's car? She did, but I watched her. I wish I could. I don't know how many people, like, know what my daughter looks like, but, like, she's really pretty.

[B]

She's really beautiful.

[A]

Yeah, yeah, yeah. And, and, and I dropped her at her friend's house, right. So she said can you take me and my boyfriend to my friends, we're gonna leave from there. And I was like yeah, sure. And she's like she'll bring us home. I was like okay, sure. So I drop her off and you know, the parents are there and so I get out of the car, you know what I mean? Cause it feels weird to like pull into someone's driveway. I don't know you. Goodbye. And so like you get out to say hello and I'm saying hi and introducing myself and everything. And Ardyn comes around the side of the car, she looks like a model and she is holding a green lunchbox, This ridiculous thing and she doesn't think the first thing about it.

[B]

Yeah, yeah.

[A]

And she, she said I put it in the back of the car. And you know, and by the way, interesting story, you know the amount of times she carries that stupid thing with her to this and that or it's in a car somewhere, you know, whatever. You put like insulin's on ice somewh somewhere in a car in the summertime for all the time she's done that. I don't think it's really been a problem ever. You more often than not bring the bag home, set it down, you never touched it. Yeah, but we were having dinner last night and she goes, oh, you know what happened to me last night hasn't happened in such a long time. I was like, no, what? She goes, I was climbing in Kat's car and I knocked my pot off.

[B]

Yeah.

[A]

And I went no kidding, what'd you do? She goes, I just put another one

[B]

on in the car. Right. That was it, right?

[A]

Yeah. I mean you can choose to see that as it getting in your way or you can just not choose to say it that way.

[B]

Like the routine way that she experiences it. Right. Like let's zoom out. Oh, the life saving medical device that keeps you ticking fell off. And so you put another one on. That's kind of momentous. But for all of us and for her, for the people who are living with this thing, it is just. Oh yeah. And then I put another pot on in the car.

[A]

No, no, that's.

[B]

That, that's huge and routine all at the same time.

[A]

And for us and for the other people looking, I do think perspective would help you. I mean really, I mean is it 1920 when they introduced they found insulin. So you know, like my 21 almost 22 year old daughter had that experience. It was a moment where she had to like she was like, oh, that thing came off, that sucked and then filled up another one, put it on, push the button. Back on her way again. As a, as a computer inside of a computer is taking care of it for her. And she's only 120. Some 100 and some years removed from. She would have been dead when she was 2.

[B]

Yeah.

[A]

Like, how is this not a celebration?

[B]

Yeah, it is amazing. It is. I mean, my kids hop on their bikes every morning and bike to school by themselves. You know, they walk home from school, they ski, they're going to go live. They've lived on a sailboat. They're going to do it again. You know, like, life is so full for all of these kids and, and that is a celebration and should be a celebration every day.

[A]

Where do you dock in? In the Caribbean when you go?

[B]

We'll go, you know, we'll cross over probably to like Turks and Caicos and then we'll kind of buzz all over. We're going to go to Puerto Rico. My mom grew up in Puerto Rico, so we'll spend a little time there.

[A]

Nice.

[B]

Well, kind of hop around.

[A]

Can I suggest for an incredibly chill Hang.

[B]

Yes.

[A]

St. John.

[B]

Great.

[A]

On the list there is a little bay called Maho Bay. If I was you, I'd find out how to anchor off of that and swim just really small.

[B]

When my husband Ben was like 19, he had to, he did a year of college and then he was asked to take a little break and he did. And he fixed up a 26 foot sailboat. He named her Ruby and he sailed her by himself. A friend was supposed to go with him to sail to the Caribbean. It was like a 10 day sail. The friend got so seasick that Ben had to turn around and drop him off. And Ben sailed down and lived on St. Thomas in this decrepit old sailboat that he had fixed up. And so that has always been there for him. That, that was such a, like, truly monumental thing in his life. And we were doing couples counseling this fall, as one does when one has three kids, type 1 diabetes. And, and I was like, look, I'm, I'm feeling ambivalent about this trip. You know, like, like we're talking about it. How's it going to work? I don't know if I want to do this again. And he said, here's why I want to do it, because I did it when I was 19 and, and it changed my whole life. And our kids are going to survive. They're going to be fine. But they do have a chronic illness that sometimes kills people. And I want them to go out and do it all just in case. I want those kids to just do everything and anything that they can. And this is going to show them that they can do everything and anything that they want to do.

[A]

It's thoughtful. I'll tell you, Daphne, it's thoughtful because after having close to 2,000 conversations with people, what I can tell you is that not everybody makes it and you don't know who you are.

[B]

Right.

[A]

You have no idea which story is going to be yours. And the best you can do is hope to try to, I mean, point it in a direction, right? Yeah, but there's just the makeup of people. You don't, you don't know what it is. Like, I don't believe that there are people in the world who are, I don't know, struggling and then somebody not struggling. And the difference is that the person not struggling trying and the person who is struggling isn't trying. I don't think, I don't think it's that simple. I think it comes down to a lot of things. I mean, we can list them all, but I mean, from education to intellect to opportunity and support and probably literally like 100 other things that you could list. And, and life is, is so variable that you really don't know, like which one. You go talk to a 90 year old person who's got four kids in their 40s and say, did you always know this is how they were going to end up and they're going to go, no, I had no idea. I thought I did, but none of them were exactly the way I thought they were going to be. And then they, they meet outside forces in the world that, that change their direction again. And you can't get in the way of that. Like, you can't. You know what I mean? Like, I can send Arden out into the world perfect. And if she meets some guy who's crappy to her, could ruin her life.

[B]

Yeah.

[A]

You know, like, that's not a thing I planned, I could plan for as a, as, like, as a, a, as a parent. People might make the argument like, well, you could have made it so she didn't choose him. Or. But I don't think you're in control of stuff like that.

[B]

No.

[A]

Yeah.

[B]

No. And, and that is one of the, it's not a silver line. I hate like when people are like, well, the silver lining is. Or oh, well, at least the kids have each other to go through it. Like, off with that. Their pancreas is like their organs don't work, you know, but as a parent, something that has been a gift of, of is the perspective on, I can't control so many things, but what I can control is giving my kids my love and my attention and my time, and I can, you know, make it work to go do these things with them. Yeah. And that's what I can control. I can't control whether or not their pancreas work. They're totally. But what I can control is that they're going to live really cool lives. Lives. Right now. I'm with you, and I hope I give them the foundation to go off and, and, and do that for themselves. Yeah.

[A]

They should hopefully feel comfortable, believe that things are possible, and then go apply who they are to that possibility and see what happens. Yeah, yeah. But no, I, I, listen, I. There will be times that you look up and think, oh, they all have it. They're actually helping each other, maybe.

[B]

Right.

[A]

Or, like, it's a nice thing to say. Like, like, if that all goes well, then you'll have three kids who are real supportive of each other with their diabetes. I also talk to a lot of people. I'm like, hey, your diabetes, too. Do you ever talk to him about it? No, I've never talked to him about it. We don't talk about that a lot. Yeah, actually, my, My, My sister has it, but she doesn't take very good care of herself. I'm like, why don't you help her with it? Yeah. I don't know.

[B]

Yeah.

[A]

So you don't know how it's gonna go.

[B]

Stop.

[A]

Stop it.

[B]

No, you have no idea. You have no idea. And, and, like, and that's what makes it a universal. Like, that's a universal parenting thing, is you have no idea what's gonna happen next.

[A]

So I'm with your husband. Even though. I'm sorry, I don't mean to take sides, but, yeah, I'd get.

[B]

Yeah.

[A]

When you say you're ambivalent, is it a little bit about been there, done that? Like, we've done this already, and it's a lot of effort. Can we do something else?

[B]

No, no, it was like, we have a good thing going. Our kids like their school. We've got a good community. We've got good school nurses, again, they walk to school, they bike to school. They have these really wonderful lives. And, and it's a heavy lift to go off and do this. And it means this. You know, it. It's a financial lift. It's an emotional lift. And I, So, So I was just Kind of like, how are we gonna make this all work? And why are we gonna make it all work when. When life is like. When life is finally feeling a little bit manageable again? Why do we do this every time?

[A]

I gotta tell you, I got. I. I gotta leave for Miami in two days to go on the cruise with about 100 listeners.

[B]

Yes.

[A]

Once I get on the cruise, I'm gonna be like, this is great. But every day this week, I'm like, why did I say yes? That's all I can think. I'm like, I gotta get on a plane and I gotta pack this damn bag, and then I gotta prep the show ahead of time so that I can go and like, yeah, I don't want to. I don't want to. I don't want to do this. I don't want to do this. And I swear to God, I'm gonna step on the ship, see, the first person, they're gonna smile, and I'll be like, this is such a good idea.

[B]

Absolutely. I'm going to move onto that boat, and I am going to think, okay, this is what we were supposed to do. But you better believe that every day until then, I'm gonna complain to my husband about how much time he's spending working on that.

[A]

You know, this is your fault. If it goes wrong, I'm definitely blaming you. But I'll tell you, if you can't handle that, don't marry a lady. I'll tell you that right now.

[B]

Yeah. Yeah. So here is. And what I. One of the things I wrote down that I wanted to talk about was like. And I. This has been mentioned on your. Your podcast before, but, like, our number one rule, like, the only rule for us is you do not blame the other person about anything to do with diabetes.

[A]

Yeah.

[B]

So you know that. But, like, that doesn't extend to the rest of life.

[A]

No, no, of course not. Everything else. Everything else is not progress.

[B]

Yeah, absolutely.

[A]

My wife asks me why I do things sometimes, and I'm like. Like, I've been doing it that way for 25 years. You've never noticed before. Like, why does it matter today?

[B]

Because we've run out of other things.

[A]

Oh. She. Then she's like, I would do it like this. I was like, feel free.

[B]

Yeah, yeah.

[A]

I'm not married to this.

[B]

Like this.

[A]

Yeah, yeah, yeah. No, no. I mean, how long you been married?

[B]

14 years.

[A]

God, I got you beat by twice.

[B]

Yeah, yeah, yeah. I mean, it feels like. It feels like it's been so long. And simultaneously, it's such A drop in the bucket. But we do. We have been together for 14 years, and I do. He is still my absolute everything. He is the person for me. And I think that that's been a really beautiful part of this experience, is that it drives so many people apart from, you know, it's so hard. It's so hard.

[A]

The stat that I was told when we were diagnosed, when Arden was diagnosed, one in two marriages end in divorce, but two and three marriages end in divorce when they have a chronically ill child.

[B]

Yeah. Did your endocrine. Did your endocrinology office tell you that? Yeah, because I think ours told us that. And I was like, why are you saying that?

[A]

Yeah. I didn't. I was not thrilled when it was brought up. I was like, hey, my kids had diabetes for three weeks. Like, can you hold this good news for a couple of months?

[B]

Back up off, bro. Yeah.

[A]

Having said that, I've said this before. We were in the first carb counting class in the hospital, and my wife and I walked out of it. We were dizzy. And she said, is Arden gonna be able to have babies? And I said, do you think we're gonna get divorced?

[B]

Oh, God.

[A]

Yeah.

[B]

That.

[A]

That's what I said. That's what we. That's what we said to each other walking from the carb counting class back to our daughter's hospital room.

[B]

Oh, my God.

[A]

It's upbeat, I'll tell you.

[B]

Yeah. Yeah. There's a lot about this that's upbeat. Huh?

[A]

Can I share this with you, though? Maybe this is a great place to say this. I have not said this out loud to my wife yet, so maybe I'm feeling this way and I'm wrong, but we'll be in August. We'll be married for 30 years. Wow. And we got married early, so I'm still pretty young. I mean, young compared to young compared to 90 year olds compared to actual young people. And I am starting to have a feeling. Boy, I shouldn't put this on paper. I should probably leave me in three minutes after I say this. But I'm starting to. I'm starting to feel like this is the beginning of the part where we, like, just have got so much time together that everything feels really comfortable.

[B]

Comfortable.

[A]

You know, like when old. When you see old people together and they just, like, they're happy. Like that.

[B]

Yeah.

[A]

Like, I feel like this is the infancy of that part.

[B]

Yeah. That's so beautiful.

[A]

I hope so. But she might be downstairs being like, you know, I gotta get rid of this guy.

[B]

She's actually Writing out her list of demands right now.

[A]

Yeah, yeah, yeah, yeah. She's like, you know what? I'm gonna tell the lawyer he can keep this, but I'm taking this.

[B]

Yeah. And fridge. Yeah. For his DLP1 pen.

[A]

He can keep his GLP in his pants. I think that's fair. Yeah. And I'm up here going like, it feels like the beginning of forever.

[B]

Yeah. Yeah. That's how marriage is at least. Sometimes you got to be on the same page, but you can trade off.

[A]

Other times, we're just really synced up now. Like, it feels like we finally really know each other. I don't. I know that's a weird thing to say, but, like.

[B]

No, I. No, it isn't, because how long does it take you to know yourself? You know?

[A]

Yeah. I mean, I just got to that recently.

[B]

Right. Yeah. Yeah. Like, I'm just learning, and I'm almost 40, so I. I. It does. It takes a long time. And I do think that that having chronically ill children or a child does speed up the process, and that's why so many people get divorced, because it just takes you down to brass tacks. Right.

[A]

Yeah.

[B]

Like, you are life. I mean, we had a situation. We were at IT camps designed for, like, some respite for type one diabetics. It's a great camp, but they serve really high carb food, and it was really challenging. We don't eat low carb, but we eat lower carb than that. Our kids numbers were all over the place. One of them, for the first time ever, he. He crashed so hard. He was at 24, and he was passed out, and we were, you know, we had to do back. See me. And. And it was one of those moments that you have very rarely, but that you do sometimes have where. Where you just wonder if they're going to make it. And. And Ben and I looked at each other afterwards, and. And we just had. We had handled it together.

[A]

Yeah.

[B]

As a team. And that ages your marriage, like, four years in five minutes. Because either you're going to handle it together as a team, and you're going to walk out of it like, I love you so much.

[A]

Right.

[B]

Thank you for being my partner.

[A]

Yeah.

[B]

Or you're gonna hate each other.

[A]

Oh, no.

[B]

I think that's part of, you know, it's like a crucible.

[A]

I feel like, again, I don't want to speak for Kelly, but I feel like we're at the part now where, you know, we'll hold hands and walk into a volcano one day.

[B]

Yeah.

[A]

Yeah. Like so, but I, I'm excited about this part. Extra. I, I, I'm happy to say this. And you said you lost 50 pounds. You didn't say how. But I think the GLP is really, is gonna make the last part of my life a lot better.

[B]

Yeah.

[A]

Yeah.

[B]

So, so I went on Tirzepatide and what it's done for me is it's also really helped with my just like my mental clarity. Like, I, and I just read an article that people are saying this, that it helps with adhd. It's better than any SSRI I've ever tried. It has just made it, it possible for me to focus on the things I want to focus on. You know, walking every day for an hour, doing that stuff, get, you know, it's been life changing in so many ways. Yeah.

[A]

I had a, somebody close to me started on it recently. They're just on a low dose and I just said this in an episode the other day, but I'm going to say it one more time because I think it was really interesting. She's got a nervous stomach and is on a medication for that. Right. And she said, I said, what are some of the benefits you saw this week? And she said, I haven't taken one panic shit. And I was like, I was like, no kidding? She goes, yeah, I haven't run to the bathroom once this week. Wow. It was like, good for you. You should have saw how happy she was.

[B]

Yeah.

[A]

You know, like so.

[B]

Yeah.

[A]

You know, maybe.

[B]

It's amazing. Yeah.

[A]

Just small things. I, again, I don't know what I'm talking about. I barely got through high school, but if it's not lowering people's inflammation and impacting things in all kinds of like, interesting ways, I, I, I'm, I'm crazy, you know, so. Yeah, so we'll see.

[B]

No, it is an amazing thing and yeah. And it enables you to like get through that initial really hard part where a lot of people get stuck. Yeah.

[A]

No, no.

[B]

You know, and I think also as medical parents, sometimes you're just look like I would get to the end of the day and I would have just, you know, it's, it's, it's a madhouse here. Like, like you can imagine, right. I have three little kids, 10 and under, with type 1 diabetes who are running around and jumping and mad and sat happy and sad. Alarms are going off all day. I'm triaging almost every day something huge. And I would get to the end of the day and I wouldn't have really eaten, but, but then I would be by myself. And how I was like. Like, giving myself love was by, like, eating a bunch of cupcakes, you know, eating bread and cheese for an hour. Right. Like, that was the only space I had for giving myself some. Something nourishing emotionally and physically. And. And this kind of. And. And I was really attached to that in a lot of ways. And so this.

[A]

This.

[B]

The experience. My experience with episode is it just kind of like, it cut down that. That noise and that need, and it gave me space to get back to myself.

[A]

Yeah. Also, it's probably so sad. You're probably eating cupcakes, filling the dishwasher, and then passing out.

[B]

Right. And, like, watching, like, get, oh, I'm gonna be up all night. Because, you know, I mean, like, because someone's high or someone's low or, you know, and you're just kind of like, yes.

[A]

Anyway, that would have killed you eventually. Don't worry.

[B]

Yeah. Yep. Yep. Well, I. Here I am. Still standing.

[A]

Well, the good news is you sound too tired to make more kids, so.

[B]

Well, we did take care of that surgically.

[A]

Oh, I was gonna say.

[B]

Yeah. Yeah. There's no chance there. Yeah, yeah, they are great. But. But it would be. It would be another diabetic. Boy, the world does need more. But I'm not gonna be.

[A]

You're not gonna. You're not responsible for another way. Also, I gotta think, a boy who would jump on a. A sailboat and sail to the Caribbean seems really sexy, right?

[B]

Yeah.

[A]

Yeah.

[B]

Yeah. My husband is really something.

[A]

He's tricking you. And he's probably.

[B]

Smart man. I know.

[A]

Yeah, yeah, brilliant.

[B]

He's a. He's a. An excellent lawyer. He can fix anything. He's fabulous. And, you know, I mean, we started looping speaking of diabetes in 2018 with a two year old and our endocrinology practice, the. The head of the endo practice called my husband. It's said we're not going to support you in that you're going to kill your kid.

[A]

Oh, in Maine, too, right?

[B]

Yes. Yeah. So. So then we called Boston Children's and. And they were like, of course we'll take you.

[A]

You know, it's in the ada. It's in the ADA guidelines now that they should. They should support people using do it yourself algorithms.

[B]

I didn't know that.

[A]

Yeah, they just put that in the guidelines that people have been fighting to get that in for a while. It's really cool.

[B]

Wow.

[A]

Yep.

[B]

It is really cool. I mean, the. The world of diabetes advocates advocacy is really cool. And I haven't had any, like, time to dip my toe in, though I do hope that, that somehow on this trip I can kind of wrap in like some advocacy. But I. It is amazing what people accomplish. And it's so true because. Because loop has. Loop made it so that we could get some sleep some nights.

[A]

Yeah.

[B]

Right. If we had just been on the Medtronic or whatever, the Omnipod, you know, initial offering, we wouldn't have slept ever right now.

[A]

It would have, it would have eliminated shots and it would have given you control of like temp basiling and stuff like that. But I don't know, like, listen, you would have to be pretty special to act as an algorithm for three different kids, you know, like. Yeah, I don't, I don't think I could do that either. That's. That sounds mind numbing, especially because you're still also being their parent and they're.

[B]

Yeah, yeah.

[A]

And all the things aside of diabetes

[B]

and you're trying to run a household, you know.

[A]

Yeah.

[B]

You're. You're doing all that and because we're in Maine, you know, it's a, It's a pretty small. There aren't a lot of people here. There aren't a lot of people who have. I think we are the only people in the state who have more than two kids in a family with type one. So you don't have a real. I have a great group of moms who. They each have one type one. We've got a great text thread. But. But that's. What, What's a little lonely about it sometimes is that even I. I found myself. We were at that diabetes camp where we had that huge crash out and we were sitting in the parents support like room and I was like, oh, I'm actually jealous of everyone here because they only have one kid.

[A]

Yeah. How crazy is it? How is it? How crazy that parents with a child with type 1 diabetes don't really understand your situation?

[B]

Yes. Yeah, yeah, yeah. Cause you just can't. So let alone like your average bear, you know?

[A]

No, no kidding. Oh, it just hit me the way you said it like that. Like even like in the niche of a niche of a niche, you're still a niche. Yeah, yeah, yeah.

[B]

I mean, like, what are the chances? You know, what are. They're really low.

[A]

They can't be good.

[B]

20 million or something can't be good, can they?

[A]

Is there a way for us to figure that out?

[B]

Because I think there's a. There's a way.

[A]

They can't be good chances. Hold on A second. Let's see if we can do this. What's the statistical chance of having a child with type 1 diabetes? How does it change if you have four kids? This is what I want to know.

[B]

I want to know this, too.

[A]

Yeah, I'll ask our overlords and see what happens. By the way, this. This thing's gonna ruin, like, legal assistance, huh?

[B]

Yeah. Yeah. Claude has eliminated all lawyer needs, so that's crazy.

[A]

How are they gonna learn? Isn't that how you learn by doing the lower stuff?

[B]

Yes. Yeah. No, I think it's a disaster for the legal profession.

[A]

Yeah.

[B]

I think if I were in law school, I mean, if I were like in my first year of law school right now, I think I would pivot it real fast.

[A]

Well, I mean. Or somebody's going to have to have the nerve to run a. To run a shop where they don't use it and so that people can continue to learn or, or have. Or. Or have the nerve to pay people to do redundant work so they can learn. No known T1D family history. Per child risk, 1 in 300, which is 0.33% chance. At least one of four. 1.3%. 1 in 75. Hold on. While I'm reading this, I'll tell it. Now. Tell me the chances of three of four children. I'll read through the rest of these while it's doing the math on that. Also, I'm using Chat GPT for this.

[B]

Yeah, I was wondering, was it Claude or chat?

[A]

I. I don't. Listen, my Claude is. Is personal between me and him. I don't. I don't let other people into my clot. Okay, That's. That. That's for me. Okay, Y' all can't have that.

[B]

That is exactly how I feel. First degree, my friend.

[A]

Oh, yeah, yeah, no kidding. Did you see Claude made my website over first degree relative with type 1? 1 in 25%. You don't even have any of this. But if you had a first degree relative, it would. It goes to 1 in 20 from 1 in 300, basically per child. That would give you a 18.5% chance of.

[B]

Of all.

[A]

Of 1 in 4 having it. A father has type one puts you at 1 in 17. Mother has type one child born before she was 25. 1 in 25. Mother has type one child before. Born after she was 25. 1 in 100. That's interesting.

[B]

Yeah, that's fascinating.

[A]

Both parents have type one, 10 to 25%. Now, here's. Here's where we care about, right? Assuming you mean exactly 3 out of 4 children using the general population estimate of 1 in 300 per child with no known family history. The math is. My God, the math is crazy. Your. You have a 1 in 6.8 million chance for a family of four children to have three kids with type 1 diabetes.

[B]

Yeah, aren't I lucky?

[A]

It's.0000148%.

[B]

That's.

[A]

That's just. Yeah, yeah, sorry.

[B]

Yeah. What about the chance of then one of those children having a toothpick stuck in their foot?

[A]

Okay, hold on a second. You're making a good choice. What are the chances of one of those four children of getting a toothpick stuck in the bone in their foot in a Home Alone style attack? I don't think it's gonna have an answer for that. But since we're here, I want to look.

[B]

I can tell you there's a 100% chance of it happening.

[A]

It's gonna happen in my house again next week. By the way, do you punish the kid who put the toothpicks in?

[B]

Yeah, yeah. I mean, you know, the toothpicks weren't geared towards. Towards any. It was like a. Oh, this is what. You know, I don't even really know what was going on in their head. It was not geared towards any one particular. But that child did lose all privileges, was not allowed to go to birthday parties and. And did all of the chores of the other child and had to stick by that child's side day and night for four months. So there were certain. I mean, because. Because like you have to learn that, you know, impact is different than intention. And the impact here was so wild. My childhood, the. The kid who had the toothpick had two surgeries, a six day hospital stay. You know, it was like. It has been a nightmare.

[A]

Yeah. I think for all of you who are still not sure about AI, I wish you could see the thoughtful answer it gave about my stupid question.

[B]

What did that? What did that?

[A]

There is no real statistical table for child gets a toothpick stuck in the bone of their foot during a Home Alone style attack. Medicine tracks things like plantar puncture wounds, retained foreign bodies infection and osteomyelitis.

[B]

Yes. Yeah, he had that.

[A]

Okay, not, not. And this is in quotes, Kevin McAllister, assault by toothpick events, which by the way, I didn't mention Kevin McAllister in my question. But the math structure would be this. Chances at least one of four children has an event. It shows you the math you would use to figure that out for rare events that's basically 4 times P so if the chance for one child were made up up so made up per child child risk 1 in 10,000 chances of at least 1 in 4 children 1 in 2500 a real world anchor plantar puncture wounds themselves are not insanely rare. One emergency medicine survey found that 44 of survey patients reported at least one previous plantar puncture. Excuse me, plantar puncture wound though that includes normal stuff like nails, glass thorns, splinters, etc. In that study, 10 infections occurred among 156 wounds. It gives you know links where you can go read more about that. Foot puncture wounds infections are often cited around around up to 10%. And the bone infection or the osteomyositis is a known but much rarer complication. You can go to a PubMed article to learn more about that. But a toothpick penetrating deeply enough to lodge in a bone in is way, way narrower than stepped on something sharp. So the honest answer is statistically unknowable, but almost certainly far less likely than one of four kids getting type 1 diabetes and likely closer to a freak accident territory than normal household risk. Unless of course one of the children lives with Kevin McAllister, then all bets are off. It says thank you. You can make fun of AI if you want to. I think that's awesome.

[B]

That is. Yeah, that is awesome. We this, this experience with the toothpick was like, was so wild that then there was this dark turn where they finally found the toothpick lodged in the foot. You can't see wood on X ray and ultrasound, but those were the only imaging that they did. So finally, he still can't walk. It's April. They do this, the mri, they find a piece of wood. The the doctor goes in to get the piece of wood and next to the piece of wood there's very clearly on the MRI a spot of osteomyelitis, which is a bone infection. And the poor doctor biopsies the wrong part of the bone so she doesn't get a sample of the bone infection. So then we don't know what bacteria caused the bone infection. So then we're in the hospital on IV antibiotics for my poor 9 year old trying to figure out what antibiotics we should even be giving the kid because they biopsied the wrong part of this teeny tiny bone. Teeny tiny type 1 diabetic foot.

[A]

She's probably in there. She's like I don't see this damn toothpick. Yeah, she's got a life too. I think about that all the time. You started talking about doctors and what they don't know. I think about it a different way. I think she's in there. She's looking in that kid's foot and in the back of her head.

[B]

Her.

[A]

Her dog just got hit by a car and her husband wants to go for a thing. Like, she got a whole life, too. Totally. Yeah.

[B]

Yeah, yeah.

[A]

Then. And she's digging around in there, and she got. It's the week before a period. She feels bloated. Yeah. Yeah. She's like, oh, God. Like, I just. I don't know how anything's getting done.

[B]

Absolutely. You know, we. We have. We do like, a concierge doc through our insurance now. And she came into our lives and has become a dear friend. And. And. And that has been, like, so helpful in giving grace to doctors because she has her whole life going on that I now have a little peek into, you know?

[A]

Yeah.

[B]

And then at the same time, she has my texts. Okay. Now we're at 2.1 ketones, and he's still throwing up. I've given him the Zofran. What do you think? Should I head to the er? You know, and then her kids screaming in the background. Because he also has. So I. I agree. They're only human.

[A]

It's just. It's a tough situation. It genuinely is this. I, you know, I go back and forth on it, and I don't. I certainly want people to work. I think I could tell you that. I think that people are inherently better when they have tasks and things they're proud of and things to get up to do and all that stuff. But some of this stuff is going to be better when, you know, when a computer. When a computer is making. Yeah. When the robots take over. Yeah, yeah. Because.

[B]

Yeah.

[A]

Because again, I don't know how many times I can say it. It. You can't hold all that information in your head. And. And this thing can.

[B]

No.

[A]

And.

[B]

Right.

[A]

That's. That's the difference. So.

[B]

Right. Well. And that's. And I actually re. Listened to your. Your interview with Dr. Beach Gem the other day.

[A]

Yeah.

[B]

I don't know, was that December or something? And I was thinking about what you guys were talking about, how, you know, you were saying you come out of med school and you. You can only ever have, like, pieces of something, and yet we walk into the error expecting them to know everything about everything.

[A]

It's insane. Yeah. It would be like if I said to you, you need to understand all the code and law that yeah. Off the top of your head. And not, not just off the top of your head, but by the way, I want, I want to be able to send a crying child who's bleeding from his leg into a room while the mother standing over his shoulder. And I'm going to yell at you about different passages of law and you need to like, get them right the first time. And it has to apply to the thing I asked. You can't, you can't be. Yeah, that's insane. I mean, it's great and I'm happy people do it, but if you don't think that that can be juiced up a little bit, you're not paying attention to how all this works. So you know what?

[B]

I.

[A]

Good, good. I'm sorry.

[B]

I mean, I just think that AI should just exclusively be for medical purposes. That's. I think we should just regulate it so that it's just because it has so many fascinating, fabulous medical applications. What's not so fabulous about it is, you know, people only communicating with their husbands via text that Claude wrote for them. So.

[A]

Well, that stuff is freaking me out. Like, like I'm, I'm like, I don't think anybody's even talking to each other anymore. Like, yeah, your, your AI is talking to their AI, right. We don't. Do we need you or you know, like, and, and that's a disturbing consideration. I also, if it's going to pick bombing targets, I'd like a person to look over it. Stuff like, stuff like that.

[B]

Yeah, yeah, yeah, there.

[A]

But, but if it's just, just if it's just parsing through a ton of static information and say, and delivering back what is like, appropriate, then let's put all the money into figuring out how to do that. Well, like that.

[B]

Right.

[A]

That I think is a great idea. I just don't know that. I just don't know that. Top down, that's how we think about health. No, like, it's easy to say. You know, it used to be all the time people would talk about like, I gotta let you go. This has been forever. But like, people talk all the time about like, you know, we don't do preventative enough. Yeah, humans don't do preventative. Like it's, it's, it's not a failing of the healthcare system. It's how people think. Like, people think like your husband, like, it's gonna be okay, let's go. Like, like, go, go, go, go. No one thinks I should probably eat well today so that I don't get colon cancer 40 years from now.

[B]

Yeah.

[A]

No one's thinking like that.

[B]

Yeah, no, no, because we're just humans. We're all just humans.

[A]

Yeah. Nothing wrong with it. But, you know, like, it's just. I'm stunned by how many people I interview where I'm like, did you not, like. Like, walk? Because I'm a parent of a child with type 1 when. When her blood sugar goes up, I think about 25 years from now.

[B]

Right.

[A]

But if. But I always try to put myself in, but if it was me, I don't think I would think that way. And yet when you interview somebody and you say, like, hey, when you had an A1C of 11 for four years, were you ever thinking, like, like, I'm doing damage to myself. And they. They often go, no, not really. And it's not. And I don't think it's because they don't care or they weren't trying. Like, I don't think it's any of that. I just think it's how people's brains are wired. Like, let's go. I can do it. I think that's where that phrase, I don't let diabetes stops me comes from.

[B]

Right?

[A]

Yeah. Yeah. There are some people who mean, I don't let diabetes stop me. So I take the bag with me, I'm ready in case something goes wrong. I pre. Bolus my meals. And that. That's me not letting diabetes stop, stop me. And I think there are other people who say, well, I just ignore it because I don't let diabetes stop me.

[B]

Yeah.

[A]

And, you know, again, all very human stuff, so. All right.

[B]

Yeah.

[A]

I think it's fair to say that if my wife and your husband go, we should probably get together, I think.

[B]

Yeah.

[A]

Yeah. We obviously would get along very well.

[B]

A lot in common.

[A]

Yeah. Yeah. I mean, the rest of it, I'm not. I'm not paying for kids. I just want to. I just want you to know that up front, especially yours.

[B]

Mine are really expensive.

[A]

Yours sounds sound extra expensive.

[B]

Yeah. Yeah. The cost per child is high here, so I wouldn't blame you, but he'll have life insurance.

[A]

You might want to go more north and try to find even a cheaper place to live if you possibly could. You're seriously. Do you ever think of moving somewhere that we.

[B]

We think about it a lot?

[A]

Yeah.

[B]

Yeah.

[A]

I mean, yeah.

[B]

I think especially as they get older, if we don't have a functional health care system in this. In this country before it's, you know, before they kind of age out of. Of our insurance and whatever Else we'll need to bring them somewhere where they can survive.

[A]

Where do you think of that as being?

[B]

Canada seems very appealing. If they'll take us where? Canada.

[A]

Okay.

[B]

Ireland. You know, we've got some. We've got some Irish roots.

[A]

You got a stake there. Yeah, yeah, yeah.

[B]

So we've got some. We've. We keep trying to get our. Our. We have one parent in particular who could get citizenship, and we're really leaning on that hard. My sister's in Spain, and once she gets her citizenship because she married a Spaniard, I think we could kind of do a chain migration thing at some point down the line to get us over there.

[A]

Do you really think this could happen?

[B]

I do, yeah. Or we can water world it and just live on the boat. Live on Grace o'. Valley.

[A]

Pull into the port.

[B]

That's right. Re up. Just go buy that insulin over the counter and eat low carb and we'll be fine.

[A]

It's okay. Everything will be fine. Everything's fine.

[B]

Everything will be fine.

[A]

Everything's fine.

[B]

Oh, my God.

[A]

All right. You're awesome. I really appreciate you doing this.

[B]

Thank you so much. That was really fun.

[A]

Awesome. I'm glad you had a good time. Hold on one second. Okay?

[B]

Yes. Yeah.

[A]

Are you tired of getting a rash from your CGM adhesive? Give the Eversense 365 a try. Eversensecgm.com Juicebox beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So I mean, that's better. Usmed sponsored this episode of the Juice Box podcast. Check them [e-mail] juicebox or by calling. Calling 888-721-1514. Get your free benefits check and get started today with us Med. Hey, do you need support? I have some stuff for you. It's all free. Juiceboxpodcast.com Click on support in the menu. Let's see what you get there. A1C and blood glucose calculator. People love that. That's actually, I think, the most popular page on the website some months. A list of great endocrinologists from listeners that's from all over the country. There's a link to the private Facebook group to the Circle community. And we have a fantastic thing there, American Sign Language. There's a great sign language interpreter who did the entire Bold beginning series in asl. So if you know anybody who would benefit from that, please send them that way. Just go to juiceboxpodcast.com and click on Support. While you're there, check out the guides like the Pre Bolusin Guide, Fast and Protein Insulin Calculator. Oh gosh. Thyroid GLP Caregiver Burnout. You should go to the website. Click around a little bit on those menus. It really there's a lot more there than you think. If you've ever heard a diabetes term and thought, okay, but what does that actually mean? You need the Defining Diabetes series from the Juice Box Podcast. Defining Diabetes takes all of those phrases and terms that you don't understand and makes them clear, quick and easy episodes. Find out what bolus means, basal insulin sensitivity, and all of the rest. There has to be over 60 episodes of defining Diabetes. Check it out now in your audio player or go to juiceboxpodcast.com and go up into the menu.