Podcast
Take Care of Rare
Hosted by Takeda Belgium · EN
Timely diagnosis of patients with a rare genetic disease is a real challenge.
Through this podcast series, you will learn more about how we inform/support healthcare professionals to accelerate early detection.
This content is intended for healthcare professionals in Belgium and Luxembourg and is brought to you by Takeda Belgium.
This podcast series on Fabry Disease with 7 episodes has been co-created with your colleagues with focus on 4 areas:
1. Rare Diseases with Prof. Dr. David Cassiman:
a. episodes 1 : the importance of early diagnosis
b. episode 2: the referral trajectory
2. Cardiology with Prof. Dr. T. Robyns:
a. episode 3: Fabry Disease and the Heart
3. Nephrology with Dr. W. Terryn & Dr. G. De Schoenmakere:
a. episodes 4: Fabry Disease and the kidney #1
b. episode 5: Fabry Disease and the kidney #2
4. Neurology with Dr. D. Hemelsoet & Dr. J. Demeestere:
a. episode 6: Fabry Disease and the brain #1
b. episode 7: Fabry Disease and the brain #2
C-ANPROM/BE/FAB/0053 - February 2024
8episodes
Episodes
Newest firstAll episodes
Navigating the transplant journey in transplantation and post-transplant care
Oct 600:41:59Tap to summarizeThis special episode kicks off Takeda Belgium’s podcast series 'The Universe of Transplant Care', exploring the transplantation journey through expert and patient perspectives. While future episodes are intended for healthcare professionals, this first episode is publicly available to support and inform patients, caregivers, and anyone curious about the realities of transplant care.In this opening episode, we delve into the emotional, medical, and personal challenges transplant patients face. It’s a journey through a complex Universe of Transplant Care—one that involves physicians, caregivers, loved ones, and the patients themselves.Joining us for this conversation are:🔹 Prof.Dr. J. Maertens – Hematologist (UZ Leuven)🔹 Prof. Dr. K. Wissing – Nephrologist (UZ Brussel)🔹 Mr. R. Dubois – Transplant recipient and representative of the patient association Transplantoux🔹Host: David Naert - Transplant recipient and sports journalist (SPORZA)Together, they discuss:🔹 The medical and emotional journey of transplant patients, with a focus on maintaining and improving quality of life after transplantation.🔹 Post-transplant challenges, particularly the impact of infections and the importance of multidisciplinary care.🔹 Personal stories and shared experiences from both patients and healthcare professionalsWhether you're a patient, caregiver, healthcare provider, or simply curious about transplant care, this episode offers valuable insights into the complexity of the transplant journey.#TransplantJourney #PatientCare #OrganTransplant #Takeda #Transplantoux #HealthcareSupport #TransplantAwarenessReferences: Based on clinical experience of Prof. Maertens & Prof. Wissing and the personal experience of Mr. Dubois as a patientWebsite eurotransplant https://www.eurotransplant.org/region/belgie-nederlandsWebsite Transplantoux: Home | Transplantoux - Connected for life C-ANPROM/BE/NON/0014 – June 2025 - R.E./V.U./E.R.: Takeda Belgium NV, Leonardo Da Vincilaan 7, 1930 Zaventem
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The importance of early diagnosis
Dec 15, 202300:14:27Tap to summarizeToo many patients with a rare disease remain undiagnosed. Prof. Dr. David Cassiman, head of the metabolic center in UZ Leuven, shares his experience on the Rare Disease landscape in Belgium, with special attention for Fabry disease.Only 40% of Fabry patients are currently diagnosed in our country. Therefore, systematic screening in high-risk populations is advised for Cardiologists, Neurologists, and Nephrologists. Prof. Dr. Cassiman explains why it is so important.He also touches upon how Artificial Intelligence (AI) can add value in this domain. What can we expect now and in the future? Curious about the opinion of a Belgian expert? Listen to (t)his podcast! C-ANPROM/BE/FAB/0051 – November 2023C-ANPROM/BE/FAB/0044
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The referral trajectory
Dec 14, 202300:10:40Tap to summarizeWith over 6000 rare diseases, you as specialists often face challenges in identifying their symptoms and consequently offering the best patient care. Prof. Dr. David Cassiman, head of the metabolic center in UZ Leuven, elaborates on the symptoms of Fabry disease and explains which tests to perform in case of suspicion.How can a reference center in metabolic diseases help you and your patients in this diagnostic odyssey, and which are the treatment options for patients with Fabry disease? Do you wonder what the answers to these questions are? Listen to( t)his podcast!C-ANPROM/BE/FAB/0051 – November 2023C-ANPROM/BE/FAB/0045
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Fabry disease and the heart
Dec 13, 202300:13:38Tap to summarizeAs cardiac disease is the leading cause of death in Fabry patients, Cardiologists are key in the diagnostic pathway. Prof. Dr. Tomas Robyns, Cardiologist in UZ Leuven, elaborates on how Cardiologists can speed up diagnosis. He gives an overview of the cardiac symptoms suspicious for Fabry disease and the new techniques to visualize cardiac involvement.To make it more tangible, Prof. Dr. Robyns describes a specific patient case.Are you convinced you can make a difference for Fabry patients? Listen to (t)his podcast!C-ANPROM/BE/FAB/0051 – November 2023C-ANPROM/BE/FAB/0048
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Fabry disease and the kidney #1
Dec 12, 202300:09:54Tap to summarizeDr. Wim Terryn and Dr. Gert De Schoenmakere Nephrologists from Ieper and Roeselare, both have a special interest in Fabry disease. They discuss together why it is worth looking for Fabry patients in your Nephrological practice. Let them convince you about the importance of Nephrologists in the diagnostic pathway of Fabry patients.Are you curious to discover the content? Listen to this podcast! C-ANPROM/BE/FAB/0051 – November 2023C-ANPROM/BE/FAB/0046
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Fabry disease and the kidney #2
Dec 11, 202300:14:05Tap to summarizeIn this episode Dr. Wim Terryn and Dr. Gert De Schoenmakere are zooming in on the screening process itself and the best techniques to test a suspicious case. When a patient has been diagnosed it is key to test the rest of the family. Can you do it yourself or do you need to refer your patient to a reference center?Interested in knowing more? Listen to this podcast!C-ANPROM/BE/FAB/0051 – November 2023C-ANPROM/BE/FAB/0047
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Fabry disease and the brain #1
Dec 9, 202300:19:37Tap to summarizeDr. Dimitri Hemelsoet and Dr. Jelle Demeestere, Neurologists from respectively UZ Gent and UZ Leuven, both have a special fascination for Fabry disease. They engage in collective discussions on the significance of actively seeking out patients with suspected Fabry disease. Let them convince you about the pivotal role of Neurologists in the accurate identification of Fabry patients.Are you curious to discover the content? Listen to this podcast!C-ANPROM/BE/FAB/0055
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Fabry disease and the brain #2
Dec 8, 202300:18:52Tap to summarizeIn this episode, Dr. Dimitri Hemelsoet and Dr. Jelle Demeestere, both Neurologists, explain why it is crucial to follow the right screening techniques for suspected Fabry patients and how this can lead to better patient outcomes.Interested in knowing more? Listen to this podcast!C-ANPROM/BE/FAB/0056
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