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A
Welcome back, friends. You are listening to the Juice Box Podcast. Nothing you hear on the Juice Box Podcast should be considered advice, medical or otherwise. Always consult a physician before making any changes to your healthcare plan. If you're looking for community around type 1 diabetes, check out the Juice Box Podcast. Private Facebook group juice box podcast type 1 diabetes but everybody is welcome. Type 1, type 2 gestational loved ones. It doesn't matter to me. If you're impacted by diabetes and you're looking for support, comfort or community, check out Juice box podcast type 1 diabetes on Facebook. All right, let's get down to it. You want the management stuff from the podcast. You don't care about all this chitting and chatting with other people. Juicebox podcast.com lists they are downloadable, easy to read. Every series, every episode, they're all numbered. Makes it super simple for you to go right into that search feature in your audio app. Type juice box 1795 to find episode 1795. Juicebox podcast.com lists hey, quick word from a sponsor. If you're taking care of someone with type 1 diabetes, this part is for you. Twist is a newer automated insulin delivery system with thoughtful features designed to help people stay connected, supported and flexible for the real life ups and downs of diabetes. Learn more and get started today@visit.twist.com juicebox today's podcast is sponsored by us med usmed.com juicebox you can get your diabetes supplies from the same place that we do, and I'm talking about Dexcom Libre, Omnipod Tandem, and so much more. Usmed.com juicebox or call 888-872-11514. The show you're about to listen to is sponsored by the Eversense 365. The Eversense 365 has exceptional accuracy over one year and is the most accurate CGM in the low range that you can get. Eversensecgm.com juicebox hi, my name is Brianna. Brianna. Oh, don't get me. Sorry. Do it again.
B
Hi, my name is Brianna and I'm Jesse.
C
I'm her dad.
A
All right, Brian, how old are you?
B
I'm 11 years old.
A
11? You have type 1 diabetes?
B
Yes.
A
How did you end up on this podcast? What happened?
B
So I wanted to be on the podcast because my dad was on the podcast in episode 1350 and I sent an email saying, like, I'm, I'm a gymnast who wants to be on the podcast. And here we are. Cool.
A
Blake, what do you remember about doing it? How long ago was that?
B
Honestly, I forgot. I think it was like a couple months ago.
A
A couple months ago you sent me the email.
B
Yeah.
A
Okay. And Blake, you were on the podcast. Was it years ago?
C
I was last year. Or just over last year.
A
And Jesse, I'm sorry, I'm calling you by your last name. I apologize.
C
It's okay. No, yeah, I was on last year or just past last year, maybe a year and a half. And I got on because I wanted to kind of talk about some of the mental health stuff with the, you know, with the newly diagnosed kid.
A
Yeah. How are. How have you been since then?
C
Great.
A
Things are better.
C
Yep. And Brianna is thriving.
A
That's awesome. What do you think made it better for you?
C
Time. I think as you go on, you know, with this diagnosis, things become more manageable. Put things in perspective and you just see, you know, I could just see how Brianna has, you know, grown and managed it, and things just gradually keep getting better and better.
A
Your anxiety about it goes away or you build more experience and it feels more knowable. Any of that sound true?
C
Yeah, I think for me, the unknown, so the beginning, the anxiety, as far as, like, the unknown and some of the challenging aspects of it, learning how to manage it is tough, but as you do gain experience, I think it is much. It's, you know, it's never easy, but it's definitely more manageable and you learn and you kind of understand it a little bit better.
A
Okay. Brianna, how old were you when you were diagnosed?
B
I was eight.
C
Eight.
A
And that's what, like, three years ago maybe?
B
Yeah.
A
Okay, can you tell me what you remember about the time leading up to the diagnosis?
B
So we went to Disney in the end of 2022, in December. My parents said that they noticed I was, like, off, and when I looked back at pictures, I was, like, really pale, really sc. Skinny, and I was, like, kind of miserable the whole time. I always complained I was, like, really high because it was really hot. But I came back, and then I was, like, always super tired. And then in January, I was, like, going into school and I was chugging water bottles, and I was going to refill them, and I was still, like, super thirsty. Like, I haven't had any water all day, and I was chugging water bottles.
A
I have to tell you, when I took my kids to Disney, I was complaining that it was hot all the time, too, but I did not end up having diabetes. Also, what are those bugs? Do you know what I mean? Like, you ever ride the. Did you ride the bus, like, from the resort to the. The park and There were these giant bugs just smushed on it. It's very, very unsettling. I didn't, I didn't enjoy it all, so. So this was like a Christmas time trip for you?
B
Yeah, it was. I think it was over my birthday, which is in December. Beginning of December.
A
Okay, so. So you get home, the. The drinking continues. Do you tell your parents about it or how did. Or do they see it on their own?
B
They saw it because I didn't really notice it until I looked back and I was just noticing like there was this one day. I don't know why I remember it, but I do. But I had my water bottle and I was chugging. I had to keep it on my seat. I went to refill my water bottle at least five times that day. And in first grade, I had to start, like, we were only allowed like three bathroom visits a day. And I was like using and I was still needing to go. So sometimes I would have to go four to five times a day, which was a lot.
A
Your school limits, your peeing?
B
Not really. But like they. She said there's only. Well, my teacher was really annoying, but anyway, she said like only three bathroom visits a day, unless it's an absolute emergency.
A
Sounds like some kids were taking advantage of the bathroom.
B
Yeah, one kid was spending 30 minutes in the bathroom at a time talking to his friends. He wasn't even in the bathroom. That ruined it for the class.
A
Nobody can pee. Ridiculous. So, okay, so it's getting worse and worse and worse. Just. Do you. Do you look at her and think she looks different or is it really just the drinking that throws you off?
C
No, we didn't notice that. I think the drinking and the peeing were the two main factors for us.
A
Okay, so this makes you go to the doctor?
B
Yes, eventually.
A
Eventually. And do you have any recollection? Brian, I'm really interested. Do you have any recollection of going into the doctor, what you thought was happening and what you knew was happening when you left?
B
I had no idea what was happening. I just. I remember I was mad that I had to go. So I got picked up from school early that day. And then we went to the doctor's office. I said, ask my dad if I could get a smoothie. He said, yes, but then he knew what was. He had a feeling what was going to happen. And we never got that smoothie. He said maybe after, because we were running a bit late. We showed up. They said our appointment was actually for the following week, but they said they could fit us in that day and they checked my blood sugar. It was 401. And they sent us straight to the ER. And that is all I remember.
A
It's a good thing you guys got the date wrong on the, on the appointment or did you just hear you just like, we'll just show up and pretend we didn't know.
C
Yeah, that's. It's a funny story because I, I don't, I vaguely remember that, but I, I remember my wife kind of like she, she knew. And even, even me, I was denying it because I was like, yeah, we'll get a smoothie because you got to go to the doctor. I'll treat you to a smoothie. And even I had like smoothie King. Yeah. And I had an idea. But like, even that, like denial of, yeah, we could just get a smoothie and then thank goodness we were running late because then she would have been like through the roof.
A
But, well, in fairness, Jesse, you were a week early.
C
Yeah. So we were just, we were just going. We were, you know, have. Get a smoothie and we'll eventually make it to the doctor.
A
Brownie. You know your dad feels bad when he says yes to a nine dollar smoothie. You know what I mean?
B
Yeah. And those smoothies were like so much sugar. They were like 50 carbs. They were.
A
I know. Smoothie King Arden gets them sometimes and we ask for half sugar and they're still really sweet.
B
Yeah.
A
So I hear you. Okay, so now the doctor says, do they say type one or do they just say you need to go to the hospital? The Twist aid system also adjusts basal insulin every five minutes, using a six hour prediction of where glucose may be going, helping things stay on track throughout the day. And for the person wearing it, Twist is the only automated insulin delivery system that can be controlled from an Apple watch, making it easier to check in, enter carbs, or deliver insulin discreetly when pulling out a phone or pump is not convenient. The pump is small and lightweight, so it can clip to clothing, go in a pocket, or be used with third party adhesives depending on what the day looks like. Even with that small size, it holds up to 300 units, so you are not giving up capacity to get that flexibility. With Twist Insight app, up to 15 people can follow along with glucose levels, active insulin, carb information, and important alerts from the Twist pump app so you can stay connected without feeling like you need to hover. To learn more, go to my link visit.twist.com juicebox that's visit.twiist.com juicebox Today's episode is sponsored by a long term CGM that's going to help you to stay on top of your glucose readings. The Eversense 365. I'm talking, of course, about the world's first and only CGM that lasts for one year. One year, one CGM. Are you tired of those other CGMs, the ones that give you all those problems that you didn't expect? Knocking them off, false alerts, not lasting as long as they're supposed to? If you're tired of those constant frustrations, use my link eversensecgm.com juicebox to learn more about the Eversense 365. Some of you may be able to experience the Eversense 365 for as low as $199 for a full year. At my link you'll find those details and can learn about eligibility. Eversense cgm.com juicebox Check it out.
C
I.
B
They didn't tell me anything, but they, I think they told my dad something.
A
Okay. Yeah, the.
C
They, they essentially said, we think it's type 1 diabetes. But in order to confirm, here's the amazing part is the doctor's office that we went to, which is not the regular office we go to, it was like a satellite location. They didn't have a finger stick. So they sent us to another office and we end up going, it was on the way to the hospital, but we ended up stopping there. They did the finger stick and they're like, yep, you got to continue on your way to the hospital.
A
It's like, it's like, it's like a board game.
B
Yeah.
C
A lot of moving parts. And we were early.
A
Pick Brian up at the school. Go to the doctor's office. The doctor's office doesn't have a meter. Go to the other doctor's office.
B
Go to the hospital.
A
That doctor's office seems mortified. Run to hospital. So how long were you in the hospital, Brianna? What do you remember about the stay?
B
I was in there for three days. I had no idea what was happening. I was crying in the car. I was super upset because I had no idea what just happened. I didn't know if I was going to be okay. Was I dying? Nobody would tell me what was happening. We got into the er. We got like seen right away. The ER was packed, but we got seen right away. And like before I knew it, I had an iv. I was in a bed and they were like talking to me about like a medical ID bracelet, which I had no idea what was even happening. Why are they, like. Like, giving me.
A
That's the first thing someone said to you? You're gonna need a medical ID Bracelet?
B
Yeah, she just had, like, a bunch, and I chose the pink one, and they gave me a blanket, and. And then they sent me to the icu.
A
Oh, I see. They laid some gifts on you to try to make you feel better, right? Jesse, does it surprise you to hear that she felt like nobody was telling her what was going on?
C
Yeah. And to be honest, like, I know, for me, like, it was shock complete. And even kind of going into the doctor's appointment, having the idea of, well, here's all the symptoms. This is what it looks like. This is probably what it is. Still just denying that and not really facing reality, like, how could this be? And this. Are they right? And could it be something else? And. Yeah, all these other things that. Even for me, like, I. Like I said, it was just shock and not.
A
Brianna, is it hard to hear that your dad was struggling, or do you understand that already?
B
I understand that he was struggling, but it is hard to hear because he was just, like, trying to get me to the hospital. Didn't really know, like, too much about what was happening. We both were, like, surprised.
A
And what does this teach you about having children?
B
Don't be surprised.
A
Yeah. Don't be in a hurry.
C
You know what I mean?
A
There's a lot of work, so don't
B
say yes to smoothies right before the doctor's office when you do something is wrong.
A
That's all you've taught her, is that one day she will not stop anywhere for a child while she's taking it to a doctor. Doctor's appointment.
C
It's good advice.
B
Yeah.
A
We'll do it after. It'll be fine.
C
Yeah, after is fine.
A
Yeah, you'll. You'll enjoy the lollipop way more. Don't worry about it.
B
Yeah.
C
Yeah.
A
Do they still do lollipops at the doctor's office?
B
Not really, no.
A
My bank has them.
B
They do them at random places.
A
Yeah. Like, you know, the little dum dum ones. Why do they call them dumb, by the way? Why? All right, that's not really for our conversation, but the little round ones, I actually have to go pick up a check to pay a bill later. I'm gonna. I'm gonna get a root beer while I'm there.
B
I think the root beer is the best flavor.
A
You and I agree on this. Absolutely. So by the time you leave that hospital, have people come to visit. Do you feel any better? Is it still just scary What. What happened during that time that worked for you or didn't work for you?
B
It was all scary. I, like, was not happy that I had to get shots because I was thinking, like, it's a shot every time I have to eat. So then I would, like, just be upset because I didn't want to, like, have a shot all the time because it was really annoying. My. She used to be my babysitter, and she came. She came and visit me in the hospital, and she's, like, the best. And she visits us even though she doesn't babysit us anymore because she's more like a family than just a babysitter.
A
That's sweet. Do you know anybody else who has type 1 diabetes?
B
Yes.
A
Who?
B
A lot of people. So nobody in my school, but I have, like, a lot of friends through, like, the Youth Ambassadors and through Breakthrough, I met a lot of friends.
A
Oh, you're doing stuff with Breakthrough?
B
Yeah.
A
Oh, that's nice. How long have you been at that?
B
A couple years.
A
What are some things you've done so far?
B
So I'm a youth ambassador as of this year. And last year we went to, like, the Turtle backstoom meetup just when we got diagnosed because we got really lucky just when we got diagnosed. Like, the meetup was right after that. And then we went. We do the walks every year, and my parents run the support group.
A
Oh, that's very nice, Brianna. I don't think anyone's ever described. I was very lucky about when I was diagnosed with type 1 diabetes because that guy's go to the zoo. It's kind of nice. I'm wondering, Jesse, is this a thing you and your wife decided to do and then she started being involved? Do you feel like it's a thing you introduced her to drug her into or that she was interested in?
C
So I think the driving factor, I mean. Well, like Brianna said, we did get lucky timing wise. Like, right after we come home, we learn about, you know, obviously in the hospital, they give you all the resources. We were at Jersey Shore and Jersey Shore was amazing. Her doctor. Her doctor is amazing. But, like, at that time, they gave us all the resources. Hey, you could go to this, you could go to that. So we ultimately did go to the meetup. She met, like, we're still friends with the people that we met that day, but it was a. It had a huge impact that day, like, and how she connected with a current youth. Like a youth. There was. I think she was. She was 8. And the youth ambassador at the time was like, 16, 17, 18 someplace in there. She was just going to college, and she was so helpful to Brianna. And then there was other girls there who had different pumps and whatnot, and they were talking about it the whole time. So that was like, a huge connection. And then after that, she goes back to school, and she doesn't have anybody in her school who has type one. So it was kind of like a phase of, like, you know, being alone.
A
Yeah. You felt surrounded, then alone. And did that. Did that make you want to be a youth?
C
So then.
A
Oh, I'm sorry.
C
That's a good to be or not. It was kind of like, well, she needs some connection. Like, well, who can we connect her with? And like, we were trying as parents to do things to kind of connect her to people with type one so she didn't feel alone. And then. And then she kind of took it from there, I think.
A
Do you feel that way, Brianna? Do you feel like it was your decision to do this stuff?
B
I feel like you guys kind of, like, pushed it and, like, had me do it, but then I, like, liked it, so we kept doing it.
A
So instead of pushed it, we'll say they introduced you to it and you weren't sure at first, but then you really liked it.
B
Yeah, that is true.
A
We should clip this part out and send it to my kids. You've probably heard me talk about US Med and how simple it is to reorder with US Med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up? They don't just randomly call you. But I'm set up to be called if I don't respond to the email because I don't trust myself 100%. So one time I didn't respond to the email. And the phone rings at the house. It's like, ring. You know how it works? And I picked it up. I was like, hello. And it was just the recording. It was like, us Med doesn't actually sound like that, but you know what I'm saying? It said, hey, you're. I don't remember exactly what it says, but it's basically like, hey, your order's ready. You want us to send it? Push this button if you want us to send it. Or if you'd like to wait. I think it lets you put it off like a couple of weeks or push this button for that. That's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it. Usmed.com juicebox or call 888-721-1514. Get your free benefits checked now and get started with US Med, Dexcom, Omnipod, Tandem Freestyle. They've got all your favorites, even that new eyelet pump. Check them out now@usmed.com juicebox or by calling 888-721-1514. There are links in the show notes of your podcast player and links@juiceboxpod to US MED and to all of the sponsors. You know what I mean? Maybe once in a while we know something. Who knows? Crazy Jesse, right? Like every once in a while you might have a good idea. It's hard to believe, Brian.
C
Brianna is the type that she just does though. She like, you know, she gets something in her mind and wants to do it and she just does it. So, okay. And in my eyes, she did it. But a good example is like last year as a youth ambassador, part of her requirements of doing things, like, she's like, I want to have a picnic for everybody. And she was like, you know, she came up with the idea and she was like, let's do it. And she put together a picnic for all the youth ambassadors and that was, you know, it's all her. She gets this idea and she does it.
A
Brianna, how do you facilitate that? Like, once you have the idea, how do you put it into motion and make it happen?
B
So I introduced the idea to them. They said it was a great idea. And then I started to make it happen. I just made like the rcp. I decided where we would do it. We did it in Liberty State park and it was very fun.
A
Now do you need to get like a, like you can just show up at Liberty State park with a bunch of people. Do you need to get a permit? Like, I'm trying to figure out like, who does all that back end or do you just look at your mom and go, it would be nice if there was a picnic at Liberty State Park. Let's get it, let's make it happen.
B
Yeah. Dad looked into it and he figured out like how we would do it. There was like little rent out spots that we rented out, like a little section. There was like six picnic tables, I think.
A
Yeah. And it sounds like you're your dad's project manager.
C
Yeah, she is. She came up with the idea. And then, you know, the permit part, I was like, okay, I'll take care of the permit. But she put together the whole rsvp she sent out to the group and, you know, she had people come with. And while we were there, I guess she did. She did a couple of different games that we didn't even know. Like, she. She had it all planned, like, as far as. I just, you know, did the legwork as far as the little stuff, but she made the actual day happen.
A
Brianna, do you think. Are those that group of kids, Are they. Would you describe yourselves as friends or just people who do a similar thing and get together once in a while?
B
I'm friends with, like, some of them. Some of them, I don't. They didn't really talk, but, like, I'm friends with, like, some of them still. And, like, there's a youth ambassador group chat that I'm in and we talk, and I made a lot of friends through that.
A
Well, that's a great idea. Do. Would you. This is. I don't mean for this to be negative, and I really. I'm just trying to understand, like, the bigger picture. Do you think there are kids who are doing it who are just like, I, I don't want to be doing this, or do you think that that was a quick yes? Okay, what. What gives you that idea? Besides, they probably told you that I don't want to be doing this.
B
They just don't do anything. They just, like, sit there and I'm like, I don't want to be here kind of thing. Like, at the summit, there was, like, some youth ambassadors that clearly did not want to be there. And you could tell their parents wanted them to be there and kind of forced them.
A
Do you think. Have you ever seen one of those kids come around, or do they generally go in the same direction that they start?
B
They go in the same direction.
A
Okay. What do you think? What do you think you're getting out of the experience that is not intersecting with those people?
B
I think I'm getting out of it a lot of good because I'm meeting a lot of friends, and those people, they just stand there. They don't affect me. So.
A
No, no, no. I don't mean that they're doing anything wrong. I mean, like, why. Like, how do I mean this? If I. If I brought a birthday cake to 10 people and five of them love cake and five of them don't, then there's something that the five who are enjoying it are getting that the other five don't. Right. So about that experience about being a youth ambassador, like, what is it that you love about it, and do you have any thoughts about why they don't feel the same way?
B
I think I love it because it's probably more of my, like, interest. And I like helping people. And not everyone likes to be, like, helping people that, like, need help and, like, meeting new people. Because I understand that some people are shy.
A
Okay, so you think sometimes it's just some people are shy or they're not the same in social situations, that kind of thing. And you're more outgoing?
B
Yeah.
A
Okay. What else do you do with your time? I. I mean, you go to school, obviously, but do you have activities that you do?
B
I'm a trampoline gymnast.
A
Oh, like Charlotte?
B
Yeah.
A
Oh, do you know her?
B
Yeah.
A
Oh, wow. Tell me a little bit about that. How does that get started?
C
I wouldn't say you know her. You do know.
A
Well, she knows of her.
C
Yeah.
B
Yeah, I know of her. Yeah.
A
Well, she might hear this, and then you might know her. Who knows about that? But tell me about how that gets started. How do you start doing that specific activity?
B
So at like, two or three, I think, or three or four, I started artistic gymnastics and did that for a couple years as, like, a little kid. I love doing everything myself. Like, every time I was doing, like, pullovers on the bar, my coach would be try to help me. But I was saying now and then that place got shut down, and it was Covid. I kept doing, like, cartwheels and handstands around the house. And for when Covid happened, my parents were looking into gyms, and we found one that's, like, five minutes around the corner, and I absolutely love it. And it happened to be a trampoline gymnastics gym. Everyone there is very nice, and I love it there because I'm on the team now, and I'm going to nationals next week.
A
Oh, congratulations. That's really awesome. So you've been doing it for a number of years? Yeah, for longer than you've had diabetes.
B
I've been doing. I would say I've been doing trampoline for four years, and I've been diagnosed for three because I remember I did a year without having diabetes, but.
A
Okay. So do you know that a lot of people who have Type one will say that the thing that they're most scared of is a trampoline?
B
Yeah.
A
Yeah. Do you know why that is and how have you figured it out?
B
So last week I was at practice, I was just doing my routines, getting ready for nationals, and kept flying off the trampoline. I was low that whole practice. I ended up leaving early because I ended up doing my routine on tumbling to my stomach, which hurt. And. Yeah, I can tell. And also they make your blood Sugar drop like crazy.
A
Yeah. So how do you handle that?
B
That's a good question. I don't really know because I just. We always do activity mode. I have an Omnipod 5 and then we have a bunch of Gatorades and juice in my backpack in case I need it.
A
How often? How often do you need it? Like, how long? I guess. How long's a practice take?
B
Okay, so this fall practices.
A
Hold on a second. Your dad just laughed. Like, my whole life.
B
The fall practices were three and a half hours to four. And then the summer are three to four hours.
A
Wow. Are you moving the entire time or is it because.
B
15 minute break for 4 hour prac for our practices.
A
But my point is, like, how many people are in the group? Like, how many people are on the team?
B
So there's like 30 people on the team. We have three events. Not everyone ever comes. So there's not been a single day unless it was like a mandatory practice before a competition that everyone has been there. And so there's like 25 people.
C
And.
A
And do those 25 people, are they active all at the same time? Are they taking turns?
B
We take turns. But like, when you're not taking your turn, you're either doing drills, pushing the mat for people on trampoline, or like gutting water.
A
Okay, so you're always moving pretty much. Okay.
B
Sometimes you get a break.
A
How often do you get low during a practice that's three or four hours long?
B
So I think the thing that makes it like even out is because when I get like stressed about doing a new skill or my routine or something, or presenting anything, I. I get a little nervous, which makes my blood sugar go up. So that probably prevents a lot of lows. And then I think if I, like, I'm just doing a regular practice, I can get low up to like, it can be from 0 to like 10 times. I'm not even joking. I get low a lot.
A
Do you have to eat before you go to practice or do you try not to do that?
B
So it always works out that I eat before practice because practices are like the fall ones were 5:30 to 9 and like 10 to 2 in the morning. Well, in Saturday, so I would have my breakfast before I leave and. Or I would have dinner before I leave. And I always have a snack before I leave.
A
So I'm sorry.
B
5:30 in the morning, 5:30 at night.
C
Oh, God. Yeah. So like, gymnastics is crazy because it's literally 12 hours a week. And like, like, I would love to say, like, we strategically eat at such A certain time and, you know, manage the, like a low carb thing so you don't put a lot of insulin on board. Like. Right. That would be a perfect world.
B
But we're just not dose a lot.
C
It's just. It's impossible. So, like, because she comes home from school and then she goes straight to gymnastics, like, it's. She has to eat. And then depending on what she eats, like, we'll dose. We'll do like a half dose will, you know, so she'll run high and then she'll come crashing down as soon as she gets on a trampoline. And what's interesting is, like, during gymnastics, like, she could be tumbling for an hour straight, or on the double mini, which is like kind of like a vault for two hours, and she won't really come down. She can be stubbornly high, but then as soon as she gets on the trampoline, she'll crash.
B
And then sometimes you don't know if it's raining. That means, like, we should dose a little bit extra because that means we're not going to run outside in the beginning unless we have Rob. But he. Because he makes us run.
A
Rob makes you run in the rain?
B
Yeah.
C
Wow.
A
What a jerk. How come he doesn't care if you're running in the rain? Does he like it? Maybe. Does he run with you?
B
He just does that, I guess.
A
No, no, no, wait. Does he run with you?
B
No.
A
Does he stand outside with an umbrella and look at you?
B
No.
A
Does he stand inside and wait for you to come back? No. Where's Rob during the run?
B
As long as it's not thundering. He stands under a tree.
A
Rob, come on. He makes the kids get what he doesn't get. What? With you? Ridiculous. Yeah, okay, well, we'll see what we can do about that. I bet you Rob never thought he'd be on a podcast standing under a tree. He'll rethink it after he hears this.
B
Sometimes if we get lucky, if it's pouring, he'll sometimes let us go inside and just run inside.
A
How generous. So. So, Jesse, what you're telling me is, is that despite knowing what to do and having a lot of good intentions, life gets in the way. And you don't always do what you need to do.
C
So, I mean, we're, We're. We are conscious of it and, like, we definitely know, like, all right, tonight's a gymnastics night. Let's put you in activity mode early. Let's, you know, not load up on the carbs. Let's not crush you with insulin, you know, like, so, you know, we are purposeful, you know, and knowing she's going to eat this meal, we're only dosing half. She's going to go high, but she is going to come back down. So it's like, so we try to set it up so that she is a little high or she doesn't have a lot of insulin on board so that we can manage below.
B
We're having dinner really early because if I have dinner early, the insulin has time to, like, get out of my system.
A
So you're making a lot of, like, purposeful steps, but it's just not that easy. And then the trampoline is the X factor.
C
Yep.
B
Yeah.
C
And then, like, so what Brianna was talking about last week, she. She just was. She was literally low for an hour. She was between, I don't know, 65
B
and like, two hours.
C
65 and, like 72 kind of thing where 50.
A
How does that. Brianna, how does that feel?
B
I felt low and I was just shaky the whole time. And of course, we had trampoline first that day. Of course. And it was only two people on my trampoline, so it was just me and them switching and switching the whole time. And that person took very short turns.
C
Yeah. So it's the. Actually. And it was like the perfect storm because she had more insulin on board that we. Than we would like. The person she was sharing a trampoline with was actually injured, and she was just kind of like, bouncing, so she wasn't really.
B
Oh, yeah.
C
Doing like a full workout. So Brianna had the trampoline for most of the time. So it was just, you know, like, the fact that she was only as low as, like, 65, 60, whatever. It was like, it. It's actually kind of crazy because she should have been way lower.
A
Yeah.
B
Yeah.
A
And when that's happening, does your dad know? I'm assuming your dad's the one who sits with you and watches most of the time.
B
Yeah. Okay, so if. If I'm good, like, if I'm like, if I'm like 180, I don't have a bunch of insulin on board. If I'm like, maybe 150ish and I'm a little bit. A lot of insulin on board, they stay in the area because it's really close, so they just stay home. And if they see me dropping, they'll come and see if I need anything or. Or they'll sit in the parking lot and stuff.
A
Okay. And do you ever, like, when you're feeling like that, tell me why you don't just stop and say, I don't.
B
Sometimes I feel like that when I'm high. Sometimes I feel like that because I'm nervous about a routine. It's. I can't tell if it's low or not, and sometimes it's not low, and it's just really.
A
So you don't want to go to your phone to check?
B
I don't know. Actually, I think.
A
I'm not saying it's a bad thing. I'm just trying to understand, like, what happens.
B
So it would be good if I had my watch on, but, like, I typically don't have my watch on when I'm tumbling because I have these things called tiger paws, which go on your wrist and help you tumble. So I can't really wear my watch with them. So I take it off. But sometimes I just take it off before practice because it's just easier.
A
Yeah.
B
So don't forget. And then when I'm putting my tiger paws on, I have my watch on. Have to go take it off, put it back in the break room, and
A
get it back out the break room. So is. Is your phone not out near you while you're jumping?
B
It's close. Yeah, it's in the. The break room's just, like, the cubby room that. It's like a little room attached to it. It's where we put our bags and stuff. And the gym's not that big, so no matter where I am, it pretty much will always connect.
A
Okay, so you're. So your Dexcom connected, but it doesn't necessarily mean Dexcom. Right. Libre. What are you using?
B
Dexcom.
A
So it's connected, but you. But you don't necessarily hear the phone. So now you're just left with how you feel. When you don't feel right, you don't go check on yourself.
B
Sometimes if I really don't feel right, I'll go and I'll ask for water, and then I'll go. All the coaches now, so just like, no.
A
And would they be upset if you went and took care of something?
B
I just ask them first. Because you have to ask.
A
But let me.
B
Unless you're on trampoline.
A
Yeah.
B
Like certain coaches, then sometimes you don't have to ask for, like, water.
A
Brown, let me ask your dad the question. Okay. Is she being judged? Jesse, Is there a fear that she's gonna not be treated seriously or something like that?
C
No, her. Her coach. So this is like the parents challenge. Like, I. We talked to the coaches, and we were kind of like, we don't want to put the phone with you. And they don't kind of like, make you responsible because they're busy making sure girls don't hurt themselves. So, I mean, they're constantly doing stuff, so they. They really can't pay attention to it at all. To a degree.
B
At competitions, though, they hold my phone sometimes and, like, during regionals warm up, because that place was huge. They, like, had me hold my phone, and then when I was taking my turn, they took it for me and just held it while they were holding the mats.
A
Okay.
C
And. And they're good. Like, pretty much. Like anytime I walk into the gym, they literally look right at me and it's kind of like, do you need her? Is she low? Yeah, you know, they're kind of like, looking and they call me over, you know, like, we know why you're here. You're here because she's low again. Okay. And they call it. They say Brianna. And Brianna comes running over. So it's kind of like just a. It's more of an understanding. Like they. They really don't know anything about it and, you know, the intricacies and how it works and whatever. They just know picture stuff. Yeah, they just know if she's low and I walk in or mom walks in, like, chances are we need her and they just send her over to us and stuff.
A
Okay, so Brianna, let me ask you this. Is trampoline and gymnastics not better for you personally when your blood sugar is more stable or not low?
B
It. Like, at states, I probably could have won if I got second place if I wasn't low, because I was low and I was like. Had a whole Gatorade, like a huge, like, the big one, which are like 35 carbs. I had a whole one of those. I probably could have won if I wasn't, like, shaking the whole time because I was low.
A
Okay.
B
At regionals, I was shaking the whole time because I was just nervous. But if I noticed if I'm low or if I'm high, I don't perform as well as if I am, like, in range.
A
Now, I'm keeping in mind that you're 11, okay? So I'm not being hard on you here. Okay? But if that's the situation, has it occurred to you to just check sooner and make sure that you're going to be okay? Like, be ahead of it somehow instead of, like. Because I feel like what's happening is that you're getting low and then addressing it. Is there not a way to address it so you don't get low. So there's still two things happening except they happen in a different order.
B
So sometimes I'm on other events. Like my events are stacked and they typically have us waiting on the floor for a little while or like in the chairs before they bring us out. And I don't have like my phone's all the way in my bag or my parents have it. So I don't really have like anywhere because I can't wear my watch while you compete. So I can't really tell where, like what my numbers are.
C
So it's kind of like on us
B
or like I have it for the coaches sometimes if I'm going to like the far fetch. Sometimes I have like, sometimes we're on the floor warming up and then I have an event right away. So it doesn't think occur to me to check because I'm always the last in line. It's either I'm the first in line and we're waiting on everyone else or I'm the last in line. And if I'm the last in line, that means I was rushing. So that means I don't really have time. I just have to grab my tramp shoes or my tiger paws and run to the event.
A
So is so Jesse, is it that you're not seeing it coming? Because like, listen, Brianna, have you ever heard this? An ounce of prevention is worth a pound of cure.
B
Yeah.
A
Have you heard that?
B
Yeah.
A
Do you know who said it?
B
No.
A
Benjamin Franklin. Do you know when he said it?
B
No.
A
February 4th. 1735.
B
1735.
A
Yes. Let's, let's do the quick math on that. 1835. 1935. 2035. It's 2026. So we take nine away from that. It seems like that might be one two, two hundred and ninety one years ago maybe if my math is like roughly right. How come we haven't learned yet what Ben Franklin was trying to tell us? Brianna, what's going on? How come we're slow learners, people? Because I, I have the same problem. Let me. May I share something with you? I was just on a cruise. I was gone for nine days every day. I was gone two travel days, seven days on the ship. I took all of my vitamins. I did all of the things I was supposed to do for myself that I've set up previously. I had a wonderful nine days. I got home and the second day I was home, I didn't take my vitamins. What's wrong with me? How come I forgot? Do you know what I mean? Why is it hard to Pre bolus. How come we don't want to make sure we're okay before we start, but we're willing to be dizzy for an hour afterwards, et cetera? It's a human thing. You're 11. I'm not asking you for an answer. Okay. I just think it's an incredibly common problem and, but you have a very specific use case. So it feels to me like somewhere in here is. I don't know, like I hear what you're saying, like I can't stop because nothing's wrong. But then eventually you have to stop because something's wrong. So why not stop first for less time? Stop the problem. Don't be low for an hour on the trampoline. Enjoy the whole thing. Does that make sense?
B
Yeah.
A
Okay, then tell me, just from your brain, why doesn't that happen?
B
Probably because I rush for water breaks and stuff.
A
Okay. That's it? You just think, you're not focused on it?
B
No, I probably, I don't think about it.
A
But do you think this good. Just. Sorry, Jesse. And you're welcome, by the way. You don't have to pay me. I'm just, I'm just here asking questions. Go ahead.
C
I, I this, this conversation, and I think you hit the nail on the head. It's a. Well, I was gonna say it's because. 11 years old, but it's also, you're right, it is also a human factor.
A
Because, Jesse, I just had a conversation like this 25 minutes ago with a 22 year old. So I don't know what you're talking about, but.
C
All right. In my mind, I just pray that it's just because it's an 11 year old, you know? But, yeah, I get it. It's so it happens in school too. Like, we're kind of like, she has a whole nurse story where she had substitute nurses for a year. And it was, it was miserable because
B
my nurse was out with a wrist injury. So we were like, There was a bunch of sub nurses. One of them one time called me down. So I had Jim in like four hours for hours. And lunch didn't happen, snack didn't happen. I was 90. They called me down, worried. They were like, you need to get up before gym. Which was in four hours. And I'm like, okay, I still have lunch and snack for gym. And they were like. And they were really worried because they thought I would be low for gym. And it had to be, quote unquote, 90 for Jim. But the orders said 70. No, sorry, 80. But they crossed it out. In pencil. And they wrote 90, which they said, the doctor signed these orders, but the doctor didn't sign 90.
A
So the weakest link is always people. I just want to say that. I just think, listen, I could tell you that I sat. I don't even think this person would mind me saying, but I'm not going to use their name, but I sat with a. A woman in her 40s five days ago who told me, I don't know, I can't get myself to do it. So I think it's everybody. I think it's a problem. I think that this isn't how we live. But you have a real opportunity, Brianna, you have a real opportunity to just make some slight changes about how you do things, and I just think alleviate a lot of problems for yourself.
C
Because, like, even in school, we're kind of like, you know, before you even hit 70. Why are. Why are we not having the snack? Like, why are we not having, like, just little things like that, you know?
B
But I was 90, stable, and they called me down worried because I had gym in a couple.
A
Well, not that. Not that. I don't think your dad means that situation. Like, when you're 85 diagonal down, you look at it and you think it's gonna stop, right? Yeah. You don't think.
B
I typically. Once I'm like, in the 80s and I've been continuing to go down, then I probably pop a few gummies. And then when I'm like, in the 70s and I pop the rest, and if I'm like 60, I pop a couple more.
A
Okay, well, listen, first of all, let me say this. You sound, like, terrific, and I think you're doing a great job. These are certainly, like, just edge case ideas. I mean, let's tell people. What's your A1C?
C
I think your last was 6 2. 6 1.
A
That's awesome.
B
I think it was 6 2.
A
And you bullish for your own meals. Do your parents help you?
B
I bullish for my own meals.
A
Well, you're doing fantastic. That's the first thing to say, right? Absolutely fantastic.
C
This is.
A
These. These are tiny adjustments on the outside of the. Of the bigger thing. It sounds like you're doing terrific. You are a lovely kid. I'm enjoying talking to you very much. You're smart and thoughtful, and I'm sure your dad and mom are very, very proud of you. I know just talking to you for a little bit, I feel very proud of you for how well you're taking care of yourself. That's all. Awesome. I'm just Saying this is a big idea that you could work on a little bit. I think it would make a huge difference in your life. I think. I think Brianna, 20 now, let's just say 10 years from now, you come back on the podcast and you're like, scott, I took that advice. It changed my life. Let me just tell you, of all the ways I'm happier now and. And that. Would that be lovely? Yeah, yeah, absolutely. And by then, podcasts would probably be like, holograms maybe, or something like that. Who would even know what it's going to be? Can you even imagine what technology is going to look like in 10 years?
B
Just going to be like flying cars.
A
Now they always say the cars are going to fly around.
C
Thought, are you. Are you going to retire? And is Arden going to take over the podcast?
A
I. Listen, I explained to Arden what we have here is what they call a turnkey business. But she doesn't. She's busy wanting to be a forensic psychologist at the moment. So. Although I think that'd make a great podcaster, I don't know what she'll do. She's. She's gonna be 22 in a couple of weeks. Do you know what I mean?
C
Still young.
A
Yeah, right? She's very young. She just got her first job. She's out working. You know, we're still at the point where I'm like, hey, you forgot this. And she's like, I don't need you to tell me what to do. And I'm like, oh, man. It's been sitting here for four days, so it feels like I'm just. I'm not telling you. You need it. I'm just trying to remind you, trying to love you and. But it's not her. You know what I mean? Like, it's not her. It's not my relationship with her. Everybody listening has this happening in their lives. It's just. I don't know. I don't really know how to put it. I can. I can explain it, but I don't know how to quantify it. People just. We. You know, I. I found myself saying it this way recently. Brandon, this is getting boring for you for a second. Hold on tight.
C
Okay.
A
For my entire life, I've been told the American health care system is terrible. There's not enough prevention. It's only about taking care of disease once it comes. It's the fault of the doctors, it's the fault of the system. It's the fault of the way it's set up. It's this way. I think it's just people. I just really think that it's hard to focus on something that hasn't happened yet, and this is what the outcome is now. I bet you didn't know, Brianna, that Benjamin Franklin was a. Was a genius way before. Way before people knew he was writing books, telling people how to, you know, telling people about common sense and all this stuff. This ounce of prevention is worth a pound of cure. He means. He means go for a walk before you gain £50. You know what I mean? He means put down the cigar before you cough and you die. Like that kind of stuff. And it's taken 300 years and I don't think we heard him once. So I don't know what to say other than you can't fix the world, but you know you can do something for yourself. So, yeah, not everybody's going to do it, but some people will. Yeah. All right. Well. Yeah, listen, you're fantastic. Obviously you know this already. Brandon, tell me a little bit about your management. I want to know about pod changes, CGM changes. Do you feel. Do you understand how valuable the technology is? Or does it just all seem common and normal to you? What's it like using all that technology?
B
I love the Omnipod, but the control is very. Not so great. My. I've had so many dysfunctional pods lately. They've. The last three have ended early because they either. They all were low on insulin, which is not the pause problem, though. But like, a lot of them have been leaking. Like, I've had to change a ton of pods early.
A
Yeah, sweetheart, some of them got recalled. Did you go through them and pull out the bad ones?
B
We. We already got rid of the bad ones. But like that they've seen to be different ones that were, like, not working.
A
Oh, my goodness. Did they replace them for you?
B
Yeah, Omnipod's great at replacing insulin.
A
Yeah, it's a good company. It really is.
B
Like, no problem replacing everyone's really nice.
A
Yeah. Brianna, could you say omnipod.com juicebox for me?
B
Omnipod.com juicebox.
A
Thank you.
C
Very good.
A
That's excellent. I would like to say I'll split the clicks with you, but I'm not going to. I don't want to lie to you. You're a child and I don't think it's right to lie to you.
C
Okay.
A
Are you on the social media, on the. What do they call the Toktik and Instagram, stuff like that?
B
No.
A
No. Do you want to be.
B
No.
A
Good. Never go on it. Okay. I'm Giving you great advice here, Brianna. We can build a life around this ounce of prevention worth a pound of cure. Stay off tick tock. Don't look at Instagram reels, okay? It's. It's like. It's. It's like a drug for your brain. You don't need it.
B
It.
A
Your friends do it. These friends, are they scrolling?
B
No, not really.
A
Awesome.
B
The boys in my class, though.
A
Well, boys, we don't care about boys. They're dirty.
B
Yeah. Boys are annoying.
A
Yeah, of course they're annoying. I'm annoying. Trust me. I was just. I was an hour ago. My wife's like, can you rub my head? I rubbed her head and then I said something. She goes, I don't find this part fun. I was like, okay. It's like, she still doesn't like me. That's not the point. The point is this. I'm wondering if people your age are. Are they. Is the. Is the flow coming after the ebb? You know what I mean? Like, is social media becoming a thing that kids are rejecting a little bit now?
B
Like, the kids in, like, Migrate are not really super. Like, they're not. Like, some of them are, like, always on their phones, while some of them, like, actually like, having fun and actually like, hanging out. But then, like. Like, everyone's just, like, in group chats. Can I. Is anybody available? Can you guys hang out? And most of the girls don't play video games, but I feel like all the boys who play video games, they're already, like, trapped and they can't get out of it.
A
Yeah. What are they playing on their phone? Clash of Clans.
B
They're playing Battle Royale.
A
Battle Royale. That's the one I meant.
C
Okay, Right.
B
And then what's the other one? There's one more. I can't think of it. You're here to tell people on Roblox. Anything on Roblox.
A
Roblox, Yep. Okay. And you girls are. You're upset by this. The boys are silly.
B
Yeah.
A
Yeah.
B
But we don't care because it's smart.
A
It's very smart. So they're out there messing around. The girls aren't doing it so much anymore. And I think that's good. I think that's a. That's good movement. And what are you doing at that time instead? I mean, I know you're doing trampoline gymnastics, but what else are you doing?
B
So when I'm not doing that, I'm also doing camp or I'm on vacation outside school and homework.
A
Yeah, but you like being outside.
B
Yeah.
A
You guys near the beach.
B
We're like. We were really close to Six Flags.
A
Oh. Oh, that's right. We live oddly close to each other. Right, Jesse? Right.
C
Yeah.
A
Yeah.
C
A couple towns over. Yep.
A
Yeah, yeah, yeah, yeah. We live very, very close to each other. Is it possible we've seen each other? To shop, Right? Or a Wawa one time. We didn't even know it.
B
It's probably possible.
A
It's absolutely possible. I try to stay out of the Wawa now. There's not much in there for me. Not since I've been on the gop, as you know. Any other problem?
B
The last time I went to Wawa was, like, a while ago. It was when we were in Pennsylvania and we got watermelon from there. That's all.
A
Nice. Listen, this is. This is just between me and Wawa right now. But you guys, you've ruined soft pretzels for the world. Everybody thinks those terrible pretzels that you sell are pretzels. We all know they're not. Why not just team up with the Philadelphia pretzel factory or something like that? And you know what I'm saying, Jesse? What are these? These cakey, terrible. Oh, God, I'm going to curse. And you're, as a small child here. That's how bad I hate these pretzels. Do better. I mean, you got all that money to give to Jason Kelsey. You can't give a little bit of it to pretzels? Am I wrong? Are you a Phillies fan, Brianna?
B
No.
A
Oh, my God. A Yankees fan. Are you?
B
Yeah.
A
Oh, my gosh. Your father's let you down. You know that, right?
B
We watch hockey, though, a lot.
A
Rangers or the Islanders?
B
The Devils.
A
The Devils. Oh, my God. Terrible. I mean, they just. They ruined my childhood.
C
Devils are killing me.
B
Yeah, they're not that good.
A
Jesse, are you old enough to. To understand that a trap defense ruined my teenage years
C
if I.
A
No, that's not a reference you understand. Okay, well, the Devils played a horribly boring version of defense.
C
Yeah. Yeah.
A
Yeah.
C
They're trapped. Yes.
A
Yes. And they ruined Eric Lindross in all that time for us. I hope everyone's happy. Please.
C
The Devils. The Devils were solid back then.
A
Yeah, they had BRO. Not so much when Brodor was their goalie.
C
Stevens, Danica. They used to be good.
A
Yeah, he used to clean. Yeah. Yeah. No, not no more. I say they let New Jersey down. So, Brandon, you have good friends. You guys get together, you go to each other's houses. Sounds like you're outside. You're staying off your phones, doing your homework. I like all of this. What do you want? This is a very early question. You're going to Change your mind 10 times between now and then. Do you have any idea what you. What are some of the things you've been interested in? And where do you see yourself going after high school?
B
So I think we're going to go college. I'm probably. I want to be a nurse. Oh.
A
Oh, that's nice. My daughter's friend Nadia, she was here last night. She just graduated with her undergrad, and in September, she's starting nursing school.
B
Nice. I'm either gonna be a nurse or an endocrinologist.
A
Oh, wow. Gonna go all the way.
B
Yeah.
A
That's good, Jess. You can just work another 50 or 60 years and get all that taken care of for the college.
C
So I'm hoping that my wife, she works at Rutgers, and I hope she stays there. Oh. And then I hope. I hope my daughter goes there. Oh, that's the plan.
A
Jesse's like, listen, honey, do whatever you want. We just want you to be happy. As long as that happiness happens at Rutgers, that'll be fun.
C
Or if you're gonna go someplace else, pick the place. And hopefully my wife can get a job there, and she could also get the same benefit.
A
Less money to get a job somewhere else. It is one of the greatest things. I have a friend whose kids both went to Princeton. He worked on the ground crew there.
C
That's amazing.
A
Yeah. That's awesome.
C
Isn't it?
A
He went there absolutely free. He cut a lot of lawns and put down a lot of roads. And I know why he was doing it.
C
Yeah.
A
Good, dad. All right, so what do I. What am I not asking you, Brianna? Like, what should I know about living with diabetes that you know and you want to share with people?
B
If, like, if you're newly diagnosed, it's all going to be okay. It's going to be hard in the beginning, and giving yourself shots doesn't hurt.
A
After a while, you stop worrying about that.
B
Yeah.
C
Yeah.
B
And the Omnipod is a good pump if you're a little kid, but, like, the control is not great. But the.
A
What do you mean? Like, the screen a lot? That, like, you don't like the screen where you interact with it. What are you telling me about the control of it?
B
I feel like it just doesn't. It doesn't, like, have great control like these other pumps, and, like, the algorithm's not so great, but you're 11.
A
You're 11. Where'd you hear that from, your podcast? Wait, you listen to the podcast?
B
Yes.
A
I didn't say. I've never said those things, by the way. I just want to say that that's
C
coming directly from me. She's.
B
Yeah, that's from him. He. He said. He said that it sucks and they had to switch to it.
C
I don't think the Omnipod's aggressive enough, like, with the highs and stuff. And I think part of it. Part of it is, like, the way we're. The way we do things and the way, like, sometimes she'll forget to pre bolus. Sometimes she'll forget to bolus at all. And then once we get high, it's like a mountain to get her down.
A
Did you. Did you switch to the new hundred target?
B
It won't let us.
A
Wait, what do you mean it won't let you?
B
Your pod does not support this.
A
Your pod doesn't support this. So you need new pods so you can do the 100 target, I'm pretty sure. How many. How many pods do you have left before you get to that?
C
I don't know. I thought, like, we had the G6, G7 pods. I don't know if there's a newer one.
A
Have you called them to ask?
C
Yeah, so we literally just tried the hundred thing, like yesterday or the day before.
A
Oh, okay. Yeah, I think it's going to be valuable for you. I also think that.
C
I agree.
A
Yeah. I also am very sort of excited after talking to them recently about. About some things. I'm excited about the Omnipod 6, too, so. Yeah. So you've never used. Good.
C
I'm sorry. I've called them before for, like, different, like, you know, gymnastics strategies. Like, we. We've had issues where. Because she's tumbling around and bouncing around like crazy. Like, I feel like every day after gymnastics, whether it's the morning or sometimes it makes it to the evening, the day after a gymnastics practice. Like, I feel like the cannula just kind of wiggles its way out or something.
A
Yeah, I've called that one.
C
I've called them to say, hey, what. What strategies can we do? Like, is it. Is there different. Different overlays other than the pod pals? Are there different?
B
We use the ones with, like, the strap that goes over it. Those work better. But we found, like, they told us this technique that, like, instead of, like, pinching it, when you put it on, like, stretch out, like, the skin a little bit so it goes on and there's, like, room for it to move. And we. I don't think we've had a single leaking pump. Since we tried doing that, that's cool.
A
But I have a better option. You know what Vet Wrap is?
C
We.
B
We used to use that, but I don't like it.
A
Well, you don't have to like it for it to work.
B
It's really uncomfortable.
A
You know what else is uncomfortable?
C
Changing your pod, using a lot of insulin, changing the pods.
A
Jesse's like, listen, can you come to my house?
C
Can you come to my house and
A
just say things while you're walking around?
C
Loud.
A
Well, does it help you, Jesse, to know that you are saying things to your daughter that all of us are saying to our kids and adults with type 1 are quietly saying in their own heads to themselves.
C
It's. It's funny. And it's funny. You said TikTok. I literally watched a TikTok video yesterday, and it was of a kid, you know, like, 18, 19, 20, or whatever, going on a date. And he walks down to the car and he opens the passenger door and. And lets his girlfriend in and then closes the door. And the caption of the video was essentially like, your kids are always paying attention. At least he learned something. Whatever.
A
At least he learned something.
C
Yeah. And I'm like, well, you know, it's true, because your kids do listen, you know, and she's. She's pretty much said everything I've said. Whatever she said that's good or bad, I've said it.
A
I've learned to believe that some of it's going to stick and some of it's not. And I'm not in control of what parts stick and what parts don't.
C
100.
A
Yeah. And that hopefully one day, if one of the things that didn't stick creates an issue that their personal interaction with that issue will lead them to pivot and make a change. And if they don't, then I think we're at the part where we say people get to do whatever they want with their lives and it's not up to somebody else.
C
And it's like you just teach them as many good things as you can, and hopefully. And she has enough of those good things to take away that, you know, make.
A
Yeah, listen. I mean, core character, good. Sure. Ben Franklin tried 300 years ago, but maybe five more years is all Brianna needs. Brian, everything that you've ever heard, like a T shirt slogan or a saying, those things are common because those are the things that people struggle with that other people are constantly saying. All time.
C
The.
A
The time.
B
Yeah.
A
You know what I mean? So just pick a couple of those things and. And be kind to Yourself and do them. You know what I mean?
B
Yeah.
A
You got brothers or sisters?
B
I have one brother.
A
Are you smarter than him, do you think?
B
Yes.
A
How old is he?
B
Seven.
A
Oh, my God. Well, you should be seven.
B
I was smarter than him at his age. Anyways.
A
I'm sure he'll.
B
Because he watches these, like, YouTube videos that are, like, brain rotting, but I did, and I had to watch educational shows when I was really little. And I'm really smart, so.
A
Jesse, what happened? You give up after the first one?
C
Yes,
B
it was Mom.
A
Don't say. I don't think it's a good thing for us to say that. Your mom gave.
C
I'm not going to say too much. She was very. She was strict with Brianna, and that has gone out the window. And. And to be honest with you, like, I think since the diagnosis, we've. We've definitely let a lot of stuff go as far as just not being overwhelmed all the time or whatever, but there's times where you're just tired or overwhelmed and. Yeah, we. We definitely have let change perspectives and change the way we do things a little bit.
A
I mean, listen, maybe you've heard this. The. The saying, something's got to give.
C
Yep.
A
Yeah. Brandon, when you grow up, if you. When you come back in 10 years, when I will be, by the way, a 64 year old making a type 1 diabetes podcast, you tell me if this rings true. Moms have a strange and very interesting connection with their firstborn sons. You see if that comes true.
C
Okay.
B
Okay.
A
All right. My. My wife treats my son like he's the king of the world. And sometimes he's not, by the way, and that doesn't seem to matter. That boy is her. That's her boyfriend, that kid. You know what I'm saying? Is your mom super nice to your brother?
B
Yep.
A
Yeah. Do you feel like he's not being given the same rules because she likes him better?
B
Yep.
A
That's not why, Brianna. It's what I just told you. Okay. There's a weird mystic connection between ladies and their sons. I don't understand it completely, but I only have 40 more years, so I'm still trying to figure it out. Okay.
C
Figure it out.
A
Yeah. Yeah. I. I think I'm gonna get my wife figured out by the time I'm 80, for sure.
B
Yeah.
A
Yeah. Because then I can figure out my. Can I say something on the podcast that I'm hopeful no one ever hears in my own life? I watched Arden last night yell at Kelly for something that she does, too, with. It felt like Zero understanding that she was telling her to do something that she also can't do. It was fascinating.
B
Yeah.
A
One more context. She. Kelly just had a procedure. She's supposed to be taking all these pills and vitamins and everything. And Arden goes, mom, just take this vitamin D. You just had this whole thing done. They told you to take this every day? It's not hard. It's one pill. She used all of those words. I looked across the room and tried to hold the laugh inside of my face for as long as I could, because the very next day, I said, art, hey, don't forget these pills. And she said, I don't need your help taking my pills. I said, you haven't taken them in a week. That's it. I don't know what's wrong with us.
C
Remember that lecture?
A
You get that one, Brown?
B
Yep.
A
Yeah. Are there pills you're supposed to be taking?
B
Well, I have vitamins that mom has me take sometimes, but she said, you don't like them? Well, nobody reminds me to take them, so I kind of forget about them. And my brother. She puts them on my brother's place for him in the morning.
A
Well, that's.
B
And I make my own breakfast to help her out, and she can't remind me to take them.
A
Unbelievable. What an. What an absolute ingrate your mom is.
C
This is our life.
A
Hey, listen, Jesse. It's everybody's life.
C
Yes.
A
So, sweetie, can you not set a timer on your phone?
B
I probably could, but I don't wake up at the same time every morning.
A
Let me tell you this. You want to really get at your mom, you take your vitamins and set the vitamins out for your brother. That'll get her. Oh, she'll hate that.
B
And I'll make his breakfast.
A
Oh, yeah. Yeah. Oh. Oh, my God. She'll. She'll. She'll pop up before you the next day. You'll be like, oh, you're up early. Never let her. Also never let her. Never let her hear this. I don't want her coming for me. I feel like she could probably find
B
me breakfast and her coffee.
A
Oh, well, listen, let's not get crazy. You got. You got. You got to get out the door and get to school.
B
Yeah.
A
I got yelled at this morning for making a hardened breakfast. I said, hey, I got. I. I said I was up, so I got some stuff together for you. I thought it might help. I don't need help. I didn't say you needed help. I was doing a nice thing. She went, and that was the end of it. I have no idea what we're talking about half the time. I just. All I know is I went up to my wife and I said, why are you all trying to kill me? That's all I said. Please. I said, do you have any idea how much I'd get done if everyone left me alone for five minutes? Nevertheless. All right, so you want to tell people it gets easier. Shots don't hurt as much anymore. Not something you're worried about. Technology is good. You wish it would get a little better. Have I heard everything? Also, I heard your dad say at one point, it's not aggressive enough even when we don't bolus. You know you have to bolus, right?
B
I bolus, but sometimes, like, randomly when we go out to eat, I don't think. And then I just start eating, and I'm like, oh, my God. I didn't bolus. Because when he reminds me, because I completely forgot I had diabetes. I forgot, like, everything, and I was
C
just like, oh, I think for us, too, like, going back to, like, the gymnastics, it's. It's like. It's not normal because we like gymnastics nights, which is half the week. We're doing half boluses. So, like, our carb ratio and all that stuff for, like, gymnastic nights, changes would be cut in half if. Because of the activity, but then, like, on other days, like, show bolas. But we're not a. It's just not. The ratio's not 100%. But then there's other days where, like, like, now we're kind of falling into our summer routine where the bolusing, it's. We know the ratios are right because everything is good. Like, you know, there's little activity right now. And, yeah, we're kind of transitioning and numbers are good and.
A
But I would imagine as the years go on, you'll. You'll get better and better at all this, honestly, because it really does turn into an art form at some point. Yeah, it just. It's more of a feel. I mean, once your settings are good, it's more of a feel than it is a rule. Yeah. And it's just more time will. Will get you to there. And I mean, you already said. You said at the very beginning times, what got you this far already?
C
Yep.
A
So, yeah, you guys. I mean, you guys sound like you're doing great. Do you feel like you're doing great? Piano?
B
Yeah.
A
Yeah. What's the hesitation?
B
I just feel like sometimes I go really high and sometimes I get low, and it's just, like, kind of annoying. Sometimes like dad said I should switch to the Moby.
A
I mean, listen, I, I think all the pumps work really well. I, I think that if you do the thing you're supposed to do, you know, they all, some of, I guess each one of them has a shortcoming somewhere. But if you do the things you know you're supposed to do, it should work. I'm gonna guess that like another gener, like even the 100 target should be better for you because it's also, not only is it a 100 target, but also doesn't kick you out of automation as easily or for as long maybe if I'm right about that.
B
And then my, my pump is really weird. Like we went to a summit for breakthrough one time and they were like talking about the Omnipod 6 and it's like not supposed to kick you out of automation, but mine never did that.
A
Oh, you don't have that problem to begin with. Yeah, Omnipod 5, they just updated it about that automation kick out thing and then six will come out and then before you know it, as crazy as it sounds, you'll be wearing Omnipod 7 one day. You know, or, or, or Moby Revenge of the Moby or you know, or whatever they're going to call it, by the way, if they're gonna.
B
I want to switch to the tubeless Moby, the Toby when it comes out because I thought that would be like a good option because dad says I should switch to the Moby, but I don't want to do tubes, so.
A
Oh my God. Is the tubeless Moby going to be called Toby?
B
Yeah. I just want to say after that it's going to be the Siggy.
A
What does that mean?
B
I don't know.
A
That means cigarettes, doesn't it?
B
No.
A
All right, I gotta rethink that one. Okay. But I love Toby, by the way. When I, when I pointed out that, that your dad said that the algorithm wasn't strong enough, but that sometimes you don't bolus. I'm gonna guess about 45 to 50 marketing professionals spread across about five pump companies cheered in their cubicle somewhere
C
and even like, like again going back to the gymnastics, like the bouncing it around and like leaky pumps sometimes it's, you know, like we think she doesn't bolus and we go back and we look and we're like, nope, she did bolus. But the pump is just leaking and it's, it's related to the gymnastics because the, you know, the high level activity.
A
Yeah, but cannulas are going to pull out from every pump.
C
Yep.
A
And, and, and, and fair enough. That the, the omnipod is on body so it rocks a little bit. But you know, if you cover it or hold it, like, I mean, listen, the answer is the vet wrap. She doesn't like the vet.
C
The vet wrap would work.
A
Yeah, right.
C
Yes.
B
So the ones that the overlays with the strap over him work pretty well also.
C
Okay, they do help.
A
My point here would be it would be like buying a car, driving it till it ran out of gas, and then complaining that it ran out of gas, because that's what cars do if you don't put gas in them. And so do you know what I mean? Like, this is like this is not a perfect system. This is just, this is what exists. It's fantastic stuff. I gave a talk to a bunch of kids on the ship Juice, The Juice Cruise 2026 that I just got back from. Juice Cruise 2027, going out of Port Canaveral, I think wherever Orlando is in July 2027. Check out juicebox podcast.com juice cruise for more information. And another great group this year. Not the point. We're sitting with a bunch of kids and I tried to like gently but like explain to them like how technology has moved through diabetes. And the cruise attracts a really wide range of people. There's families there with young kids, middle aged kids, teenagers. There's adults with type 1 in their 30s, 40s, 50s, 60s, 70s on the cruise. It's a really eclectic group of people that I've somehow collected through our little podcast here. And I was able to point across the room when I was talking to the kids. We did a breakout session by age which was peer led and went really well. And I said, there are people over there who've had diabetes for more than 50 years and they didn't have any of this stuff. And if you went over to them right now and said, hey, complain about your Dexcom, complain about your libre, complain about your insulin pump, they wouldn't because I've talked to them. They'd go, oh, it's terrific. Every once in a while it does this, but it's not a big deal. But a person who's hand, a person who's handed it three years ago in a world where, you know, where cars actually do drive themselves, not fly and you know, and other stuff like that's happening, you're like, well, the thing doesn't thing like how come it doesn't do the thing it's supposed to do? And I think it's I don't know how to, like, how to get the perspective that you need to realize that there are people living right now with type one still whose parents sharpened needles in their kitchen or boiled vials so that they could, you know, re. Inject again or peed on a stick to find out what their blood sugar was. And you know, I mean, stuff's pretty awesome. You know what I mean?
C
Like, it really is insane when you think about it.
A
No.
C
Yeah.
A
You just have to. Once it's day to day, it doesn't help you. I hear what you're saying. You jump around when you're doing things and the cannula pulls out. That sucks. We need to get that fixed. But my God, you could be, you could be shooting beef and pork insulin, you know what I mean?
B
Yeah.
A
You know, we'd be talking about. In 10 years, you'd be talking about, you'd be talking about bad stuff, you know what I mean?
C
So we, like, we're, we're a hundred percent like. I mean, it, it's absolutely amazing. It's like, I think for us it's just like the, the word that hits it, hits it. It's frustration. And it's just like you go high and it's like, oh, we're high again. And it's like. And, and it's kind of like you said, the preventative. If we did little steps to prevent it, maybe that would improve because like once you hit that high and it's stubborn and you know, and then now we got to change the pod after two hours because it's not going down. It. There were things that we could have done to help. Help try to prevent it.
A
Yeah. I mean, listen, that, right, that's the human condition right there around diabetes. So like, you just have to figure, I'm not like, I'm not coming down on you, I same life you live, you know, But I do find it valuable once in a while to step back. I just put an article up on the, on the website for the podcast the other day, and it's just about even. Like how many people actually use insulin pumps. It's a shockingly low number of people with type 1 diabetes, you know, and some of them are because it's access or some of it because money, and some of it's just because they just don't do it. CGMs being adopted at a greater rate than pumps are, but still there's plenty of people walking around right now shooting insulin with a needle and testing their blood sugar with a meter.
C
Yeah.
A
So anyway, you guys are. You're the masters of your own reality. You can do whatever you want. It's not up to me. Certainly, I'm probably going to push off into this day right now and ignore my own advice. So I'm. I'm certainly not.
C
Just as we will, you know.
A
Exactly. Although I really might end up with one of those Philadelphia soft pretzels at some point, now that we talked about that. They're. They're still not the best, Jesse, but they're better than what's going on now.
C
Yeah, I agree.
A
You ever have the ones that they used to sell on the street in Philadelphia? Oh, yeah, those are the best.
C
Yeah. Yeah.
A
They kind of tasted like exhaust a little bit, but once you got past that, they were the best pretzels.
C
They, they. They had a very unique flavor.
A
They did. Do you know how that all used to work? There's a place down there on the boulevard outside of, like, in Northeast Philadelphia that made them. I don't know the name of the place, but a lot of transient and homeless people would go in there, and they. With a little money, and they'd buy the pretzels. Then they go to the traffic light, sit at the light, and sell the pretzels at red lights. And people hearing that might be like, that's like, maybe you think that sucks or something. It's one of my, like, wonderful memories of growing up. It's like my dad seeing those guys and going, oh, hey, you know, let's stop and give this guy. Give this guy a hand and grab some pretzels and stuff like that. I know he just peed in a bush. I didn't care. You know what I mean? Like, and then he handed. You know, we gave him a dollar. A dollar for a bag of pretzels. And my dad would give him an extra dollar for himself. And then now you go to this other place and seven pretzels is 19 bucks. I don't. You're all. I can't take it, Jesse. I'm done. Okay. This is it, Brianna. A pretzel is going to cost 95 when you're my age. No, no, I swear. You better get a job being the president of the universe or you're going to be in trouble. You won't never have a pretzel. All right. You guys are awesome. I really appreciate you doing all this, Brianna. You said everything you need to say.
B
Yeah, but pretzels have been getting worse.
A
Thank you. I'm glad I'm not the only one seeing it. God bless you and stay Off TikTok, for God's sakes.
C
Yes.
A
Okay. You don't need that. What do you need to do, Brown? Give me your top three things you're going to do moving forward. Go
B
make sure I pre bolus.
A
Right.
B
Win nationals.
A
Right.
B
And get my A1C to A5.
A
Well, listen, if I was you, I would have done the, I would have done the vitamin thing to piss off my mom. But you do whatever you want. You do whatever you want. Yeah, do whatever you want. But man, that would, that would probably bring me a lot of joy if I was 11.
B
I just want to say that.
A
Yeah, yeah, like, mom, don't worry. I already took my vitamins and got them out for the boy. They're all set right on the table.
B
And made his breakfast and I put
A
a little breakfast over there for him. I'll see you later. I hope you have a good day. You don't even say anything else. You just roll right out of the house. She'll seethe all day. She'll probably yell at your dad. I just want you to know that's probably.
B
And I painted the shed and I made some coffee.
A
Let's not get crazy. Let the, let the parents do the big stuff. Okay.
B
Dad's gonna make me paint the shed, though.
A
You know what I did this morning before? He's going to make you paint the shed?
B
Yeah.
A
Good job, Jesse. Nice job. I pulled weeds this morning before this.
B
I don't know how to paint a shed.
A
He'll teach you. It'll be a nice memory.
C
You'll love it if she does it. That'd be cool.
A
Yeah. All right, listen, I got to go. I got a wrap up call about the cruise right now with Suzanne. We got to talk about what went great and what we want to change for next time.
C
Yeah, we'll definitely look into that because that seems like I want to do it. Fun event.
A
Brianna. We had a great time. We really did. It's, it's awesome. I, I, I'll tell you right here at the end first year, we did it really good. Some people are like, well, I wish the ship would have been a little like more modern. So I think we might have overcorrected. The second year we were on like a really great ship, but it ended up being a little more expensive, probably too expensive for some people. And there was a little less to do for the kids on that ship. It was a little more of a, an adult or adults with like calm children experience. So now we have found the nice middle ground between nice child friendly and more affordable. We're super excited about. We think this is the one that's going to strike all the balance that we need. And, you know, maybe we'll look back one day during Juice Cruise 20 and say, you know, the first two years we're getting going, but we really figured it out in the third year here, so that's what we're shooting for. Yeah. All right, guys. You guys are terrific. I appreciate you doing this very much. I'm gonna, I'm gonna go live my life. I hope you have a great summer and good luck at Nationals.
B
Thank you.
A
You're very welcome. Have a great day.
C
You too. Thank you so much.
A
Oh, it's a pleasure. The conversation you just enjoyed was brought to you by usmed usmed.com juicebox or call 888-721-1514. Get started today and get your supplies from US MED. I'd like to thank the Eversense365 for sponsoring this episode of the Juice Box Podcast and remind you that if you want the only sensor that gets inserted once a year and not every 14 days, you want the Eversense CGM Eversensecgm.com Juicebox 1 year 1 CGM to learn more and see if you might be able to get Twist from the pharmacy and try it for free, head to visit.twist.com juicebox that's visit.tw I I s t.com juicebox or give them a call at 1-877-for-TW. That's 1-877-489-4478 and tell them Scott sent you. Twist requires a prescription and is indicated for people with type 1 diabetes ages 6 and older. If you'd like to hear about diabetes management in easy to take in bits, check out the Small Sips. That's the series on the Juice Box podcast that listeners are talking about like it's a cheat code. These are perfect, perfect little bursts of clarity. One person said, I finally understood things I've heard a hundred times. Short, simple and somehow exactly what I needed. People say Small Sips feels like someone pulling up a chair, sliding a cup across the table and giving you one clean idea at a time. Nothing overwhelming, no fire hose of information, just steady, helpful nudges that actually stick. People listen in their car, on walks or rather actually bolusing anytime that they need a quick shot of perspective. And the reviews, they all say the same thing. Small sips makes diabetes make sense. Search for the Juice Box podcast Small Sips wherever you get audio.
Episode #1905: An Ounce of Prevention
Host: Scott Benner
Guests: Brianna (11, gymnast living with Type 1), Jesse (her dad)
Date: July 17, 2026
This episode centers around practical, real-world strategies for living well with Type 1 diabetes. Scott welcomes Brianna, an articulate and active 11-year-old gymnast, and her father, Jesse. Together, they relive Brianna's diagnosis journey, share the emotional and logistical ups and downs of daily management, explore the importance of peer connection, and discuss the ever-growing impact of diabetes technology. The conversation is punctuated by warmth, humor, and the guiding idea that "an ounce of prevention is worth a pound of cure."
Pre-diagnosis Signs: Brianna recounts vivid memories of intense thirst, frequent urination, tiredness, and feeling unwell during a family Disney trip in late 2022.
Parental Anxiety & Denial: Jesse admits there was fear and denial even when classic symptoms appeared.
Doctor Visit & Hospital Stay: The family’s path to diagnosis was chaotic—wrong week for their appointment, but it turned out fateful. Brianna’s BG was 401, sending them straight to the ER and a 3-day hospital stay.
Time & Perspective: With time, anxiety has decreased and diabetes is more manageable for both Brianna and her parents.
Family Humor & Coping: The episode is filled with lightness amidst seriousness (e.g., girl's dislike of smoothies before diagnosis, lollipop nostalgia, playful teasing about "dumb-dumb" lollipops).
Shifting Roles: Brianna takes on more self-management; parents support her emotional/social needs, not just medical ones.
Peer Support: After diagnosis, Brianna quickly became involved in Youth Ambassador programs and Breakthrough meetups, forging valuable friendships outside her school.
Parent Facilitation, Kid Buy-In: Jesse describes nudging Brianna into these activities for connection; Brianna herself reflects that she grew to love it.
Differing Engagement Styles: Not all kids in these programs enjoy them, with some participating only due to parental pressure.
High-Level Activity: Brianna describes the massive glucose swings associated with 3–4 hour trampoline practices, sometimes experiencing up to 10 lows in a session.
Practical Strategies: The family uses activity mode on the Omnipod 5, keeps ample snacks on hand, adjusts dosing (often half-doses before sports), and times meals to minimize insulin on board.
Unpredictability + Human Nature: Despite best efforts, management is an ongoing experiment.
Emotional Factors: Stress and nervousness about routines sometimes spike Brianna’s BG, occasionally offsetting exercise lows.
Barriers to Pre-Emptive Action: Rushing, routines, equipment logistics, and simply being 11 mean Brianna doesn't always pre-empt lows, even though she values stable BG for performance.
Brianna’s Insight:
"I probably don't think about it." ([43:33])
Device Experiences: Brianna and Jesse discuss their experiences with the Omnipod 5, occasional pod failures, difficulties with adhesive in high-activity sports, and anticipation for new tech updates.
Algorithm Limitations: Dad shares that the pod sometimes isn't aggressive enough in treating highs, and half-bolusing before sports leads to more stubborn highs.
Perspective: Scott points out how recent advances—and the frustrations that come with them—are significant improvements compared to what people with Type 1 endured in generations past.
Scott’s Philosophical Thread: Throughout the episode, Scott underscores that everyone—kids and adults—struggles with “knowing” what to do but not always doing it, whether it's pre-bolusing, taking vitamins, or setting reminders.
Teaching, Not Controlling: Jesse and Scott both reflect on the limits of parental control—what sticks, what doesn’t, and allowing kids to learn firsthand over time.
Self-Kindness and Acceptance: Repeated reminders to be kind to oneself when management isn't perfect.
Childhood Balance: Brianna leads an active, well-rounded life—lots of outdoor play, minimal social media, disinterest in phone “doomscrolling.”
Aspirations: Brianna aspires to be a nurse or endocrinologist, signaling a desire to give back and connect her lived experience with her future career.
Brianna’s Message to the Newly Diagnosed ([58:27])
Final Goals from Brianna ([80:15])
Memorable Humor: Ongoing Philly pretzel banter, dad jokes, and Brianna’s mock ambition to antagonize her mom by organizing breakfast.
[04:08] Jesse:
“Time. I think as you go on... with this diagnosis, things become more manageable.”
[13:06] Brianna:
"I was in [the hospital] for three days. I had no idea what was happening. I was crying in the car....Was I dying?"
[19:39] Brianna:
"You guys kind of pushed it... but then I liked it, so we kept doing it [youth ambassador work].”
[28:14] Brianna:
"They make your blood sugar drop like crazy."
[39:33] Brianna:
"If I'm low or if I'm high, I don't perform as well as if I am, like, in range."
[43:19] Scott:
"An ounce of prevention is worth a pound of cure....So why not stop first for less time?...Enjoy the whole thing. Does that make sense?"
[46:42] Brianna:
"I bullish for my own meals."
[59:00] Brianna:
"I feel like [Omnipod] doesn't... have great control like these other pumps...the algorithm's not so great, but you're 11."
[62:53] Scott:
"I've learned to believe some of it's going to stick and some of it's not. And I'm not in control of what parts stick and what parts don't."
[80:15] Brianna (on her top 3 goals moving forward):
"Make sure I pre-bolus. Win nationals. And get my A1C to 5-something."
This episode is a must for families navigating a new diagnosis, active kids balancing diabetes and activity, and anyone needing reassurance that “doing your best” (not perfection) is the true goal. Practical, encouraging, and delightfully real.