A conversation with Carol Roopchandsingh

He never stopped fighting. Neither will she.

Matthew Roopchandsingh - known to many as Lil Roopie - lived for nearly thirty years with Duchenne Muscular Dystrophy. He built a YouTube channel, designed his own logo, and spent his life reaching out to others with disabilities, telling them never to give up hope.

He passed away on November 14th, 2024.

His mother, Carol Roopchandsingh, was his caregiver, his advocate, and his guardian. She worked three jobs. She slept in hospital chairs. She fought insurance companies, dismissive doctors, and a system that too often asked: why provide care to someone who will never get better?

Today, on our milestone 100th episode, Carol bravely sat with Dr. Fethke to bring Matthew's story out of the shadows - and to make sure his legacy is just beginning.

I am honored to introduce Carol Roopchandsingh.

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We spoke about the long and painful road to Matthew's Duchenne diagnosis, the systemic failures that denied him the equipment, therapy, and support he needed, the emotional and physical toll of caregiving with no safety net, how Matthew channelled his condition into a platform of advocacy and joy, and Carol's vision for a foundation in his memory - to fight for every person who lives with disability, that the system forgets.

Lil Roopie’s YouTube Channel: https://www.youtube.com/@lilroopie/featured

Follow me on Instagram and Facebook @ericfethkemd and checkout my website at www.EricFethkeMD.com.

My brand new book, The Privilege of Caring, is out now on Amazon! https://www.amazon.com/dp/B0CP6H6QN4