Podcast
Redefining Dementia
Hosted by Person Centred Universe · EN
Just as Person Centred Universe’s educational and consultation work, the aim of the Redefining Dementia Podcast is to strive toward a better world for those affected by dementia. When consuming resources or media about dementia, the focus is often on the challenges, stigma and fear that may accompany a diagnosis of dementia. This podcast seeks to shift that narrative to focus on and celebrate living well with dementia and what that means for caregivers as well. Through the sharing of stories,
resources and helpful life experiences, the podcast will look to connect with the audience to provide helpful and meaningful takeaways.
resources and helpful life experiences, the podcast will look to connect with the audience to provide helpful and meaningful takeaways.
10episodes
Episodes
Newest firstAll episodes
Michael Booth: Choosing Empathy Over Apathy in Young Onset Dementia
Jun 1201:00:48Tap to summarizeWhen Michael Booth was diagnosed with young onset Alzheimer’s at 46, his world changed almost instantly—he lost his job, his driver’s license, and a sense of stability. But instead of letting the diagnosis define him, Michael chose to reshape it into purpose.Drawing from his unique experience as both a former caregiver and someone now living with Alzheimer’s, Michael speaks candidly about identity, grief, and the power of acceptance. This episode is both grounding and uplifting, offering practical wisdom for anyone navigating dementia—personally or professionally.We talk about:Giving yourself time to process before making life decisionsLiving in the present rather than fearing the futureThe specific challenges of young onset Alzheimer’sFinding joy and purpose through new interests and advocacyHis book Dementia: You Are Not Alone and why he wrote itMichael’s message is clear: behind every diagnosis is a whole person—and we owe it to each other to meet dementia with empathy, not apathy.Resources & Links:🔹 Michael Booth – Connect & Learn MoreLinkedIn: Michael Booth on LinkedInYoung Dementia Network Profile: Michael Booth – Steering Group Member📖 BookDementia: You Are Not Alone by Michael Booth A practical and personal guide offering support, understanding, and insights from someone living with young onset Alzheimer’s. 🛒 Available here:Amazon📰 Featured ArticlesBBC News – “Man diagnosed with dementia aged 46 after watching TV show”Yahoo UK – “Memory loss made me feel lonely and isolated”Journal of Dementia Care – Book FeatureAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Donna Schoenherr: The Power of Dance in Dementia Care
May 2900:42:10Tap to summarizeWhen words fail, movement speaks. This powerful idea lies at the heart of our conversation with Donna Schoenherr, award-winning dancer, choreographer, and founder of Ballet4Life® and Move into Wellbeing®, two London-based organizations bringing the joy of dance to people of all ages and abilities. Inspired by her father’s 30-year journey with Parkinson’s, Donna has spent decades creating inclusive spaces where movement becomes a bridge to connection, confidence, and joy. In this episode, she shares moving stories—from a former principal dancer rediscovering her spark despite early dementia, to a once non-verbal gentleman gradually engaging in class after months of silence.What sets Donna’s approach apart is its openness. She enters each class without assumptions, watching for the smallest cues that might open the door to engagement. Her work invites us to reimagine what’s possible—not through complex techniques, but through creativity, presence, and play.We discuss:How Donna’s personal journey led to founding two pioneering dance organizationsWhy improvisation, mirroring, and sensory cues can be more powerful than structured routinesHow touch, music, and storytelling help restore connection for people with cognitive challengesPractical ways to bring movement and creative expression into everyday dementia careThe growing momentum in dementia-inclusive arts programs across the UKDonna’s story is a beautiful reminder that care doesn’t always begin with words—it can begin with rhythm, gesture, or a shared moment of movement.Subscribe and join us every other Thursday as we continue redefining dementia, one conversation at a time.Donna's Organizations:Move into WellbeingBallet4LifeDonna's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Dr. William Randall: Aging as Adventure - Reframing Life's Later Chapters
Apr 17, 202500:58:12Tap to summarizeDr. William Randall returns to Redefining Dementia with a perspective that turns conventional wisdom on its head: what if aging – and by extension, dementia – isn't a narrative of decline but an adventure?With his background in gerontology, theology, and psychology, Dr. Randall guides us through a thoughtful exploration of adventure as a framework for understanding later life. He defines adventure as "any venture that takes us outside our comfort zones," involving elements of uncertainty and unpredictability – qualities certainly present in the dementia journey.The conversation unfolds around four distinct directions of adventure that aging invites us to experience. There's the adventure outward through new experiences and activities; the adventure backward through life review and reflection; the adventure inward through deeper spiritual questioning; and perhaps most profound, the adventure forward as we approach life's final transition.For caregivers and loved ones supporting someone with dementia, this framework offers a refreshing perspective. Rather than focusing exclusively on loss, Dr. Randall suggests viewing dementia as part of a natural process of letting go – of possessions, of illusions about ourselves, and even of our stories. This doesn't minimize the challenges but provides a different lens through which to understand them.Throughout our discussion, Dr. Randall emphasizes that people living with dementia maintain their "narrative citizenship" even when unable to tell their stories conventionally. He encourages caregivers to become "story companions" who honor each person's unique reality rather than trying to force them back to ours.This conversation will leave you questioning assumptions about aging, memory, and consciousness itself. As you listen, consider how shifting from a mindset of decline to one of adventure might transform your approach to aging or caregiving. How might we honor the wisdom that each person brings – however it's expressed – as we journey together through life's greatest adventure?Dr. William Randall's WebsiteAlive Inside VideoAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Anne-Marie Stoneburgh: Making a Good Day Great
Apr 3, 202500:45:07Tap to summarizeWhat does it really mean to make a good day great for someone living with dementia?In this thoughtful and inspiring episode, Anne-Marie Stoneburgh brings over 35 years of experience in geriatric care to the conversation. As an educator, consultant, and advocate for person-centred care, she shares practical strategies that honour the unique identity, preferences, and strengths of each person.Through real-life stories and gentle wisdom, Anne-Marie shows how small, intentional choices — from the language we use to the way we adapt daily routines — can create moments of dignity, connection, and joy. Whether it’s supporting someone to continue a familiar hobby or adjusting an activity to reflect changing abilities, her approach is rooted in respect and responsiveness.We explore topics like communication, environment setup, and the delicate balance between supporting someone and encouraging their independence. Anne-Marie’s mantra, “The more you do for me, the more you steal from me,” offers a powerful reminder about the importance of autonomy in care.Whether you’re a care partner at home, a professional in a care setting, or simply someone who wants to show up more meaningfully for a loved one, this episode offers valuable insight into how thoughtful adjustments can truly transform the caregiving experience — one moment at a time.Anne-Marie's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Dr. Patricia Morris: Rethinking Dementia as Neurodivergence & Care Through Connection
Feb 6, 202500:38:46Tap to summarizeDr. Patricia Morris from the University of New Brunswick joins us to challenge traditional narratives about dementia. What if dementia isn’t just a disease but a unique form of neurodivergence that calls for a fresh, more compassionate perspective? In this thought-provoking episode, we explore how shifting our understanding can transform dementia care from symptom management to a journey rooted in connection, dignity, and belonging.Dr. Morris is an Assistant Professor in the Faculty of Nursing at the University of New Brunswick (UNB). She earned her Bachelor of Nursing (BN) in 2015 and Master of Nursing (MN) in 2021 from UNB. In 2021, she was awarded the prestigious Vanier Canada Graduate Scholarship, valued at $50,000 per year for three years, to support her doctoral research in gerontological nursing. Her research focuses on the experiences of residents with dementia who decline personal hygiene care in long-term care facilities, exploring the complexities of autonomy, power, and vulnerability in these interactions. Dr. Morris’s work aims to enhance person-centered care practices and improve the quality of life for older adults living with cognitive impairments.Together, we discuss the power of language in shaping perceptions, the importance of truly knowing a person’s history and preferences, and how safety extends beyond the physical to include emotional well-being. Dr. Morris shares practical strategies for fostering trust, co-regulation, and meaningful relationships—reminding us that caregiving is not just about support, but about honouring the rich narratives of those living with dementia.In This Episode, We Explore:• Dementia as a syndrome rather than a singular disease• The significance of viewing dementia through the lens of neurodivergence• How language influences perceptions and experiences• The role of social connection in combating isolation• Prioritizing felt safety in care partnerships• Practical strategies for co-regulation in caregiving• Maintaining relationships and trust in dementia care• A vision for a future where individuals feel safe, valued, and seenAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Jim Kinsey: Navigating Grief and Embracing Joy Through the Dementia Journey
Jan 23, 202500:45:18Tap to summarizeIn this deeply moving episode of Redefining Dementia, we welcome back the insightful and compassionate Jim Kinsey. With over 20 years of experience in healthcare consulting and a passion for person-centered care, Jim brings a wealth of knowledge and heartfelt reflections on the complexities of grief in the dementia journey.Together, we explore how anticipatory grief—the unique type of grief experienced when caring for someone with dementia—differs from other forms of loss. Jim offers invaluable perspectives on recognizing grief not only in care partners but also in those living with dementia, emphasizing the power of empathy, support, and connection.Key Topics Discussed:Understanding the concept of anticipatory griefDifferences between traditional grief and dementia-related griefRecognizing grief in those living with dementiaPractical coping strategies and support for care partnersFinding joy amidst the challenges of caregivingEmbracing vulnerability and sharing emotions during griefThe importance of presence and compassion in the dementia journeyJim’s thoughtful insights will leave you feeling comforted and empowered, whether you’re a care partner, healthcare professional, or someone navigating the dementia experience.Take time for yourself, embrace the moments of joy, and know that your journey matters.Tune in to this impactful conversation with Jim Kinsey—an episode that’s sure to resonate deeply with anyone touched by dementia.Jim's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Kari McBride: A Daughter's Perspective on Caregiving and Dementia
Jan 9, 202500:50:53Tap to summarizeKari McBride shares her heartfelt journey as a daughter caring for her mother with dementia, offering an honest and compassionate perspective on the challenges and silver linings of caregiving. In this episode, Kari reflects on the early signs of her mother’s dementia, the emotional complexities of transitioning to long-term care, and the enduring importance of connection. She also highlights the role of advocacy in fostering dignity and compassionate care for individuals living with dementia and their families.Key Topics Covered:Kari McBride’s personal caregiving storyRecognizing early dementia symptoms and navigating challengesThe emotional realities of transitioning to long-term careMaintaining connection and cherishing meaningful momentsAdvocating for compassionate dementia care and supportKari’s hopes for better resources and open conversations about dementiaKari's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Dr. Mike Studer: The Brain That Chooses Itself
Dec 19, 202400:50:45Tap to summarizeJoin us for an enlightening episode with Dr. Mike Studer, a renowned physical therapist and pioneer in neurologic and geriatric rehabilitation. Drawing on decades of expertise, Dr. Studer shares cutting-edge strategies for fostering cognitive resilience, enhancing brain health, and maintaining mobility.We explore insights from his book, The Brain That Chooses Itself, delving into the profound impact of intentional activity on both mental and physical well-being. Whether you're navigating neurological conditions like dementia and Parkinson's or simply seeking to optimize your brain health, Dr. Studer offers actionable advice tailored for everyone.Discover how to integrate exercise into your daily life with methods like habit stacking, while understanding the critical role of physical and mental stimulation in preventing cognitive decline. Dr. Studer also sheds light on how outdated care practices and inactivity can hinder progress, encouraging us to rethink how we engage with our bodies and minds.Learn about the importance of a balanced lifestyle—one that includes diverse activities, such as boxing or community gardening, alongside adequate rest. Dr. Studer explains the synergy of proper sleep, nutrition, and exercise, including the remarkable benefits of high-intensity interval training, in maintaining brain health and vitality.Tune in to gain practical tools and inspiration to create a fulfilling, vibrant life at any stage—because a resilient mind starts with the power of choice.Dr. Mike's LinkedInDr. Mike's Instagram ProfileDr. Mike's TED TalkDr. Mike's latest publication: The Brain That Chooses ItselfAbout our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Rahzeb Choudhury: Volunteering, Narrative Care, and Connection in Dementia Care
Dec 5, 202401:07:18Tap to summarizeHow can the simple act of sharing a story or making a meaningful connection transform the dementia journey? In this deeply moving episode, we’re joined by Rahzeb Choudhury, co-founder of True Doors and a lifelong advocate for compassionate care. Rahzeb shares his journey from volunteering to becoming a leader in social enterprise, weaving together his passion for narrative care and the profound power of human connection.Through his reflections, Rahzeb reveals how understanding and celebrating individual stories can help create environments that foster belonging and joy for people living with dementia. His work with True Doors highlights the importance of personalizing care spaces to honor the identities of residents, bringing dignity and a sense of home to long-term care settings.Rahzeb’s heartfelt perspective reminds us that the essence of care lies in the connections we nurture. Inspired by Christine Bryden’s Dancing with Dementia, he discusses how rediscovering our core selves—unburdened by life’s distractions—can open pathways to meaningful relationships. From the role of volunteers in breaking down barriers to the healing power of kindness, Rahzeb illustrates how even small, intentional acts can have a transformative impact.We also explore his work with Lifelong Inspiration, where initiatives like the One Page Profile Masterclass and Tai Chi practices bring creativity and calm to care settings. Each of these projects is a testament to Rahzeb’s belief that care is about more than meeting physical needs—it’s about creating spaces where every person’s story is honored and celebrated.This episode is a heartfelt tribute to the importance of seeing the individual, fostering connection, and embracing the narratives that make us who we are.Links Mentioned in the Episode:Connect with Rahzeb Choudhury on LinkedIn.Learn more about True Doors.Explore Dancing with Dementia by Christine Bryden.About our Hosts:https://www.personcentreduniverse.com/about/
Transcribe →Dr. Rob Winningham: Physical & Cognitive Health in Dementia
Nov 21, 202400:30:55Tap to summarizeJoin us as we delve into the fascinating world of cognitive health with Dr. Rob Winningham, a leading expert on memory and aging. With over 30 years dedicated to understanding memory processes and promoting healthy aging, Dr. Winningham shares powerful insights into how specific cognitive and physical exercises can boost memory and potentially slow down dementia progression.Holding a Ph.D. in neuroscience from Baylor University, Dr. Winningham has spent much of his career at Western Oregon University, where he was instrumental in creating the Gerontology Department and served in various leadership roles, including Dean of the College of Liberal Arts and Sciences and Provost and Vice President for Academic Affairs. His extensive research has been published widely, and he has trained thousands of professionals in cognitive rehabilitation and wellness programs, presenting over 1,500 talks on memory and aging.In this episode, Dr. Winningham explains how targeted cognitive stimulation, especially for those in the early stages of cognitive decline, can be as essential for brain health as physical workouts are for the body. He discusses activities that strengthen executive functions, revealing a "sweet spot" for therapeutic interventions that support ongoing cognitive improvement.We also explore the concept of dual tasking—a groundbreaking approach that combines cognitive and physical activities to enhance brain function, making everyday tasks more automatic. Through tools like SmartFit and Dividat, these exercises bring dual tasking to life, transforming lives by enhancing cognitive and motor skills simultaneously. By incorporating such dynamic exercises, Dr. Winningham demonstrates how delaying the onset of dementia can significantly reduce disease prevalence and improve quality of life.Alongside his expertise, Dr. Winningham’s books, Train Your Brain: How to Maximize Memory Ability in Older Adulthood and Cranium Crunches, offer further resources for those interested in boosting cognitive health. Available on Amazon, these works provide practical advice for memory enhancement at any age.With Dr. Winningham’s wisdom, we explore how fostering environments that promote dignity and autonomy can enrich lives affected by dementia, providing promising pathways to a healthier aging process.Links to additional resources:Dual Tasking MenuPersonal Advance Directive for Quality of LifeDr. Rob Winningham LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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