
Apathy towards Long Covid. Plus, using history's most famous infections and the teachings of Kurt Vonnegut to process our "new normal."
Loading summary
Micah Loewinger
Hey, it's Micah from on the media here. Before we get into this week's episode, I wanted to tell you about my visit to Brooks House earlier this week. I was trying to solve a mystery. This is the studio. This is where the magic happens.
Brooke Gladstone
That's right. It is obviously appallingly untidy. Something that thankfully the listeners cannot see, but can only imagine.
Micah Loewinger
And so this is where you sit, where you both do the interviews and crochet the hats.
Brooke Gladstone
And crochet the hats, yeah, absolutely.
Micah Loewinger
As you may know, we've given out many of these colorful hats over the years to listeners like you. I wanted to know how and why Brooke became obsessed with making them.
Brooke Gladstone
Well, during my parents first bankruptcy, we moved from Long island to rural Vermont. And I didn't know anybody, so I thought I would volunteer. Somebody told me there was this really nice lady named Fanny who was in her 90s, very lonely, her family wasn't nearby, so I started visiting her and she taught me how to crochet. And I did it for a couple of years. And then 20, 30, 40 years passed and I didn't do it. And I.
Micah Loewinger
Surely something triggered the revival.
Brooke Gladstone
What could it have been? It really was a way to keep myself calm and settled and focused during things like editorial meetings. But we know this really isn't about the hats. Oh, come on.
Micah Loewinger
You're going right for the transition. Well, I mean, for me, it's kind of absurd that we're an award winning National Public Radio show. You've been doing this over 20 years. We basically have a bake sale. We have a glorified bake sale to like actually keep the show on, you know.
Brooke Gladstone
Are you recording that?
Ed Young
Yes.
Brooke Gladstone
Yeah, it is. It's a glorified bake sale.
Micah Loewinger
Listeners, you've arrived at our glorified bake sale, the time when we ask you for donations to keep this show going. While, yeah, it might seem absurd that this is how we fund the show, truthfully, we wouldn't have it any other way. The fact that we're supported by you leaves us beholden to nobody but you. Exactly how we want it to be. But in order for it to work, we need you to step up, up. So please get in on this. Donate right now. And when you join as a monthly sustaining member, you'll be entered to win your very own Brook hat. We have 20 to give away, so your odds of winning one when you become a Sustainer are pretty decent. Thank you so much to everyone who's already donated. And if you haven't go right this second to onthemedia.org don't or text the letters OTM to 70101. That's OTM to 70101. Now onto the show.
Ed Young
January and February of 2022 were the fourth and fifth deadliest months of the pandemic to date.
Brooke Gladstone
How did all that death become just background noise? From WNYC in New York, this is ON the media. I'm Brooke Gladstone. Also on this week's show, how and when one moves on from a pandemic can create a roadmap for future failures.
Laura Spinney
Once it's over, we all just want to forget it. And because we don't talk about it, those memories fade quite quickly. And that has all sorts of repercussions in terms of our response to the next one. We are not ready. We're never ready.
Brooke Gladstone
Plus, how to tell the story of COVID while case numbers and deaths rise and fall and rise and fall, fall and rise and fall, up and down.
Rachel Pilch Loeb
And up and down and up and down.
Micah Loewinger
Yeah, but I don't know. Is that a good story?
Rachel Pilch Loeb
No. I mean, you know, why are you asking that question? You know it's not a good story.
Micah Loewinger
I know it's not a good story, but I'm just trying to make the point.
Rachel Pilch Loeb
Yeah, nobody wants to hear that story.
Brooke Gladstone
It's all coming up after this.
Micah Loewinger
On the media. Supported by Progressive Insurance, you chose to hit play on this podcast today. Smart choice. Make another smart choice with Auto Quote Explorer to compare rates from multiple car insurance companies all at once. Try it@progressive.com Progressive Casualty Insurance Company and affiliates not available in all states or situations. Prices vary based on how you buy.
Mary Harris
McCrispy strips are now at McDonald's. I hope you're ready for the most dippable chicken in McDonald's history. Dip it in all the sauces. Dip it in that hot sauce in your bag. Dip it in your McFlurry. Your dip is your business. McCrispy strips at McDonald's.
Unknown
The election has come and gone. Now we're in a new era. It can be easy to get discouraged, frustrated, but you can't afford not to pay attention. You need trustworthy, independent journalism to cut through the noise and hold power to account. I'm Mary Harris, host of what next from slate.com. we are a Daily news podcast with a kind of transparent, smart, yet tongue in cheek analysis you can only find at Slate. Follow and listen to what Next wherever you get your podcasts.
Brooke Gladstone
From WNYC in New York, this is ON the media. I'm Brooke Gladstone Two years into a global pandemic, Atlantic staff writer Ed Young has observed a Sisyphean cycle of panic and neglect in how America has dealt with COVID characterized by the nixing of a $15 billion relief measure.
Rachel Pilch Loeb
Last month, there was disagreement, including among.
Micah Loewinger
The Democrats, over how to pay for Covid funding, and that has forced the House leadership to to pull the COVID money out of the rest of the bill and then try to pass them separately.
Brooke Gladstone
This week, a scramble to save 10 billion in Covid relief met with much the same fate. Senate Majority Leader Chuck Schumer Republicans voted no on vaccines for kids. Republicans voted no on tests for new COVID variants. Republicans voted no on therapies to save lives and make us less sick. Have we learned nothing from the last.
Mary Harris
Two years of living with this horrible disease?
Brooke Gladstone
Have Republicans learned nothing about how lack of preparation could damage our economy? To casual observers, and certainly less casual ones like Ed Young, they have not.
Ed Young
What we've seen throughout the pandemic is that that neglect phase has repeatedly set in while the pandemic has actually been going on. We haven't even got to the moment of calm when the threat is over before we start rolling back the kinds of protections and investments that we so sorely lacked at the very start.
Brooke Gladstone
Almost every aspect of the nation's program of pandemic management is now imperiled. The supply of new treatments for those most at risk, free testing and vaccinations for the uninsured. Efforts to vaccinate people in poorer countries where new variants may arise. Not to mention, in our own backyard.
Micah Loewinger
We'Ve actually had X, A, X, B, xc. We talked about the Delta cron, which was delta plus omicron. Now these are two omicrons together.
Brooke Gladstone
Young says that as the current pandemic drags on, the next one hurtles towards us. The lessons the US have failed to learn are at least a century old. We'll get to those later in the hour. First, Ed Young, welcome to the show.
Ed Young
Hi. Thanks for having me.
Brooke Gladstone
Covid's now the third leading cause of death in the U.S. the third leading cause.
Ed Young
January and February of 2022 were the fourth and fifth deadliest months of the pandemic to date. For about six months straight, the U.S. lost over a thousand citizens every day. Where was the reaction that that level of death should have provoked? Why was it that in January and February, we had so much talk about returning to normal? We had op eds claiming that the pandemic was over, that it was time to open everything again? It feels like Covid has become similar to a lot of other causes of mass mortality in the us. Gun violence is a classic example that people just accept as part of the background of our lives. You know, if you compare the death toll from COVID to things like terrorist attacks, to natural disasters like Hurricane Katrina, it's huge in scale. It's so much bigger in terms of the numbers. Why doesn't it provoke the same kind of visceral reaction?
Brooke Gladstone
Some of this has to do with fatalism. But you write that in the case of COVID fatalism has been stoked by failure.
Ed Young
Yes, the US went into this pandemic rated as the most prepared country for a pandemic in the world. And yet across two plus years and two separate administrations, it really did fail to control the pandemic. You know, before vaccinations, after vaccinations. That creates this sense of almost nihilistic abandonment, this feeling that you're gonna get infected. We're just gonna have to learn to live. That's the point a lot of people have got to. Since almost the very start of the pandemic, the choices have been framed in terms of this ridiculous false dichotomy where either we like, lock down all of society in this draconian way or we do absolutely nothing and let the virus run amok. That's nonsense. There are so many things we could do in the middle space. You know, we could provide social policies like paid sick leave that would allow them to care for their livelihoods and their lives. At the same time, we could improve the ventilation of our buildings. We could use mask mandates in a clever and targeted way. So they switch on, then they switch off according to very clearly defined metrics. We could do all of these things and we just seem instead intent on pulling back all of these protections.
Brooke Gladstone
Is it a lack of preparedness or simply a matter of which lives matter?
Ed Young
Both of those things are interrelated. The deaths in the US have not fallen randomly across the country. They've been concentrated among marginalized communities, the elderly, people who are immunocompromised, black and Hispanic and indigenous communities, disabled people. All of these groups have disproportionately been killed by the coronavirus. The US is very good at looking past the disproportionate deaths of its most vulnerable citizens. There was a paper that came out very recently which showed that when white Americans are told about the racial inequities in COVID deaths, they are less likely to take the pandemic seriously, less likely to want to continue with mitigation. Measures. You know, these are groups who are marginalized in life and their deaths are being treated marginally too. White mortality during COVID was still lower than black mortality was in the pre pandemic years. And that speaks to the sheer amount of inequity that the U.S. you know, had already come to accept, even before COVID happened. It's important to remember that people who are controlling the pandemic narrative so journalists and policymakers are predominantly not from these groups. They are predominantly from communities and positions of privilege and are less likely to know people who have significantly borne the brunt of the pandemic. And I think that their decisions reflect that demographic bias too.
Brooke Gladstone
So let's talk about some of the rhetoric by public health officials and pundits and politicians that seems to add to the normalization of mass death. I mean, part of it has to do with a sense that this is a matter of personal responsibility.
Ed Young
Even Rochelle Walensky, the director of the cdc, the nation's premier public health agency, was talking about how your health is in your hands, using the rhetoric of individual responsibility. Firstly, it's an infectious disease. It spreads from person to person. And so my health in the context of an epidemic is never fully in my hands. It also depends on the decisions of my neighbors. But also your ability to make choices about your health are constrained by your circumstances. So if you work in a low income job where you earn hourly wages and you don't have paid sick leave, you might not be able to isolate if you start having symptoms, you might not be able to find the time to go take a test or to make a vaccine appointment. This is something that public health officials more than anyone should understand, because the entire discipline is about protecting the health of entire communities. To understand that people are connected and their social conditions affect their health in profound ways. To see the rhetoric instead of individual choice above all else being echoed by some of the nation's top public health officials is shows how much this strain of almost toxic individualism dominates American culture in a way that is really antithetical to actually controlling an infectious disease, which is by its very nature a collective problem.
Brooke Gladstone
You spoke to Richard Keller, who is a medical historian at the University of Wisconsin at Madison, and he said that a lot of the current pandemic rhetoric talks about comorbidities or treats death as so inevitable as to not merit precaution.
Ed Young
We see this a lot with some other causes of death, like liver disease or lung cancer or aids, where these diseases are billed as a person's own fault, like if you die from lung cancer, it was your fault because you probably smoked. And similarly, there is this idea that if you die from COVID Covid, it's your fault because you didn't get vaccinated. It really puts the onus of responsibility entirely on the individual who is sick and who has died, instead of all the broken systems that surround that person. And we've already talked about the ways in which incarce personal circumstances affect your choices. But then there's all the rest of it. Like, do you blame the person who died of COVID for dying of COVID Why not apportion that blame to the person who infected them or the person who infected that person, or all the political choices that allowed the virus to run amok through the population? It's weird that all of those systemic problems and all of the chains of events that led to someone being infected are overlooked. You know, again, this is like part of the quite gross way we individualize sickness and then absolve people in positions of power for not doing the things that would have prevented mass infection and mass death.
Brooke Gladstone
Right. I agree with everything you've said, although there's maybe a mean small part of me that says, what about those people who didn't choose to be vaccinated?
Ed Young
That decision is also an issue of inequity. It's also an issue of access. And in this case, it's things like access to high quality information. It's access to medical providers who you trust. A lot of people don't have those things. They might live in a rural community with no doctor who they regularly talk to. They might not have a doctor because they're uninsured. They might be surrounded by people who all are saying the same thing, which is that vaccines don't work and you shouldn't get them. I don't understand why it's okay to think that those people don't deserve to die. Just because people buy into false information doesn't mean we get to abandon them.
Brooke Gladstone
I appreciate that. Thank you. You also wrote, if safety is a matter of personal responsibility, then so is remembrance.
Ed Young
Aside from a few moments like Biden doing a lighting ceremony at the White House, there really have been almost no national acts of remembrance and mourning. You know, no permanent memorials. The lack of memorials or of national acts of mourning leaves grievers locked in their own grief and to deal with it on their own. And I don't think we should underestimate the cost of that. You know, if almost a million people have died, then that means that around 9 million people will be grieving a close loved one. That's a population larger than the majority of states. That's a huge number of people who are going through really intense loss right now.
Brooke Gladstone
We saw that as the weekly death count dipped, the CDC announced that fully vaccinated Americans no longer needed to mask indoors. The cdc, you observed, offered no advice to immunocompromised people who then became more at risk from simple activities like grocery shopping. And that's not a small group of people. There are at least 7 million of them in the US. You said that respecting the needs of immunocompromised people isn't about disproportionately accommodating some tiny minority. It's really about empathizing with your future self.
Ed Young
Right. One of the things that degrades our immune system is just aging. Our immune systems get weaker, and that's partly why elderly people are so much more vulnerable to Covid. So the kinds of measures that would protect immunocompromised people now are also the kinds of measures that would protect all of us as we get older and as our immune systems naturally weaken. We talked about how there are 7 million plus people who are immunocompromised in this country. If you include immunity weakening through age, that number gets a lot larger, a lot more quickly. And I think, you know, sometimes people who have the privilege of good health forget that that is a fleeting and precious thing and that they are one diagnosis or one accident away from disability. As an immunocompromised person said to me, like, don't you want a better world for yourself? When that happens, the imminent future does not look great. If anything gives me a little bit of hope, it's the fact there are a lot of grassroots movements springing up right now to draw attention to communities who have been disproportionately harmed by the pandemic. I spoke to an anthropologist who studies communities after wars and conflicts, and she told me that this often happens. It's often the groups that have been disproportionately harmed who have to carry the mantle of moving their society towards a phase of reconciliation and reckoning. And you shouldn't have to be. They've already suffered the most. But I'm not seeing signs that the more privileged among us are willing to carry that burden in their stead.
Brooke Gladstone
Ed, thank you very much.
Ed Young
Thanks for having me.
Brooke Gladstone
Ed Young is a staff writer at the Atlantic, where he covers science. Next. There are people out there who know exactly how to live a fulfilling life in a seriously infectious world. We don't listen.
Laura Spinney
We're not going to take into consideration this very real problem unless everybody considers it a problem, not just the people who are already suffering from it. You or I could be struck down with Long Covid tomorrow. Many people in the world are unvaccinated, vaccinated and we don't know what variants are going to come.
Brooke Gladstone
This is on the media.
Micah Loewinger
On the Media is supported by Progressive Insurance. Do you ever find yourself playing the budgeting game? Well, with the name your price tool from Progressive, you can find options that fit your budget and potentially lower your bills. Try it@progressive.com Progressive Casualty Insurance Company and affiliates Price and coverage match limited by state law. Not available in all states.
Mary Harris
McCrispy strips are now at McDonald's. I hope you're ready for the most dippable chicken in McDonald's history. Dip it in all the sauces. Dip it in that hot sauce in your bag. Dip it in your McFlurry. Your dip is your business. McCrispy strips at McDonald's.
Unknown
The election has come and gone. Now we're in a new era. It can be easy to get discouraged, frustrated, but you can't afford not to pay attention. You need trustworthy, independent journalism to cut through the noise and hold power to account. I'm Mary Harris, host of What Next from Slate.com we are a daily news podcast with a kind of transparent, smart, yet tongue in cheek analysis you can only find at Slate. Follow and listen to what Next. Wherever you get your podcasts.
Brooke Gladstone
This is ON the Media. I'm Brooke Gladstone. To continue with lessons unlearned, let's start with Long Covid. CNN reported this week that COVID 19, has become a chronic condition for tens of millions of people. Long Covid, which can hurt multiple bodily systems and last a long while even if your initial infection was mild, has cost a cumulative 386 billion in lost wages, savings and medical expenses in the US alone as of January, according to one estimate. It is in effect creating a new and burgeoning community of the disabled. Laura Spinney is a science journalist based in Paris for the science journal Nature. She wrote an article titled Pandemics Disabled People the History Lesson that Policymakers Ignore. She's the author of the book Pale the Spanish flu of 1918 and how it changed the world.
Laura Spinney
World.
Brooke Gladstone
Welcome to the show, Laura.
Laura Spinney
Thank you.
Brooke Gladstone
About a year ago, health economists at the London School of Hygiene and Tropical Medicine estimated that Covid induced disability might account for roughly 30% of the pandemic's overall health burden.
Laura Spinney
I know, it's shocking, isn't it? With many caveats. There were many things they couldn't measure at that time. For example, they did not include mental health. And we know that mental health problems can be included in post Covid syndromes. In fact, more recent estimates suggest that long Covid could potentially account for the majority of the health burden of this pandemic. The problem and the reason that I wrote that essay was that politicians in most of the world, they're still talking in terms of just hospitalizations and deaths when they give the reasons for their policy decisions. And it's just not good enough, because we now know that long Covid, even if we can't be precise about the limits of the problem, we know it's a big problem, and they really should be taking it into account more than they are.
Brooke Gladstone
You wrote that long Covid is the latest reminder that epidemics have long tails, not just psychologically or economically or socially, but biologically. That goes back at least as far as the 1918 flu and what you call long influenza.
Laura Spinney
The most visible, if you like, long tail of that pandemic, but still debated because we haven't proved a causal link between the two, is what's called encephalitis lethargica, colloquially known as sleepy sickness, not the same as sleeping sickness. This was this strange kind of sleepiness that came over people. Very strange in the sense that people could still react if you threw a ball at them. They could still catch it, even though they appeared by some measures to be asleep. So it was a weird kind of somnolence.
Brooke Gladstone
80% of people who had encephalitis lethargica went on to develop a Parkinson's like disease. Apparently, it's never been proved biologically that the flu caused both El and the Parkinson's that frequently followed. But the statistical case for it is very strong.
Laura Spinney
There had been cases of encephalitis lethargic before in the world, but this is the only time in the world ever in history that we know of that there was a global wave of it following the global pandemic of flu. And there are also some really weird sort of smoking gun bits of circumstantial evidence. For example, Western Samoa had a really bad case of flu and a really bad case of encephalitis Lethargica. American Samoa had neither.
Brooke Gladstone
And then if you look at subsequent flu pandemics, did you see encephalitis pop up?
Laura Spinney
Yeah. The next pandemic was 57, and the one after that 68. Following both of those, there were waves of more generalized inflammatory disease, stroke, encephalitis, which just means inflammation of the brain, and heart attacks. That is a common feature following outbreaks of flu, whether they be seasonal or epidemic or pandemic.
Brooke Gladstone
But have we seen encephalitis lethargica yet?
Laura Spinney
It hasn't been seen yet. Many neurologists will say that if we were going to see it, we would have seen cases already, and we haven't. But it doesn't rule out other long term effects. For example, there could be increase in neurodegenerative disease, dementias and things. That is a possibility.
Brooke Gladstone
We know that measles can cause a progressive neurological disorder, but how about more recent diseases that we haven't had as much time to study? I read there was an association with Epstein Barr.
Laura Spinney
Yeah. This is intriguing because doctors have suspected a link between Epstein Barr virus, which is very common in people, and multiple sclerosis, which is not as common. And so the idea is, and some recent work has seemed to corroborate this, that in those people who have some kind of predisposition to multiple sclerosis, the Epstein Barr virus can possibly trigger their disease. And even if it isn't the underlying cause, that's important information because, you know, it could be something that you could target and treat, possibly even preventively. But it's one example of why it's so difficult to understand the causal links in these sequences.
Brooke Gladstone
In the course of the last two years, we placed an awful lot of faith in vaccines to basically end Covid, but it's still with us, including obviously those with long Covid. And you saw the same dissonance in your study of the polio epidemic.
Laura Spinney
The common thread with all these stories is human psychology trying to come to terms with a disease that might manifest differently in the short term and in the long term, and making that connection. Polio grabbed the world's attention in the 40s and 50s when there were these terrifying summer epidemics across North America and Europe which left many children paralyzed. There was this huge public groundswell of motivation to solve the problem. And everybody gave money to March at Dimes and March of Dimes funded the vaccine that Jonas Salk created. It was a great story of, you know, a triumph of science. But then some decades later, some of those individuals who'd survived polio as children, the percentages really vary wildly. I've seen 20%, I've seen 85%. They started to backslide. They started to have respiratory problems again, mobility problems. They were back on their mobility and respiratory aids. They tried to get in touch with the physicians who treated them initially in many cases, but those doctors had often retired and younger ones weren't interested. The anthropologist who I interviewed for the article in Nature, who talked to many people with post polio syndrome in the 80s and 90s, he said that it was really hard to get a younger generation of doctors interested in what was considered a disease from the past. And it wasn't so easy to sell to the charitable money giving public because there wasn't going to be one silver bullet. It was going to take time and patience and engineering, rather than one great big moonshot with a vaccine at the end of it. And so it was less visible.
Brooke Gladstone
At least it had one very visible champion, though. Albert Sabin, who developed the polio vaccine that replaced sox, drew attention to post polio syndrome. And then the March of Dimes, which had supported polio research, took it up.
Laura Spinney
And yet, even though he championed post polio, even though March of dimes got involved, it didn't have the same cachet, it didn't have the same draw in terms of storytelling, in terms of public visibility. And it's a problem with these long term conditions. And I think it's one of the reasons that people who are suffering from long Covid now feel so desperate and are protesting in the streets. They worry about the lack of attention. Now, while the pandemic is still raging. What will it be like for them once the pandemic is declared over and everybody else returns to some semblance of normality, whatever that might mean in a post Covid world? How will they be treated? Will they be remembered? Will anybody pay attention to them? What will their future lives be like?
Brooke Gladstone
You wrote that from the beginning of this pandemic, people with disabilities understood that the disease would target them and would also swell their ranks.
Laura Spinney
The people who are already disabled were going to be more vulnerable to Covid in many cases. But Covid would also create newly disabled people. In some countries. The virus has just been allowed to rage in schools where not all children are vaccinated, the testing has been cut down, and so we don't even see it. What is going to be the effect of that virus on those children in their later lives? And what is going to be the effect on those children who are already disabled? Take a child who's severely asthmatic, who could not go to school because Covid was allowed to rage there. Just in our allowing that to happen and deciding on that course of action, we've already excluded a certain Population of children from school. Nobody talks about that. So it's this idea of the social model of disability, the idea that it's our decisions that disable people rather than the physical disorder or condition itself, that we can compound their disability. And that's really important.
Brooke Gladstone
You've observed that the long haulers haven't been reflected on data dashboards, that the huge volume of COVID induced disability needs to be acknowledged in policy making circles, not just in scientific grants and papers and clinics.
Laura Spinney
We're not going to take into consideration this very real problem unless everybody considers it a problem, not just the people who are already suffering from it. You or I could be struck down with long Covid tomorrow. Many people in the world are unvaccinated and we don't know what variants are going to come.
Brooke Gladstone
You wrote that. I love this line. Public health has always privileged the acute over the chronic.
Laura Spinney
Yeah, well, it's a very human tendency, isn't it? We tend to favour what's happening now. And the psychological and social burden of COVID is not just the threat of hospitals overrun, it's also in the future with large numbers of people who will be unable to work, large numbers of children potentially who might not be able to fulfill their educational potential. I'd like to see the politicians take into account that future burden as well as the present one that we can see before our own eyes. And also to think about a more disability friendly society. I mean, there have been incremental improvements. Some of the landmark pieces of disability legislation in the U.S. for example, came about as a result of campaigning by polio survivors. Who knows, maybe one of the silver linings of this pandemic is that our societies will become more conscious of the disability that we see becoming only more common as our populations age, and that there will be a greater flexibility in the way that we live and work. Seeing disability more through the social model than through the medical model, not so much as something that can be prevented or treated, but as something that can be lessened because we make space for disabled people to be productive.
Brooke Gladstone
As has often been observed during the lockdowns, remote working flexibility in working hours and communication formats and metrics of productivity were universally adopted things that the disabled community had been asking for for decades. Right.
Laura Spinney
Of course there were problems. We found new solutions. We were forced to undertake this huge natural experiment overnight. And what did we learn? We learned that much more flexibility was possible in every aspect of life. And many of those are probably here to stay. They work. And if we can incorporate that kind of flexibility, then Many more people will be brought into the work market and into all kinds of social and creative activities who were excluded from them previously.
Brooke Gladstone
You're not worried that a lot of these advances will be rolled back in some effort to return to a pre pandemic normal?
Laura Spinney
You know, you can already see it. The thing is that we have to really make a scientific analysis of what we've learned and take away the lessons of what worked and what didn't. Just to give a really simple example, the first one that comes into my head, we definitely learned that children get a lot of benefit from learning together in a physical space that they share. But that doesn't mean that all learning at all ages has to happen in the classroom. It's about learning what combination is right for what children, what age group, and so on. And a lot of those lessons have already been learned. So now can we just take on board that if we accept a hybrid situation, then we can make that educational system accessible to far more people? And the same is true of justice. E. Justice was something that a lot of people were campaigning for before the COVID pandemic.
Brooke Gladstone
E. Justice, yeah.
Laura Spinney
Moving justice online, large parts of the process online, because something like half the world's population don't have reasonable access to justice by some measurement. So a lot of people were campaigning for justice to be more accessible online to try and bypass some of these backlogs at courtrooms. For one thing, that happened overnight thanks to Covid hearings had to move online, for example. Now, again, there were problems with that, but we kind of had this natural experiment in what worked and what didn't. And so I think going forward, it would be foolish to just undo all of that. We need to take on board the things that worked and things that didn't so that we can again, broaden access to more people.
Brooke Gladstone
The history is there. Why haven't we learned from the epidemics of the past, even ones like the 1918 flu that seem so similar to COVID 19.
Laura Spinney
I mean, I think there are lots of reasons, but one of the ones that intrigues me is the sort of failure of collecting that seems to happen historically after pandemics. For some reason, we forget pandemics more easily than, for example, we forget wars. I've been thinking a lot about this in the last few years. We send people off to the front to fight wars. We don't all go through wars. So the rest of us are intrigued and interested in what happens in war, and so we'll read novels about it and so on. Whereas a pandemic is something that by definition affects everyone. And so we've all been through it. So once it's over, we all just want to forget it. We don't want to talk about it more or read about it more or see plays. We just don't. We want to get past it. And because we don't rehearse it, we don't talk about it, those memories fade quite quickly, and that has all sorts of repercussions. For example, in terms of our response to the next one, we are not ready. We're never ready.
Brooke Gladstone
Thank you very much, Laura.
Laura Spinney
It was a pleasure.
Brooke Gladstone
Laura Spinney is a writer and science journalist based in Paris and the author of the book Pale the Spanish flu of 1918 and how it Changed the World. Coming up, in the face of all this vacuity, what would Vonnegut do? This is on the Media.
Unknown
Foreign.
Micah Loewinger
Is supported by Progressive Insurance. Do you ever think about switching insurance companies to see if you could save some cash? Progressive makes it easy to see if you could save when you bundle your home and auto policies. Try it@progressive.com Progressive Casualty Insurance Company and affiliates. Potential savings will vary. Not available in all states.
Mary Harris
McCrispy strips are now at McDonald's. I hope you're ready for the most dippable chicken in McDonald's history. Dip it in all the sauces. Dip it in that hot sauce in your bag. Dip it in your McFlurry. Your dip is your business. McCrispy strips at McDonald's.
Unknown
The election has come and gone. Now we're in a new era. It can be easy to get discouraged, frustrated, but you can't afford not to pay attention. You need trustworthy, independent journalism to cut through the noise and hold power to account. I'm Mary Harris, host of What Next from Slate.com we are a daily news podcast with a kind of transparent, smart, yet tongue in cheek analysis you can only find at Slate. Follow and listen to what Next.
Brooke Gladstone
Wherever you get your podcasts, this IS ON THE media. I'm Brooke Gladstone. As we've heard so far this hour, the argument over what to do and whether to do it illustrates how death and disability on a massive scale are perceived in many precincts as a new normal. Covid is still too much with us, and yet many of us are just too spent, too confused to react anymore. Maybe we've forgotten how to feel for others or even look after ourselves. Last fall on the Media, correspondent Micah Lowinger looked to the work of one of fiction's great practitioners to make sense of how and why we Lost the plot.
Micah Loewinger
Last October, when we first ran this piece, I spoke with my friend Soren Wheeler, he also works at wnyc, about the dissonance of that moment in the pandemic, which frankly, is feeling pretty familiar again. I interviewed him between the emergence of the Delta and Omicron variants.
Rachel Pilch Loeb
I ran into a neighbor friend after dropping our kids off at school. I have a six year old who's not vaccinated. So, like, it's definitely not over for us. She's like, oh, are you guys still worried about that? And I was like shocked. But also I didn't have a dramatic answer to are you still worried about it? I had to be like, well, not really for me in terms of hospitalization. Cause I'm vaccinated and the kids, it's not as big a risk to them and my parents are good and like. But I just don't want it to keep going in case there's another mutation. Even my dramatic feelings that it's not over were sort of abstract and flatter and slower.
Micah Loewinger
It's interesting to me that Soren was drawing a blank because he's one of the people most up for the challenge. He's the editor at Radiolab, where he thinks a lot about making hard topics accessible and engaging.
Rachel Pilch Loeb
Many of us don't think we want to hear about science or many of us don't think we want to hear about politics or economics or just like sort of a dark, dark thing, like a drone strike or something like that. You just feel like, oh, I don't want to. And if you just give people information, you're never going to beat that feeling. The way to beat that feeling and make people engage with information, the lubrication to get them to get a new idea into their brain is emotion and emotional change over time.
Micah Loewinger
Of course, not all emotional stories are captivating. It's more complicated. Our own standards are mysterious to us. But several years ago, Soren found a sort of cheat code for how to distinguish good stories from bad ones when he clicked on this esoteric YouTube video of an old lecture.
Unknown
Now then, where the hell are we?
Micah Loewinger
This is novelist Kurt Vonnegut, the Author of Slaughterhouse 5, Cat's Cradle, and so many other great books.
Rachel Pilch Loeb
Vonnegut is a hero. And then at some point, I stumbled into this video and it just unveiled something. It's wry and funny, but also just deeply revealing about some basic things about us.
Unknown
There's no reason why the simple shapes of stories can't be fed into computers. They are beautiful shapes.
Micah Loewinger
The lecture is About a theory he had about the geometrical shapes of stories, really popular stories, ones we've heard a billion times.
Rachel Pilch Loeb
He's like, sort of like somewhat curmudgeonly, cynical, oldish man by this point. And he's on a stage in sort of one of his sloppy suits. And he's got a chalkboard.
Unknown
This is the GI Axis. Good fortune, ill fortune, sickness and poverty down here. Wealth and boisterous good health up there.
Micah Loewinger
Vonnegut draws two perpendicular lines. A simple XY axis on the chalkboard. The first line is labeled G for good fortune on the top left corner and I for ill fortune on the bottom left corner. And slicing through the middle of the chalkboard, left to right, is the second line, the X axis.
Unknown
Now, this is the be axis. B stands for beginning, E stands for electricity.
Rachel Pilch Loeb
Just starts explaining. There's just a couple stories out there. He's like, name's the first one. Man in a Hole.
Unknown
We call this story man and Hole. But it needn't be about a man and it needn't be about somebody getting into a hole. Just a good way to remember somebody gets into trouble, gets out of it again.
Micah Loewinger
In one motion, he draws a single curve with a shallow dip showing the person's fortune dropping down and swooping back up.
Unknown
People love that story. They never get sick of it.
Rachel Pilch Loeb
It's just like, boom. Like what I'm doing in my head is like, oh, my God. Yeah. That's a whole category of movie that I've seen a thousand times.
Micah Loewinger
A 2018 study from Birmingham University used AI to analyze over 6,000 scripts and found that this is the most profitable arc in all of Hollywood. And when you think about it, there are so many movies that are basically man in a whole stories.
Rachel Pilch Loeb
Bill and Ted's excellent adventure is that.
Micah Loewinger
That's a great one. And Harold and Kumar go to White Castle.
Brooke Gladstone
Sure.
Rachel Pilch Loeb
Yeah.
Micah Loewinger
Harold and Kumar. Average day, they decide they want to get food no matter what. We are not ending this night without White Castle in our stomachs.
Rachel Pilch Loeb
Agreed?
Micah Loewinger
Agreed. And then they go on a crazy journey. And it seems like all hope is lost after they're stuck in the woods and everything has gone to crap.
Ed Young
I'm completely on edge right now, man.
Micah Loewinger
After all the.
Ed Young
That we've been through tonight, I don't.
Laura Spinney
Know how much more it can take.
Micah Loewinger
And then they manage to find the courage. And some crazy, serendipitous events leads to them finally getting to White Castle, getting their burgers.
Rachel Pilch Loeb
Looks like you guys had some night, huh?
Laura Spinney
I want 30 sliders, five french fries.
Unknown
And four large cherry Cokes.
Micah Loewinger
I want the same, except make mine Diet Cokes. And so not only do they emerge from the hole, but they're sort of stronger afterward.
Rachel Pilch Loeb
You can see on the curve like that the man in the hole ends up higher up than where he or she started. Right.
Micah Loewinger
Anyway, back to the lecture. Vonnegut begins drawing a second curve, which.
Unknown
He calls boy gets girl. But it needn't be that. Just a way to remember it. Start on an average day. Average person not expecting anything to happen. A day like any other. Find something wonderful. Just loves it.
Micah Loewinger
Vonnegut draws a curve with an upward slope. The protagonist has found their true love. But then the incline reaches a rounded peak. The moment when the protagonist and we, the audience realize this is all way too good to last.
Rachel Pilch Loeb
And then it. It goes bad. They lose it. Almost always because to get the person they love, they'd, like, made up some stupid lie or they said they were somebody, they weren't. They go down and they lose the girl.
Micah Loewinger
Our character is heartbroken and Vonnegut's curve drops down to a deep low on the good ill fortune axis.
Rachel Pilch Loeb
But then, usually in the last five minutes of the movie, they get the girl or the boy back and they're happy.
Micah Loewinger
And so the curve shoots way back up to finish the story. Vonnegut's curve ends up looking like an S flipped on its side. Neutral to happy to sad to happy again.
Unknown
People like that.
Micah Loewinger
Vonnegut's next story, he tells us, is a little bit more complicated.
Unknown
We love to hear this story. Every time it's retold, somebody makes another million dollars. You're welcome to do it. We're going to start way down here. Who is so low? It's a little girl. What's happened? Her mother has died. Her father has remarried. A vile tempered, ugly woman with two nasty daughters. Big daughters.
Rachel Pilch Loeb
Cinderella. Yeah.
Unknown
Anyway, there's a party at the palace that night. She can't go, okay, so the fairy godmother comes, gives her shoes, gives her stocking, gives her mascara, gives her a means of transportation, goes to the party, has a swell time.
Rachel Pilch Loeb
This is the first time that, like, you notice that he's introducing a whole nother aspect into these curves, which is slope. Because if you're going from beginning, middle and end, then what you're dealing with is time. And so how steeply it goes up has to do with how fast it happens. Fairy godmother comes along and he does this little staircase thing. He's like, gives her some mascara, gives her some Shoes, gives her a dress. Boom, boom, hits of good fortune in this little staircase. And then she goes to the ball. And so now she's up, crossing past the line and up into the happy zone, dancing with the prince.
Unknown
This is love.
Rachel Pilch Loeb
Yeah, yeah, yeah. And then he does this thing where the line starts going down and he goes, dong, dong, boring, boring, boring.
Unknown
Now, there's a slight inclination to that line as I've drawn it, because it takes perhaps 20 seconds, 30 seconds for a grandfather clock to strike 12.
Mary Harris
Goodbye.
Micah Loewinger
No, no, wait, you can't go now.
Unknown
It's only.
Micah Loewinger
Oh, I must. Please, please, I must.
Unknown
But why does she wind up at the same level? Of course not. She will remember that dance for the rest of her life. Now she poops along on this level till the prince comes to shoe fits. She achieves off scale happiness.
Micah Loewinger
Vonnegut's curve shoots to the top right corner of the chalkboard. And then he draws a little infinity sign.
Rachel Pilch Loeb
That is every fairy tale's last line, which is. And lives happily ever after, you know?
Micah Loewinger
Now, obviously, not all good stories need to have a happy ending. There are many different types of narratives out there. These just happen to be a few of the most popular ones, the ones that put a spell on us.
Rachel Pilch Loeb
The whole thing is like, look how simple we are. People never get sick of it. Our brain wants that over and over and over and over. Like, our brain still scans it as unexpected. We saw something go from good to bad and then good again.
Micah Loewinger
And maybe that sounds a little depressing to think that we're kind of trapped in this cycle of, of paying to see and feel that emotional experience playing out over and over, trapped by a desire for that repetition, that familiarity. But Soren thinks it's actually quite instructive for him and the producers at Radiolab. These are blueprints for how to satisfy and sustain a listener's attention, and blueprints for what not to do.
Rachel Pilch Loeb
I mean, I always used to argue that, like, I don't think Radiolab has ever said yes to a story that crossed the line once.
Micah Loewinger
So just one turn of fortune, right?
Rachel Pilch Loeb
Like, oh, here's Mary, she was super happy and going along, and then she got an illness and got really sick. And if you just leave me down there, man, I'm like, oh, why did I listen to this? There's just a level of complication below which it didn't feel worth it.
Micah Loewinger
But it also seems like the opposite can be true. What happens when there are too many changes in fortune?
Rachel Pilch Loeb
Oh, sure, if you go up and down and up, up and down, and up and down and up. By right around here, you've lost any element of surprise, probably. You've also sort of lost the feeling that we're on a path to something, that there's an endpoint of any kind, which is the whole reason we listen to stories is just get to an end point to then have a thought or feel different afterwards. You've lost the idea that there's any meaning to be made out of this.
Micah Loewinger
Yeah. You're going to numb their receptors, right?
Rachel Pilch Loeb
Yes.
Micah Loewinger
You know, I. I also encountered this video. I was binging Vonnegut's books, and then I started listening to old interviews with him on YouTube, and that's how I came across this video. And once I saw the shapes, they were kind of burned into my mind. Right then when the pandemic hit, there was this moment where the shapes of the pandemic became a universal language.
Unknown
Flatten the curve. Flatten the curve.
Micah Loewinger
We did it. We flattened the curve. We didn't just flatten the curve, we bent the curve.
Rachel Pilch Loeb
I'm right there with you. It was completely striking, and I was instantly thinking about all the curves, both literal in terms of the rise of cases, but also like a pandemic is a story. Right. A pandemic should have a beginning, middle, and end. As Covid is rising, what we're doing is we're plummeting down Vonnegut's line, down from health and wealth down into, like, poverty and sickness and death.
Micah Loewinger
And when the daily cases began to drop at the end of that first wave in 2020, the emotional tenor of the country seemed to improve, too, at least for a moment.
Ed Young
Northern New York State today, the governor.
Micah Loewinger
Saying all indications on the medical front continue to be encouraging hospitalizations down, new Covid cases down. There is some good news, some sparks of hope. We're seeing cases falling, hospitalizations down.
Brooke Gladstone
Case numbers are going up. They're going up. 40 states are showing Covid rates that are going up.
Mary Harris
New numbers this morning are pointing to.
Brooke Gladstone
To a brighter picture in the US.
Mary Harris
The national rate of new COVID 19.
Brooke Gladstone
Infections and hospitalizations, Both of those numbers are going down.
Micah Loewinger
If you pull up a graph of the pandemic, you can see this ebb and flow of cases, a long, rippling vonnegut curve, up and down and up.
Rachel Pilch Loeb
And down and up and down.
Micah Loewinger
Yeah, but I don't know. Is that a good story?
Rachel Pilch Loeb
No. I mean, you know, why are you asking that question? You know, it's not a good story.
Micah Loewinger
I know it's not a good story, but I'm just trying to make the point.
Rachel Pilch Loeb
Yeah, no, it's a bad story. Yeah, nobody wants to hear that story. I wouldn't put that story on the air. I wouldn't go to a movie theater to watch that story.
Unknown
I guess from my perspective, it's been a little bit of a sad and terrifying story.
Micah Loewinger
That's Rachel Pilch Loeb, Preparedness Fellow at the Harvard T.H. chan School of Public Health.
Unknown
It's a scary story from the perspective of what does it mean for our public health infrastructure? What does it mean for the next time this comes around?
Micah Loewinger
I wanted to see if this made sense from a kind of epidemiological perspective. So I sent her an email summarizing my conversation with Soren about the pandemic and Vonnegut's shapes.
Unknown
I conceptually liked the thought a lot. I mean, the idea that we as humans have narrative filters that we put on the world. And I think one of the challenges of the pandemic has been we don't really know the trajectory of what's gonna happen.
Micah Loewinger
Were there moments where there may have effectively been an over promise or where people may have perceived an imminent end to the pandemic?
Unknown
What was presented as a turning point in the story nationally was the vaccine availability and rollout. And we basically came up with a policy that was not necessarily founded in a particular piece of evidence, besides the desire to make it true, which was if you're vaccinated, no other public health measures are necessary. Then we were faced with the delta variant and people thought that the story had ended up, so to speak. Vaccines are rarely 100% effective at preventing merely infection. That's not what they're designed to do. They're designed to prevent the impact of the infection, which is certainly what these vaccines do. We then had to start retelling a new set of policies, a new set of explanations, et cetera. And I think that that pivotal time really is where more people were lost and kind of began down their own path of I'm going to try and figure out what works for me.
Micah Loewinger
We lost the plot.
Unknown
Yeah. It created this perception that the vaccines were the savior in the story. Right. Our expectations of it were not realistic because the reality is that there is no panacea for a pandemic.
Micah Loewinger
Yeah. And I would say that that's probably not even unique to a pandemic or any kind of public health crisis. I mean, it's funny when we use terms like national narrative or whatever, when we watch a movie, we can take away different conclusions, but we're all watching the same movie, you know, we're all reading the same book. And one place where maybe my theory breaks down and where it's not so analogous is that we're not really witnessing the same story.
Unknown
We're talking about kind of a global story, a national story, a community story, and a personal story. Meaning my experience is probably pretty different from. From yours or from somebody else who's had a different experience personally with the virus, who maybe lives in a different part of the country, certainly in a different part of the world. So this story is still ongoing. We need to look really introspectively to figure out how to change the story for the next time.
Rachel Pilch Loeb
As much as, like, the simple stories are crack for the human brain, there's gotta be a way to making us all a little bit more friendly to, like, the complicated stories and make complexity something to be reveled in and curious about and fun and not dangerous or whatever. Or at least just recognize that none of the stories in our lives do the Vonnegut thing right. That's what we go to the movie theater for, but have a different version of us, a different habit of mind that we apply to the life around us and especially to questions of public good.
Micah Loewinger
I'd like to end with a piece of advice that Vonnegut often used to tie up his lectures, something he learned from his Uncle Alex.
Unknown
What Uncle Alex found objectionable about so many human beings is that they so seldom noticed it when they were happy. And so we would be sitting under an apple tree, for instance, on a July afternoon, drinking lemonade and practically buzzy, like honeybees and alcoholics would stop everything and say, wait a minute, stop. If this isn't nice, I don't know what is.
Micah Loewinger
We've spent this hour focused on how some of us would prefer to act as if the story of COVID is over despite its continued destruction. It's been a messy narrative with no chance of ever ending up like Cinderella in that zone of infinite bliss. But as Vonnegut observed, some of the best stories don't make that landing and don't need to. As we watch our current storyline rise and fall and rise and fall, I'm thinking Uncle Alex may be pointing to the best ending we could ask for. For on the Media, I'm Michael Ohinger.
Brooke Gladstone
That's it for this week's show. On the Media is produced by Micah Loewinger, Eloise Blondio, Rebecca Clark Callender and Max Balton, with help from Aki Camargo. Zandra Ellen writes our newsletter. Our technical directors, Jennifer Munson. Our engineers this week were Adrian Lilly and Andrew Nerviano. Katya Rogers is our executive producer. On the Media is a production of WNYC Studios. I'm Brooke Gladstone.
Micah Loewinger
I'm Ira Flato, host of Science Friday. For over 30 years, our team has been reporting high quality news about science, technology and medicine. News you won't get anywhere else. And now that political news is 24 7, our audience is turning to us to know about the really important stuff in their lives. Cancer, climate change, genetic engineering, childhood diseases. Our sponsors know the value of science and health news. For more sponsorship information, visit sponsorship.wnyc.org.
On the Media: "Our Unfinished Pandemic" – Detailed Summary
Released April 8, 2022 by WNYC Studios
In the episode titled "Our Unfinished Pandemic," hosts Brooke Gladstone and Micah Loewinger delve deep into the enduring challenges posed by COVID-19 in the United States. The discussion centers on the normalization of mass death, the overlooked epidemic of Long Covid, and the complexities of narrating an ongoing pandemic. Through insightful interviews with experts like Ed Young from The Atlantic and science journalist Laura Spinney, the episode unpacks the multifaceted impacts of the pandemic and the lessons yet to be learned.
Guest: Ed Young, Staff Writer at The Atlantic
Ed Young begins the conversation by highlighting a concerning trend: COVID-19 has become the third leading cause of death in the U.S., yet it fails to evoke the same urgent response as other mass mortality events. He observes, “Why doesn't it provoke the same kind of visceral reaction?” (07:37). Young attributes this to a combination of fatalism and systemic failure. Despite the U.S. being touted as the most prepared country for a pandemic, the response has been inadequate, leading to a sense of nihilistic abandonment among the populace.
Young critiques the false dichotomy presented to the public: either implement draconian lockdowns or do nothing, neglecting the multitude of intermediate measures that could mitigate the virus's impact. He emphasizes the role of individualism in public health messaging, noting, “The rhetoric of individual responsibility... is antithetical to actually controlling an infectious disease” (12:13). This focus shifts blame onto individuals rather than addressing systemic issues that disproportionately affect marginalized communities. Young cites a study revealing that when white Americans are informed about racial disparities in COVID deaths, their perception of the pandemic's seriousness diminishes (10:17).
Guest: Laura Spinney, Science Journalist for Nature
Laura Spinney shifts the focus to Long Covid, a chronic condition affecting millions globally. Spinney references a study estimating $386 billion in lost wages and medical expenses in the U.S. alone (22:56). She underscores the critical oversight in policymaking, where Long Covid remains underrepresented on data dashboards and is largely ignored in public discourse.
Drawing parallels to the 1918 flu pandemic, Spinney discusses long-term neurological effects like encephalitis lethargica and its historical aftermath, where many survivors developed Parkinson's-like symptoms decades later (24:17). She highlights the challenge of causal linkage, pointing out that despite strong statistical correlations, the biological connections remain unproven.
Spinney advocates for a shift in public health priorities, urging policymakers to recognize Long Covid's enduring impact. She envisions a future where societies become more disability-friendly, incorporating the lessons learned from the pandemic to create more flexible and inclusive systems in education, justice, and the workplace (32:07).
In a creative segment, Micah Loewinger and Rachel Pilch Loeb explore how narratives shape our understanding of the pandemic, drawing inspiration from Kurt Vonnegut's theory on the geometrical shapes of stories.
Using Vonnegut's model, they categorize stories like "Man in a Hole" and "Boy Gets Girl," illustrating how popular narratives follow predictable arcs of fortune and misfortune. Loewinger relates this to the pandemic's trajectory, observing, “If you pull up a graph of the pandemic, you can see this ebb and flow of cases, a long, rippling Vonnegut curve, up and down and up” (50:57). However, the pandemic defies simple storytelling, presenting a complex, non-linear narrative that lacks a clear resolution.
Rachel Pilch Loeb points out that persistent variations and fluctuations in case numbers make the pandemic a "bad story" in Vonnegut's terms, as it fails to provide a satisfying or conclusive ending (51:02). This ongoing, unresolved narrative contributes to public fatigue and the perception that the pandemic is an endless struggle.
Loewinger and Pilch Loeb discuss the psychological impact of viewing the pandemic through simplistic story arcs, where constant changes in fortune can lead to emotional numbness and a sense of being "trapped in a cycle" (48:18). They argue for a more nuanced storytelling approach that embraces complexity and fosters a deeper understanding of collective experiences.
"Our Unfinished Pandemic" thoughtfully examines the enduring and evolving challenges of COVID-19, emphasizing the need for systemic change and comprehensive understanding. Through expert insights and creative analysis, the episode underscores that the pandemic's impact extends beyond immediate health concerns, shaping societal structures and collective narratives for years to come.
Notable Quotes with Timestamps:
This comprehensive summary encapsulates the episode's exploration of the pandemic's normalization, the overlooked crisis of Long Covid, and the challenges of narrating an ongoing global health crisis. It provides listeners with a detailed overview of the discussions, supported by key quotes and timestamps for reference.