Podcast
The MS Trust podcast
Hosted by MS Trust · EN
Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.
Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.
Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.
Listen now for helpful information on symptoms, treatments, updates and a whole lot more.
20episodes
Episodes
Newest firstAll episodes
Fear of falling with MS - and what to do if you do have a fall
Jul 21, 202501:14:16Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Worried about falling or unsure what to do if you do fall? You're not alone. Falls are a common concern for people living with multiple sclerosis.In this episode, expert physio Hilary Gunn breaks down why people with MS are more prone to falling. Discover how to spot the early warning signs and learn what steps to take if a fall occurs. We also delve into simple, effective strategies to build strength, boost confidence, and help you keep moving safely with MS. Listen now to hear real life stories, expert information and more.Donate to the MS Trust to support this podcast - donate.mstrust.org.uk Episode notesFalls mstrust.org.uk/a-z/falls - information from MS TrustBalance mstrust.org.uk/a-z/balance - information from MS TrustWill asks the expert about balance and dizziness mstrust.org.uk/information-support/podcasts/will-asks-expert-about-balance-and-dizziness - podcast from MS Trust Functional exercises to support everyday tasks mstrust.org.uk/information-support/exercise-ms/exercises-support-everyday-tasks - workout videos to help with getting up from the floor and balance Before beginning any new exercise or activity, please consult with your GP or MS care team. If you experience pain or discomfort, stop immediately and speak to your physiotherapist. Always listen to your body and make choices that are right for you.
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MS and relationships: balancing love and care
Jun 12, 202501:32:45Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Relationships can be complicated, even at the best of times. When one partner is living with MS, it can bring a whole host of new challenges as well as opportunities for deeper connection.In this podcast, we explore the emotional and practical realities of supporting a partner with MS, and how couples can support each other through changing dynamics.Psychologist Dr Ashley Brown joins us to share practical advice on how to open up conversations around intimacy, emotional support, and shifting roles in a relationship. She offers tips to help both partners feel heard, valued, and connected.We also hear from Sophie and Delvin, a couple living with MS. Sophie shares her experience of living with multiple sclerosis, while Delvin reflects on his role as the partner who supports her.Together, they speak honestly about how their relationship has evolved, the challenges they’ve faced, and the ways their bond has strengthened.If you live with MS or support someone in their journey, this podcast offers practical tips, shared experiences and re-assurance that you’re not alone. Listen now to hear real life stories, expert information and more.Donate to the MS Trust to support this podcast - donate.mstrust.org.uk Episode notesSupporting someone with MS - information for carers - information from the MS Trust - mstrust.org.uk/information-support/care-and-carers/information-for-carersCaring for someone with MS - Podcast from MS Trust - mstrust.org.uk/information-support/podcasts/caring-someone-msAnxiety and MS mstrust.org.uk/a-z/anxiety Relationships and MS mstrust.org.uk/news/expert/relationships-and-ms MS and your emotions: mstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotionsAdvance care planning - information from the MS Trust - mstrust.org.uk/a-z/advance-care-planningwww.relate.org.uk a uk counselling service www.gottman.com a website that offers a service designed to help couples overcome relationship challenges and enhance their communicationwww.cosrt.org.uk UK’s professional body dedicated to Psychosexual and Relationship Therapies
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Understanding and managing spasticity and spasms in MS
May 19, 202501:15:29Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Spasticity and spasms are common MS symptoms that vary from person to person and can be challenging to understand and manage. In this episode, we explore how these symptoms can feel with the help of our MS community and what you can do about them. We asked MS specialist physiotherapist Wendy Hendrie to share her near 40 years of experience with us. We are very glad we did, because we learned such a huge amount. In fact, so much so that we can almost guarantee you will too in the next hour. And this know-how could make a real difference to the way you understand and approach your spasticity and spasms. She breaks these complex symptoms down in a way that’s easy to follow. She explores trigger factors, including pain – even pain you can’t feel due to loss of sensation – bladder and bowels, posture and positioning including pelvis alignment and head movement. Plus exercise, night spasms and the importance of getting medication reviews especially if you haven’t seen your MS team in a while.Episode notesSpasticity and spasms - MS Trust informationWhat do MS spasticity and muscle spasms feel like? - MS Trust informationManaging spasticity and spasms - MS Trust informationDownload or order our free book on Managing spasticity and spasms - MS Trust informationLearn what may be triggering your spasticity and spasmsThrower B et al.Recognition, Description, and Variability of Spasticity in Individuals With Multiple Sclerosis and Potential Barriers to Clinician-Patient Dialogue: Results From SEEN-MSS, a Large-Scale, Self-Reported SurveyInternational Journal of MS Care. 2024; 26 (2): 75-80SummaryPeer support: join our MS Trust Facebook community (public group)Peer support: join our Advanced MS Care and Support Facebook community (private group) Spoon theory explanation video
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MS awareness week 2025 - MS Conversations
Apr 30, 202500:44:32Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Talking about living with MS can be a tough thing to do, but open and honest conversations are vital in building understanding for the condition. In this special episode for MS Awareness Week 2025, we explore the power of MS conversations—why they matter and how they can make a difference. This MS Awareness Week, we're working with the MS Society, MS Together, MS-UK, Neuro Therapy Network, Overcoming MS, Shift.ms and Talks with M.S. to shine a light on conversations and why they're important. So in this episode Dr Claire Winchester, Head of Engagement at the MS Trust, joins us to discuss the essential resources available to help people navigate discussions about MS with friends, family, colleagues or health professionals. Plus, Helena sits down with the CEO and founder of MS Together Amy Thompson to reflect on real-life MS conversations they have had and the lessons learned from them.Tune in and be part of the dialogue!Show notesmstrust.org.uk/get-involved/ms-awareness-week - all information you need to get started having those important MS Conversations
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Living with progressive MS: therapies, treatments & daily strategies
Apr 22, 202501:02:53Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Have you been told "nothing can be done" to treat progressive MS? Then this is the episode for you. Join Nick and Helena as they debunk this myth with the expertise of neurologist Dr. Emma Tallantyre, exploring current medical and non-medical treatments, effective symptom management, and rehabilitation therapies. Plus, get the inside scoop on the MS Trust's new book, "Progression in MS," from its creators. Get informed, feel supported, and discover the resources available to help you make sense of progressive MS.Episode notesProgression in MS free book from MS Trustmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions - MS and your emotions info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group
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Bonus Episode: Real stories on how to come to terms with a Progressive MS Diagnosis
Mar 31, 202501:04:51Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this bonus episode, we share some people with MS journeys of coming to terms with a progressive MS diagnosis. Adam, who lives with secondary progressive MS, is joined by his wife and carer, Sharon. Together, they reflect on how they navigate the complexities of their shared experience, from the emotional challenges to the practical ways they've found balance and connection. Yvonne, living with primary progressive MS, opens up about how she dealt with her diagnoses, the initial shock and anger, and how she gradually discovered ways to regain a sense of control.Episode notesmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions - MS and your emotions info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group instagram.com/meyouandmultiplesclerosis - Adam and Sharon's instagram account
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How do you come to terms with a progressive MS diagnosis?
Mar 17, 202501:23:59Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Receiving the news that your MS is progressing can be a life-altering moment. In this podcast episode, we explore the emotional impact of this change and the journey towards acceptance and adjustment.Helena and Nick are joined by Dr Angeliki Bogosian, a health psychologist specialising in MS, who shares insights on coping strategies, the importance of psychological support, and how mindfulness can help with emotional adjustment.We also hear real-life stories from Adam and Sharon, as well as Yvonne, who open up about their experiences of living with progressive MS. From the initial shock and frustration to finding ways to regain control and maintain a fulfilling life, their stories are brimming with honesty and useful tips.Whether you're newly diagnosed, supporting a loved one, or navigating changes in your MS, this episode is here to remind you that you’re not aloneListen now for expert information, real-life experiences, and practical ways to move forward with confidence.Episode notesProgression in MS free book from MS Trustmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions - MS and your emotions info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group instagram.com/meyouandmultiplesclerosis - Adam and Sharon's instagram account
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What is advanced MS?
Feb 17, 202501:09:26Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39From challenges to special moments: advanced MS comes with a whole heap of them both. Listen now to hear three different perspectives: a person living with advanced MS, a carer and a health professional.We’re tackling advanced MS in this podcast episode of ‘Breaking it down’.Disclaimer: we discuss some sensitive topics in our interviews, including difficult MS symptoms and death.We hear from Advanced MS Champion, Michelle Black, about how she supports people living with MS and what she sees, day in, day out.Plus, Mark Webb talks us through his life with advanced MS, from indoor skydiving to daily challenges. We also catch up with Jen, who cared for her husband Dave until he sadly passed away. She takes us through their routine, community and those special moments together.Ready to learn alongside us and hear the stories from our guests? Listen now.Episode notesmstrust.org.uk/a-z/advanced-ms - info from the MS Trustmstrust.org.uk/health-professionals/programmes/advanced-ms-champions-programme - info about the MS Trust Advanced MS Champions programmewww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.onemanandhiscatheters.com - Mark Webbs bloggfacebook.com/groups/MSCarersClubUK- carers group on Facebook Jen talk aboutwww.n-compass.org.uk - organisation that helped Jen get counselling
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MS myths and jargon explained
Jan 21, 202501:19:37Summary readySend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Join us for a jargon busting, myth smashing podcast where we explore baffling multiple sclerosis terms and common misconceptions.Ever heard terms like PIRA, RAW, or smouldering MS that’ve left you scratching your head and asking for a translation to plain English?Better yet, have you been on the receiving end of a baffling tale involving one of the many MS myths out there? “My friend Gary told me that exercise is bad for MS, so don’t bother.”Yep, we’ve heard them all too. That’s why we’re here with a jargon busting, myth smashing podcast where we separate the wheat from the chaff, the fact from fiction and get to the honest truth. We interview consultant neurologist, Dr Kate Petheram who cuts through multiple sclerosis jargon to give us easily accessible information. Plus, we catch up with Stephen, who lives with MS, and Simon from the MS Trust team to dispel some common MS myths. Ready to learn more? Then listen now for all of the latest trusted information, tips and updates.Show NotesMS Trust HelplineMS Trust Shop - Here you can download all MS Trust publications for freeSupporting the MS Trust - information from the MS TrustMS Trust Facebook Group - join our facebook groupmstrust.org.uk/a-z/- MS Trust - Here you can find explanation of MS jargonmstrust.org.uk/information-support/about-ms/what-is-ms#myths-misunderstandings - MS myths and misunderstandingsmstrust.org.uk/news/focus-fact-or-fiction - Article written by Simon on how to fact check informationmstrust.org.uk/information-support/work-money-legal/working-life - MS Trust information about work and MSCall our free helpline on 0800 032 38 39 for practical information you can trust. Or email ask@mstrust.org.uk. We're here weekdays from 10am to 4pm, except bank holidays.
SummaryMS in the media Rachel Horne, Daf Wyn and Richard Sprenger
Feb 27, 2023Tap to summarizeSend us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Frustrated how multiple sclerosis is typecast in the media? We often hear that TV shows, newspapers and social media do not show the kind of MS most of you experience. So we asked three journalists with MS for their standpoint. Listen to our chat with Rachel Horne, Daf Wyn and Richard Sprenger - as we shine the spotlight on MS in the media, and why we think a more realistic approach is long overdue. Episode notes: - MS Trust News and stories: mstrust.org.uk/news-stories - Share your story with the MS Trust: mstrust.org.uk/news-and-stories/send-us-your-story - MS Trust Blog, What made Daf Wyn call his doctor?: mstrust.org.uk/news/stories/what-made-daf-wyn-call-his-doctor - MS Trust Blog, A sceptic's guide to wellness: mstrust.org.uk/news/stories/sceptics-guide-wellness - Guardian series; A sceptic's guide to wellness: theguardian.com/lifeandstyle/series/a-sceptic-s-guide-to-wellness - Rachel Horne Prize for Women's Research in MS: Rachelhorneprize.comNews & storiesStay in the know with the latest news, research and stories from the MS community. Find the information that matters to you, all in one place.mstrust.org.uk
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