Just days after sharing a positive update about our mom's dementia care, everything changed.

In this episode of Your Brain on Mom, we discuss a shocking conversation with a social worker who told us the nursing home was unhappy about our podcast and wanted us to stop talking about our experiences. The problem? The person making the accusations admitted they had never actually listened to the show.

We dive into the challenges families face when advocating for loved ones living with dementia, the fear of speaking out about long-term care, and why so many caregivers feel pressured to stay quiet. We also share a series of frustrating incidents involving a room camera, communication breakdowns, and ongoing concerns about accountability inside the nursing home system.

Along the way, we discuss our mom's pseudo-bulbar affect, the realities of comfort care versus behavioral care, and the emotional complexity of trying to ensure dignity, safety, and happiness for a parent living with dementia.

If you've ever felt dismissed, questioned, or labeled as "difficult" simply for advocating for someone you love, this conversation will feel very familiar.

About the Podcast

Your Brain on Mom is a podcast hosted by siblings Wendy and Barry as they navigate the challenges, heartbreak, humor, and unexpected moments of caring for their mother living with dementia. Through candid conversations and real-life stories, they explore caregiving, dementia advocacy, family dynamics, long-term care, and the realities of supporting an aging parent.

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