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In this episode of Fine, But Not Fine, we tackle one of the most critical aspects of managing a rare disease: finding the right doctor. If you’ve ever left an appointment feeling unheard or dismissed, you’re not alone. Not all doctors are created equal, and building the right medical team takes effort.

I share my personal experiences—from a dermatologist who completely ignored my concerns to the doctor who truly listened and changed my treatment path. Along the way, I break down:

•Red flags that signal a bad doctor.

•Green flags that indicate a great doctor.

•How to find a specialist, especially for a rare disease.

•Why building a medical team is a long-term process and how my care has evolved over time.

I also discuss how my first dermatologist failed me, why my second doctor changed everything, and how I eventually transitioned to a specialist at Duke for advanced treatment. Throughout this journey, I’ve learned that the right doctor isn’t just someone who prescribes medication—they take the time to listen, investigate, and care about your long-term well-being.

If you’re struggling with a dismissive doctor, trust your gut—you deserve better.