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Eden Scher
The autistic culture podcast network the sound of autistic culture.
Brock Ciarle
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Neurodivergent Experience Host
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Eden Scher
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Neurodivergent Experience Host
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Neurodivergent Experience Host
ACAST powers the world's best podcasts. Here's a show that we recommend.
Ira Madison III
I just want to say that I'm back with a new podcast, Feedback with Ira Madison iii. Every Thursday, I'll dissect whatever's taking over my group chat. Like who West Wilson from Summer House is banging this week. Whether film criticism and black art can actually coexist. Why every man on a dating app is either illiterate or reading Middlemarch with no in between. And whatever the hell is going on with heated rivalry fans on the Internet, you know exactly who you are. I'll be joined by friends and other culture makers to dissect pop culture, politics and the media, and all the ways the Internet has rewired our brains permanently. New episodes of Feedback drop every Thursday starting June 18th. Subscribe now to Feedback with Ira Madison III. Wherever you get your podcasts, I should get that.
Neurodivergent Experience Host
ACAST helps creators launch, grow and monetize their podcasts everywhere. Acast.com.
Brock Ciarle
Hot topic foreign. Welcome to the Neuro Spicy News Hot
Neurodivergent Experience Host
Topic Super Hot, Super Spicy News in your feed on a Friday news story, autistic children being injected with unapproved stem cell treatments supported by Emperor Palpatine himself, RFK Jr.
Brock Ciarle
Always lovely to hear. I can't. I can't wait to wake up on a Friday morning and hear two guys talking about horrific, almost 1930s freaking treatments of people during the worst time in history. Yeah, it's nice to know that we're repeating those same mistakes.
Eden Scher
Whoop. Whoop.
Neurodivergent Experience Host
Yes, maybe history classes should be a little bit more thorough. Yes.
Brock Ciarle
They don't have them.
Neurodivergent Experience Host
Yes. Well, yes, of course. But this is a article that's in the Guardian. It's a Very, very long article. So I've just made notes and a paraphrasing. There's lots of quotes from different parents in there that are using this treatment, but I'm going to just break it down for you here. So the Guardian has reported that on a growing number of clinics across the United States offering stem cell infusions as a treatment for autistic children, despite scientists and regulators saying there is no convincing evidence that the therapy works. Here's the kicker. Families are paying anywhere between $12,000 to $20,000 per session, often motivated by hopes that the treatment could improve communication, behaviour or quality of life for children with high support needs. The treatment typically involves infusing stem cells derived from donated umbilical cords, sometimes after sedation. However, the largest clinical trial conducted so far by Duke University in the US found little evidence of meaningful benefit for most autistic children. The U.S. food and Drug Administration has repeatedly warned parents that stem cell treatments offered outside approved clinical trials are likely unproven and may carry risks including infections, tumor formation and other serious complications.
Brock Ciarle
Isn't it fun that the health secretary of one of the largest countries on earth is a fucking whack job?
Neurodivergent Experience Host
It's a bit scary.
Brock Ciarle
Like an actual snake oil salesman, bonafide conspiracy theorist, flat earth plonker. I just, I mean we have talked about this so many times. It's just, it like is how does it. It just keeps getting worse because there's one thing him saying, oh, this causes autism, that causes autism. But then there's actually doing experiments on children and making families of, of disabled children spend money that they probably don't
Neurodivergent Experience Host
have their lives just.
Brock Ciarle
Yeah, because they believe him. And, and it's like people who are listening to what is their fault they shouldn't believe him. The desperation that it takes to find someone this stupid, as in RFK being that stupid. And then to believe someone who is promising you that you are going to have this perfect child now, this child
Neurodivergent Experience Host
of your dreams or write poetry and play baseball.
Brock Ciarle
Yeah, all that crap. As long as you give us some cash. It's. It's so disgusting. And it's, it's. The US is being run by the biggest con men in the history of this fucking planet.
Neurodivergent Experience Host
I think one of the things that's amazing me at the moment is a football fan, is the amount of American fans that are meeting people from around the world because of the World Cup. And a lot of them are going, oh, you guys are actually really cool. Like, yeah, it's just your government that tells you that the World outside sucks and that you're super amazing. But yeah, this, this, this article discusses like the role of R.F. kennedy Jr. Who is the U.S. health Secretary. I mean he's spoken at conferences promoting alternative therapies and support for, you know, access to treatment as like stem cell interventions. And a lot of critics in this article argue that his support lends credibility to these therapies that remain scientifically unproven, while supporters say families should have more freedom to explore potential options when conventional support services are limited. But the thing that this is highlighting for me is how far parents are willing to pursue experimental treatments for cures for autism. I understand that like, you know, there are kids that are non speaking and you know, have, you know, have high, very high support needs.
Brock Ciarle
I, I think it's important, I think, sorry, I think it's important to, to, to, to tell the audience that it's children as young as 18 months. Oh, these aren't like little kids. That, to me, that's a baby. That's not a child. That's a baby. Pretty much. Yeah, right. 18 months old are being injected with human stem cells. Now what hasn't happened? Synaptic pruning hasn't happened. How 1. You don't know your kid is autistic at 18 months. You don't know that. You, you might know that, but you have no idea what sort of autistic they're gonna be. I mean, crying out loud, 18 months. You're not giving them any bloody chance.
Neurodivergent Experience Host
And you might be making,
Brock Ciarle
it might
Neurodivergent Experience Host
be making things worse. I was reading an article literally just yesterday about a kid who's like 13, 14, who's growing up in a bodybuilding family and they're already giving him steroids at like 14, 15.
Brock Ciarle
Like, I mean they should be in
Neurodivergent Experience Host
prison, but you know what I mean? Like that's just as the hormones are
Brock Ciarle
like, where is this?
Neurodivergent Experience Host
This is in the us it was in Florida.
Brock Ciarle
Oh, of course it is.
Neurodivergent Experience Host
Yeah. But yeah, so there are things where like people are really messing with a lot of stuff that can affect you. And like I'm just reading the article as well to, you know, sedate us. Some of these kids, they're giving them like ketamine and all sorts of stuff. And there are so many people in the UK that you know, the, like ketamine is an unusual thing. A lot of people are using it for like anti depression and things like that. And I know that it's used a lot in medical care, but I know personally people that were addicted to ketamine in their 20s and it has completely their brain. Like they really struggle with depression, they really struggle with appetite. Some of like, I have one particular friend who was so heavy in the drug scene, dude, he slurs and he's 30 that he's, you know, his cognitive memories shocking and he's in a bad way. And that was because he was doing things in his twenties, let alone two year old, four year old, six year old.
Brock Ciarle
It's I, it's crazy.
Neurodivergent Experience Host
I feel for these families that feel like they need extra help and are looking for support that they aren't getting. I mean, we've talked so many times on this show about the lack of support across the world for, for neurodivergent kids and their families. And the more that we ask for support, the more we're told that we're just scroungers and cheating the system and things like that. But it's the, it's the untried and untested using your kids as guinea pigs to try and cure them. It's frightening.
Brock Ciarle
See, this is why the, the horrifically negative narrative is so dangerous, is because, you know, you, you've got that love on the spectrum narrative of like, every autistic person is so severely disabled, they can't live by themselves and they can't do this. And then there's RFK out there saying, oh, they'll never do this and they'll never do that. Not specifying what type of autistic person or how disabled they are. They're just autistic people like this and autistic people are like that. And then, and then we're out here, you know, being autistic and trying to advocate, you know, for the positive sides of it or, you know, the realistic sides of, of being an autistic person, you know, in the way that we are autistic. And, you know, is really scary how people will just get stuck on one thing, you know, because of algorithms. So if, if you are, you know, a parent of a severely, like, mentally disabled child who has been given the label of autism, we don't, I mean, I don't know how it works in America, but it's nefarious as, and sometimes that could actually not be autism because as we've discussed on this show, it's, you have to have both sides of the coin to be born neurodivergent. You have to have the positives and negatives. A lot of people can't see the positives, which is, you know, why we're here to try and help them. But we've had this before where it's like, you know, you could get diagnosed autistic, but you, you're not born neurodiverse. You're not the alternative neurotype. And I disagree with that. Like, I think there should be something else. But let's say they are born autistic, but they also have, you know, learning disabilities. They also have severely disabled mental issues. You know, their brains, lower than IQ of 70, if you go by that. But I keep going over this. You have no idea if they'll improve, because that is the wonderful thing about the neurodivergent brain, is that we can improve so much, even in your teenage years. And I do think it's crazy that you have so much information, including Steve Silverman's book where he speaks about this. Severely disabled autistic children that were basically said, look, you know, I'm gonna have to lock them away. They're doing nothing. And then they're now, like, living by themselves and they've got amazing jobs and they've got like a degree.
Neurodivergent Experience Host
Hey, I've got a friend.
Brock Ciarle
You have no idea.
Neurodivergent Experience Host
He didn't form a sentence until he was like 8 years old and they can't show him up.
Brock Ciarle
What wonderful, wonderful example exactly that my kids did talk to them, like three or four. And again, Sophie, I mean, she'll be on the podcast next week, hopefully. And she talks a lot.
Neurodivergent Experience Host
Can't get wording.
Brock Ciarle
Yeah, she's definitely my daughter.
Neurodivergent Experience Host
Yeah. So I'll just read a little bit more from this article because I've, you know, referenced it, but I'm gonna just read you this section here. So among the newly emboldened raft of stem cell providers targeting autistic kids is Better Stem, a Miami based company run by Grace Murphy. She describes herself as an entrepreneur whose other ventures include the suggestively named Beth Batch, a range of artfully crafted tequilas made for the women's palette, and a Miami stem cell clinic offering infusions to address hair loss and erectile dysfunction.
Brock Ciarle
Oh, my God.
Neurodivergent Experience Host
So the Guardian contacted them for comment and they didn't respond prior to the publication two months ago of writing this, she moved into a business of offering umbilical cord stem cell infusions for autistic children. Families are charged $300 for a consultation, followed up by a $15,000 per infusion. So Better Stem claims to be the first company in the US Offering legal, compliant access to stem cell therapies under the right to try law signed by Donald Trump in his first presidency in 2018. The clinic tells prospective clients that the legislation allows patients with a debilitating condition that has no cure, such as autism, to be treated with unapproved drugs. In fact, the right to try act is specifically limited to patients who are terminally ill and have been diagnosed with a life threatening disease or condition, which all does not fall under. This is a quote. Technically speaking, the federal right to try act covers terminal diseases and is not applicable to non life threatening conditions even if they have no cure, says Jeff Cohen, who is an expert in health law at the Florida Healthcare law firm. Among the families who are being drawn to stem cell therapies are Taylor and their four year old son Ollie from Utah. At the end of this month, they will travel to Florida for an infusion of umbilical stem cells for Ollie, who is non speaking and has been diagnosed with high support needs. The procedure will cost Taylor $12,500, which has been raised largely through donations from family and friends. Taylor said that her heart's wish was that people would come to understand the weight these children carry in a world that was not designed to help them thrive. She has had family members chide her for seeking alternative therapies, which they have described as a little bit crazy. Her view is that I have to at least try. For those who pass judgment, I hope they will come to understand the lengths we must go to simply because no one else will. For me, dude, this really feels like a pray, the gateway. Like that's what this sort of feels like. And I do really feel for a lot of families that are out there, but I just, I just don't think this is the right way to do it. I really, really don't like it. Of course, it's so much money and you do not know. And like what it was saying earlier, it was like there could be risks of infections, there could be risks of like tumors. Like is autism so bad that people are willing to risk life and death?
Brock Ciarle
I, I think that that's the point I was trying to make is the fact that like the, the media, especially in the US has, has made it out that, you know, that there are which there are some severely debilitated autistic people in the world. They are there, they exist. Why they're like that, I don't know. Maybe that needs to be looked at. It's not vaccines and it's not metals and baby food and because people like that have been around way before any of those things, mate.
Neurodivergent Experience Host
I was literally just reading an article on the conversation that was talking about like 1600 literary people. And they were like, they're obviously neurodivergent just from like their diaries and their writing style and.
Brock Ciarle
Yeah, so like, you know, nothing causes autism. It's, as we know, it's like, well, I mean, it's neurodivergence and autism is part of it. It's, it's just part of evolution. It's just a different type of human. And some of us are severely debilitated.
Ira Madison III
But.
Brock Ciarle
Because when a child is four, but
Ira Madison III
four,
Brock Ciarle
Every single neurodivergent person I know, right. Is younger in their mind and has taken longer to reach neurotypical standard milestones.
Neurodivergent Experience Host
Right.
Brock Ciarle
They might reach other milestones way quicker. Like, if it's your special interest, you, you could end up being a professor of science by the time you're 16. For God's sake.
Neurodivergent Experience Host
I could read four books at 6. Couldn't tie my shoelaces till I was 10.
Brock Ciarle
Exactly. That love, love that example. That's a perfect example. But no one is looking at you reading books and everyone is judging you on your shoelace and telling you that you're disabled because you're wearing Velcro shoes, not because you've read War and Peace by the time you're nine years old. I mean, I read the entire Bible when I was eight. The entire Bible when I was eight. But socially I was completely inept and I was bullied a lot. But if, if you are a parent, especially in the US or undeveloped countries, I get a lot of stuff from people messaging me from Africa and parts of India and you know, they're like, oh, no one understands. I mean, in some parts of Africa they think there's, there's like a demon in the child. And I'm like, oh my God, it's 2026, people. Would you catch up already? Internet exists, such decent things. But these parents, like I said, the algorithm runs your life. It decides what you think. Now you don't get to think for yourself. If you're on social media or, you know, you, you, you've, you've got like a history of searching for things, whatever your phone is going to show you via news, via YouTube, by Twitter, via Facebook, via Instagram, freaking tick tock. It's going to show you the last thing you looked at and what you were interested in. So if you're looking at, my son's severely disabled, how do I help him? You're only going to get that crap. And because the people that are running the social media are a bunch of fucking evil bastards, they're going to Send you negative stuff, you're only going to get negative things because negativity is popular. People click on it. It's clickbait and they're going to get clickbait and people don't know what they're doing. And then you've got AI. And you trusting the government, you might trust rfk, you might trust Donald Trump, you might TR this obvious, absolute piece of woman who's running this company. They are just profiteering. That's it. No one cares about you. They only care about what they can get off you. And. And bleeding families who have disabled children dry is one of the most disgusting things on the face of this planet. And yet they're all like, I'm happy for this to happen. I might get my son back. You never lost him, sweetheart. You just got Ben. You might actually damage your son.
Neurodivergent Experience Host
You might lose him by doing this.
Brock Ciarle
You might damage him even more. He might die because of this, because it's not freaking scientifically proven, but that is the America that these people are living in nowadays.
Neurodivergent Experience Host
Yeah.
Brock Ciarle
I feel so, so sorry for. For. For.
Neurodivergent Experience Host
Oh, man. I've got a couple of American friends and sometimes I talk to them and I'm just like, man, some of the.
Brock Ciarle
I'm like, come over here. Oh, yeah, I've said to great, but it's better.
Neurodivergent Experience Host
It's better than that. Yeah. Like, I mean, I've had conversations with my mum where she was like, I'm actually really glad that you got diagnosed later in life, that if you got diagnosed at 6, we would have put you in ABA, because that's what we thought would have been the right thing to do. And she went, and I know that that would have been the worst thing we could have done for you. And she's like, I know that now, now that you're an adult, and I can see that the life that you've lived and the, you know, the things that you've achieved, she went, but when you were five, six years old, she went, you would believe anything to help your kid. If somebody was, you know, literally shining a light in your face all the time going, evil, incurable condition has stolen your child. We will get your child back for human monies.
Brock Ciarle
Like, yeah, if anyone's listening and they're on the fence or they're thinking about doing something like this to help their child, I've got, like, a really easy way of figuring out what you should do, right? So you say, okay, somebody is telling me one thing and another person is telling me the other thing. Which one of those Wants your money. Because if people are saying opposite things, One's a professional scientist who's making a career of doing scientific research, doesn't want anything from you, doesn't want your money, doesn't want your cash. Would love to help you if they could, but doesn't want anything from you. The other is a businesswoman who makes alcohol, and she wants your money and she wants your cash. It's not rocket science, people. It doesn't need to be. You just have to think. If there are two people who are telling you opposite opinions, and one doesn't want anything other than to help you, and the other one wants you cash if they help you, it's. I mean, come on.
Neurodivergent Experience Host
Simple for me, that.
Brock Ciarle
It's so simple. The fact is, I'm not out here selling a course. I'm not out here going, give me money and I'll tell you the best thing to do for your autistic child. I'm out here giving away a podcast for free.
Neurodivergent Experience Host
Oh, yeah. I couldn't have said it better. We're doing this because we're like, I wish somebody had told me this sooner.
Brock Ciarle
Enjoy the information we're spreading. Enjoying it. I mean, I'm going to talk about synaptic pruning because I'm invested in it, or I've got, like, shares in synaptic pruning or whatever. I'm not invested in it. If you don't believe me, you don't believe me. If you do, you do. It's cool. I'm just saying the facts. I'm not. I'm not making it up. I'm literally just. I've did the research. I'm looking at the facts. I know how it works, and I'm telling you about it. I'm not invested in. In whether it convinces you or not. You can either listen or not. I'm not making money from it. So if you don't believe me, then you don't believe me. But if. If you believe the people that are like, oh, we'll put freaking stem cells in your kid. Just give us some cash, you know? Come on, people, figure it out.
Neurodivergent Experience Host
It was making me think of the south park episode with Christopher Reeves.
Brock Ciarle
Oh, my. Yeah, Straight away, I thought of that
Neurodivergent Experience Host
and I was like, he's like,
Brock Ciarle
so gross.
Neurodivergent Experience Host
Right on that. No. Ladies and gentlemen and anyone that's listening, thank you for tuning in. And again, just be careful out there. Please be careful out there. If people don't want your money, they just want your help. Maybe listen to those guys over the ones that are going to charge you a off bill. This has been your hot topic for this week. We will be back next week. Take care, be kind, be safe nightly.
Brock Ciarle
Bye.
Neurodivergent Experience Host
Thanks for tuning in to the neurodivergent Experience. We hope today's episode sparks something for you. Whether it's a new idea, a bit of validation, or just a moment of connection. Remember, new episodes are every week, so be sure to join us for the next one for more conversations and insights into the neurodivergent Experience. If you've enjoyed this podcast, help us grow. You can do that by rating and reviewing this show. Your support makes a huge difference in helping us reach more people who could benefit from these conversations. You can connect with us on social media, find us on Instagram, Facebook, Tik tok. Just search for the neurodivergent Experience. Thank you again for listening and until next time, take care of yourself. You're not alone in this journey.
Ira Madison III
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Neurodivergent Experience Host
acast powers the world's best podcasts. Here's a show that we recommend.
Eden Scher
I'm Eden Scher.
Brock Ciarle
And I'm Brock Ciarle.
Eden Scher
We played best friends on the Middle
Brock Ciarle
and became best friends in real life.
Eden Scher
We're here to re watch the Middle with all of you.
Brock Ciarle
Each week we'll recap an episode with behind the scenes stories, guest interviews and what we think.
Eden Scher
Now, many years later, there's a lot to dive into. So let's get to middling.
Neurodivergent Experience Host
ACAST helps creators launch, grow and monetize their podcasts everywhere. Acast.comacpm thanks for listening. Support autistic led media through Autistic Culture plus and enjoy bonus content, early episodes and ad free listening. Visit autisticculture.supercast.com to learn more.
Episode: Hot Topic: Unapproved Stem Cell Treatments for Autism
Hosts: Jordan James & Simon Scott
Date: June 26, 2026
This episode tackles the controversial rise of unapproved stem cell treatments for autistic children, focusing on the scientific, ethical, and social dimensions. Hosts Jordan and Simon dissect recent news, particularly a Guardian article highlighting U.S. clinics offering expensive and unproven infusions, and the influence of public figures and regulatory loopholes driving demand for such therapies. The episode serves as both a critique of predatory “cure” markets and a rallying call for informed, compassionate advocacy within the neurodivergent community.
"Families are paying anywhere between $12,000 to $20,000 per session, often motivated by hopes that the treatment could improve communication, behaviour or quality of life for children with high support needs."
— Neurodivergent Experience Host ([03:31])
"The US is being run by the biggest con men in the history of this fucking planet."
— Brock Ciarle ([06:11])
"Is autism so bad that people are willing to risk life and death?"
— Neurodivergent Experience Host ([16:54])
"The clinic tells prospective clients that the legislation allows patients...such as autism, to be treated with unapproved drugs. In fact, the right to try act is specifically limited to patients who are terminally ill."
— Neurodivergent Experience Host ([14:37])
"You don't know your kid is autistic at 18 months. You...have no idea what sort of autistic they're gonna be. I mean, crying out loud, 18 months. You're not giving them any bloody chance."
— Brock Ciarle ([07:54])
"My friend didn’t form a sentence until he was like 8 years old and they can’t shut him up now."
— Neurodivergent Experience Host ([13:16])
"If people are saying opposite things, One's a professional scientist...doesn't want anything from you...The other is a businesswoman who makes alcohol, and she wants your money...It's not rocket science, people."
— Brock Ciarle ([23:00])
On Policy Figures:
"Actual snake oil salesman, bonafide conspiracy theorist, flat earth plonker."
— Brock Ciarle ([04:58])
On Personal Stories:
"I could read four books at 6. Couldn't tie my shoelaces till I was 10."
— Neurodivergent Experience Host ([18:46])
On Parent Guidance:
"If anyone's listening and they're on the fence...Somebody is telling me one thing and another person is telling me the other thing. Which one of those wants your money?"
— Brock Ciarle ([22:47])
On Family Desperation:
"...if you are a parent, especially in the US or undeveloped countries...the algorithm runs your life. It decides what you think. Now you don't get to think for yourself."
— Brock Ciarle ([20:07])
The hosts urge families to seek evidence-based practices, to be wary of anyone offering “miracle cures” for a price, and to critically assess who really benefits from medical and therapeutic interventions for autism. They underscore the importance of neurodivergent-led advocacy, nuanced support for families, and resisting dehumanizing narratives in media and politics.
Closing Message:
"We're doing this because we're like, I wish somebody had told me this sooner...If people don't want your money, they just want your help. Maybe listen to those guys over the ones that are going to charge you a off bill."
— Neurodivergent Experience Host ([24:24], [25:27])