In this episode, we speak with Mary Wells, who was diagnosed with primary myelofibrosis in 2018, a rare blood cancer that falls under the umbrella of myeloproliferative neoplasms (MPN). Mary walks us through her journey, from the side effects and emotional toll of cancer to finding the right treatment that allowed her to reclaim her life.

Mary shares the ups and downs of watch-and-wait periods, switching medications, and navigating side effects. Along the way, she advocated for her own care and partnered closely with her doctor, making shared decisions that ultimately led her to a treatment that works best for her.

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Mentioned on this episode:

Primary Myelofibrosis
Shared Decision Making podcast episode
MPN Online chats
LLS Clinical Trial Support Center
Advoca cy and Public Policy

Additional LLS Support Resources:

Free Nutrition Consultations
Information Specialists
Financial support
Free telephone/web patient programs
Free booklets
Young Adult Resources
Support groups
Caregiver support
Caregiver Workbook
Survivorship Workbook
LLS Community
Mental Health Resources

Supported by GSK plc.

The post Choosing the Path Forward: Shared Decisions in Myelofibrosis Care first appeared on The Bloodline with Blood Cancer United Podcast.