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A conversation with Indu Navar

We have to care to cure!

Indu Navar is the founder of EverythingALS and a leading voice in patient-driven ALS research.

After losing her husband to ALS following a long and exhausting diagnostic process, Indu turned her background in technology and data systems toward fixing what she saw as a broken approach to ALS care and research.

She takes us through the history of the disease, before highlighting how her company is spearheading a patient-led data revolution - updating decades-old medical research on ALS with information direct from our patients' lived experiences.

—

We spoke about what has changed in ALS research in 2026 and why it matters for patients, how a lack of traditional biological biomarkers and a reliance on elimination-based testing has meant both diagnosis efficacy and treatment options have stalled, and how patient-driven research is reshaping discovery, trials, and treatment pathways.

Follow me on Instagram and Facebook @ericfethkemd and checkout my website at www.EricFethkeMD.com.

My brand new book, The Privilege of Caring, is out now on Amazon! https://www.amazon.com/dp/B0CP6H6QN4